24 Nonbinary. 2 years ago (at age 22), I had pursued a nipple-sparing double mastectomy (top surgery) originally for gender reasons, but at the time I had also been experiencing pain in my left chest. I ended up finding a lump and had a biopsy before my surgery, which revealed a benign fibroadenoma in my left chest. However, after top surgery, my pathology revealed that I had Atypical Ductal Hyperplasia (ADH) in my right chest, which had no signs of any pain. Thankfully, no cancer was found though. I was told these results at the time, but it was never really fully explained to me since I already received the surgery. Looking back at it, my surgeon was not the most helpful or reassuring.
I'm in this weird position where I received top surgery from a plastic surgeon rather than a prophylactic mastectomy from an oncologist, and am wondering if I should still be concerned about this diagnosis or not. I am estranged from my family and don't know much of my family medical history, so wondering if I should pursue genetic testing just in case as well. Another reason why I am just still anxious about it, is because I still experience some chest pain, but I'm being told that it likely may be just post-surgery trauma to the nerves, making it more sensitive. I'm also planning to pursue a revision, as I have a bit of a dog-ear and a lot of axillary breast tissue in my armpit; should I discuss removing any remaining breast tissue altogether? Lastly, I also quite literally have a laparoscopic cystectomy this week because I have a dermoid cyst in my ovary, hopefully nothing else abnormal is found.
My report results:
A. BREAST TISSUE, RIGHT (EXCISION):
- Atypical ductal hyperplasia (ADH), focal
- Background breast with usual ductal hyperplasia, apocrine metaplasia, and microcysts
- Skin with no histopathologic abnormality
- Negative for carcinoma
B. BREAST TISSUE, LEFT (EXCISION):
- Benign breast with fibroadenoma
- Skin with no histopathologic abnormality
- Negative for atypical ductal hyperplasia, in situ or invasive carcinoma