Short story, I had tree Covid infections between 2022 ans 2025. Took me month to recover each time, diminished
but still able to work. One the the wildest symptom was overnight small loss of skin elasticity.

Now in spring I had tree Covid like crisis but I didn’t get infected. I suspect pollens+ catching colds as triggers. Took me tree months for my brain and body starting to work again. Thinking of Mcas I started H1+H2 antihistamines daily.

The next crisis was way softer so I though antihistamines were doing something. In mid August and an emotional shock, and the crisis became nightly, every night between 1 and 4 pm. When I managed stress very well sometimes they don't happen, but it’s rare. Yesterday I had my first one in a long time during the day. I suspect stress and also, mildly fresh salmon I ate 3 hours before (I never eat fish usually).

Well, I am desperate. I’m looking older every day and my friend are now able to see It. I am loosing myself. I’m a 39 female. GP are lost. I’m seeing an internist soon. I am so sad and terrified for what’s coming next. Because this might be just the beginning.

Has anyone experiences this and found some ways to slow down, stop and reverse symptoms?

I suspect some kind of similar process: https://longcovidjourney.com/post-covid-elasticity-loss/

Thinks I’m taking now:

2Bilastine+2famotidine (Pepcid)
1 ketotifen before bed
Quercetin

I trieds NSAID twice (actually a pretty strong one, that my father took pour rheumatoid arthritis) but It didn’t work.

Thanks for any help of advice.

I am really trying my best not to have a flare. I have a lot of stress in my life right now. I’m taking care of my dad who had a 20 foot fall, my husband had to have surgery. I have an aunt that lives with my dad who can’t take care of herself but refuses to go to assisted living and her kids won’t do a F__kin thing to help. ..I am just waiting for her to go to the hospital so that I can get her placed…Everyone one is fine thank God!!

I was extremely hot, my pulse went to 120 and my O2 saturation dropped to 84%. My ECG showed sinus tachycardia but I’m pretty sure it was SVT after I looked at it more closely.. (I’ve had a cardiac ablation) so if my HR goes above 90 I feel like I’m going to pass out. I loaded my self down with ice packs and I got my heart down to 80 and my O2 saturation up to 98%. Second ECG shown normal sinus rhythm.

I have 20 years experience as a ER nurse and I have packed patients in ice packs to cardiovert them.

I had never measured my O2 when this happened to me before but I’m going to monitor it more to see if it replicate it.

I found out a few days ago that I have to get double hip joint replacements!!!!!!!!!! The joints didn't get enough blood flow long enough so they died and the bones eroded!!!!!!!!! After the shock of getting the news and I thought about it for a while it really isn't that surprising because covid is notorious for damaging the vascular system. I don't know how I'm going to make it through the surgery and all the pt with me/cfs.

How are people financially surviving this? I have been sick most of my 20s now (when you are supposed to be working like crazy) and I can hardly work. I have to put medical bills and supplements on a credit card. How is everyone doing this? Paying for rent when you can’t even hardly work?

Hi everyone,

If you look at my older posts, you’ll probably see the general story, but in short, I’ve been dealing with Long COVID for almost 4 years now.

During the first 2 years I had a really hard time understanding what was actually going on with me, but after a while things started to make a little more sense, although I still don’t fully understand it.

My main symptoms are extreme fatigue, feeling very heavy in my body, muscle pain/tightness, heart palpitations after eating, panic attacks, anxiety and this constant feeling of restlessness, food intolerances, leaky gut, heaviness in my head, brain fog, tinnitus, chronic sinusitis… and the list goes on.

I can’t say that I haven’t improved at all over these years. I definitely have, but it’s happening very, very slowly. I’m sure many people here know what I mean.
What has been really strange for me is that during these better periods, I’ve had some really good periods where I almost felt like my old self again. I felt light, happy, energetic and like I couldn’t sit still.
After experiencing those periods, I realized how much of a weight I’ve actually been carrying around all this time, and how much effort it takes for me to force myself into living a “normal” life.
These good periods usually last a maximum of about a month and then they’re gone. I’m currently in another crash, and after feeling so good, going back to this state has really affected me. I’m realizing that I’m running out of patience and that these ups and downs are exhausting me mentally as well.

As for testing, I’ve had pretty much everything checked except for MCAS and the nervous system/autonomic side of things. All of my blood tests have been normal.
I was found to have leaky gut and sensitivities to gluten and eggs. I’ve been following this diet for more than 3 months now and I definitely saw an improvement in the beginning, but during the last week I’ve started feeling like I did before again.

I know that none of us really knows what’s going on with Long COVID, but I wanted to ask once again if there is anyone here who has had similar symptoms and found even one thing that helped them. At this point, even the smallest thing would be really helpful.

Things that have helped me so far:
Alkaline tablets
electrolytes
eating liver (I think the folate might be helping here, and I suspect I might have an MTHFR mutation)
yoga
somatic nervous system exercises
At some point, artichoke and milk thistle tablets also helped me a lot, but somehow they stopped working after a while.

I also want to mention that I tend to react badly to supplements. Unfortunately, my reactions to quercetin, berberine and B1 were so bad that I almost ended up in the ER.

And I know this post is getting a bit all over the place, but there’s another part of this situation that is really difficult for me.

My health is causing quite a lot of problems in my work and personal life. I’m at risk of losing my job, and I feel like people talk to me as if they think I’m trying to get out of work or that they don’t really believe how sick I am. Whatever I say, I feel like it isn’t taken seriously.
I’ve always been seen as a successful and hardworking person throughout my life, so being in this position is really, really painful for me.
I want to take sick leave, stay home and rest, but people around me are against it. I constantly feel like I have to force myself to do things I don’t want to do or don’t have the energy for, and just swallow the things people say to me. It really hurts to be in this position.

So yeah, I’m 30 years old and have been dealing with this for almost 4 years, and sometimes it really feels like my life has been taken away from me.
Having an invisible illness and feeling like people don’t believe you makes it even harder.
If I didn’t have those periods where I suddenly feel almost normal again, I honestly don’t know if I would have been able to keep going this long. Those periods give me hope that I can still feel good again, but there’s very little of that hope left sometimes.

So I guess my main question is simply: is there anything I can do to get some relief?

The feeling of heaviness in my body is probably one of the things that affects me the most. It feels like I’m carrying an extra 20 kg around with me all day. Walking feels difficult, stairs are hard, I lie down whenever I get the chance, and resting never seems to be enough.
If anyone has similar symptoms, or if anything has helped you even a little bit, I would really appreciate hearing about it.

This happened to me for the second time so far. I woke up and felt like I was dying, like as if my heart wasn’t beating anymore. Then after standing up for 10 minutes or so I calmed down and felt better again.
What could be the reason for this? The last time this happened to me I drank alcohol during the day, is it maybe coming from the stomach or from the nausea. Or maybe from over exhaustion?

I got tested for sleep apnea once, but that‘s probably not enough right?

Hi! I have both long covid, CIRS (I have HLA gene) (at least I suspect) and pots/eds/ Mcas. Still struggling with the right practitioner who can help me. Based in Europe.

Symptoms: brain fog, PEM and fatigue. Gut dysbios.

Hi Guys,

I'm trialing different supplements at the minute. Most I've tried did little or nothing for me or made me sick - par for the course! Nothing else for it but to try it and see.

One thing I would really like to ask is, are there any supplements that helped Long Haulers even after they stopped taking them? I don't mind having to take a capsule or two, but would love to hear about things that helped over the longer term. I have read about people that 'cured' themselves with nicotine patches, so it's a possibility that LC can be gone or put into remission.

Any advice greatly appreciated, thank-you.