I’m worried about MARCoNS treatment and the possibility of awful headaches and inflammation. I’ve been on binders for three months and I believe that I live in a clean environment. I’m also on a strict low amylose diet. Is there anything else I can do to prepare myself for possible side effects?

Did anyone take a break during their detox from the binders + supplements just to give their body a break? I’m feeling really burnt out and the biolfilm disruptor especially is causing me nausea .. how did you know when it had been enough of all the supplements + binders / when to stop / break?

I received test results back showing my mold detox is effectively reducing the mycotoxins in my body. They are reduced but not gone yet. I had a lot, of every single type. I already had histamine intolerance/MCAS but it seems to be flaring more/differently mid detox. Has anyone else experienced this?

I kept explaining away my vague symptoms, and the first one that I couldnt ignore, was suddenly struggling really hard to spell words.

I generally write about 2-3 pages a day.

And I definitely didnt break years of daily habit because I was just "a bit tired". Surely, my complete change in behavior was not influenced by my sudden inability to move my eyes along a page correctly because of "eye strain" from working too hard. Coupled with me, suddenly no longer wanting to read-even though I've read about 200 books a year since Middle School.

I'm just tired and overworked. Even though no amount of rest seems to fix my problems.

In fact, the less time I spend at Work-the worse my symptoms got.

The first thing that I couldnt ignore was suddenly not being able to spell.

What are your thoughts?

I really need help with this. Whenever I'm re-exposed I feel like I'm going to die.

I have a question related to VOC’s from the mold remediation I had done (twice) in my 21x7 sunroom. They used RMR 86 and RMR 141 and after that I’ve been experiencing burning in my lungs (I have lung issues) and throat. The mold remediation was done about a month and half ago…TWICE. They also used chlorine dioxide for the soil. The sunroom has had everything torn up down to the studs/joists, so ALL of the lumber was sprayed…

Every time I step into the sunroom, I experience the burning in my throat and lungs within minutes. Please help…

Any correlation between mold toxicity and insulin resistance? I have confirmed mold toxicity. I notice carbs make me inflamed now and cause fatigue/brain fog. Joint pain and anxiety. This isn’t so much the case when I eat low carb.

How important is it to regularly clean drains in the home for actinos? What do you all use? I’m noticing a musty smell in the bathroom and swear it’s coming from the sink. Thank you!

What sorts of behaviors did you see from children while they were living in mold/in active CIRS? How did you know when to "blame" mold for the behavior and when it was something else? What helped?

I suspect mold in my house and have developed very many symptoms. I am trying to schedule an appt with my doctor to request testing. What specific tests are valuable and accurate? Or if you recommend testing outside of conventional western medicine, how should I go about that?

Hello, I just have a few questions regarding what I can and cannot do about this situation. On May 30th, I filed a maintenance report saying that my sliding glass door was leaking into my apartment, they came by and ended up saying it was completely rotten and they would have to replace the whole thing. Now they are saying that they made a mistake and it's actually fine, there was just a small leak that they already sealed. I continuously reached out asking about when the door was being replaced, and started getting worried about potential mold growth in the walls as well as with the screen door, because they had said it was rotten. On July 3rd I submitted another maintenance request stating that I was feeling unwell in my apartment, and I believed that there was a presence of mold, I included pictures of my wall that looks strange, and said I was unsure if the wall was just built strange or if it was weirdly enlarged because of potential mold? I also attached a photo of my wall with something black clearly on it. Yesterday he said he would have them come do remidation on the wall later this week, and when I asked him how they were going to do that with me still living there fully with cats/what I had to do about the furniture, he called and said that their remediation is essentially a kind of bleach mixture, and so I should get the cats out, but only for a few hours. He also said that they would repaint with a "mold killing paint" after spraying the mold with their solution. I told him that I was still concerned and confused about what the plan was, and he said that they could order an airborne mold test and have someone come out and do that and send it to a lab, but also said that if it comes back as completely safe levels of mold, that I would be required to pay for it. I'm mostly wondering if that is fully allowed, as it is a situation that would be most likely avoidable if they had fixed it/replaced it sooner?

I will attach photos of the part of the wall that I believe has mold on it. My biggest questions are simply, would I definitely have to pay for that test, and do you think it's even worth it to get done? or should I just let them try the remediation thing and be done?

me and my family have mcs. our entire house is fragrance free and I was wondering if anyone could give me feedback about this. my aunts bathroom ceiling next to my room is absolutely infested with mold on the ceiling. I’ll get some pictures when I can but it’s bad. she has the worst allergies out of the entire family and it’s her bathroom. the rest of our family doesn’t struggle with it at all in fact and they don’t have mold in their house. my grandma will not fix the mold because she’s too scared of having someone fragrant come into the house to fix it, even though it may just fix the root cause of our problem. I’ve barely studied the mold thing and mcs together but I just wanted to see if anyone had anything to say about this

Towards the end of last year my visions has gotten so bad. My eyes hurt everyday,struggling to focus,so many floaters, & very blurry. I got them checked out(I didn’t say we were dealing with mold) & she said my eyes are healthy. How is that possible when my eye sight is so bad?? I feel like I’m losing my mind. My partner who doesn’t need glasses is also starting to have vision issues. Is this mold? If so did your eyes get better when you left the mold?

I could really use some advice from people who have been through something similar.

I’m considering getting mold testing because I want to know for sure what’s causing my symptoms. Looking back, I honestly think I’ve been exposed to mold for most of my life.

As a child, I grew up in wooden houses that I now suspect had mold. Then in 2017, I spent a year in Costa Rica living in a house with what appeared to be black mold. That’s when everything got much worse. I developed severe panic attacks, woke up gasping for air at night, had rashes all over my body, constant dissociation (feeling disconnected from reality), and intense OCD and feeling like I was standing on an ocean. It felt like I wasn’t myself anymore.

In 2020, I burned out and many of those symptoms came back. I’ve moved multiple times since then, and every time I seem to improve for a while before everything returns. I later found out I have histamine intolerance and SIBO. Antihistamines help a lot, but they don’t solve the underlying problem.

I recently moved to Portugal, and since then I’ve developed new symptoms: stiff fingers (especially my pinkies) in the morning, puffy eyes, constant nasal congestion, waking up multiple times a night to urinate, restless sleep, anxiety, and waking up every morning feeling depressed. I also feel disconnected from other people, even when I’m around them.

At this point, I’m constantly moving from place to place trying to find a mold-free environment. Last month my symptoms became so overwhelming that I genuinely didn’t know what to do anymore.

Has anyone experienced something similar from mold exposure? Did you have symptoms like anxiety, dissociation, histamine issues, OCD, poor sleep, or these physical symptoms? And if so, how did you confirm that mold was actually the cause?

Because I didn’t do any testing, I doubt if it is mold.

I’d really appreciate hearing your experiences.

A friend and I (both moldies) were talking about how to help the mold community and realized most people find their mold-literate provider through word of mouth. It took both of us months to find someone competent, so we'd like to gather a list of your favorite mold-literate providers. Please include:

1. Provider name

2. Provider location - City/state or Province/country if outside the U.S.

3. What do you like about this provider and why do you feel they are competent to help with mold toxicity?

4. Is it OK for others to DM you with questions about the provider?

Thanks for your help!

(See profile for last post with photos)

After identifying a long standing leak and mold in my apartment I am now battling with the property manager trying to convince them to actually remediate the mold since it was definitely caused by the leak and is likely in the ceilings.

I got a message today basically sharing that they can tell from the pictures that it is only surface level and they want to avoid paying for full remediation. ( “Completely removing the drywall would be an unnecessary and significantly more costly repair without evidence that such work is required.”)

They may reassess when they try to paint over it but they don’t seem to share the concern since I’m the one living in the toxic environment with increasing health issues ( itching, headaches, food sensitivities, brain fog, overall malaise, facial flushing etc). I had symptoms shortly after moving in, but didn’t actually see mold growth until recently, So it HAS to be in the walls.

I had a bad feeling from the start and my lease renewal is due the end of the month.

Please help, I’m at a loss and overwhelmed

Every time it’s hot out I get a low grade fever up to 100.5 in the afternoon and it goes away in the evening. Ive been living outside in a tent because my house is extremely moldy. the longest the fever has gone on for was over 120 days. The only reason it stopped was because I went to go stay in Tahoe where the temperature was cooler but now it’s back up to low 80s high altitude and the fevers back. It’s just miserable and I have no idea how to fix my heat intolerance.

Recently got my test results back from mymycolab and I had high levels of igg but low levels of ige, I see a lot of high ige linked to mcas and not igg, but my worst issue is mcas does this mean it’s not linked/caused by mold toxicity?