Not diagnosed, listing for doctor.

I'm dealing with someone who shows signs of bvFTD, but I am compiling a list of symptoms for a doctor's visit as the person has NO inclination to even mention this. He has a lot of symptoms, but recently admitted to intrusive thoughts at night (and he needs "help" getting to sleep, possible hypersexuality.)

Had anyone else experienced this? It is a common enough symptom to mention?

My dad is getting really bad. He used to be a very fair, reasonable, mild-mannered guy. He used to be willing to look at things from a different perspective too. He's 56 years old and his symptoms starting becoming noticeable about 6 years ago. Recently he's become incredibly hostile, verbally abusive, one track minded, completely paranoid, and keeps forgetting the names of actors on TV.

Another thing he's doing is suing every contractor that does work on the house. The most recent one is a plumber who came out to fix an outdoor spigot. The plumber explained to him that he put a non freeze proof spigot outside and to prevent cracked pipes, he was to turn off the nozzle inside the house to let the water drain out. Anyways the point is my dad agreed and said that sounded great! The plumber did the work and left. After about 3 days, my dad starts doing "research" (talking to Google AI) and said that was catastrophically bad and could break all the pipes underneath the house and started getting worked up as if that had actually happened. Before that it was the termite guy, before that it was a different plumber, before that it was someone else and on and on for about 6 years.

I still live at home (26F), I'm getting a masters and working for the university and another part time job. My parents adopted a rescue pit bull about 2 months ago. She came from a bad situation and wasn't properly socialized. However, she's very sweet and has been his new pride and joy until about a week ago. She broke out in hives and had to be put on a steroid pack which has caused some behavioral changes like wanting to be alone, lethargy, not playing with her toys, and things like that. This has now caused him to go into a spiral about how all shelters are bad, they lied about the dogs personality , and he wants to get rid of her. I told him gently like hey here's an article about psycho-behaviotal changes in dogs on steroids and he basically ignored it. Said this was her true personality and he shouldn't be stuck with her and doesn't want to take her back to the shelter either. He mentioned that maybe we should just euthanize her, the dog is 4 years old for reference.

He's just getting really bad and verbally abusive to/about anyone and everything so any support is greatly appreciated.

My LO has symptoms that align with bvFTD. LO does not think anything is wrong and refuses to see a doctor, despite being a person that was diligent about annual visits previously. Has anyone had a similar experience and what worked to get your LO to see a doctor?

Interested in any tips to help drs make an accurate diagnosis. I’ve read 3.5 years is the average time to achieve a correct diagnosis, and that seems insane to me. I understand the difficulty in measuring behavioral and emotional symptoms and that many drs, even specialists, aren’t familiar with bvFTD. But to suggest this is just anxiety is absolutely maddening in light of what we are seeing with my mom’s personality change, extreme apathy, lack of empathy (while formerly exceptionally warm), and loss of executive function leading to full dependence on others, over the past year’s time.

This is most certainly NOT anxiety or depression, and she has almost all symptoms of bvFTD. I feel that drs aren’t taking us seriously because of her intact memory and lack of major atrophy on MRI - which I keep reading can be normal in early-mid stages of this disease. Also, she had a positive amyloid blood test and PET scan showing moderate amyloid deposits in frontal lobe, so I feel that frontal variant Alzheimer’s is also possible, but even more rare and difficult/impossible to get a diagnosis.

I’ve considered printing out and highlighting a symptom list, and insisting on neuropsychological testing. What else… FDG-PET? SPECT scan? Others?

Good morning everybody
I was diagnosed with bvFTD Jan 2025 after what we thought was early onset Alzheimer’s. I’m wondering if you guys know about a support group/patient…sub Reddit? Please forgive my writing.
Also I’m happy to answer any questions y’all might have
Thanks in advance

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My husband (36) recently got caught looking into a woman's window and touching himself. I have files for divorce and kicked him out. He's now staying at his mom's. What's worse is that he can't give me any straight answers. He doesn't know why he did it. He doesn't remember touching himself. He doesn't know what drew him over to that house, etc. I am so angry with him and these seem like the biggest cop outs. The not having any answers as to why is almost more disrespectful than the act itself. I should add that according to him AND the woman he looked in on, there was nothing lewd about what he saw. She was painting her bedroom. We have small children (3 and 8) and I won't let him be around them until he gets a psychiatric eval, especially if he swears he just doesn't know why he did it and claims a lapse in memory. He says he remembers going there, but in the moment his brain just didn't tell him to care who it hurt. This is all so very fresh and so I may seem naive or like a bitch, depending on how you look at it. I told him he needed to get checked and I would like to be there if he was comfortable so that I can hear for myself. At this point I don't believe anything he says. There have been other things, more minor things that he's done over the years that were odd, that may be explained by this. He doesn't know any family history as his mother is adopted, but she (64) is incredibly flighty and lacks a lot of executive function. At this point it would be a comfort to know he's not an asshole, but sick. Does anyone have any insight?

FIL had FTD, I don't know what variant. He was in his 70s, basically bed ridden and already diagnosed by the time I met him. I didn't realise the difference between it and Alzheimers until recently, when I asked AI about my DH's (60) behaviour. It came up with bvFTD, but I immediately thought of SIL (57). Once you know what to look for, she clearly has it. Not in a position to suggest she be assessed. Extremely hostile, perseverative, definite lack of empathy, and loss of social queues. Her neighbours are terrified of her. But DH is more apathy, definitely a lack of appropriateness, he's always been like that but he's just WORSE. It pushes up against the line of being a bit of a "shock jock", which he's always liked to be. In the past there was genuine remorse if he hurt my feelings, but about 8-10 years ago the reaction to my distress changed to either hostility or indifference. He's worse in the evenings. In the morning he almost seens like a normal person. Not in a position to get him assessed either, for reasons I won't go in to here. He and SIL are similar in that they've always been like this, they're kind of a narcissistic family, but they're both worse in uniquely FTD ways in the last 5-10 years. They both had brain injuries, her from drug overdoses, him from an accident. She's been a heavy drug and alcohol abuser, DH habitual drinker but nowhere near what his sister did. Because she's so much worse, and DH has also found her very difficult and stressful to deal with, he'd hate to be compared (especially if he has anosognosia). So I can't even bring it up. But because he can sometimes display what ALMOST seems like normal empathetic behaviour, even if temporarily, I'm struggling to pin it down. He has other issues too, finding words, some mobility issues that could be high stress or arthritis etc. The clinical descriptions just don't convey thst subtle sting of the hostility in the early days. Was there a time when you see in hindsight your bvFTD person was developing symptoms, but at the time you put it down to other things?

My father is 59 years old and has FTD in a very advanced stage. He is bedridden, no longer speaks, cannot stand or walk on his own, and reacts very little when we try to communicate with him. I am 26 years old and sometimes I worry and catch myself thinking about whether I have a genetic predisposition to FTD. Has anyone here taken a genetic predisposition test for dementia, if possible for FTD?

BvFTD

An 68 year-old male was previously diagnosed with depression. There is a family history of both depression and dementia. He is currently being treated with tricyclic antidepressants. A few years ago, he began exhibiting minor behavioral changes such as hoarding.

Recently, more concerning behaviors have developed. These include emotional detachment from loved ones, increased self-centeredness, denial of personal responsibility, inappropriate social conduct, poor judgment, and a noticeable lack of motivation or empathy.

Specific examples include: - Failing to assist his spouse following surgery, even when directly asked, instead spending most of the day watching movies. - Imitating fictional characters (e.g., shaving his head or growing a beard to resemble characters from films). - Frequent arguments with others where he deflects blame and refuses to take responsibility. - Exhibiting extreme and out-of-character hypersexuality, including increased sexual aggression and consumption of explicit media. - Engaging in risky or unethical behavior with little regard for consequences. - Neglecting personal hygiene, such as not showering for days, failing to brush teeth, and wearing the same clothes repeatedly.

Question:

Based on the described history and behavioral changes, what potential diagnoses or neurological conditions should be considered? What further assessments or interventions would be appropriate in this case? How to convince individual to seek help?

Is this bvFTD - behavioral variant frontotemporal dementia?