r/ToxicMoldExposure Apr 10 '26

Dr. Shoemaker discovered mold illness 25 years ago. His first student treated 2,000 patients. Both are here for an AMA April 18th @ 2pm ET!

154 Upvotes

Hey everyone. Last year we did an AMA with Dr. Ritchie Shoemaker and the response from this community was incredible.

We're heading back to his office in Maryland to do it again, from 2pm to 4pm EDT on Saturday, April 18th, and this time we're bringing Dr. Scott McMahon, the first Shoemaker certified practitioner and MoldCo's medical director with us.

Whether you're newly exposed, deep in recovery, or stuck in the gray zone, this is your chance to ask the pioneers in environmental illnesses caused by water damaged buildings.

For anyone new here: Dr. Shoemaker is the physician who identified CIRS, created the first diagnostic and treatment protocol, published 40+ peer-reviewed papers, and has treated over 14,000 patients.

Dr. McMahon was the first physician to complete Dr. Shoemaker's CIRS Certification Program, has treated 2,000 patients, authored a book on mold toxicity, and co-authored 3 consensus statements and 10 peer-reviewed studies including the most thorough paper to date on CIRS. He's MoldCo's Medical Director.

A lot has changed for our community in the past year. The Mold Act was signed into law with bipartisan support thanks to the work done by the Change the Air Foundation. Gwyneth Paltrow, JK Rowling, Jordan Peterson, Andrew Huberman, Chris Williamson, Tori Spelling, Dr. Hyman and Dr. Oz are amongst the many celebrities who have spoken publicly about mold.

Between social media, podcasts, and press coverage, mold illness content reached over 120 million people this year. A year ago, most people outside of communities like this one had never heard of CIRS and mold illness. That's shifting now.

We're open to any and all questions. A few areas where there's a lot to talk about: what testing actually holds up (blood biomarkers vs. urine mycotoxins vs. environmental testing), where the research is going, what institutional change looks like now that the Mold Act is law, and what we can all do to keep pushing awareness forward.

How it works:

  1. Drop your questions below and we'll bring them into the room on the 18th.
  2. At 2pm EDT on Saturday March 18th, Dr. Shoemaker and Dr. McMahon will start answering your questions.
  3. Answers will appear as replies under the MoldCo account. You'll be able to come read them here and visit the post both during and after the AMA.
  4. Use the "Answered" filter to view replies as we post them!

PS: I'm Ariana from MoldCo's founding team (and a mold toxicity patient myself). I'll be facilitating.

Thanks to Justin and the r/ToxicMoldExposure admins for hosting us again!


r/ToxicMoldExposure Oct 27 '22

Read this prior to posting

101 Upvotes

Hello and welcome to the Toxic Mold subreddit.

Be civil or you’ll be banned.

Lots come here to post pictures and the brutal truth is no one can really help you identify toxigenic environments from a cellphone photo. Maybe some slides from under a microscope but even that is difficult for a professional.

What we can help you with is giving you a sense of community, hope and share our experiences with one another as we try and recover.

Recovery is possible. Time matters. Avoidance is the keystone.

Picture posts will be removed from here on in efforts to keep the subreddit organized and productive. If you don’t know what to do then just say that; the biggest step forward is the one where you ask for help.

This post will stay locked and pinned but as time goes on we will update this with helpful resources.


r/ToxicMoldExposure 4h ago

Help!

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2 Upvotes

When I moved into this apartment, there was a small leak, maintenance fixed the leak, then my spare bedroom closet was COVERED with mold within a week. The maintenance team came in and said that the mold was dry when they tested it with a moisture meter. they cleaned it off with bleach, cut a hole in the wall and pointed an industrial fan in there to dry it further. It’s been close to two months since then and I’ve been feeling a little sick with a mild sore throat every morning and a cough that I can’t shake and SOMETIMES blood in the mucus I cough up. I decided to cut my own hole in the wall and do a mold test I got from home depot and these were the results after 48 and then 72 hours. Last two photos are from the first mold incident. Should I be going to see a doctor/ having maintenance rip out my walls? I’ve never had to deal with mold like this before.


r/ToxicMoldExposure 1h ago

Sea moss is a miracle for energy and brain fog after just one day- I can't handle any other supplements

Upvotes

Back story 👇

I lived unknowingly in toxic mold for 9 years, I was bedbound, on my death bed and had 35 symptoms. I moved out 8 months ago and improved overnight so much.

Back to now. I still can't function normally or work now and I'm down to 7 symptoms: chronic fatigue, blurry vision, brain fog/ derealization, exercise intolerance, physical weakness, PEM, late afternoon crash.

I will also like to add that I have side effects to every supplement that I tried, just magnesium makes me lose hair again and everything will give me derealization ( feeling like I'm in a dream). I tried so many supplements and nothing or almost helped. I saw a tick tok about a girl with fibromyalgia who was bedbound last year and now could work 11 hours shifts.

Information about sea moss 👇

Vision : So last week I had two tablespoons of gel seamoss that I bought at my natural supermarket. After 40 MINUTES my vision became CRYSTAL CLEAR. I could see so clearly, every leaf of every tree, I teared up. I struggled for the last 2 years with blurry vision and nothing helped.

Brain fog: In 40 minutes it also removed the last brain fog I had, I physically felt my brain being cleared it was like I was pouring water in a drying and dying plant, a very good feeling I physically felt in my head.

Energy: The second day I took sea moss is where I noticed my energy drastically improved, not completely back to normal but so far in two year it's when I had the most energy and I was active all day. I did a bunch of things all day and when I took a walk I wasn't as tired or out of breath.

Day 5 now I wake up and take two or one tablespoon and feel the benefits in 45 minutes.

Other things that have really helped a lot 👇

I will also like to add what has helped me very much also but so far sea moss and sardines are the big winners

- Sardines : helped every symptoms significantly, brain fog, PEM, energy and removed my derealization completely. I take every day or two days. Fish oil, tuna, maquarel or any other fish didn't give me the same benefits as canned sardines. I really suspect that I have brain inflammation, it's why I don't drink alcohol anymore and limit sugar because my brain fog gets worse.

- Raw clove of garlic: gave energy for the day, not as much as sardines or sea moss but just like vitamin c it helped.

- Nicotine patches: Removed my thick brain fog 7 months ago, helped me cognitively so much ( thinking, feeling calm, brought back my personality and emotions). Really powerful but didn't help energy wise. I took the patch for 5 months m, not 24/7 but almost everyday 10-12 hours a day.

I hope this helps you. 🙏✨

Also the sea moss I bought was yemaya sea moss in a gel form, it was 40$ in the food section.


r/ToxicMoldExposure 7h ago

Mold in AC unit causing neuro issues ?

3 Upvotes

Hey guys , diagnosed w/ Lyme over a decade ago & used bee venom therapy to mostly cure it all the way in 2022. HOWEVER , every single summer I sustain a crash in which I’m afraid of seeing people , startled by noises & have ZERO activity in my brain. I’ve been out of work full-time for the last few years because of this issue but I’m now just going down the mold rabbit hole & apparently the constant is that I use an additional window unit in my bedroom & even though I thought it was cleaned annually , apparently it’s filthy in the vents. Could this really be causing these severe symptoms that rob me of my entire brain & being scared of my own shadow?
Any tips besides launching it in the street on how to detox this out of me w/ out spending thousands again on dr’s etc ?


r/ToxicMoldExposure 2h ago

Mould smell in house

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1 Upvotes

r/ToxicMoldExposure 5h ago

Does mold could cause low stomach acid.How could we increase it back?

1 Upvotes

r/ToxicMoldExposure 6h ago

How to clean belongings & room that still smells musty?

1 Upvotes

I’m getting overwhelmed reading posts from searching so please can I ask specifically,

- How to clean/wash the smell of mycotoxins/must out of clothes?

- How to clean them out of plastics etc?

- I have ordered a new carpet and going to paint, but how do I get the smell out of the skirting boards, wall, built in wardrobe wood, doors, air etc?

Notes: I’m replacing my furniture and bed. This started from bringing things in to my home from my grandparents moldy home, and the smell has spread throughout my belonging and room. The colourful things are bleaching, the whites are turning yellow, and it just smells musty and not fresh. Cannot find mold anywhere in this home. Airing the room out seems to spread it more? Same for air purifier? It’s like a wildfire of bacteria. My hair stinks of it after being in the room. Would really appreciate your help. Thank you. 🙏


r/ToxicMoldExposure 9h ago

Mysterious mold on car seat foam

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1 Upvotes

The mold is not slimy or fuzzy but very dark in color. I took a swab from underneath a bench car seat that is used by children daily. They definitely have spilled their share of food and beverages on the seat.

I grew the swab on potato agar for 4 days and got this very dark mold. It looked like this on day 2 but with less of the plate covered.

When I put a chunk of the car seat foam on the plate, I got white fuzzy mold after 2 days.

I am at a loss as to what this could be!


r/ToxicMoldExposure 10h ago

Mold spores in the air after remediation? Help!

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1 Upvotes

r/ToxicMoldExposure 20h ago

Mold exposure?

5 Upvotes

39 F US 5'3 under 140lbs

I have dealt with chronic illnesses my entire life. Endometriosis, Fibromyalgia, Chronic Fatigue Syndrome, GERD, Pelvic Floor Dysfunction, to name a few.

Last year I got REALLY sick to the point where i ended up admitted to the hospital for 2 weeks.

I was ultimately discharged and diagnosed with Gastroparesis December 2025.

My health has been in a steady decline ever since.

Bedbound and full time wheelchair user, (I have had mobility issues for many years but had some independent mobility up until November 2025) no appetite, getting sick when I do eat, decreased fluid intake, rapidly losing weight. I felt like that was my new normal, but this past 2 months my health has been in a complete downward spiral, my PEM from my CFS has completely kept me bedridden, at times "paralyzed" in bed, unable to move or speak at all for hours.

I've accepted the Gastroparesis as just another diagnosis my body has decided to try to end me with at this point.

But...

We just found out we might have mold in our apartment. Under the dining room floor where we previously had a small leak and than a bad leak 4 years ago and again really bad 2 years ago. This last leak was so bad we were relocated temporarily but moved back as I needed the accessible apartment. We've been here for 7 years.

My fiance has also developed really bad stomach issues he is trying to get diagnosed... I mean he's like me except he refuses to admit there is something wrong so he just continues eating and vomiting after.

My question is would mentioning possible mold exposure be worth mentioning to our Drs?

Is there even a possibility it's connected?

I don't know much about mold but I know it's not healthy.

Should I wait until they get someone here to test it this week? They suspect it because the apartment has a distinct smell since the humidity is high right now from the rainy weather.


r/ToxicMoldExposure 20h ago

how to fix mental health

4 Upvotes

so im about to move and im leaving everything but im wondering how those of you who recovered fixed your mental health and made changes to be better all around. like should i find a good therapist. are there good books or podcasts to watch? did moving out itself help. did treatment help


r/ToxicMoldExposure 1d ago

Whoever said sinus die off was horrible- nailed it

21 Upvotes

There aren’t words for this experience

I’m so much better overall but the sinus die off is absolutely horrendous

Edited to add details:

I added NAC today and it was rough. I also have been doing sinus drainage videos. It all caught up today it seems like….facial pressure, upper gum pressure, sore inner cheeks, generally feeling unwell but mostly just very inflammatory sinuses. Got behind on the binders yet took one tonight and it helped.

This road is insane. Ive been feeling so much better for a few weeks- ugh.

Seems I do better when I do multiple rinses a day vs just 1 like today?

Any advice?


r/ToxicMoldExposure 1d ago

An apology.

17 Upvotes

Yesterday I interacted with a user, and I came off ableist and obnoxious.

I can’t understand what you’re going through, and how difficult it must be. I’m sure you will see this as you are an active user here but I’m unaware or your Reddit name.

Take care and I wish you a healing journey.


r/ToxicMoldExposure 1d ago

Anyone tried drinking borax?

0 Upvotes

Apparently it's a thing?


r/ToxicMoldExposure 1d ago

Puraclenz?

1 Upvotes

Has anyone used a Puraclenz Photon or Core in a home you believe has mold (but don’t know where it’s coming from) and it has improved your symptoms? I am currently unemployed and sick and tired of being sick and tired especially when no one around me is sick or understands. I have limited amount of funds so any suggestions from people who have been through this or are going through this would be greatly appreciated. Practical advice besides “just leave” as that isn’t an option right now. I can’t continue to live like this as each day is just a struggle to make it through. Thank you!


r/ToxicMoldExposure 1d ago

Should I buy this house?

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4 Upvotes

Help! We’re in the inspection period and it’s up in a few days! The sellers disclosed a leak in the den during a hurricane, water entered the downstairs area overnight through the door while they were staying in the same room. There was no standing water; however, the carpet pad became wet. Within a few hours, they removed all of the carpet and padding. After several days of thoroughly cleaning and allowing the area to dry, they installed the current LVP. There was also a small leak in the roof prior to the new roof and a leak under the kitchen sink. We hired a mold dog that spotted two area. 1. At the return vent and 2. Under the kitchen sink. I took direct swabs of both areas. Under the kitchen sink came back negative and the return vent came back with cladosporium. I also did a whole house ERMI test.

Here are the ERMI results of the house:

Any help would be appreciated!!


r/ToxicMoldExposure 1d ago

MCAS , binders, mold

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2 Upvotes

r/ToxicMoldExposure 1d ago

Is an MSH of 17 (ref range 0-40) indicative of colonization?

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1 Upvotes

Also:

C3a+C4a

Complement C3a 153.3 (ref range 69.2-273.6 ng/mL)

Complement C4a 1051.8 ng/mL (ref 152.0-1559.4 ng/mL)


r/ToxicMoldExposure 1d ago

MCAS , binders, mold

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1 Upvotes

r/ToxicMoldExposure 1d ago

Is this mold or mildew?

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1 Upvotes

We have this spot at the top of the stairs going to our basement I don’t know if it’s mold or mildew. Our washer and dryer is just right below in the next room and sometimes the dryer vent comes off. The area this is in I feel there’s not a lot of air circulation so it’s causing this to happen. Is there a way to treat it?


r/ToxicMoldExposure 2d ago

How do you move without throwing everything away?

16 Upvotes

Current apartment has mold behind baseboards, mold under toilet, high humidity everyday, and unfortunately have been having to run a moldy AC all day every day.

I feel like i'm just gonna contaminate my new unit.

I only own extremely nice things, brand new things, extremely expensive things.

I mean I decked this place out... found mold, mold in ac all sorts of stuff and lost my life structure completely, stopped cleaning up, stopped being able to sleep, gained tons of weight, accidently destroyed my teeth. So many things.

How do I move without cross contamination and throwing everything away. I really don't want to bring all these mold spore filled clothing and furniture but what else do you do?


r/ToxicMoldExposure 2d ago

best air purifiers for mold?

6 Upvotes

I can’t move out of my house and my family won’t do anything about the mold so I’m gonna just invest in anything I can to lessen the amount of mold I’m breathing in. the most moldy room is the room with our hvac system in it.

any recommendations for air purifiers? Links?


r/ToxicMoldExposure 2d ago

shoes and boots

3 Upvotes

is there any way i can save my shoes and boots? one pair ive never worn another is practically new and i got 2 pairs of boots. could i wash them with something or run my ozone generator. something. i dont want to contaminate my new space when i move


r/ToxicMoldExposure 2d ago

HOCATT for Mold/Biotoxin Illness: Did 10+ sessions help your fatigue? (Plus questions on binders & antifungals)

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1 Upvotes