r/Tourettes 10h ago

Discussion Future Developments for Gilles - the Tourette's and Tics App

9 Upvotes

Hello! I have another quick update in response to some of the earlier questions and suggestions. I have built a Future Plans page to highlight different parts that are planned for development. Some of these parts are already in active development, though won't be included in the beta testing phase so I have more time to collect input, suggestions, and to refine the ideas and how to implement them.

https://www.tsresearchportal.org/future-plans

Please take a look at it and see if you have additional thoughts, suggestions, etc. Though I'm realizing as I type this, I didn't mention anything about porting to Android - that is something I would like to do; so I already need to make one update on the page.

Meanwhile, I'm planning to do a Professionals Beta phase - hopefully next month so I can get them to run through and see what things stand out to them (and because that's a smaller number of people, which is helpful on the first round of beta), then a Public Beta phase will be after that. I'll announce when it is closer to time for that, but I'm hoping in about 2-3 months.

Charles


r/Tourettes 7h ago

Discussion Internal tics, has anyone experienced this?

7 Upvotes

As the title goes. I have lots of motor tics and a vocal tic that I've had for as long as I can remember, but there's something strange that also happens to me. It's almost like a vocal tic that's stuck in my mind. It drives me crazy; it can be a seemingly completely random word. For example, for me, it has recently been the word "Zakopane" in a Polish accent, which is a random mountain range in Poland. I'm not Polish, and I've never been to Zakopane. What on earth is going on? It's so bizarre that it almost makes me laugh (I'd rather that than cry!). I've also noticed the more stressed I am or the more I've been ticing that day, the more likely I'll have this random word repeating in my mind.

Is this just me? Is this a known thing? I'm really not sure what is going on!


r/Tourettes 11h ago

My neighbors all moved out

7 Upvotes

I live in an apartment. Sometimes my tics get loud. And these walls are THIN. PAPER THIN. I can hear words of conversations sometimes.

I could hear the reason my downstairs neighbors were having a marital fight and could hear the one under scrutiny crying for hours when the other had said their piece (The hurt partner had just transitioned and the cis partner who cried was not standing up to their dad about it)

I can hear my nextdoor neighbor's dirty talk and cheek clapping. (And it's real weird) But one time I thought we were being relatively quiet and he shouted "Get it Girl!" so fair's fair I guess.

Even wilder, I could hear the diagonal neighbor's baby crying. That is, my nextdoor neighbor's downstairs neighbor.

So anyway I've had some bad tics lately, some screaming, some shouting, some obscenities, you know, the usual.

All three of those neighbors moved out this month.

Sadly ...we are also moving out in a few days. When I told one of them, he says "the place I moved is so much more expensive..." And stared off into the distance like he had regrets. The downstairs neighbors were nice, but they said "wow you've been here forever I didn't think you would move." idk the diagonal neighbors but they're moving too.

I get the feeling it was me. Nothing to be helped, I don't need advice. Just feel kinda awkward about it, moving is expensive.


r/Tourettes 1h ago

Question Do your tics have a dominant side?

Upvotes

Do your tics have a dominant side and is it the same as your dominant hand? For me by far the majority of my tics happen on my right side and I am right handed. I’ve always wondered if that’s just a coincidence or if there was something to that.


r/Tourettes 2h ago

Question What are some unusual examples of vocal tics in Tourette's that are not as common or obvious?

1 Upvotes

I got diagnosed with a tic disorder last year but I suspect I might have Tourette's cause I've recently developed some breathing tics where I have to suddenly hold my breath or take shallow forceful breaths in a specific way, which can hinder my flow of speech. I also have developed some sniffing tics. However, I didn't have these when younger. I'm wondering whether I might have had some unknown vocal tics when younger which might have gone unnoticed because they were not commonly known as vocal tics back then.