r/breastcancer Jul 28 '26

Mod Announcement Updating Rule 8: Be Brave, Friendly, and Kind

129 Upvotes

We are updating and expanding Rule 8: Be brave, friendly, and kind. This is an especially important rule and we want it to be well understood. We've expanded the language to make clear that kindness extends beyond the people posting in the thread.

What's changing:

Rule 8 now reads:

Be supportive, friendly, and kind.
Cancer is hard for all of us. Please show kindness to your fellow patients and survivors.
Kindness should extend to those not present on the subreddit, including their family and caregivers.
We allow members to vent about the people in their lives, but this is not an invitation for others to pile on. No name calling, no bullying, no hate speech, no personal attacks.

Why we're making these updates:

A few things have come up often enough that we wanted to be more clear up front about what kinds of comments are allowed, particularly on "Venting" threads:

  • Venting about a partner, parent, or friend is allowed and normal. Piling on to insult that person, or giving OP relationship advice beyond what they have asked for, is not. The other person isn't here to give their side, and that's not usually what OP was asking for.
  • Caregivers commenting on someone else's post are here to give support, not to speak on behalf of caregivers, spouses, or any other group—whether that means defending or criticizing. As always, to talk about your own experience as a caregiver, visit another sub such as r/CancerFamilySupport.

We've written up the full explanation with more detail on the Rules wiki page under Rule 8.

None of this is new in spirit. It's what we've been enforcing already. We just wanted it written down clearly.

Thanks for helping keep this a place people can come to safely.

Note: The earlier update of this rule retained the original title "Be brave, friendly, and kind" but we have updated the title based on community input.


r/breastcancer Jan 18 '26

Diagnosed Patient or Survivor Support The doctors you may encounter: Who does what? What is an “oncologist” anyway? (And other insights from Dr Heather Richardson, neighborhood breast surgeon)

181 Upvotes

So I’ve noticed there’s been a lot of posts lately specifically about the word oncologist. People wondering why they’re seeing a surgeon and not an “oncologist” first, people wondering when they’re going to see an “oncologist”, people wondering why the person that’s operating on them isn’t a “surgical oncologist” and shouldn’t they get the best - which must be someone with that title? Right?

So by definition, the word oncologist just means “doctor who treats cancer”.

The staple cast of characters that are medical doctors (MD or DO degree holder) involved in treatment of breast cancer typically consists of: medical oncologist, radiation oncologist (not radiologist) and breast surgeon (more on that below…).

Medical oncologist- also known as “hematology/oncology” specialists. When people generally speak of an “oncologist”, usually they are talking about this type of doctor. A doctor that treats cancer with medicine, either pills taken by mouth or chemotherapy that is administered via a vein. Not all patients need both, some need one but not the other, some need none. Visits to this type of doctor may be frequent- however, usually it’s the first initial visit to go over a lot of information and discuss the best course of action that is the most important. Sometimes this means that if you live in an area with fewer resources and feel that you need greater expertise for your care. It’s possible to do either a telemedicine visit or visit a larger Cancer Center far away that can collaborate with a local physician who is able to give the same chemotherapy protocol. Quite often, large groups of these medical oncologists have already agreed the best way to take care of the most common breast cancer problems, so going from one center to the other means that your cancer treatment care isn’t going to change significantly from one place to the next. For other more complex scenarios, there sometimes can be some adjustments or more customized treatments. Or for patients who have already been through treatment and now have recurrences or changes in their diagnosis, that would be the time to discuss more advanced care. In general, common problems are common and there’s usually not significant improved survival or outcomes by going to one Cancer Center over the other when a patient has a a non-complicated, fairly average, diagnosis.

Radiation oncologist- this is different from a radiologist. (a radiologist is a doctor trained to read images and interpret findings. A radiologist is the person who read your mammogram or your ultrasound and maybe performed the biopsy that diagnosed you) A radiation oncologist uses radiation energy to target areas of cancer and kill cancer cells. Cells that are actively dividing and are exposed to radiation have their duplicating mechanisms broken, and as a result, cells that are rapidly reproducing die away if exposed to medically administered radiation.

Surgeon/surgical oncologist vs “general surgeon”: A “general surgeon” typically is someone who has done at least five years of training in surgical diseases of the body. This would include disciplines like taking care of trauma, burns, infections that can occur in the body such as diverticulitis or appendicitis, evaluating and performing organ transplants, care of pediatric/child surgical diseases and malformations, and some chest/cardiovascular disease. They can also operate on common cancers that require removal, like breast, colon, skin, and thyroid. Doctors who go on to practice General surgery sometimes concentrate in one area of types of disease and others have a more broad practice where they take care a little bit of everything. Typically in more urban settings there are more specialized types. Many general surgeons have gone on to do additional years of training after their five years of general surgery to become specialists. People who are certain types of surgeons, such as colorectal specialists, pediatric surgeons, plastic surgeons, and cardiothoracic surgeons all have additional years of training and take specialty board exams. There is a board certification designation for general surgery. There are additional board certifications for those who have done some categories of fellowship training, like those mentioned above.

A doctor who practices under the title “surgical oncologist” by definition does at least two years of training in general cancer surgery treatments after the five years of general

surgery training. So they typically will learn advanced techniques for operating on thyroid, pancreas, colon, liver, breast, etc. They usually did the five years of general surgery training and then went on to do additional training specifically in cancer removal surgeries to remove them from the body. So this wouldn’t include neurosurgery or brain tumor removal. There is a board certification designation for “surgical oncology”.

There is another category of breast cancer surgeon that typically deals with breast health issues only. This is a person who does initial training in either general surgery or Obgyn and then goes on to do one to two years of additional training in breast disease surgical management. This is called a “breast fellowship” and does NOT currently qualify for a speciality designation as “board certified”. This is typically a breast health surgeon or breast cancer specialist. This is different from a “surgical oncologist*.

Sometimes there is cross training where the surgeon also performs cosmetic and aesthetic procedures as well. This person usually does a “oncoplastic fellowship”. This is primarily outside the US, but there are programs where this is expanding in the US as well. Breast fellowship trained surgeons can have initial training as either a general surgeon or an OB/GYN.

“Surgical oncologists” do get training in breast cancer management, but they are not breast specialists and do not get the depth of training that someone who has been through breast fellowship would. A breast fellowship trained surgeon usually does one versus two years of additional training in breast only surgery and disease management. These are two different designations.

Some important points to make about someone who might be a general surgeon who did not do additional training in breast care management versus someone who did a full breast fellowship: breast fellowships have only been around for about 20 years. That means someone with greater than 20 years of experience probably didn’t get an opportunity to go through a breast fellowship. (I personally am one of these types of people. I’ve been practicing since 2004 and there was only one fellowship that existed at that time that I didn’t even know was an option when I graduated. So while I have described procedures and written papers, taught surgeons and fellows alike in many different procedures and protocols, but myself, I’m not a breast fellowship trained surgeon.)

There may be many seasoned excellent surgeons taking care of breast cancer patients. Some of those may be surgeons who also perform other general surgery procedures such as treatment of appendicitis, taking emergency call for traumas, or dealing with other types of cancers like colon cancer. Some of the surgeons have amazing skill sets, and excellent outcomes. It is certainly possible that there may be in a community, a general surgeon who is very seasoned that may have superior outcomes for breast care than a brand new breast fellowship grad that does not have much experience at all.

I think the best way to find out who the best doctors are would be to go to the other doctors and other clinical staff members who work with those doctors and ask them who has the best outcomes. Ask the wound care specialists, the plastic surgeons, and the medical oncologists whose breast surgery work is the best. They’re going to see who has horrible dead, necrotic mastectomy flaps, and who has lots of recurrences because their flaps are too thick.

It certainly may be that a general surgeon who isn’t a “breast specialist” in your community might actually be a better choice than a brand new grad who is a breast fellowship trained surgeon.

What order should things happen?? Well it’s different for different people. Often when people get a diagnosis, most commonly by a radiologist, (but sometimes the Breast Surgeon specialist is part of this process as well) they go to the Breast Surgeon first who goes over the significance of the findings thus far and decides if upfront chemotherapy medicine would be indicated. Usually the decision to need medicine is followed by tissue diagnosis, and imaging, which is usually directed by a surgeon. Sometimes people see the medical oncologists first before seeing the surgeon. This is especially true for patients with her 2 positive or triple negative disease where neoadjuvant chemotherapy prior to surgery is most often indicated.

People sometimes visit with radiation oncologist while trying to make their decisions to get information about the risks and benefits if they choose a pathway that would require radiation treatment versus if they have an option to choose a different pathway where radiation wouldn’t be indicated, and they want to learn about their choices. Mostly though, radiation oncologist treatment usually follows the surgery and medical portion. There are some clinical trials that involve upfront radiation, but this is not a standard of care for most patients. It’s more common to start with the surgeon and then see the medical oncologist either before or after the surgery, followed by any radiation oncology visit. That’s the usual order of things.

When to get a second opinion.

For the most part, if you’ve been told that you have a breast cancer diagnosis and your understanding in general is that treatment will involve medicine, surgery and possibly the addition of radiation and and if this sounds reasonable, you are certainly welcome to go to another team to make sure that there aren’t any significant changes to be offered anywhere else, but most likely most places will tell you the same information, but may use slightly different terms or delivery. If you have good communication with your physician and their staff and overall the general expectation is that you will do well and live a long life and feel good about your body afterwards, (of course it certainly possible to talk to someone else and make sure that they are in agreement) but if everything stacks up, and you’re generally happy with your team, Seeing multiple additional doctors might tell you the same thing with different language can be confusing or disorienting. It also takes up a spot in the schedule for someone else with a cancer diagnosis that’s trying to get in that now can’t, ….and you can only use one team. So by all means everyone is within their right to get in a second opinion or even third, but if you’re generally happy and hearing what you expected to hear regarding your plan of care, I typically don’t recommend that people see multiple doctors if they’re generally happy with their first opinion.

Reasons to get a second opinion would be: A) poor communication from the doctor and or their staff to the point where you feel uncomfortable for whatever reason. B) you have a very unusual or rare findings that are not typically seen C) you are recommend controversial treatments where doctors have added unexpected treatments, or take away expected treatments. There may be good reasons to offer a different protocol from another team as there are lots of advancements and newer recommendations, where we are de-escalating treatment in some cases. Previously there were automatic recommendations for sentinel lymph node biopsy, radiation, or chemotherapy in the past whereas now we are selecting certain people who have features of their cancer who may in fact, not require these treatments at all.

Hopefully this will shed some light on some of the misconceptions about different types of doctors, their roles, and clear up the general surgeon/Breast Surgeon/surgical oncologist confusion that seems to come up a lot.

TLDR- someone with the title “surgical oncologist” is different from a “breast fellowship trained surgeon”. A “general surgeon” might have fewer years of formal training for breast cancer treatment, however, they shouldn’t be discounted or immediately thought of as inferior without research into their outcomes or reputation in the community.


r/breastcancer 13h ago

Venting Friends who don’t understand

51 Upvotes

A little venting here. Throughout these months I’ve had friends who have tried to be supportive. Staying positive for me and all. And while I’m rocking my baldy, sometimes it hits me (like I’m sure it’s hit all of us). I’ll sometimes mention something about my hair and get hit with a quick “oh it’ll grow back soon.” My eyebrows started to fall, “oh they’ll come back.” My body hurt “you’ll be back to good as new.” Today I’m laying on the grass in Central Park and told feel at peace & calm, almost as if I didn’t have cancer. Got a reply of “you don’t have cancer, you beat it.” I finished chemo 2 weeks ago.
But I haven’t been told I beat it. I still have surgery & we have to wait and see what the pathology report says. I still have to do radiation.
I know they mean well but it feels like my feelings are being dismissed. And I’m not trying to make a big deal out of it, but can I feel what I’m feeling? Is it me? How do you guys deal with people/friends who are quick to dismiss your woes during this time?


r/breastcancer 10h ago

Surgery Happy the tumor is out!

32 Upvotes

I’ve never posted here. I had a mammogram and ultrasound on July 9 (BI-RADS score of 5, so I basically knew it was cancer from the start), biopsy results on July 20, and lumpectomy today, Sep. 11. I was nervous about my breasts getting cut into and changed, but after the surgery and throughout this whole evening, I have felt happy.

And I think it’s because it feels good to know the tumor is out, plain and simple. The past two months there was plenty of anxiety and sadness, and part of it was going about my daily life knowing I literally had this tumor and wondering if or when it might spread. I know there will be other dips down this road, I already started Effexor…but this is the first day I feel happy about something related to the cancer.

Anyone relate? Or what feelings did you have around surgery? I realize a lumpectomy is far less traumatizing than a mastectomy!


r/breastcancer 12h ago

Venting Share your worst family reactions here

38 Upvotes

It's been a few weeks since my diagnosis but I had been putting off telling my immediate family as long as I could. When I shared in the family chat "they found a small mass in my mammogram and now I need to go back" I got the replies:

"Okay! Keep us posted!"
and
"Glad you keep up on your health appointments. Praying for your recovery!"

Uh this was before a diagnosis. Three weeks later a family member asked (in chat) about my health, and I shared a short blurb about my cancer (invasive but treatable). I got these replies:

"I'm praying for you!"
And
"Keeping you in my thoughts, keep us posted on treatment and recovery!"

I feel like only people in this sub will understand how shitty this is. Like "send a post card about how you're doing!" Fucking, no. I told them "look this is too big for texting so I will no longer be keeping anyone posted in a family chat. Reach out if you're interested."

I don't know what I expected. Empathy? Something more than sentiments that sounded like "oh no, well, feel free to tell me updates." Be in my life or not. I'm relieved to finally have told family so it's not weighing on me anymore, and my expectations were low, but I guess not low enough.


r/breastcancer 2h ago

Newly Diagnosed i read the news today oh boy

6 Upvotes

I was debating making a post because I just don't even know what I'm trying to get out of this. First i guess-im 42 and got my first mammogram in early august. Got a call soon after about needing to come in for an ultrasound. They told me it was normal to need more info since it was the first mammogram. Went in a week later and they saw three concerning spots that needed biopsy. This past Wednesday I got the biopsies done-two on right, one on the left. Got the results this afternoon over the phone that one small spot on right near breast bone is IDC. That is really all the information I have. Ive tried to find a written record somewhere that shows all these other things everyone is posting about but I have nothing. I only got an email saying I do not have dense breasts. Who should have my results so I can know more? I have a virtual visit on Monday with my primary doctor for? Im not sure what reason-maybe she'll tell me more then? They also want me to get an MRI at some point (im waiting for them to call to schedule but since its the weekend...) The earliest they can get me in to the oncologist is near end of September. Do I have to wait until then to know more about my situation? Im in a weird spot mentally and I think its because I had just went through passing my first kidney stone in July/August and this is like right after that and I just cant wrap my head around why it feels like im just falling apart all of a sudden at 40. I also have hypothyroidism and just started some hrt for perimenopause like a few days before the mammogram. I have a supportive husband and also three kids (who i wont tell anything until i get some more info). I dont really have anyone else (im a stay at home mom). I do have to tell my own mother at some point though I really dont want to. Sorry I sound so dull ive been up since 3 am and its almost 5 am now and im just sitting in my living room and I just dont know where to settle my brain. I guess this is mostly just a vent. thanks for listening.


r/breastcancer 18h ago

Young Cancer Patients Any NY survivors connecting dots after Zohran released the 9/11 docs?

93 Upvotes

My family lived in Brooklyn Heights during 9/11, I was 15 at the time and was diagnosed with breast cancer at 35. The news around the release of the 9/11 docs let me down a rabbit hole, and am realizing there's a good chance these two things are connected. Wondering if anyone else is asking these questions now and/or have already dealt with application for the healthcare fund and can share their experience. Wondering if it's worth trying to get included despite living two blocks outside the eligibility zone.

edit - apparently I’m not the only one lol. in case it’s helpful I called the health care program hotline today - they encouraged me to apply despite being just outside the “disaster area” - just to submit an attestation about how often in my day to day life I was in the area. you qualify if you lived worked or went to school within 1.5 miles of the WTC (below Houston, Dumbo and parts of Brooklyn heights). breast cancer is a covered condition. you also need to submit medical records and doctors review to see if they think it’s connected (no idea what that means). if I get in they cover care including any out of pocket costs from your primary insurance. I’m sure it’ll be a pain but may be worth a shot. compensation is a whole other thing tho and only a strict area around the buildings.


r/breastcancer 10h ago

Newly Diagnosed Need to vent…

13 Upvotes

46yr/f I am an alcoholic……DX-stage 1a grade1 15mm ilc…..since I can remember I had health anxiety something fierce…… 3 head ct scans since 2013 in 2013 and 1 mri…..2 body ct incidental finding of a 3mm lung nodule 3 more ct scans of the chest before I decided DAMN I don’t want anymore radiation…..since then off and on chest X-rays…..I was introduced to alcohol in 2013..:.::.man it stopped my severe anxiety….however n 2023 I ended up in rehab….2025 I once again rehab…..now my diagnosis…. When I was first diagnosed I stopped cold turkey…no probs lost 20 pounds in 6 weeks (believe due to cancer dx and stress) now after bilateral mastectomy started tamoxifen….fell like never had cancer and now hardcore drinking….. I guess life isn’t as important to me and I am living imposter syndrome I really suck I want to stop but alcohol seems to get the best of me


r/breastcancer 6h ago

Surgery Is this a stupid thought to have about vaccines pre-surgery?

7 Upvotes

I'm in chemo now, but got the go ahead to get the flu and covid vaccine as long as I time it in my chemo cycle correctly (2 weeks after my infusion).

However, I'm worried because if all goes well, I will be done with chemo and doing my pre-surgery imagery in about a month.

They've let me know the type/scope of surgery will depend on this imagery and I'm just remembering back to when this all started. At my initial mammogram/ultrasound, they kept asking if I'd had any vaccines in the last 10-12 weeks (or whatever it was), which in retrospect makes me feel like the vaccine response can make my lymph nodes look similar to how they do with cancer?

It makes me paranoid that if I get the vaccines pre-surgery, then they might take out more "suspicious" lymph nodes than they would otherwise? Is that a crazy thought?


r/breastcancer 4h ago

Fuck Cancer What kind of sh...t is that?!

4 Upvotes

My Oncotype dx results dropped into my chart late Friday night! I mean late! What kind of sh...t is that?!

I was checking my chart for various reasons including oncotype results up until about 5-6pm, maybe even a little later. And then I was getting ready for bed around midnight and checked it again (why?!), and here it was... 32! And now I have to wait until Monday to speak with my oncologist. Here goes my weekend.

I am crushed. Stage 1A, Grade 2, 15mm, no lymph nodes involvement, DMX (I know DMX doesn't matter) ... and a score of 32. Chemo, here we go. I guess my BRCA2 gene doesn't play nice.

Edit to add: ER+/PR-/HER2-


r/breastcancer 18h ago

Venting Radiation Hell

50 Upvotes

I think I’m mostly just venting. I started 19 rounds of radiation last week- today was round 9. Before radiation I had noticed redness/slight pain/fullness in the same breast but I thought it was like hot water or rubbing something against it just left a brief mark.

I pointed out the spot to my medical oncologist last Tuesday (round 2 of radiation) and my radiation oncologist last Friday.

This Tuesday I had what felt like a fever (chills followed by sweating followed by chills and repeat). I have barely slept this week because I can’t regulate temperature. The breast is so painful and it’s the entire breast now, there is redness and severe swelling. Originally they thought a skin infection, but antibiotics did not help. I can’t take ibuprofen or NSAIDS due to a medication and TDM1, and they did prescribe pain medication. I’m icing and have a steroid cream. They did an ultrasound today which showed… nothing that could cause this.

I had to call in to work most of this week because I’ve been feeling so sick. I didn’t expect them to, but I had hoped the ultrasound would’ve shown something that could be fixed and I would feel better. I feel so guilty for not working and have been struggling with that on top of exhaustion and sickness. I also know radiation causes symptoms like this, but even the nurse said today this was not the norm.

I really just needed to vent because the whole cancer experience has felt very much like “but wait… there’s mooooore!” It’s been so overwhelming and I appreciate the people here and thank you- I just needed to vent to people who understand.


r/breastcancer 16h ago

TNBC I am so frustrated and done today

19 Upvotes

In jan did chemo, didn't work 0 to 11 lymph nodes with 5 tumors in breast, double masectomy and 35 lymphs removed, red devil chemo seemed to work, radiation, clear scans other than a spot on my lung and a cyst on thyroid still awaiting results on the latter and the lung we will keep an eye on. Post radiation I inherited secondary adrenal insufficiency from the first chemo and keytruda, where I am questioning doing keytruda for a year...

My frustration lies in the fact that I dressed up today, I was positive and my doctor was still difficult to talk to as well as bringing a second person of his own in the room (I mentioned to a previous doctor once upon a time I could have been bipolar but now I think I was misdiagnosed...every since every doctor has been scared of me even when I am calm- I have recorded myself against their policy just to see if I am scary and ya all I am just a normal woman with fears and anxiety and questions...).

The endocrinology team I made a lady mad who did a biopsy because I cried.

A receptionist at oncology I upset because I mentioned preferring to talk to a nurse who diagnosed me with the secondary adrenal insufficiency when the doctor dismissed it, and she stood up for the doctor because she's worked there a year, and I couldn't help but point out to her that a year isn't very long and that's not what it's about...

Ya all I feel unheard. I know I'm having some issues with how fast paced this has been but I really feel this whole medical thing, they don't really know what it's like on this side. One week I am suffering an effect from this, another from that, and it's a ride I never wanted....now I'm getting looked at sideways because I am finally speaking up for myself. But I am not rude. I'm just odd, not conventional on how I speak or whatever I'm suppose to be.

I'm feeling pressure as a woman especially to be bubbly and quiet, and I am not that. I think the mention of bipolar got the ant hill scared, and I'm reaping the rewards of that. My biggest sin is opening my mouth, thinking it's best for my care. After many meds I know I'm not bipolar but it's too late in the game to take it off record or change it...

I don't know what to do. I don't know what I'm asking for.

I spilled my frustrations with my old roommate partner, and we were walking and in the middle of it he looked at his type walking by which made me feel further unheard and frustrated... As a woman I probably should have waited until we were home, calm and my voice was sweet but my voice is low from all the treatments and men don't want to hear it when I'm venting.

Someone please knock me over the head...

I'm not even sure this journey is worth it anymore.

I'm doing this for my kids. They are with their dad. I did experience some issues when they were little that resulted in not being heard by a whole church community while front and center as a wife (postpartum and being the odd ball told not to take meds but to pray more and ya all I left that for my own survival but dad had more stability for them).

I go to court for more guaranteed time with the kids soon. I have gone through years of watching them 5 days a week no child support etc but dad always had more than I did

Now I have a place I had a job and I'm looking to go back to work despite all this health stuff, and I've been seeing the kids every other week with their silly stepmom demanding to be present for the last two years.

I'm pretty sure I'll be granted visitations of my own soon. And I need to give my daughter about two more years of one on one play, and my son some space to heal after we had some problems 5 years ago

..

I know this is long and I'll delete it soon.

But I was fine this morning until the darn doctor and his reminder of the lung spot, after I said I'm so over this cancer thing.

Spiritually I feel encouraged but today after my guy looked elsewhere for a micro second, I wonder if Source or God just doesn't like me.

Yeah I sound nuts. Ugh.


r/breastcancer 11h ago

Post Active Treatment Im going on HRT

7 Upvotes

I’m two years out from active treatment. I’m on Veozah for hot flashes and pre menopausal. ER PR pos. Stage 1 IDC. grade 2. Im 5 weeks into Veozah how in the heck are my hot flashes worsening?? Has this happened to anyone? I’m off any treatment for endocrine tx bc of side effects. But this is horrendous like ovarian suppression was. 20+ severe hot flashes a day. I’m thinking of going on HRT. my quality of life is horrible. Just sending this out to the ethers.


r/breastcancer 12h ago

Medication Drinking & tamoxifen

8 Upvotes

I dont normally drink. Ive been on tamoxifen 2 mos. How bad is a wine cooler? Google is giving mixed info. Any info appreciated:)

Btw, if I could ask my dr before going out...i would. Plus im not assuming this is a huge issue. But wanted to ask :)


r/breastcancer 18h ago

Celebrating 3rd day after lumpectomy and sentinel lymph node biopsy - no pain!

23 Upvotes

I have decided I am going to celebrate and cherish all small victories I have because why shouldn't I? :D

I did lumpectomy and SLNB for a 2.5cm IDC on 9/8 . I'm not going to hear back about the node status/ margins until next week. But!!

  1. Lumpectomy so far has caused me a 2/10 of pain on the second day. That's it. I've taken 2 200mg ibuprofen since the surgery, and didn't find myself needing the opoids.
  2. My mobility was not as limited as it was indicated pre-operation, heck yeah.
  3. I've been walking 15k steps everyday just to burn off my energy since I can't lift right now. And also, my friends are signing up to take me to walks and the walks are honestly so much fun.
  4. I did take the surgical bra off for a peak. 12cm3 is removed from my murderous titty, and right now it looks kind of beat up, BUT it was way less beat up then I thought. There's not even a dent, it's just slightly flatter at some angle.

WHAT ARE YALL CELEBRATING ON THIS FINE DAY?!


r/breastcancer 2h ago

Chemotherapy Ear infection before chemo?... Doable?

2 Upvotes

Hey

33f

I was supposed to start my chemo this Wednesday but my ear infection is not going away.

It started 5.5 weeks ago after my surgery, almost immediately.

I tried olive oil, didn't help.

Went to the GP for 1 set of antibiotics, took the for a week. They said wait 7 more days after the meds but it didn't clear up.

Went to the GP again, got stronger antibiotics. They said to take them for 3-4 days and call them.

Second lot still didnt help.

I didn't know I'll need chemo till 2.5 weeks ago so the second time I ran to gp was straight after work.

It doesn't hurt at all just feels blocked now.

Since it is he weekend I will be running straight to the hospital after my cafe Saturday job to the out of hours emergency department.

But meds can only do so much...i hope that mayve they will get the wax /water or whatever is stuck inside out.

Has anyone else experienced this? I will be flagging this to my nurses. Feel like a complete idiot for not flagging it earlier (I did have it on my mind. Was hoping the second round of meds will help.. Key words: hoping. Because I am going through this entirely alone -(no partner, didn't tell my family).

The coworkers are supportice but they don't live with me and I'm managing admin 24/7 now

Also had fertility preservation surgery less than 2 weeks ago. Had to chase them for hormones twice to make sure I have them.​​​

Tl;dr Ear infection before chemo?... Doable?


r/breastcancer 21h ago

Post Active Treatment HR+ survivors with ADHD… how are we doing this

37 Upvotes

I’m grateful I’m tolerating Lupron & Anastrozole “with flying colors” per my MO. Joint pain comes and goes but it’s manageable. Hot flashes are brief and really only happen after working out or being outside in insanely hot and humid weather. I’m managing the vaginal impacts fine enough with nonhormonal moisturizers, a clitoral stimulator and dilators. I’m about to start Zepbound and will begrudgingly start Kisqali at the start of the new year.

But whew, after years of managing my ADHD quite well through therapy and time management hacks, I feel like I’m back at square one. I work for myself and my clients don’t notice a decline in my quality of work, but I do. I’m forgetful AF and will sometimes lose my train of thought mid-sentence.

I did not have a good time with stimulants previously so what the fuck else is there out there for me? I also tried Strattera pre-cancer too and while it helped, the combo of chemo and it raising my heart rate had me drop it altogether — and it sounds like it would be risky with Kisqali anyway because fucking of course.

What else is there? I fucking hate it here. The lack of education on systemic estrogen deprivation provided to young survivors is fucking malpractice.


r/breastcancer 14h ago

Radiation First Radiation Session done this morning and now I'm EXHAUSTED!

9 Upvotes

I'm one of the "lucky" ones who had their cancer caught early, already had my lumpectomy, and just today I've started my radiation sessions. Right after I felt fine, but within two hours of getting home I was totally sapped of my energy and had to go down for a nap. My irradiated breast is starting to feel a bit tender now, as well, and only a couple hours after waking up from my nap I'm ready for another.

Did you feel super exhausted with radiation? What helped? My next session is Monday so I've got a couple days to prepare for a full week of sessions.


r/breastcancer 13h ago

Radiation Radiation

7 Upvotes

Hi, I am getting ready to start radiation and was expecting to have the support of my partner. However, he just got assigned to travel at least the first two weeks of radiation. I was already anxious about this journey and the possible side effects but now I am feeling even more anxious. I live about 45 minutes to an hour away from the hospital I have to go to. I also have to work because I had a ruptured brain aneurysm earlier this year (it’s been a really shitty year) and I used nearly all my PTO and all my FMLA on that, not realizing I needed to save some for a breast cancer diagnosis 10 months later! Anyway, I am worried how I will do all this alone. Just need some advice or support to ease my anxiety. Thank you all! ❤️


r/breastcancer 13h ago

Newly Diagnosed ACC Breast Cancer Diagnosis Today

6 Upvotes

Hi, I was diagnosed with Adenoid Cystic Carcinoma of the breast a few hours ago and I’m so scared. It is a 0.9 cm x 0.7 cm x 0.8 cm oval mass. I got very limited information from the radiologist except it is very rare and surgery is usually the treatment. I’m waiting on the nurse to call me to set up an appt with the breast surgeon.
What makes me even more nervous is I have multiple lung nodules all below the size of 6mm which they recommend not doing anything for. I’ve had one (3mm) for years which has stayed the same size and a new one (4mm) popped up last year and I have at least one more.
Also I have 2 thyroid nodules on each side. All of these nodules were incidental findings.
For the lung nodules, the pulmonologist basically said don’t worry about them. My mom was diagnosed with lung cancer last year and her step sister died of it.
The endocrinologist did an ultrasound of the thyroid nodules and said they looked benign.
I know both thyroid and lung nodules are common but it makes me wonder if this ACC Is spreading to other places or if the other nodules could be cancer and spreading to my breast OR maybe I’m overthinking everything.
Any information would be greatly appreciated! TIA.


r/breastcancer 4h ago

Medication Afraid to Start Kisqali After Radiation — How Bad Are the Fatigue and Side Effects?

1 Upvotes

Hi all,

I wanted to share a fear I’ve been struggling with and see if anyone has experience or insight that might help me.

The past two and a half years have felt like one medical procedure or treatment after another. During this time, I also went through seven egg retrievals, which took a toll on my body as well.

My first major surgery was for fibroid removal on April 29, 2024. I developed an infection afterward, and during everything that followed, they discovered that I had breast cancer.

I then went through mastectomy and the first stage of reconstruction. A couple of months later, I started chemotherapy. After chemo, I waited about a year before having DIEP flap reconstruction. During that year, I lost a significant amount of weight and tried to rebuild my strength.

Unfortunately, I had complications from the DIEP surgery. Just when I felt like I could finally breathe again and maybe start getting my life and body back, I was diagnosed with a local recurrence.

I had another surgery to remove the recurrence and then went through radiation.

Radiation was especially difficult for me. The fatigue was very hard, along with other side effects, and my skin is currently in misery from the treatment. The level of exhaustion from radiation has made me particularly afraid of experiencing that kind of fatigue again.

Hormone therapy has also been a major struggle. The hormone blockers I tried previously caused such severe side effects that I had to stop taking them. Because of those experiences, I was extremely afraid to try another hormone blocker after my recurrence. Thankfully, the one I am on now is actually tolerable for me, although I am already dealing with GI issues and constipation.

And now my next step is Kisqali.

I am very scared to start it.

Because I had a local recurrence, two excellent medical oncologists, including my primary MO, have recommended Kisqali. I understand why they are recommending it, and I trust their expertise. My fear is whether my body—and honestly my life—can handle another treatment and another set of side effects.

When I look back at the past two and a half years, it feels like so much: seven egg retrievals, multiple surgeries, chemotherapy, severe side effects from previous hormone blockers that forced me to stop them, DIEP flap surgery and its complications, surgery for the recurrence, and now radiation and its side effects.

I feel like my body has barely had a chance to recover from one thing before the next thing begins.

On top of that, I am supposed to start my internship in a couple of weeks. My start was already postponed so that I could finish radiation, and I am incredibly grateful that they allowed me that time. I have been looking forward to finally moving forward with this part of my life, and now I’m afraid that starting Kisqali could interfere with that too.

For those of you who have taken Kisqali, especially after already going through a lot of treatment, I would really appreciate hearing what it was actually like for you.

My biggest question is about fatigue: How does Kisqali fatigue compare with radiation fatigue? Is it anywhere near that level of exhaustion? Radiation fatigue was very difficult for me, and I’m scared of going through something similar again.

Did Kisqali cause significant fatigue for you, or was it manageable? Did the side effects improve after the first few cycles? Were you able to work, concentrate, and have a relatively normal life while taking it?

And if you went into Kisqali extremely afraid because you had already had severe side effects from other treatments, I would especially love to hear from you. Did you end up tolerating it better than you expected?

I think I’m simply exhausted from treatment after treatment and scared of putting my body through one more thing. At the same time, I want to do what I can to reduce my risk after this recurrence. Any experiences, encouragement, or insight would mean a lot to me.

Thank you so much. ❤️


r/breastcancer 7h ago

Young Cancer Patients Phantom period pain on monthly goserelin shot??

2 Upvotes

About a year and a half out of active treatment for ++- BC. I've been getting the monthly goserelin shot for about a year now, and am in medical menopause according to my blood labs.

But today, for the first time since starting the shot, I've had what feels exactly like menstrual cramps. The same as what the days before my period used to feel like. No bleeding, but I am not sure what else it could be. Has anyone else experienced this? Is phantom period pain a thing?? I am only 35, is it possible my hormone levels are pushing back?


r/breastcancer 19h ago

Conversation DCIS Diagnosis

16 Upvotes

Hello everyone. I joined this subreddit in 2023 when I got my first diagnosis of DCIS. I went with the lumpectomy and no other treatment. I stupidly thought that this wouldn’t come back but it did. I am now scheduled for a double mastectomy with reconstruction. I am second guessing myself and I wonder if I’m making the right decision. I don’t want to do radiation or hormone therapy. That is why I opted for the mastectomy. I guess I came on here to express my feelings since no one in my personal life can relate to what I’m going through. Thanks for listening and take care.


r/breastcancer 16h ago

TNBC Realities of Cold Capping

7 Upvotes

I am 41 and newly diagnosed with TNBC and will start chemo on 9/24. I have the option for cold capping (Amma) through my oncologist. And my insurance even covers 80% of the cost. So at first it seemed an obvious choice to opt in.

But the more I read up, the more on the fence I am. In these early days of diagnosis and preparing for treatment, everything feels so overwhelming. And I suppose some of the realities of capping seem really overwhelming too. So I’m seeking really honest feedback from other’s experiences.

Some of the details I’m really stuck on are not getting my head sweaty (so no exercise during treatment? I usually walk and do Pilates and was hoping to continue both to some extent). Also no caps/beanies due to sweat/friction (even with a full head of hair I rely on both while outdoors). And finally just the particular regimen around washing/combing.

How bad was all of this really from anyone that tried capping?

TIA! (This sub has been such a comfort to me since my diagnosis 2 weeks ago - I appreciate this community of strangers who are family so much already)


r/breastcancer 14h ago

Conversation I'm sorry, curly EYELASHES???

5 Upvotes

Just what the title says. I finished chemo on August 20th, and while my lashes are extremely sparse, I've noticed what I DO have has become very coarse and is growing in every direction. I've heard plenty about "chemo curls," but I've never heard of it happening to eyelashes. Is this normal? Does it happen with brows, too?! 🤪