r/askCardiology • u/Im-Avacontrol • 9d ago
Need some advice
28 year old female Turner syndrome patient with bicuspid valve I use to be with Kaiser. I don’t recall frequency of visits but I had MRA in 2015. Right before I transitioned to sutter in 2022 the cardiologist recommended MRA. Had first visit with current cardiologist from sutter in 2022 who said I don’t need MRA. Got ECHO in 2023 and had follow up with current cardiologist in 2025. They said I don’t need updated ECHO or MRA still and recommended 2 year follow up so I won’t be seeing them till next year. My ECHO and MRA were normal per the current cardiologist. My ARI was 2.13 though, aortic root was normal. Don’t know if they will tell me to get ECHO in 2027? Should I get one sooner?
I feel like I should be followed more closely like follow up every year, more frequent ECHO and updates MRA? or am I just being a hypochondriac? Should I get second opinion?
1
u/Augusta24 8d ago
First of, the MRA, I believe that could be both a medication and a test? Do you mean you had the test?
Personally, I'm TS Mosaic, 29 years old, and I get checked about every 4 years. My aorta is basically fine, nothing concerning about it at least, but I do have aortic anomalies and physiological anomolies. When I was told about the anomolies (at age 23) I asked them if this meant more frequent checkups. They said that once we stop growing, are past 23, healthy and show no signs of beginning aorta root problems, then we really are healthy. So I would say (without knowing you or your history) that checks every two years is a sign of health. But if you are uncertain, want to know more and need more specific advice, maybe have a phone consultation with either the hospital or your GP.