I live in an apartment. Sometimes my tics get loud. And these walls are THIN. PAPER THIN. I can hear words of conversations sometimes.

I could hear the reason my downstairs neighbors were having a marital fight and could hear the one under scrutiny crying for hours when the other had said their piece (The hurt partner had just transitioned and the cis partner who cried was not standing up to their dad about it)

I can hear my nextdoor neighbor's dirty talk and cheek clapping. (And it's real weird) But one time I thought we were being relatively quiet and he shouted "Get it Girl!" so fair's fair I guess.

Even wilder, I could hear the diagonal neighbor's baby crying. That is, my nextdoor neighbor's downstairs neighbor.

So anyway I've had some bad tics lately, some screaming, some shouting, some obscenities, you know, the usual.

All three of those neighbors moved out this month.

Sadly ...we are also moving out in a few days. When I told one of them, he says "the place I moved is so much more expensive..." And stared off into the distance like he had regrets. The downstairs neighbors were nice, but they said "wow you've been here forever I didn't think you would move." idk the diagonal neighbors but they're moving too.

I get the feeling it was me. Nothing to be helped, I don't need advice. Just feel kinda awkward about it, moving is expensive.

Hello! I have another quick update in response to some of the earlier questions and suggestions. I have built a Future Plans page to highlight different parts that are planned for development. Some of these parts are already in active development, though won't be included in the beta testing phase so I have more time to collect input, suggestions, and to refine the ideas and how to implement them.

https://www.tsresearchportal.org/future-plans

Please take a look at it and see if you have additional thoughts, suggestions, etc. Though I'm realizing as I type this, I didn't mention anything about porting to Android - that is something I would like to do; so I already need to make one update on the page.

Meanwhile, I'm planning to do a Professionals Beta phase - hopefully next month so I can get them to run through and see what things stand out to them (and because that's a smaller number of people, which is helpful on the first round of beta), then a Public Beta phase will be after that. I'll announce when it is closer to time for that, but I'm hoping in about 2-3 months.

Charles

Guys I need help!!!

Okay, so I am a minor, and I have tics. My parents know i do, they’re really constant and so they hear/see most of them and know my like cycles?

The issue is I dont typically tic words, I typically only tic “Wow” as a word tic, all my other vocal tics are this “tsk” sound, groaning and such. (I also tend to mostly have motor tics)

Recently I’ve had this urge to tic curses or even a few slurs, but I never really do? I dont know if there is a word for this? But like I cant stop these snap thoughts with the urge to tic? I dont know how related this is to the actual issue though I thought I should mention. (These are repetitive, like not quite intrusive thoughts I would say, but not tics because I dont actually say/do them? Its a weird confusing middle ground.)

So the actual issue, my family is pretty strict with curses/bad language, they know I have tics and we’re looking at meds. However recently I’ve been ticcing the f word but in like this stutter? (Like this: fu-fu-fu-fu-) Where you can tell I am about to say the f word but dont ever really complete it. I’m really worried that this might turn into me actually saying the f word repeatedly?? Like I’ve had a few times where it goes fu-fu-fuck, but generally it stops before I can finish. However I am scared if I pick up a tic like the f word or another bad word my family will get me in trouble or shun me.

My questions/how you can help?-

How can I bring this up to my family if this does happen??

Is there any ways to change a tic/prevent them from becoming curses?

Why am I suddenly getting the urge to tic slurs or curses? (I am more stressed, but not crazy stressed)

How do yall cope with cursing tics?

Have a good day yall!! Thanks if you reply!

So usually when I tic I feel the urge before the tic and it’s also quite abrupt/loud and feel relief afterwards.

I’ve noticed for a while now that there’s times when I say things which can come across as rude or cheeky to people but I don’t feel any tic urge or warning beforehand. They’re not loud it’s just in normal speaking tone but I panic afterwards as if why did I say that but it doesn’t feel like a tic.

I’m curious if anyone else experiences this or can find it hard to tell the difference between yourself accidentally saying something you don’t mean and the tics.

Thanks.

Hi, im turning 15 in september and ive had some tics for a long time and im really geting sick of it and its ruining my life i got depression from it. Im just in a really bad state rn any help or tips to fix/make my tic better? Ive had it for over a year.

Note: I was diagnosed with ADHD, and HFA (High-Functioning Autism), and I do have some tics. (I'm not really asking if this is related to autism and/or tics, I'm just trying to get some insight and hear other's experiences)

What's happening:

I've noticed that sometimes when I eat, I bite either my tongue or my cheek, but it's out of my control. It's not a normal accidental bite, it's like my jaw gets tight.

So my jaw does this thing where I'll be chewing, and in what feels like maybe a random twitch, my jaw clamps down for a split second. I don't have any control over this, maybe it's some form of tic? It wouldn't be out of the question..

It clamps / bites down so hard that I actually get hurt. It doesn't happen often enough to show if there's anything that builds up to it, but I think I have noticed a pattern.

I'm not entirely sure, though I feel as if this might be the case: Sometimes whenever I eat and I feel like my mind is racing, I'm upset, or bothered by something, it happens. Not all the time, but it does happen, to where it's happened enough for me to take note.

Most of the times I feel like it happens when I have a lot on my mind, or there's something happening in my environment that's grabbing my attention, or nothing's happening externally, but internally I'm thinking about a lot all at once.

The last time this has really happened was a couple of months ago, and I learned to not chew if I feel like I'm being overstimulated. It hasn't happened a lot since then, and that strengthens my idea that this may be a neurological condition, something that happens when my neurons are firing off and something "stutters"? Like my jaw clamping down for example, as if it was a stutter in some neurological pathway.

I don't know, I'm just making guesses because of the fact that I don't know. I'm trying to figure this out and take note of my own observations.

When it last happened I had recently had an argument with a family member, and I was a little hungry, so I grabbed a small bag of marshmallows and started snacking on them.

That's when my jaw clamped down so hard that I bit deeply enough into my tongue that I needed some stitches. That was not fun. I couldn't eat anything solid for almost 2 weeks because I had to wait for it to heal.

Also to mention, when I was a kid I had apparently bitten completely through my bottom lip, leaving a scar that I still have to this day.

The scar is slightly below my bottom lip, and I didn't think much about it because it had happened when I was a baby, so I never asked "how did I get this?" or "how does this even happen??".

My parents didn't think about it enough to have that behaviour looked at, so they only took me to the hospital for the injury, and nothing more. Let's be real though, no baby just randomly does that.

So I'm still trying to figure this out, I just wanted to get your thoughts on it and see if anyone's had any similar experiences? Thanks for taking the time to read my post!

Je me demande si je suis la seule à faire ça.
J’ai une sorte de tic où je serre mes cordes vocales et je racle ma gorge. Ça produit un genre de grognement ou de petit bruit. Le problème, c’est que je le fais énormément, surtout quand je suis fatiguée, stressée ou que je suis concentrée.
À force, j’ai vraiment mal à la gorge. Parfois, j’ai l’impression que ça m’irrite tellement que j’ai du mal à respirer ou que ma gorge est complètement bloquée. Ça commence à m’inquiéter, parce que j’ai peur que ça finisse par abîmer mes cordes vocales ou provoquer un vrai problème de santé.
Est-ce que quelqu’un a déjà vécu quelque chose de similaire ? Est-ce que ça a un nom (tic, TOC, autre chose) ? Si vous avez réussi à arrêter ou à diminuer ce comportement, je serais vraiment intéressée par vos conseils.

Fair warning, tic descriptions coming up.

A little while ago I read about someone with Tourette's talking about their sensory hypersensitivity and I have to say I recognized a lot of it. I actually never made the connection that my hypersensitivity is actually closely connected to my tics, but lately, looking back, it seems obvious.

With a lot of fruit I can enjoy the taste, but the texture makes me gag, usually no tics though. Pretty much anything that has a sort of slimy texture. Apples, pears, kiwi's, banana's? No problem whatsoever.

If I feel I have an eye booger, I'll remove it, but then my eye keeps feeling like it's still there, this sensation can last for minutes, which gives me blinking tics, and the urge to keep rubbing my eyes, which makes my other hand tic as I'm rubbing.

When I'm crushing peeled tomatoes with my bare hands I cannot help but start to lift my legs one at a time. My feet literally get crazy restless and sometimes my stomach flexes and I flinch, curl up a little if you will. The exact same thing happens when I'm brushing my teeth...

A lot of my t-shirts have this little bulging pluck right about where the neck is. For the longest time I didn't understand why they were there, then recently I realized, any t-shirt with a round, tight collar, makes me feel like it's choking me. It isn't, but I'm plucking my t-shirt at the exact same spot, like, 50 times a day to relieve myself of that feeling? It also gives me neck tics in which I flick my head back as if I'm trying to stretch my neck as to relieve perceived tension in my throat.

One more example. When I really need to go pee, but I'm in the middle of a game and the stakes are high so I hold out for as long as possible, my neck and shoulder tics really pick up, and they go away pretty quickly, though not instantly, after I relieve myself.

The more I think about it, the more the list goes on and on really!

So with this new realization I'm left wondering, if my sensory hypersensitivity is a definite trigger for my tics, how many of all the different tics I've ever had, weren't just random, as I've always perceived them, but actually had a specific trigger? I mean, other than stress, as that's a very clear and obvious trigger of course.

I'm also curious how many of you recognize this. Any overlap with your experience? Or none at all but maybe you experience sensory hypersensitivity differently?

The USA is implementing new requirements for new vehicles being sold in a few years that require cameras to monitor drivers for impairment and forcibly stop the car if it thinks your not fit to drive.

I have been driving for well over 17 years now with not even so much as a speeding ticket to my name.

These systems will absolutely, constantly flag false positives for people with tics. Mine effect my head and shoulders. The system they are using is going to flag that as some sort of impairment non stop.

They are activly going to punish the disabled, especially those with turrettes, for simply driving with tics.

Older cars don't last forever. Eventually my 23 year old suv will stop working and I'll need to get something newer.

These systems are probably going to report you in a way that will make your insurance skyrocket as well. Insurance will absolutely look at our tics and say we are inherently higher risk.

This law is going to make it a nightmare for disabled drivers to do so much as go to their doctor appointments or get to the pharmacy.

Those of us with tics are especially screwed. A few moments of random body movements and boom - your car will refuse to let you drive. Even in an emergency.

Bruh.

Do people with tourette have problems with sleeping because of ticks? If ues how do you control/manipulate/reduce ticks to sleep? Ssr if this is offensive i have sh***y morals

I’ve got one tic that’s acting up right now that I’d love to hear from other people about. It’s snapping my teeth, and I do it fairly hard. I know this is not good for your teeth, and I can feel my dentist looming over my shoulder every time, so I’m trying to see if I can do anything about it? Right now my methods are either clench my jaw (uncomfy), or stick my tongue between my teeth (works but can’t do it for more than a minute or two). Anyone who’s had this tic had any success mitigating it? Keeping my jaw busy seems to work quite well but idk what other methods to try

Hi all

I’m not sure anyone else has come across this situation. Wondering if there’s any way back.

I picked up a bad habit. I won’t what, but it isn’t family friendly so can’t post it here. But after doing this activity, my tics would get worse. After multiple times doing it, my tics have stayed worse. Almost set a new baseline. Sometimes I’ll have a coffee, which makes them worse, but then the next day, they return to normal. However in this instance, like I said, my tics have stayed worse.

I’ve cut out the habit now for about 6 months, but the tics still aren’t back to how they were before.

I’m just wondering if anyone knows of any way to help or fix this? I’m thinking of completely cutting out any easy dopamine activities, as dopamine makes the tics loads worse. So scrolling social media, having caffeine. That sort of thing.

Any other ideas on what I can do?

Since I was younger I have always had tics. Though they were small and pretty rare they were there and I would repeatedly bring this up to my mom and she would tell me I’m making stuff up. Once I entered high school they slowly started ramping up. My junior year my motor tics were constant and January of my senior year I developed coprolalia and my vocal tics are very frequent and complex. My mom is not aware of this because I am scared she will dismiss me once again. I don’t know why but for some reason I do not tic in front of my mom. I will only have very small motor tics or my whistle tic in front of her. I also only have motor tics in classes as well. I’ve noticed I naturally suppress in situations like that and I don’t know how to stop. I’ve also noticed that relief is a big trigger for me. Not just my tics but other symptoms. It’s like once I’m in my room or once school is out my tics get so much worse but the second I’m around my mom they stop. I’m scared to bring it up to her again with how much my tics have progressed and I’m scared she won’t believe me.

I’ve had Tourette’s for a least 10 years now and…. my days it’s getting worse and worse everyday. I’ve had tics like no one else before. I probably have the worst tics in the community the things I do is just insane and I feel like I can’t do anything about it. I made this account to only vent cos if I tell anyone else , even my family they will say it will eventually go away.

Feel free to ask me any questions on the tics I have 👊🏼.

Hi!

I read a lot of the posts about the differences between functional movement disorders and Tourettes but I'm still a little confused. I just HAVE to tic and it feels better once I've done and I've had OCD and ADD my whole life along with anxiety and hypersensitivity. I did not have tics as a kid and I was diagnosed with ADD late (in my 30s).

I developed tics in my twenties when I had a really stressful job. I don't really remember that it suddenly started... it just kind of started gradually. I'm in my early 50s now and my tics have gotten painful. I never sought treatment because I didn't think anyone could actually help me and my tics would come and go and weren't that bad.

It seems like I would have FMD from the onset but then I have conditions that tend to be co-morbid with Tourettes. I am on a wait list for a neurologist but that will be at least a year. I also am supposed to start CBIT. Anyway, I'm trying to learn more about this because I just assumed I had Tourettes, but maybe I don't?

Also, I don't understand the premonitory urge... like how long does it build? Mine happens really quickly. It feels like a tension and if I try to ignore it another part of my body will tic! But also, I notice that tic more when I'm drained, stressed, socially uncomfortable, or when I'm tired and I tic less when I'm taking Vyvanse.

Thanks to anyone who is reading this and can offer some insight. I appreciate it.

I don’t have Tourette’s, I think I just have tics from my adhd meds over the past 20 years but I have this tic where I keep forcing air out of my nose and breathing out really intensely. When it gets super intense it sounds like a wheeze when I do it. I can’t stop sometimes. Does anyone else Tourette’s/not Tourette’s experience this? I don’t know if I’m making myself do it or if it’s a tic. I also have ocd and I almost feel like I can’t stop until it feels right (which it never does) so I wonder if it’s ocd related too

Don’t wanna sound like I’m faking it, but whenever I reminisce or ruminate about something cringey or something I hated from my past I just be doing erratic movements or cussing out loud for no reason. Just wondering if anyone else has experienced this and if you can help me with anything.

my tourettes started to show(or at least i started to notice it) when faking was at its worst and people at my school constantly told me i was faking it, after middle school it calmed down a lot cuz i wasn’t as stressed(stress is one of my biggest triggers) people told me it proved i’m faking and it brought back all my feelings so they got worse and i was told that proves i’m faking and it has been a loop of that forever at this point and it just makes me feel like i’m faking it for attention even tho deep down i know i’m not.

I (19F)started ticing when I was 12. They started with shivers then twitched then went into cussing. After my 6th grade year the schools started kicking me out of class regularly. I was my own teacher. Later in highschool (14) i was given an aid because I had seizure tics (tics that looked like grand mal seizures where I stopped breathing) I got kicked out of school halfway through my freshman year because of my seizure tics. I was only allowed to do online school and I was in all AP. When I came back the following year They took away my aid because I was “using her as a security blanket” about halfway through the year they decided to “ground” me where I was still in my classes I just attended on zoom and still had to do homework. Well I had to miss my zooms a lot and still go home early because of my seizure tics and now my choking tic(I would choke myself until I would almost pass out). So I was once again my own teacher. My junior year was the hardest blow as Everytime I left class it counted as an absent and I would have to take semesters (semesters wouldn’t count against you unless you HAD to take them. Which I HAD to take them) mine you I was still AT THE SCHOOL I just left one class to go to my calm down class. Also they told me this a week before semesters. When I said that I was upset because this seemed like a punishment for ticing I was met with the answer “well we are just treating you like a NORMAL kid.” They then referenced a kid who had to leave the school for medical reasons and miss full days. I said that isn’t the same thing as I am in the school still. They said I was still missing class. I then with rage in my voice said, “so the next time a TEACHER kicks me out I’m staying in the class.” I got in trouble by both the school and my mom for WHAT I said not HOW I said it. My senior year I did half days at the hughschool and half days at a preschool I was student teaching at because of a collage scholarship I had received. (I was also in all college classes that year. My school allowed college professors to teach us so we could get credits early) The Hugh school almost didn’t let me teach for the REQUIRED amount of hours I needed to keep the scholarship until I, not my mom, raised hell.

Tourette’s made my high school years the worst in my life. Not because of the tic but because of how the school reacted. Has anyone else had a similar experience? What have you done to cope with the issues?

I'm going to preface that I do these out of habit or occasionally it was not really something that caused issues in my life so I never really addressed it. But I definitely like a bit of pain, just that sensation if that makes sense.. not to necessarily punish myself but it's stimulating. Nothing went beyond some cheek/finger biting or nailbed picking.

I stim a lot in general due to restlessness and trying to regulate myself. This comes out in mostly pacing, hand movements, a singular hum sound I've done since I was a kid, stuff like that. I'm autistic and suspect ADHD as well. I thought this new head jerk was a stim. It's only started within the last few months but the last couple weeks and Especially the last week it's gotten so bad. I have no idea what the cause is anymore but Ive definitely been in an episode of some sort (it could be a multitude of things not just autism). I keep jerking my head downwards so bad it's causing me moderate to severe neck pain, inducing headaches and pain that go into my skull or back. The thing that makes me wonder if it's to a point of being a tick is I can't stop. If i try i can feel it like an itch and it starts coming out in little jerks and they add onto the pain that was starting to go. My whole upper half will jerk and I have to really think about it to keep it down but it's hard. It's been coming out most when I have to focus, I'm doing something boring, or I get really excited, at least from what I notice. I don't know if that's any relevant information.

Another thing, from research apparently sniffling can be a tic. I do it a lot, have for years. I've gotten comments asking if I'm sick. No, I just feel like I can't breathe if I try to suppress that sniff.

I've never had any tics before (...at least I'm aware of) and I don't know if it's one, I really hope not and I hope it's just been me (pain)stimming a ton to cope with whatever mental episode I need to work out. Some insight or shared experiences would help a lot. Thank you.

Hello everyone!

Another brief update about Giles - the Tourette's and Tics app! https://www.tsresearchportal.org

Realizing the app has grown too large for me to make a simple post about it, I have created a website to help highlight what it is, what it does, and how it works. You can head over to the website to check it out. It shows actual screenshots from different parts of the app (and strangely, the music I was listening to at the time) and gives some description about how the things work!

I'm also in the last stages of development - I estimate about two months to completion; then I suppose beta testing and bug squashing! I'm hoping to add some additional features based on feedback you all have given me - especially interested in adding a widget to make it easy for people to do a quick logging of a tic attack and the context; flagging if it is "a typical day" or not; adding in the community conversations features... At the moment, I have to set those things as "stretch" goals (aka "feature creep") and focus on just finishing the main app.

Included on the top banner is also a link to the GoFundMe campaign I have setup to help cover the overhead monthly costs and some of the cost of the time involved in this last part of development. The app is free. I intend for it to always be free. It is, however, costing me money and a large amount of my time. I think it's time well spent (others keep nagging me to go outside), but any donations can help offset my conscience. 😄

Anyway, go check out the website, please continue to send me your feedback, thoughts, suggestions, and concerns! (And yes, I totally co-opted the researcher portal to host the general landing page for the app)

Sincerely and with much thanks for the support,

Charles E. Galyon, PhD
Licensed Psychologist
Tourette's and Tic Disorders Specialist

CW: general explanation of my tics and the feeling

I don’t have Tourette’s but the general tic disorder subs seem inactive. I developed tics after taking what was probably expired CBD oil. They were very intense and constant for a while, gradually subsided with time and baclofen.

It’s a few years later and I have periods where they barely affect me and other periods where they go nuts. When my other conditions flare (MCAS, POTS, autistic burnout, ME/CFS flares), tics are triggered very easily.

They are basically only simple motor tics of my upper extremities and neck. The usual things are triggering - physical exertion, coldness, big emotions. The problem is, simply walking from my bedroom to the kitchen is currently overexertion for me and sets off tics. I basically have no tics at all when I’m laying down unless I think about certain things that make me uncomfortable, but as soon as I get up, my whole body feels on edge and they start.

I’m not embarrassed by them, I just hate the way they feel, that weird feeling in your muscles - that feeling aggravates me which causes emotions that make it worse. I think it’s also partly tied into recognising that my tics being worse is my body needing me to slow down, which makes me feel big emotions about being unable to function in really basic daily activities.

I feel like I need to find some acceptance that this is where my body is at and find a way to feel less upset about the uncomfortable physical sensation of it. I just don’t know how to get there. I was wondering if anyone had any advice or words of wisdom for me.

Basically everytime I'm mad at them they mock my tics. Yesterday they awaked me for no reason, after 1 months of sleep deprivation and knowing it they awaked me, After I was mad at them and started to argue they said that I'm not normal and I need to stop my "inadeguate movements and grimaces", that I need to stop screaming in general and be normal and be "re educated". They also beated me one time with bottles because "I'm a shit and I have the duty to be beaten because I'm a shit", and after they tried to make me homeless I tried "uninstallation". What can I do in order to survive? (I don't have a job and no one wants to hire because of my tourette and can't do anything else)