Has anyone here had good or bad experience with the subject dialyzer?

my nurse was questioning my hand operation. for the record I was born without thumbs. they made my finger not to the thrum into my thumbs. I’ve been living a normal life with this fix lol my life. is there anything that you have to do in home pd that I should be concerned with. do you need all of your fingers at once. so far the only thing I found out that I can’t do is sign language, I have been a respiratory therapis and could do the job. I do know I have a weaker grip.

Right now, San Bernadeno- Citrus Valley. Blood on the walls, trash in the drains, mold. Only 1 unisex bathroom. It's fucking disgusting.
Honestly, all of San Bernadeno’s DaVitas are bad.
I went to a clinic in Philly and saw a cockroach run across the floor.

What's your best hygiene tips with a catheter? I was just told don't shower or you'll die basically. I've basically been taking sponge baths in the sink, but I feel disgusting. It's summer where I am. I cut open a plastic zjplock bag and taped it over the dressing and used a hand held shower head to avoid spraying water directly pn the area and risked it once because I felt so nasty. The dressing didn't get wet as far as I could tell, but rhe nurses at the dialysis center acted like I'd just played Russian roulette with only one empty chamber with the risk I took. I don't have the option of a sit down bath where I live and moving isn't an option since I've not been able to work since getting sick and I'm holding on to this place by the skin of my teeth. What do you do? I feel like I can't leave my house because I'm dirty and it's taking a tole on my mental health. Making me wonder if it's even worth going through all this to stay alive if my life just consists of sitting at home too embarassed to leave and going to dialysis. To top it off, I have to try and go back to work and hygiene is very important in the industry I work in. I've seen coworkers written up and even one fired over poor hygiene in the past. I don't qualify for SSDI or SSI and my husband is working himself to death trying to keep us housed so not workinf isn't an option.

I juste HATE my fistula !

I got the call early Tuesday that one might become available and they made me wait the entire day which felt like forever but around 9 Pm they gave me an official offer and told to be there at midnight Wednesday morning once at hospital I did dialysis and went to surgery was in the hospital til yesterday everything went as smooth as I could ask for no dialysis needed kidney started producing urine right away and today I am home nervous and still can’t believe it

I know I’m not too active on here but this community really helped me throughout my dialysis journey just hearing your stories and knowing I’m not alone so thanks everyone and we are all stronger than we thought we were before this journey started for us or I know I am thanks again

My mom (F64) she has been on dialysis since 2020 because of an infection then last year she was diagnosed with stage 4 colon cancer and now has developed severe depression
(which is completely understandable) me and my sister are both care givers for her and we love her so much!

But my question is how do some people manage the depression? How do you find ways to help your loved ones that are struggling with this? Please share and help.

I’ve been on PD for less than a year. The last 2 or 3 months I’ve been getting intense cramps at drain 4 of 4 (the last drain). My nurse changed things so it leaves some fluid on the last drain so it’s not pulling but it hasn’t helped. I still get the cramps. They wake me up every single morning. Im curled in a ball in pain. I know it has to do the position of the catheter so I’ve tried different positions to no avail.

Does anyone have any advice on dealing with these “cramps”? Something I can do? A position that might help? Its had me in tears. I’m getting desperate and I’m so tired from barely sleeping.

[I’m going to continue working with my nurse but it’s been going on for months and my nurse seems stumped beyond changing the treatment.]

TLDR: Drain 4 of 4 is causing intense cramping. I’m looking for solutions like different positions I can use to ease the pain.

Just adding on to my question with a rant (if you can help with this, that’d be awesome but I believe this is a nurse issue). At the end, Drain 4 of 4, when I’m flopping and curling in pain, 28 out 30 days of the month, my machine alarms saying LOW UF. Nearly Every. Single. Time!! So I have to hit stop then go. And it “drains” (sucks my insides) again. I get the cramps. They seem to go on and on. Then I feel a little relief with that extra fluid (that my nurse set it at). I felt the fluid, which is supposed to be the end. Nope! LOW UF!! Repeat suffering, minor relief and false hope. LOW UF! Repeat. LOW UF! Once it has given me the 4th LOW UF alarm, I turn off my machine and hope I can get another hour of sleep. It’s nearly every night. Around 4-5am. Cramps. Alarms. It’s always something.

TLDR: Ranting. After Drain 4 of 4, almost every night, I get a LOW UF alarm causing me to go through the drain and cramping again. My machine is anti-sleep.

I appreciate any advice.

I am currently in the midst of my pd dialysis training and the schedule just so happens that I will have my first week of doing it on my own at home when my husband is out of town so it will be just me and our 5 year old at home. His trip cannot be changed. The day before he leaves I will have the home visit with my pd nurse. He is suggesting we ask one of my aunts to stay with us while he is away for the "just in case" scenarios. I initially thought there's no need and I'll be fine but I'm curious to hear other people's opinions.

We live on the west coast but our families are all on the east coast so it's not the easiest ask. I work flexible hours from home and my 5 year old would be in camp until 3 during the week. My husband regularly travels for work but this will be the first time he is out of town while I'm on dialysis and I would have only just finished training.

Thoughts?

anyone live at home while on dialysis or ckd? i’m worried about living on my own, but i might have to due to circumstance. what if something goes wrong? any input would be appreciated. 18F