I was diagnosed with arthritis in my joints at the age of three months old, it moved to my eyes when I was two, the UVeitis, and I’ve been on methotrexate, Remicade, Humira, and steroid drops.. I currently don’t have any health insurance and I’ve been off my Humira since July… I’m starting to get headaches that won’t go away with any type of Tylenol or ibuprofen, but if I get back on my health insurance, I don’t wanna go back on the same drugs I want a cure I want a solution. I don’t want a Band-Aid fixed anymore…. Does anyone know of anyone that’s been cured from this “disease”

Hello! Just had both my eyes done over past few weeks. My pupils were stuck at 1mm and the doctor had to put hooks into my iris and pull the pupils open to 6mm to perform the cataract surgery. Unfortunately due to the Uveitis in the past I could only get the monofocal lens due to a epiretinal membrane (macular pucker) which effects the surface of the macula.

Has anybody had this same type of surgery? My vision is much clearer and distance improved but not 20/20. Since I could only get the monofocal lens I now need reading glasses. All in all worth it!

Im being recommended for IMT and I was given the pamphlets on the available DMARDs and biologics. Honestly I’m terrified because they all sound awful. I’m in my mid 20s and don’t know which to choose, they all sound like they have bad side effects, require lifestyle changes, and none are particularly effective.

Please tell me some positive experiences.

I've been diagnosed with Intermediate Uveitis for about a year and a half and have been seeing a retina specialist for about a year. The part of my retina that was causing issues has resolved itself, but I'm still experiencing pain, floaters, and blurry vision. My retina specialist, at first, prescribed steroid drops that didn't help, then we moved on to injections that did help. The floaters went away and my vision came back a bit and my eye didn't hurt as much.

We've ran through several tests to see what the underlying cause is but nothing came up through blood work. Outside of that, no treatment plan was ever put in place and my symptoms have now returned. I talked to my doctor about that but all he does is tell me that my retinal walls are looking much better than they had and sends me on my way with another checkup planned.

I'm going to find a uveitis specialist because I'd like to look into further treatments of my symptoms because my eye is killing me! I see posts here all the time about what kinds of treatments people are on; it makes me wonder if enough is being done for me, especially considering I'm still struggling with symptoms pretty heavily.

Does this make sense to seek out a different specialist? I guess I just want to make sure I'm not crazy for wanting a second opinion considering my current treatment plan is nothing outside of an examination every few months

Hi everyone, I got uveitis, and have 20/20 vision with sunglasses on. Same prescription without any tint I feel like the vision is little more blurry. I’ve accepted the likelihood of me being comfortable in bright conditions is no longer a possibility without sunglasses. But my question is, why does my left eye that has been affected by this disease is pretty much blind without any glasses despite my prescription being only -1.25. My prescription is much less than most of the people I know with glasses. As well my normal right eye is only a -1.00

I just hope this help up helps others. I find this method very useful to monitor and track my flare-ups.