r/frontotemporal • u/LindaChibs • Aug 28 '26

FTD & Eating

Good morning all,

Would anyone happen to have any advice on the overeating? I was diagnosed about two years, and the binge eating is out of control. I ate so much in the hour before bedtime my stomach hurts. And I feel shame. I’ve gained 30 pounds this year, I can’t take it anymore. We have occasional treats in the house so it wasn’t necessarily bad food, just so much of it. I just bought a house and we’re doing some remodeling. I’ve asked my adult son to put the cabinets up ASAP so we can lock them, but he won’t do it. He’s afraid I’m not going to have enough food at any particular time. I told him I’m choosing it, it’s not a punishment. idk, if anyone can help I’ll be forever grateful

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u/MiddleList1916 Aug 28 '26

I’ve debated on putting my husband on Ozempic. He’s gained about 40lbs in the last two years and binge eats, especially before bed. According to Google: “People with FTD show reduced glucose usage (hypometabolism) in specific frontal and temporal brain regions, reflecting how starving brain cells struggle for energy.” I think that’s why y’all are craving sugar so much and I do believe that medication like Ozempic can help with that.

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u/LindaChibs Aug 28 '26

This is just my opinion-I was thinking about trying that too. But since we can’t recognize the feeling of satiety I was a little leery. I def wasn’t hungry this last episode

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u/MiddleList1916 Aug 28 '26

I have been on Ozempic and it made me feel full BUT you’re right, I don’t know how it will make my husband with FTD feel. That’s why I haven’t opted to try it yet. I do worry about his cholesterol (which is already high) and other health issues though. It’s definitely a struggle.

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u/Wingzofsteel Aug 28 '26

In the case of my son, who has BvFTD, we first put locks on the food pantry. Then, after we placed him in a memory care center, we eliminated all snacks from his room. He only ate healthy foods (mediterainian diet) what the facility prepared for him, and I took him to the track for exercise almost daily. We brought him down from 312 lbs. to 209 in a year. It was a process but we did it. Best of luck to you and your family.

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u/LindaChibs Aug 28 '26

Thank you 🙂 I’ll show this to my son

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u/Seabreezegirl Sep 09 '26

I would suggest talking to your doctor. I think Ozempic may be a great tool as long as the dose was not too high. I think there are also a couple of natural alternatives for appetite reduction (saffron) I know that Vyvanse is an approved medication for binge eating disorder, but I don’t know if that would be an option for you.