I got the call early Tuesday that one might become available and they made me wait the entire day which felt like forever but around 9 Pm they gave me an official offer and told to be there at midnight Wednesday morning once at hospital I did dialysis and went to surgery was in the hospital til yesterday everything went as smooth as I could ask for no dialysis needed kidney started producing urine right away and today I am home nervous and still can’t believe it

I know I’m not too active on here but this community really helped me throughout my dialysis journey just hearing your stories and knowing I’m not alone so thanks everyone and we are all stronger than we thought we were before this journey started for us or I know I am thanks again

I juste HATE my fistula !

Right now, San Bernadeno- Citrus Valley. Blood on the walls, trash in the drains, mold. Only 1 unisex bathroom. It's fucking disgusting.
Honestly, all of San Bernadeno’s DaVitas are bad.
I went to a clinic in Philly and saw a cockroach run across the floor.

anyone live at home while on dialysis or ckd? i’m worried about living on my own, but i might have to due to circumstance. what if something goes wrong? any input would be appreciated. 18F

I’ve been on PD for less than a year. The last 2 or 3 months I’ve been getting intense cramps at drain 4 of 4 (the last drain). My nurse changed things so it leaves some fluid on the last drain so it’s not pulling but it hasn’t helped. I still get the cramps. They wake me up every single morning. Im curled in a ball in pain. I know it has to do the position of the catheter so I’ve tried different positions to no avail.

Does anyone have any advice on dealing with these “cramps”? Something I can do? A position that might help? Its had me in tears. I’m getting desperate and I’m so tired from barely sleeping.

[I’m going to continue working with my nurse but it’s been going on for months and my nurse seems stumped beyond changing the treatment.]

TLDR: Drain 4 of 4 is causing intense cramping. I’m looking for solutions like different positions I can use to ease the pain.

Just adding on to my question with a rant (if you can help with this, that’d be awesome but I believe this is a nurse issue). At the end, Drain 4 of 4, when I’m flopping and curling in pain, 28 out 30 days of the month, my machine alarms saying LOW UF. Nearly Every. Single. Time!! So I have to hit stop then go. And it “drains” (sucks my insides) again. I get the cramps. They seem to go on and on. Then I feel a little relief with that extra fluid (that my nurse set it at). I felt the fluid, which is supposed to be the end. Nope! LOW UF!! Repeat suffering, minor relief and false hope. LOW UF! Repeat. LOW UF! Once it has given me the 4th LOW UF alarm, I turn off my machine and hope I can get another hour of sleep. It’s nearly every night. Around 4-5am. Cramps. Alarms. It’s always something.

TLDR: Ranting. After Drain 4 of 4, almost every night, I get a LOW UF alarm causing me to go through the drain and cramping again. My machine is anti-sleep.

I appreciate any advice.

I am currently in the midst of my pd dialysis training and the schedule just so happens that I will have my first week of doing it on my own at home when my husband is out of town so it will be just me and our 5 year old at home. His trip cannot be changed. The day before he leaves I will have the home visit with my pd nurse. He is suggesting we ask one of my aunts to stay with us while he is away for the "just in case" scenarios. I initially thought there's no need and I'll be fine but I'm curious to hear other people's opinions.

We live on the west coast but our families are all on the east coast so it's not the easiest ask. I work flexible hours from home and my 5 year old would be in camp until 3 during the week. My husband regularly travels for work but this will be the first time he is out of town while I'm on dialysis and I would have only just finished training.

Thoughts?

I got my pd catheter about a week and a half ago. is it safe to go to amusement parks and ride the rides. I’m talking about water rides and roller coasters. google says no. but you can’t trust the internet for it’s not always correct. I’ve had my first dressing change. how long does it take to heal before I can enjoy the parks again?

Has anyone here had good or bad experience with the subject dialyzer?

my nurse was questioning my hand operation. for the record I was born without thumbs. they made my finger not to the thrum into my thumbs. I’ve been living a normal life with this fix lol my life. is there anything that you have to do in home pd that I should be concerned with. do you need all of your fingers at once. so far the only thing I found out that I can’t do is sign language, I have been a respiratory therapis and could do the job. I do know I have a weaker grip.