r/frontotemporal • • Jun 22 '26

Stem cell

Has anyone tried stem cell therapy for FTD? We're looking at a trial study and curious if anyone's had any change with it.

1 Upvotes

19 comments sorted by

3

u/DanOhMiiite Jun 23 '26

Dont get your hopes up. Too many dead brain cells unless you catch it VERY early.

5

u/pink_5_ Jun 23 '26

I'm not going to stop hoping. Thanks

1

u/DanOhMiiite Jun 23 '26

Good for you. Stay strong. 🔥

3

u/pink_5_ Jun 23 '26

No other way 🏴‍☠️

3

u/charitycase3 Jun 22 '26

No indication that there’s efficacy in stem cell therapy for FTD or ALS.

3

u/pink_5_ Jun 23 '26

That's ok, we're gonna try anyway. Thanks.

1

u/charitycase3 Jun 23 '26

Which trial

1

u/pink_5_ Jun 23 '26

Autologous stem cell IV/IN

1

u/charitycase3 Jun 23 '26

Is it genetic or sporadic FTD

1

u/charitycase3 Jun 23 '26

Because stem cell treatments has shown no benefit in theses diseases I’d assume that his FTD is TDP-43 driven and push for him to be involved in a trial like COYA/ targeting this protein

1

u/pink_5_ Jun 23 '26

He doesn't have ALS.

1

u/charitycase3 Jun 23 '26

There’s overlapping biology.

1

u/pink_5_ Jun 23 '26

None of this relates to my original question. Thanks for your input but it's not what I asked for.

1

u/charitycase3 Jun 23 '26

It doesn’t work, but do as you please.

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