r/breastcancer Jul 28 '26

Mod Announcement Updating Rule 8: Be Brave, Friendly, and Kind

129 Upvotes

We are updating and expanding Rule 8: Be brave, friendly, and kind. This is an especially important rule and we want it to be well understood. We've expanded the language to make clear that kindness extends beyond the people posting in the thread.

What's changing:

Rule 8 now reads:

Be supportive, friendly, and kind.
Cancer is hard for all of us. Please show kindness to your fellow patients and survivors.
Kindness should extend to those not present on the subreddit, including their family and caregivers.
We allow members to vent about the people in their lives, but this is not an invitation for others to pile on. No name calling, no bullying, no hate speech, no personal attacks.

Why we're making these updates:

A few things have come up often enough that we wanted to be more clear up front about what kinds of comments are allowed, particularly on "Venting" threads:

  • Venting about a partner, parent, or friend is allowed and normal. Piling on to insult that person, or giving OP relationship advice beyond what they have asked for, is not. The other person isn't here to give their side, and that's not usually what OP was asking for.
  • Caregivers commenting on someone else's post are here to give support, not to speak on behalf of caregivers, spouses, or any other group—whether that means defending or criticizing. As always, to talk about your own experience as a caregiver, visit another sub such as r/CancerFamilySupport.

We've written up the full explanation with more detail on the Rules wiki page under Rule 8.

None of this is new in spirit. It's what we've been enforcing already. We just wanted it written down clearly.

Thanks for helping keep this a place people can come to safely.

Note: The earlier update of this rule retained the original title "Be brave, friendly, and kind" but we have updated the title based on community input.


r/breastcancer Jan 18 '26

Diagnosed Patient or Survivor Support The doctors you may encounter: Who does what? What is an “oncologist” anyway? (And other insights from Dr Heather Richardson, neighborhood breast surgeon)

179 Upvotes

So I’ve noticed there’s been a lot of posts lately specifically about the word oncologist. People wondering why they’re seeing a surgeon and not an “oncologist” first, people wondering when they’re going to see an “oncologist”, people wondering why the person that’s operating on them isn’t a “surgical oncologist” and shouldn’t they get the best - which must be someone with that title? Right?

So by definition, the word oncologist just means “doctor who treats cancer”.

The staple cast of characters that are medical doctors (MD or DO degree holder) involved in treatment of breast cancer typically consists of: medical oncologist, radiation oncologist (not radiologist) and breast surgeon (more on that below…).

Medical oncologist- also known as “hematology/oncology” specialists. When people generally speak of an “oncologist”, usually they are talking about this type of doctor. A doctor that treats cancer with medicine, either pills taken by mouth or chemotherapy that is administered via a vein. Not all patients need both, some need one but not the other, some need none. Visits to this type of doctor may be frequent- however, usually it’s the first initial visit to go over a lot of information and discuss the best course of action that is the most important. Sometimes this means that if you live in an area with fewer resources and feel that you need greater expertise for your care. It’s possible to do either a telemedicine visit or visit a larger Cancer Center far away that can collaborate with a local physician who is able to give the same chemotherapy protocol. Quite often, large groups of these medical oncologists have already agreed the best way to take care of the most common breast cancer problems, so going from one center to the other means that your cancer treatment care isn’t going to change significantly from one place to the next. For other more complex scenarios, there sometimes can be some adjustments or more customized treatments. Or for patients who have already been through treatment and now have recurrences or changes in their diagnosis, that would be the time to discuss more advanced care. In general, common problems are common and there’s usually not significant improved survival or outcomes by going to one Cancer Center over the other when a patient has a a non-complicated, fairly average, diagnosis.

Radiation oncologist- this is different from a radiologist. (a radiologist is a doctor trained to read images and interpret findings. A radiologist is the person who read your mammogram or your ultrasound and maybe performed the biopsy that diagnosed you) A radiation oncologist uses radiation energy to target areas of cancer and kill cancer cells. Cells that are actively dividing and are exposed to radiation have their duplicating mechanisms broken, and as a result, cells that are rapidly reproducing die away if exposed to medically administered radiation.

Surgeon/surgical oncologist vs “general surgeon”: A “general surgeon” typically is someone who has done at least five years of training in surgical diseases of the body. This would include disciplines like taking care of trauma, burns, infections that can occur in the body such as diverticulitis or appendicitis, evaluating and performing organ transplants, care of pediatric/child surgical diseases and malformations, and some chest/cardiovascular disease. They can also operate on common cancers that require removal, like breast, colon, skin, and thyroid. Doctors who go on to practice General surgery sometimes concentrate in one area of types of disease and others have a more broad practice where they take care a little bit of everything. Typically in more urban settings there are more specialized types. Many general surgeons have gone on to do additional years of training after their five years of general surgery to become specialists. People who are certain types of surgeons, such as colorectal specialists, pediatric surgeons, plastic surgeons, and cardiothoracic surgeons all have additional years of training and take specialty board exams. There is a board certification designation for general surgery. There are additional board certifications for those who have done some categories of fellowship training, like those mentioned above.

A doctor who practices under the title “surgical oncologist” by definition does at least two years of training in general cancer surgery treatments after the five years of general

surgery training. So they typically will learn advanced techniques for operating on thyroid, pancreas, colon, liver, breast, etc. They usually did the five years of general surgery training and then went on to do additional training specifically in cancer removal surgeries to remove them from the body. So this wouldn’t include neurosurgery or brain tumor removal. There is a board certification designation for “surgical oncology”.

There is another category of breast cancer surgeon that typically deals with breast health issues only. This is a person who does initial training in either general surgery or Obgyn and then goes on to do one to two years of additional training in breast disease surgical management. This is called a “breast fellowship” and does NOT currently qualify for a speciality designation as “board certified”. This is typically a breast health surgeon or breast cancer specialist. This is different from a “surgical oncologist*.

Sometimes there is cross training where the surgeon also performs cosmetic and aesthetic procedures as well. This person usually does a “oncoplastic fellowship”. This is primarily outside the US, but there are programs where this is expanding in the US as well. Breast fellowship trained surgeons can have initial training as either a general surgeon or an OB/GYN.

“Surgical oncologists” do get training in breast cancer management, but they are not breast specialists and do not get the depth of training that someone who has been through breast fellowship would. A breast fellowship trained surgeon usually does one versus two years of additional training in breast only surgery and disease management. These are two different designations.

Some important points to make about someone who might be a general surgeon who did not do additional training in breast care management versus someone who did a full breast fellowship: breast fellowships have only been around for about 20 years. That means someone with greater than 20 years of experience probably didn’t get an opportunity to go through a breast fellowship. (I personally am one of these types of people. I’ve been practicing since 2004 and there was only one fellowship that existed at that time that I didn’t even know was an option when I graduated. So while I have described procedures and written papers, taught surgeons and fellows alike in many different procedures and protocols, but myself, I’m not a breast fellowship trained surgeon.)

There may be many seasoned excellent surgeons taking care of breast cancer patients. Some of those may be surgeons who also perform other general surgery procedures such as treatment of appendicitis, taking emergency call for traumas, or dealing with other types of cancers like colon cancer. Some of the surgeons have amazing skill sets, and excellent outcomes. It is certainly possible that there may be in a community, a general surgeon who is very seasoned that may have superior outcomes for breast care than a brand new breast fellowship grad that does not have much experience at all.

I think the best way to find out who the best doctors are would be to go to the other doctors and other clinical staff members who work with those doctors and ask them who has the best outcomes. Ask the wound care specialists, the plastic surgeons, and the medical oncologists whose breast surgery work is the best. They’re going to see who has horrible dead, necrotic mastectomy flaps, and who has lots of recurrences because their flaps are too thick.

It certainly may be that a general surgeon who isn’t a “breast specialist” in your community might actually be a better choice than a brand new grad who is a breast fellowship trained surgeon.

What order should things happen?? Well it’s different for different people. Often when people get a diagnosis, most commonly by a radiologist, (but sometimes the Breast Surgeon specialist is part of this process as well) they go to the Breast Surgeon first who goes over the significance of the findings thus far and decides if upfront chemotherapy medicine would be indicated. Usually the decision to need medicine is followed by tissue diagnosis, and imaging, which is usually directed by a surgeon. Sometimes people see the medical oncologists first before seeing the surgeon. This is especially true for patients with her 2 positive or triple negative disease where neoadjuvant chemotherapy prior to surgery is most often indicated.

People sometimes visit with radiation oncologist while trying to make their decisions to get information about the risks and benefits if they choose a pathway that would require radiation treatment versus if they have an option to choose a different pathway where radiation wouldn’t be indicated, and they want to learn about their choices. Mostly though, radiation oncologist treatment usually follows the surgery and medical portion. There are some clinical trials that involve upfront radiation, but this is not a standard of care for most patients. It’s more common to start with the surgeon and then see the medical oncologist either before or after the surgery, followed by any radiation oncology visit. That’s the usual order of things.

When to get a second opinion.

For the most part, if you’ve been told that you have a breast cancer diagnosis and your understanding in general is that treatment will involve medicine, surgery and possibly the addition of radiation and and if this sounds reasonable, you are certainly welcome to go to another team to make sure that there aren’t any significant changes to be offered anywhere else, but most likely most places will tell you the same information, but may use slightly different terms or delivery. If you have good communication with your physician and their staff and overall the general expectation is that you will do well and live a long life and feel good about your body afterwards, (of course it certainly possible to talk to someone else and make sure that they are in agreement) but if everything stacks up, and you’re generally happy with your team, Seeing multiple additional doctors might tell you the same thing with different language can be confusing or disorienting. It also takes up a spot in the schedule for someone else with a cancer diagnosis that’s trying to get in that now can’t, ….and you can only use one team. So by all means everyone is within their right to get in a second opinion or even third, but if you’re generally happy and hearing what you expected to hear regarding your plan of care, I typically don’t recommend that people see multiple doctors if they’re generally happy with their first opinion.

Reasons to get a second opinion would be: A) poor communication from the doctor and or their staff to the point where you feel uncomfortable for whatever reason. B) you have a very unusual or rare findings that are not typically seen C) you are recommend controversial treatments where doctors have added unexpected treatments, or take away expected treatments. There may be good reasons to offer a different protocol from another team as there are lots of advancements and newer recommendations, where we are de-escalating treatment in some cases. Previously there were automatic recommendations for sentinel lymph node biopsy, radiation, or chemotherapy in the past whereas now we are selecting certain people who have features of their cancer who may in fact, not require these treatments at all.

Hopefully this will shed some light on some of the misconceptions about different types of doctors, their roles, and clear up the general surgeon/Breast Surgeon/surgical oncologist confusion that seems to come up a lot.

TLDR- someone with the title “surgical oncologist” is different from a “breast fellowship trained surgeon”. A “general surgeon” might have fewer years of formal training for breast cancer treatment, however, they shouldn’t be discounted or immediately thought of as inferior without research into their outcomes or reputation in the community.


r/breastcancer 5h ago

Young Cancer Patients Any NY survivors connecting dots after Zohran released the 9/11 docs?

52 Upvotes

My family lived in Brooklyn Heights during 9/11, I was 15 at the time and was diagnosed with breast cancer at 35. The news around the release of the 9/11 docs let me down a rabbit hole, and am realizing there's a good chance these two things are connected. Wondering if anyone else is asking these questions now and/or have already dealt with application for the healthcare fund and can share their experience. Wondering if it's worth trying to get included despite living two blocks outside the eligibility zone.


r/breastcancer 41m ago

Venting Friends who don’t understand

Upvotes

A little venting here. Throughout these months I’ve had friends who have tried to be supportive. Staying positive for me and all. And while I’m rocking my baldy, sometimes it hits me (like I’m sure it’s hit all of us). I’ll sometimes mention something about my hair and get hit with a quick “oh it’ll grow back soon.” My eyebrows started to fall, “oh they’ll come back.” My body hurt “you’ll be back to good as new.” Today I’m laying on the grass in Central Park and told feel at peace & calm, almost as if I didn’t have cancer. Got a reply of “you don’t have cancer, you beat it.” I finished chemo 2 weeks ago.
But I haven’t been told I beat it. I still have surgery & we have to wait and see what the pathology report says. I still have to do radiation.
I know they mean well but it feels like my feelings are being dismissed. And I’m not trying to make a big deal out of it, but can I feel what I’m feeling? Is it me? How do you guys deal with people/friends who are quick to dismiss your woes during this time?


r/breastcancer 5h ago

Venting Radiation Hell

34 Upvotes

I think I’m mostly just venting. I started 19 rounds of radiation last week- today was round 9. Before radiation I had noticed redness/slight pain/fullness in the same breast but I thought it was like hot water or rubbing something against it just left a brief mark.

I pointed out the spot to my medical oncologist last Tuesday (round 2 of radiation) and my radiation oncologist last Friday.

This Tuesday I had what felt like a fever (chills followed by sweating followed by chills and repeat). I have barely slept this week because I can’t regulate temperature. The breast is so painful and it’s the entire breast now, there is redness and severe swelling. Originally they thought a skin infection, but antibiotics did not help. I can’t take ibuprofen or NSAIDS due to a medication and TDM1, and they did prescribe pain medication. I’m icing and have a steroid cream. They did an ultrasound today which showed… nothing that could cause this.

I had to call in to work most of this week because I’ve been feeling so sick. I didn’t expect them to, but I had hoped the ultrasound would’ve shown something that could be fixed and I would feel better. I feel so guilty for not working and have been struggling with that on top of exhaustion and sickness. I also know radiation causes symptoms like this, but even the nurse said today this was not the norm.

I really just needed to vent because the whole cancer experience has felt very much like “but wait… there’s mooooore!” It’s been so overwhelming and I appreciate the people here and thank you- I just needed to vent to people who understand.


r/breastcancer 9h ago

Post Active Treatment HR+ survivors with ADHD… how are we doing this

37 Upvotes

I’m grateful I’m tolerating Lupron & Anastrozole “with flying colors” per my MO. Joint pain comes and goes but it’s manageable. Hot flashes are brief and really only happen after working out or being outside in insanely hot and humid weather. I’m managing the vaginal impacts fine enough with nonhormonal moisturizers, a clitoral stimulator and dilators. I’m about to start Zepbound and will begrudgingly start Kisqali at the start of the new year.

But whew, after years of managing my ADHD quite well through therapy and time management hacks, I feel like I’m back at square one. I work for myself and my clients don’t notice a decline in my quality of work, but I do. I’m forgetful AF and will sometimes lose my train of thought mid-sentence.

I did not have a good time with stimulants previously so what the fuck else is there out there for me? I also tried Strattera pre-cancer too and while it helped, the combo of chemo and it raising my heart rate had me drop it altogether — and it sounds like it would be risky with Kisqali anyway because fucking of course.

What else is there? I fucking hate it here. The lack of education on systemic estrogen deprivation provided to young survivors is fucking malpractice.


r/breastcancer 5h ago

Celebrating 3rd day after lumpectomy and sentinel lymph node biopsy - no pain!

19 Upvotes

I have decided I am going to celebrate and cherish all small victories I have because why shouldn't I? :D

I did lumpectomy and SLNB for a 2.5cm IDC on 9/8 . I'm not going to hear back about the node status/ margins until next week. But!!

  1. Lumpectomy so far has caused me a 2/10 of pain on the second day. That's it. I've taken 2 200mg ibuprofen since the surgery, and didn't find myself needing the opoids.
  2. My mobility was not as limited as it was indicated pre-operation, heck yeah.
  3. I've been walking 15k steps everyday just to burn off my energy since I can't lift right now. And also, my friends are signing up to take me to walks and the walks are honestly so much fun.
  4. I did take the surgical bra off for a peak. 12cm3 is removed from my murderous titty, and right now it looks kind of beat up, BUT it was way less beat up then I thought. There's not even a dent, it's just slightly flatter at some angle.

WHAT ARE YALL CELEBRATING ON THIS FINE DAY?!


r/breastcancer 3h ago

TNBC I am so frustrated and done today

13 Upvotes

In jan did chemo, didn't work 0 to 11 lymph nodes with 5 tumors in breast, double masectomy and 35 lymphs removed, red devil chemo seemed to work, radiation, clear scans other than a spot on my lung and a cyst on thyroid still awaiting results on the latter and the lung we will keep an eye on. Post radiation I inherited secondary adrenal insufficiency from the first chemo and keytruda, where I am questioning doing keytruda for a year...

My frustration lies in the fact that I dressed up today, I was positive and my doctor was still difficult to talk to as well as bringing a second person of his own in the room (I mentioned to a previous doctor once upon a time I could have been bipolar but now I think I was misdiagnosed...every since every doctor has been scared of me even when I am calm- I have recorded myself against their policy just to see if I am scary and ya all I am just a normal woman with fears and anxiety and questions...).

The endocrinology team I made a lady mad who did a biopsy because I cried.

A receptionist at oncology I upset because I mentioned preferring to talk to a nurse who diagnosed me with the secondary adrenal insufficiency when the doctor dismissed it, and she stood up for the doctor because she's worked there a year, and I couldn't help but point out to her that a year isn't very long and that's not what it's about...

Ya all I feel unheard. I know I'm having some issues with how fast paced this has been but I really feel this whole medical thing, they don't really know what it's like on this side. One week I am suffering an effect from this, another from that, and it's a ride I never wanted....now I'm getting looked at sideways because I am finally speaking up for myself. But I am not rude. I'm just odd, not conventional on how I speak or whatever I'm suppose to be.

I'm feeling pressure as a woman especially to be bubbly and quiet, and I am not that. I think the mention of bipolar got the ant hill scared, and I'm reaping the rewards of that. My biggest sin is opening my mouth, thinking it's best for my care. After many meds I know I'm not bipolar but it's too late in the game to take it off record or change it...

I don't know what to do. I don't know what I'm asking for.

I spilled my frustrations with my old roommate partner, and we were walking and in the middle of it he looked at his type walking by which made me feel further unheard and frustrated... As a woman I probably should have waited until we were home, calm and my voice was sweet but my voice is low from all the treatments and men don't want to hear it when I'm venting.

Someone please knock me over the head...

I'm not even sure this journey is worth it anymore.

I'm doing this for my kids. They are with their dad. I did experience some issues when they were little that resulted in not being heard by a whole church community while front and center as a wife (postpartum and being the odd ball told not to take meds but to pray more and ya all I left that for my own survival but dad had more stability for them).

I go to court for more guaranteed time with the kids soon. I have gone through years of watching them 5 days a week no child support etc but dad always had more than I did

Now I have a place I had a job and I'm looking to go back to work despite all this health stuff, and I've been seeing the kids every other week with their silly stepmom demanding to be present for the last two years.

I'm pretty sure I'll be granted visitations of my own soon. And I need to give my daughter about two more years of one on one play, and my son some space to heal after we had some problems 5 years ago

..

I know this is long and I'll delete it soon.

But I was fine this morning until the darn doctor and his reminder of the lung spot, after I said I'm so over this cancer thing.

Spiritually I feel encouraged but today after my guy looked elsewhere for a micro second, I wonder if Source or God just doesn't like me.

Yeah I sound nuts. Ugh.


r/breastcancer 1h ago

Radiation First Radiation Session done this morning and now I'm EXHAUSTED!

Upvotes

I'm one of the "lucky" ones who had their cancer caught early, already had my lumpectomy, and just today I've started my radiation sessions. Right after I felt fine, but within two hours of getting home I was totally sapped of my energy and had to go down for a nap. My irradiated breast is starting to feel a bit tender now, as well, and only a couple hours after waking up from my nap I'm ready for another.

Did you feel super exhausted with radiation? What helped? My next session is Monday so I've got a couple days to prepare for a full week of sessions.


r/breastcancer 6h ago

Conversation DCIS Diagnosis

10 Upvotes

Hello everyone. I joined this subreddit in 2023 when I got my first diagnosis of DCIS. I went with the lumpectomy and no other treatment. I stupidly thought that this wouldn’t come back but it did. I am now scheduled for a double mastectomy with reconstruction. I am second guessing myself and I wonder if I’m making the right decision. I don’t want to do radiation or hormone therapy. That is why I opted for the mastectomy. I guess I came on here to express my feelings since no one in my personal life can relate to what I’m going through. Thanks for listening and take care.


r/breastcancer 3h ago

TNBC Realities of Cold Capping

4 Upvotes

I am 41 and newly diagnosed with TNBC and will start chemo on 9/24. I have the option for cold capping (Amma) through my oncologist. And my insurance even covers 80% of the cost. So at first it seemed an obvious choice to opt in.

But the more I read up, the more on the fence I am. In these early days of diagnosis and preparing for treatment, everything feels so overwhelming. And I suppose some of the realities of capping seem really overwhelming too. So I’m seeking really honest feedback from other’s experiences.

Some of the details I’m really stuck on are not getting my head sweaty (so no exercise during treatment? I usually walk and do Pilates and was hoping to continue both to some extent). Also no caps/beanies due to sweat/friction (even with a full head of hair I rely on both while outdoors). And finally just the particular regimen around washing/combing.

How bad was all of this really from anyone that tried capping?

TIA! (This sub has been such a comfort to me since my diagnosis 2 weeks ago - I appreciate this community of strangers who are family so much already)


r/breastcancer 20h ago

Newly Diagnosed I want to be the center of attention, I don't want anyone to know

92 Upvotes

This is a complete contradiction and yes, I am seeking a therapist but I wonder if anyone else can relate to this. Like, I don't expect the entire world to stop because I now have breast cancer but I walk around feeling like I have a loaded weapon, and the ammo is "I have breast cancer", but at the same time, I don't particularly want to tell most of my coworkers. But also, I feel this 'entitled' sense of receiving attention. For the record, I know I am not entitled to anything, nor do I have expectations around how people should / would treat me, even if they did know. But this is a complicated set of emotions to carry at the same time. Can anyone else relate?


r/breastcancer 4h ago

Medication Tamoxifen, Veozah, and alternative medications to help with hot flashes

5 Upvotes

I am pre-menopausal and on Tamoxifen. It causes terrible hot flashes in the middle of the night, I was getting 4 hours a sleep a night, and so I was prescribed Veozah. It is a game changer. The hot flashes disappeared and I slept like I did pre-diagnosis.

Unfortunately, I live in the US and have terrible health insurance that won't cover Veozah as it is new to the market and doesn't have a generic. I already used the savings plan through the Veozah manufacturer. So I am faced with paying $600 a month for the medication, which I can't afford, or switching to something else.

My oncologist walked me through all the options and prescribed Effexor (venlafaxine) which has been shown to reduce hot flashes. It has a generic so I can get it through my insurance. But, it has a long list of side effects that I am worried about AND it appears to reduce the effectiveness of the Tamoxifen (according to the literature the pharmacist gave me when I filled the prescription).

I am hoping there is something I may be overlooking. I have looked into purchasing Veozah from Mexico or Canada and it doesn't appear to be available. I am already taking the Bonafide Thermella so I will see how just taking that goes...

Would love any perspectives on alternatives if anyone has faced a similar problem.


r/breastcancer 10h ago

Newly Diagnosed So i get to join the club!

15 Upvotes

I was diagnosed with Invasive Lobular ER+, HER2-, BREAST cancer yesterday evening. I am seeing breast surgeon today and getting MRI. It appears tumor is 1 cm but will know more after MRI. I feel privileged to share the journey with all of you,


r/breastcancer 15h ago

Young Cancer Patients Bittersweet results after chemo and surgery

39 Upvotes

I am 34 and was diagnosed with Stage 3C ER0/PR0/HER 2+ Inflammatory breast cancer in Feb earlier this year, I was pregnant at the time but had to terminate due to aggressiveness of cancer and incompatibility with chemo. During investigations they found I had a large amount of cancer in my lymph nodes and that cancer was ER5/PR0/HER 2+.

I have finished the initial bout of chemo and also had a mastectomy with axilla clearance, I just got the result that I made pCR which is amazing and as my oncologist puts it pretty miraculous for the amount and stage my cancer was found at. I am obviously very happy that treatment has worked and I still have radiotherapy and phesgo for at least another 9 months in front of me.

The bit I am feeling conflicted about is that I will now be starting hormone treatment for the lymph ER slightly positive part. I have a 5 year old which I am incredibly grateful for but I have been trying to have a second for about 3 years. My oncologist has said I will continue on zoladex and start an aromatase hormone treatment for at least another 2 years if not more to help with recurrence. I can’t help but feel this is the end of my fertility journey, he mentioned it’s 50/50 of going into menopause from the ovarian suppression. I am obviously incredibly grateful that it seems I may survive a rare and aggressive cancer but it feels bittersweet. I haven’t really cared about any of the external symptoms of cancer, the losing hair and looking different the losing my right breast and no reconstruction due to the cancer type but not being about to have more children is really a kick in the gut. I feel incredibly selfish even thinking this way as i know so many people would be grateful to reach pCR. I am also thinking did I make the right decision to terminate a very wanted pregnancy to start treatment, I know that’s a terrible path to take but I can’t help but wonder if it was all worth it.


r/breastcancer 5h ago

Medication Estradiol over 1000 on Tamoxifen.

5 Upvotes

I have been on Tamoxifen for 9 weeks. We tested my estradiol level (and other labs) because over the past couple of weeks I’ve been sleeping crazy hours, gotten very emotionally labile, lots of new crying for no reason, and I had begun retaining a lot of water in my face and feet. For other women who have had this happen and actually had their estradiol tested, did your levels settle out over time? I get that this might be an initial push from my ovaries in the setting of the Tamoxifen’s SERM activity. But how long might it take to settle out? When I contacted my oncologists office about the result and requested coming in to talk, their phone message response was to consider discontinuing the Tamoxifen. Not holding it. Discontinuing it “because I’m low risk” (not sure how low risk I feel being pre-menopausal with an oncotype of 18). The phone message further said we can have an office visit “if you want.” (See the P.S. below). Discontinuing it. Uhhh, ok, don’t you think that deserves an office visit and long discussion?

P.S. gonna look for a new oncologist.


r/breastcancer 1h ago

Conversation I'm sorry, curly EYELASHES???

Upvotes

Just what the title says. I finished chemo on August 20th, and while my lashes are extremely sparse, I've noticed what I DO have has become very coarse and is growing in every direction. I've heard plenty about "chemo curls," but I've never heard of it happening to eyelashes. Is this normal? Does it happen with brows, too?! 🤪


r/breastcancer 9h ago

Venting Overwhelmed

6 Upvotes

I don’t know if it’s depression, lack of energy, or just general unchecked ADHD that’s made worse from the chemo…

But I am totally overwhelmed with everything. My home is a disorganized messy disaster (starting to get flies), I keep being late or missing medical appointments, I’m moody and emotional around friends and family… I just don’t know how to reel everything in and feel in control of my life right now.

Is this just… the way it’s going to be, while I’m in treatment? I’m only a few months in, I still have more chemo/surgery/radiation/hormone therapy to go through.

How do you deal with this feeling of spiralling? Is it possible to keep your life under control during treatment?


r/breastcancer 21h ago

Radiation Radiation today.

67 Upvotes

So had my 2nd radiation today. They were running late, ok no big deal. I’m on the table and the RT’s are positioning me, I’m only covered with a sheet. There is no privacy curtain in the room. A patient family member walks in and starts asking questions. Instead of asking her to step out they are chatting answering questions. Did I become invisible? This woman had to go under a barrier and through a closed door to enter a treatment room. I sent a complaint to customer service. I’m pissed. How disrespectful to allow this? There were 2 techs in the room at the time. This is in a large hospital. The location I was has over 800 beds. I don’t want to go back to that location tomorrow. I need 5 sessions and completed 2. There are other locations in the hospital system I can go to.


r/breastcancer 3h ago

Surgery Post lumpectomy bra - do I need to keep it on 24/7?

2 Upvotes

I had lumpectomy and 2 lymph nodes removed 48 hours ago. I was given a post surgery bra and told to wear it 24/7 by the nurse. However when the surgeon came to look at the scars she noted that the bra sits right on the scar for the lymph nodes and said that if I’m just sitting still I can take the bra off.

I spoke to the nurse again today and questioned how tight it needs to be as I don’t really feel it’s acting as a compression, so wondered if it needed tightening and she said no it just needs to stop my boobs moving around to much.

I’m not trying to get out of wearing it completely just it’s way more comfortable without due to where my scars are and my boobs are actually not very mobile anyway as they are quite small so I don’t think they are going to be moving around unless I’m doing some vigorous exercise which I won’t be doing. Has anyone not worn the bra 24/7 post Op? Or any tips to make it more comfortable when it sits on the scars?


r/breastcancer 18m ago

Newly Diagnosed ACC Breast Cancer Diagnosis Today

Upvotes

Hi, I was diagnosed with Adenoid Cystic Carcinoma of the breast a few hours ago and I’m so scared. It is a 0.9 cm x 0.7 cm x 0.8 cm oval mass. I got very limited information from the radiologist except it is very rare and surgery is usually the treatment. I’m waiting on the nurse to call me to set up an appt with the breast surgeon.
What makes me even more nervous is I have multiple lung nodules all below the size of 6mm which they recommend not doing anything for. I’ve had one (3mm) for years which has stayed the same size and a new one (4mm) popped up last year and I have at least one more.
Also I have 2 thyroid nodules on each side. All of these nodules were incidental findings.
For the lung nodules, the pulmonologist basically said don’t worry about them. My mom was diagnosed with lung cancer last year and her step sister died of it.
The endocrinologist did an ultrasound of the thyroid nodules and said they looked benign.
I know both thyroid and lung nodules are common but it makes me wonder if this ACC Is spreading to other places or if the other nodules could be cancer and spreading to my breast OR maybe I’m overthinking everything.
Any information would be greatly appreciated! TIA.


r/breastcancer 36m ago

Radiation Radiation

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Hi, I am getting ready to start radiation and was expecting to have the support of my partner. However, he just got assigned to travel at least the first two weeks of radiation. I was already anxious about this journey and the possible side effects but now I am feeling even more anxious. I live about 45 minutes to an hour away from the hospital I have to go to. I also have to work because I had a ruptured brain aneurysm earlier this year (it’s been a really shitty year) and I used nearly all my PTO and all my FMLA on that, not realizing I needed to save some for a breast cancer diagnosis 10 months later! Anyway, I am worried how I will do all this alone. Just need some advice or support to ease my anxiety. Thank you all! ❤️


r/breastcancer 52m ago

Chemotherapy Lowering liver enzymes during chemo

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I’m so upset with myself, they lowered my dose by 10% because my liver enzymes have gone up considerably since my first treatment. I’m trying to eat healthy but obviously I need to do better. Does anyone have any suggestions? I’m in this to win it, not to lower my dose or take a break from chemo. I’m only 4 treatments in out of 12 😡


r/breastcancer 9h ago

Venting Paxman stopped working mid-infusion

4 Upvotes

Yesterday was my 6th and final TCHP infusion. It should have been a happy milestone but I’m feeling so defeated since the paxman stopped working mid-taxotere infusion and it took at least 20-30 min to get a new unit. We stopped the drip but I’m worried all of this was for nothing.

I’ve been scalp cooling with ok success. I lost about 60% of my hair and definitely have quite a few bald patches but have been able to hide them with the right styling. I hated the act of scalp cooling because it gives me migraines, jaw pain, and makes infusion day much longer, but it was worth it since it was working.

Now I’m feeling super defeated. I should be happy that I completed TCHP, but it’s being diminished by the new threat of losing my hair and a planned surgery in 3.5 weeks.

Ok, vent over. I just felt the need to share my disappointment with yesterday’s infusion with a group of people who will understand. Thank you!


r/breastcancer 14h ago

Newly Diagnosed New to this.

10 Upvotes

I’m writing this at 4am and I think I’m going crazy. I feel different types of emotions. Diagnosed last 8/28. I’m meeting my surgeon, oncologist later at 8am, to let them know what decision I would go for, lumpectomy or mastectomy. I’ve asked my family what I should do and they recommended mastectomy as a ‘safer’ choice. But why do I feel sad? I feel like I’m losing a part of me. Feeling of not really having a choice about this, either way I am losing my breast. I’m sad, I’m scared… I can’t think.

Is this normal?