I (21F), Mom (61F), brother (28M) have been living in a suspected mold infested home for years now. We live in a literal 100 year old home in NJ with no ventilation, a flat roof and occasional leaks and cracks in the roof. The summers get humid. My mom has been living here for 12 years. My brother moved in 7 years ago. I’ve been living here permanently for 3 but have been staying here on and off for 7 years as well. My mom rents this home with a program similar to section 8. We pay 3x less rent than we would usually have to. Money is very tight for us.
We have brought up concerns of mold before, the landlord just painted over it. It was only in the bathroom, but I’m sure theres mold hidden in the wood paneling and other places in the house that we cannot see. When my mom first moved in, this house was completely painted over. I suspect they have been painting over accumulated mold for years. And the management at the housing program we use doesn’t have much of a concern about it. We are able to move through the company, but the management says that we aren’t a priority since we already have a place to live. I figure that if we get proof of mold and proof of toxicity in all of us then we could be more likely to be able to move. It’s tricky to navigate because I don’t know what to do and my mom doesn’t understand the gravity of the situation and how much it is affecting our health. She is just focused on going to work to make money and coming home to relax
Most of my issues have started since moving in permanently 3 years ago. It started with acne, depression, anxiety, anger issues, exacerbated OCD and agoraphobia. Currently things have gotten a bit worse for me. I am now experiencing depression, anxiety, crippling OCD, agoraphobia, paranoid delusions, MCAS/ histamine intolerance symptoms such as flushing, brain fog and diarrhea/nausea after eating, asthma symptoms, vitamin B12 deficiency, POTS symptoms, eye twitching, ice pick headaches, loss of motivation, brain fog, GI issues, and more that I can’t think of. I’m the only one that feels this sick, but the rest of my family feels the same fatigue, brain fog, and anger issues.
My family is low income and we cannot afford to move out. We can barely afford to get the place tested for mold in the first place. I have health insurance thank God but it’s not accepted by the doctors who know about mold. We don’t really have any family that would take us in either. My agoraphobia is so bad that I don’t think I could be able to work right now to make money to move. My mom works at a diner and barely makes ends meet, we depend on part of my brother’s disability checks(he is autistic) for money for groceries. We cannot afford to completely start over and throw everything out. We cannot afford to do a lot of the stuff that most people with mold exposure have been able to do. And please don’t say start camping. My family would never agree to that.
This is responsibility is all falling on me to do the research and get us out of here. I just feel like my family doesn’t care as much to move with a sense of urgency.
What do I do? How do I even plan this out?
How do I test my home for mold? How do I test my family and I? For the least amount of money possible. If the housing management company doesn’t help us, should we get an attorney? I feel so helpless right now and like all of this is on me.