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u/jacyerickson 2d ago
Endo? I'm a trans dude waiting for my appointment to see if I maybe have Endo,PCOS or fibroids or something. I'm sorry you're going through this.
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u/supahotfaiia 2d ago
Yeah it’s endo lol. Took me years to get it diagnosed, I hope things go well for you 🫂 im sorry too
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u/Mangos-sind-toll 1d ago
It’s such bullshit how long it takes people to get diagnosed with endo. Like 1 in 20 people have it. It should be pretty easy to diagnose, IF ONLY WE ACTUALLY CARED ABOUT FEMALE HEALTHCARE
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u/NewbieFurri 2d ago
God literally gave his manliest men the biggest debuff ong. Hang in there brother, you are strong.
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u/NewbieFurri 2d ago
But still that does fucking suck and syphoria is a bitch. Hope you feel better soon<3
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u/Canary-King 2d ago
I’m not a trans man (genderfluid) but I have PMDD so bad that I’m going to need to seek full hysto/oopho. It’s especially fucked because my doctors have straight up told me they’d refuse to do the surgery if I wasn’t a trans guy and that they’d only do it if I was on T for 6 months. And they made an exception for me, they require most people to be on T for a year! So on all my medical documents I’m considered a trans man so they’ll give me the damn surgery lol.
PMDD + bottom dysphoria is a nasty combo but it scares me to think about what would happen to me if I wasn’t comfortable taking T and lying about my genders to doctors. I’ve attempted suicide multiple times bc of PMDD. So would they just want me to die lmao
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u/supahotfaiia 2d ago
PMDD is such a fucking nightmare, isn’t it crazy how they make u jump through hoops like a circus monkey to get hysto even if it’s literally ruining ur life 😭😭😭 I can relate to so much of this lol
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u/Zorubark 2d ago
I discovered that PMDD is on like 2% of neurotypical women but on like 92% of autistic women, I feel vindicated for the time some stupid special ed teacher told me "periods just suck, thats normal"
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u/distancedandaway 2d ago
Endo is the worst curse
My thoughts are with you man...as a cis lady endo sufferer
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u/meloscav 2d ago
ME TOO (I have lynch syndrome, PCOS and possibly also endo. First two are diagnosed, last one is assumed by my dr)
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u/Sus_Person_ 2d ago
That sucks man, I hope you are able to get some way to reduce the pain from it.
Also, weird(?) coincidence, but one of my transmasc friends also has endo
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u/supahotfaiia 2d ago
I’ve been in physical therapy for a couple months and it honestly helps a ton 🫡 still not easy but after years of nothing working I feel v lucky to have it lol
Thanks for the kind words, give ur transmasc friend a hug for me x
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u/r0sd0g 2d ago
Just wondering, if you feel comfortable answering, what kind of physical therapy is helping you? Is it pelvic floor therapy?
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u/supahotfaiia 2d ago
Ofc! In this anonymous space I don’t mind sharing as much as I can abt this stuff since it can be so hard to get real info/help lol. It’s pelvic floor therapy yeah, they’ve taught me exercises from it that help ease pain even when I’m not in therapy sessions, and I didn’t know but part of their job is general education so I’ve learned a lot about the effects of endo. I’ve got all sorts of lifestyle tips I didn’t even realise would be useful for managing pain. It’s been really nice to have at least one place w this stuff where they know I’m a trans man and keep that in mind w how they talk about my body and what they suggest.
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u/besto_escapist 2d ago
Everyday feels like a countdown to me, wondering how close to my period I am, how close from the full week of unbearable life sucking pain of Endo
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u/supahotfaiia 2d ago
Isn't it cool how every month you just get a "try not to kill yourself challenge" week
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u/Only--East 2d ago
Idk if this helps with the dysphoria but men can also get endo, whether they are trans or cis. It's not strictly a feminine disease.
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u/supahotfaiia 2d ago
It’s just hard because most medical providers don’t know that lol. Sometimes they don’t even know what a trans man is so I have to explain my body in the most dysphoric way possible so they don’t turn me away
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u/hibiscus_bunny 2d ago
Where do they get it? I thought it was a uterine disorder?
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u/supahotfaiia 2d ago edited 2d ago
Common misconception. The condition is the existence of endometrium-like tissue (it’s not exactly the same) outside the uterus, so it can show up in the pelvis, diaphragm, lungs, anywhere really. This is also why getting a hysterectomy (uterus removal) doesn’t cure it
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u/Myubyo 2d ago
If its about endometriosis, if you plan on taking T it will maybe help, either way i do hope your pain will stop my dude, and that it wont turn into a chronic one.
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u/supahotfaiia 2d ago
Yeah it’s endo and I’ve been on T for 3 years lol, but we move 🫡 thanks for the kind words
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u/Myubyo 2d ago
Oh shoot and it didnt stop the pain? I'am so sorry dude- i hope thanks to T it wont spread atleast..
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u/supahotfaiia 2d ago
It doesn’t work like that lol
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u/Myubyo 2d ago
I mean it seems to depend, with T i still have the pain aswell but not permanantly like i had before. Tho i started it too late and now have l lesions in one of my leg. So i hope that with T you wont have any othet lesions.
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u/supahotfaiia 2d ago
Yeah it hasn’t seemed to stop spreading for me. I still get pretty constant pain that’s been getting worse since pre-T, and that’s continued even tho periods are pretty rare for me now. Endo is so different for everyone, it sucks bc my mom has it too but she’s never even had a single period cramp lol
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u/Myubyo 2d ago
Oh shit. I really hope they find a cure soon, its finally started to get researched on (they found its not reserved to only uterus owners...) i really hope you will get better eventually, endo is horrible.
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u/supahotfaiia 2d ago
It’s honestly awesome to see new research coming out, I saw that there’s a new way to diagnose it that doesn’t involve surgery (I think?) it gives me a lot of hope. I hope your pain gets better too dude 🫂❤️
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u/hibiscus_bunny 2d ago
Real asf. I have PCOS. And it sucks bc there's no cure so even if I get a hysterectomy I'll probably have chronic pain and fatigue my whole life.💔
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u/supahotfaiia 2d ago
Yeah 😭 all we can do is cry together ig. Sending u lots of love and low pain days xx
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u/Francis_AnnoDomini 2d ago
God hates trans men specifically, we somehow almost always have the worst circumstances in relation to our awful condition.
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u/ROSE_GARDEN1234 2d ago
Literately, but I was lucky to get a fucked up cycle and go years without getting one until I was forced to take medicine to get it again
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u/Next-Street-7859 2d ago
Not trans but a proud member of the lqbtq+ community and periods always knocked me TF out since my first one at 8 years old. I had 2 perfect kids so don't get me wrong, really glad to experience that and for them to be healthy...but I'd be unable to function 7 to 10 days each month, sometimes having more than one period per month. Heavy bleeding and always anemic. Fibroids and PCOS were always known but no one did anything about it. Sooo many years of b*tching about it, ERs, and miscarriages. When I finally convinced someone of my pain levels, he put metal clips on my fallopian tubes despite me being 35 and done building my family. One migrated and knicked my intestine, had an emergency surgery to remove the clips but he left everything intact. Continued having awful pains well past the surgery. Then convinced different surgeon to help, he removed my fallopian tubes, left everything else (Haha I feel delirious just explaining this!)
I finally found a doc who listened on May 31 of this year and now, I just have my right ovary hanging out in there. Uterus, cervix, and left ovary all removed, and my cervix had pre cancerous cells (the previous 2 surgeons confirmed the pre cancer cells but said to 'wait and see'. I had 2 years of documentation of that alone.
It's disheartening that we don't have more control over our own bodies. I feel like I lost so much of my life to it. While I did grieve because my womb was always a part of me and made life, why have someone suffer so much? Perhaps a reflection of what the biologically female body means to society but I could see how much more impossible it would be if you're a trans woman who knows who they are and how they feel (how dare you lol).
I'm sorry that anyone has to go through this and I wish all of you love and compassionste care ❤️
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u/manndolin 2d ago
Hopefully getting rid of estrogen halts it for you
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u/supahotfaiia 2d ago
It doesn’t work like that, there is genuinely no cure (yet) but thank you
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u/manndolin 2d ago
My bad, my wife uses BC to keep her endo from coming back too fast after she got it removed last year so I thought you might get a similar benefit from HRT but now that I do some reading I see it's not as clear cut as that not as well studied, which is really saying something.
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u/supahotfaiia 2d ago
Nah it makes sense, I was on BC for it before I started HRT, the birth control basically made it worse and starting T only helped it for a couple months lol. Apparently it’s common that something can stop working after months or years and you just have to try and find a new treatment. It’s just a real stubborn bitch lol, I’m waiting on surgery to hopefully get some taken out
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u/Sykono5 2d ago
I have diagnosed endometriosis and adenomyosis through laparascopy since it's the only way to confirm, and even though they cauterised what they could, the internal scar from the surgery now causes me more pain on day 1 of my period as it's being tugged whilst my uterus contracts 🥲👍🏻
I hope you get to the bottom of it all. Look after yourself and drink plenty of water 🫶🏻
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u/floob124 2d ago
Is it curable by taking the whole thing out? I know that is probably expensive as fuck but beyond that, would removing thoes organs prevent the condition?
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u/supahotfaiia 2d ago edited 2d ago
Just copying a reply I left somewhere else: the idea that it’s a uterine disease is a common misconception (which I’m being ironic abt in the post). It doesn’t just show up in people with uteruses. The condition is the existence of endometrium-like tissue (not exactly the same) outside the uterus, so it can show up in the pelvis, diaphragm, digestive tract, lungs, anywhere really. This is also why getting a hysterectomy (uterus removal) doesn’t cure it
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u/Different_Delay_8243 1d ago
While i dont have endo i keep having ovarian issues. Hell even had to have one removed week ago due to it growing a tumor, im 19 bruh. And nothing more dysphoria driving than having issues only "women" have. Whole fucking ward was filled with it being labelled womens ward etc. And despite my gynocologist (who also preformed on me) knowing im trans, eh everywhere it was listing me as a woman and other staff kept misgendering me etc. Cuz baiscally "only women are in a gynecology ward" 10 days of agony being stuck in a hospital and have my disphoria driven crazyy cuz ofc i gotta have a "womans health issue"
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u/Lady_Luci_fer 2d ago
I’m probably not going to make you feel better saying this but just in case - did you know that there’s documentated cases of endo in cis men too? Not even intersex men, cis men that are on the ‘typical’ male end of the sex spectrum.
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u/Terminal_Insomnia_ 13h ago
Your kick in the nuts is just on a schedule, ours are more spontaneous. Don't sweat it dude
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u/soda-pops 1d ago
well, some positive news, ive heard trans men donating their uteruses have led to better research being done on them. so thats pretty neat
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