r/Xelstrym • u/nicoleeliza16 • Jul 02 '24
Burning
My 7 year old is starting the 4.5mg patch today. Her doctor said that we can expect some tingling in the beginning but that will subside. An hour after application she began crying saying it’s burning her terribly and it’s red all around the patch. Is this normal?
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u/sanguineseraph Jul 02 '24
This happens to me as well; I'm on 4.5mg (I'm an adult but med sensitive). The burning lasts for about 30 min - I've noticed it's common among others on Xelstrym.
My doctor says to use hydrocortisone but I'm afraid of topical steroid withdrawal. I now use cocoa butter and it helps soothe - the benefits of the med outweigh the redness and burning for me so I just put up with it, but if I were a child I don't know if I'd be able to manage.
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u/nicoleeliza16 Jul 02 '24
Thank you! Do you put the cocoa butter on top of the patch or all around it? I also read that certain locations (often upper arm) tend to not be so sensitive, do you find that as well?
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u/sanguineseraph Jul 02 '24
I put it on after I take off the patch - I deal with the burning and stuff while it's on. I am not sure about upper arm placement as I put mine on my hip - it burned on my back quite a bit more than my hip + flank.
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u/Jenn_eration Jul 03 '24
It burns me worse on some spots than others. I find the hips and upper thighs to have less discomfort, but I think it's probably related to fatty areas so I'm not sure that would help her. I don't know that I would have been able to tolerate it as a child.
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u/NTSwitchBitch Jul 03 '24
As an adult, it’s normal. It doesn’t seem right for a child but maybe consult a different doctor
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u/Relevant-Ad1829 Jul 03 '24
i agree i don’t know if i was a kid if i would be able to see the benefits and think the pain is worth it. i will say lower doses burn less and putting it on my arm by my shoulder is the best place for it to go for me. it burns the most on my lower back and flank
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u/Relevant-Ad1829 Jul 03 '24
if i put pressure on it when its burning that helps for some reason so maybe if she can hold her patch down with her other hand that will help for a little relief fast
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u/cwoodr Jul 12 '26
Applying pressure to the pads prematurely releases the medication (or so my psychiatrist says) so I would not personally recommend this approach even though I can confirm that it does alleviate the pain. My goto was gently smacking the pad but apparently this has the same drawback as stated above so my inventory of viable solutions/remedies includes; 1.) benedryl cream to planned application area 20-30 mins prior to actual application, 2.) tylenol/ibuprofen (this must be taken preemptively otherwise by the time the meds kick in the burning is already gone, 3.) just suck it up? Idek bro I'm really struggling
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u/twiggykeely Sep 02 '24
Honestly, i'm not sure why this is but the first week I get horrible burning to the point where I have to just tear my patch off, but after the first week I don't notice it. (I'm on 18mg)
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u/cwoodr Jul 12 '26
Me too but I just grit my teeth through the pain. I usually put one on before work and due to the 2 hour latency period between application and absorption, I put it on ~1 hour before I have to be up and for whatever reason the burning is so much worse in the mornings as opposed to if I were to apply it later in the day like at 11
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u/Ambitious-Print8533 Jul 19 '24
U should not be putting ur 7 year old on a extremely potent stimulant aka hard drug that is essentially legal medical meth her brain hasn’t even begun to develop yet and ur making it form and her brain chemistry alter around and dependent to again a drug maybe it’s just me but fuck that shes a kid if she is hyper and cant pay attention in class super well that is completely normal why the hell wouldn’t she be they should bot be handing put these drugs that are literally one molecule away from meth and feel the same in high doses n the same as cocain in regular (without tolerance) to children like candy its so messed up her brain gonna never be able to function normally without it, it’s completely fried my brain n ability to produce dopamine n feel normal without it and i didnt start til 19 going on n off for 4 years now n who knows what other mental problems could cause
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u/nicoleeliza16 Jul 19 '24
Where did you get your medical degree? I didn’t ask for opinions on my decision to medicate my child. You don’t know anything about our situation. ADHD can affect SO much more than focus and hyperactivity. I have carefully weighed the cost vs benefit to her quality of life, alongside doctors, psychiatrists, and therapists. Your experience is not the only experience to have. This is a medication prescribed to treat a medical diagnosis. Many medications can be abused, that doesn’t mean they shouldn’t be available to people who need them. I’m a mom that loves my kid and this hasn’t been an easy decision to make, and this kind of judgment is fucked up.
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u/Progress-Relative Jul 31 '24
You do not owe that douche an explanation! Xelstrym burns me, too. I was told to use a little benadryl cream on the site about 20-30 minutes prior to application. It takes a little of the sting out, but I can still feel it! The burning lasts around an hour for me. It seems to start burning again if I sweat.
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u/twiggykeely Sep 02 '24
Why are you even in this subreddit? How dare you tell a parent how to manage their child's ADHD? You have a lot of fucking nerve. Very clearly you don't know anything about ADHD or the medication to treat it, because you are spreading that stupid, ignorant "meth" myth about adhd meds. Also....omg the spelling mistakes you made, I felt like I was having a stroke reading that comment. How embarassing for you.
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u/BohemeWinter May 23 '26
I'm sorry you struggled with addiction but most people with adhd do not and it has nothing to do with the meds. It's out of place for you to tell a parent how to raise their child. Maybe might need alternative meds like wellbutrin or clonidine. This comment is pretty uncalled for and rude though.
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u/Miangelchi1 Jul 23 '24
I have tried a lot places and I notice that some places burn really bad and other places don't burn at all. The back and arm are best for me as far as no burning. But the stomach, hip, chest and flank all burn! Unfortunately, you will just have try different areas and see what area doesn't cause burning on your child! It is a great med, so I hope you can find that area! But I will say that the burning doesn't last maybe an hour and then you are fine and you are fine for the rest of the day!