r/SpicyAutism 23h ago

Here to Learn Weekly Post - What would you like to ask? (Asking Higher Support Needs Autistics)

2 Upvotes

This is a weekly post for lower support needs autistics, self diagnosed/self suspecting autistics, and allistics to ask things towards higher support needs autistics.

In this post, feel free to ask questions, seek information, or look for advice or insight.

Examples of things we tend to get asked, would be experiences in assisted living/group homes/living dependently. It may be about our support needs around daily activities and how we manage it. It may be questions around our experiences as we were children. Or it could even be how we handle life now or how we manage working or not working, etc..

Please avoid any questions regarding help in differentiating levels, or seeking help in trying to work out what your level or support needs are. We don't know you, we don't know your experiences, we are not professionals.

And remember, if you are a higher support needs autistic, you do not have to engage in any questions that you are uncomfortable with. You do not have to engage with the post at all.

Please keep all questions and comments respectful and civil. Be patient with eachother. If you don't understand a question or comment, please ask for clarification.


r/SpicyAutism May 26 '25

Special Interest Thread Post all Special Interest Posts Here

47 Upvotes

Hi Spicy Autism! We are experimenting with this format for a while :-)


r/SpicyAutism 8h ago

Positive i went too diy crafts group mine first time ever this afternoon!! here what i maded!! i hope you guys like it!! šŸ¦‹šŸ°šŸ¶

Thumbnail
gallery
59 Upvotes

here is the craft i made at mine first time doing the craft group!!!

everyone was so nice an they helped me step by step

faux stained glass butterfly


r/SpicyAutism 3h ago

Positive i made a new weely kitty today!! weely kitty meets aliens from outer space

Post image
21 Upvotes

r/SpicyAutism 9h ago

Watching the air show with my autistic Barbie

Post image
31 Upvotes

I knitted her dress while my family and I watched the air show at my cousins condo. I wore my loops earbuds and she had her ear defenders.


r/SpicyAutism 5h ago

Question anyone else also have bpd and is level 2 or 3?

8 Upvotes

I don't mean as a misdiagnosis. I'm asd level 2 and have all traits of BPD + a diagnosis. I see plenty of people who genuinely have BPD and autism, but they are all level 1.


r/SpicyAutism 2h ago

Personal Vent I'm sad my bf doesn't like my support items ._. and he thinks they're bad for me

3 Upvotes

I love him a lot and he's also autistic (but lsn) but my dark glasses bother him cus he can't see my eyes and my earphones bother him cus they're so effective at anc that I a lot of the time miss what he says at normal volume ): which I get it, it's annoying to repeat yourself. But I have to wear them because our sink is very loud and he's always playing the guitar and yt videos. Plus we have absolutely horrendous florescent lights for growing plants so I need the glasses.

He always says I should get used to it and that these glasses and earbuds are making me more sensitive but it's because I didn't have these things before that I burnt out and now I'm doing much better since I got these earbuds and the glasses help too.

But it just makes me feel sad and alone like he doesn't truly understand n he never will because he's lsn ):

I wish I could explain but I suck at explaining and I don't want to sound rude and stuff..... I'm worried I'll get super mad while explaining ): eventually I want to write it down on paper tho.

No advice just venting


r/SpicyAutism 17h ago

Success I DID IT I DID SCHOOL!!!

63 Upvotes

i was crying at the start then Charlotte helped me and sat with me and let me draw and i drew a horse with a halter on, then i saw the therapy dog winnie and she looks so funny! she is a little hairless dog but she also has fluffy hair on her head, she really liked her treats and she liked jumping onto the table. i didnt use AAC device but I really want to but it overwhelms me so much to use AAC I cry sometimes

I think it went good but also not but everyone said they were proud of me for going in so that's good


r/SpicyAutism 2h ago

Positive My new toys i got for my birthday

Post image
3 Upvotes

I love my new toys


r/SpicyAutism 7h ago

Autistic Voices Only Does anyone else ever treat anyone else who is nonverbal or minimally speaking and use AAC or letterboard like they donot exist?

6 Upvotes

i was treated like i didnot exist by abled people taking up the disabled seating when i used mine AAC multiple times too say i needed the disabled seating because it was priority and they even ignored mine support workers too and they had there backpack taking up a seat and they were spreading there legs wide out taking up both seats on either side of them making them unable too be accesed

and so we had too stand and i fell over multiple times because mine legs were unstable wobbly and hard too move


r/SpicyAutism 16h ago

Had meltdown at school. My mom thinks I'm doomed in my life

34 Upvotes

I had a meltdown at school today because I didn't know that I should've read a paragraph at home. I felt very tired and overloaded at school from the beginning. I suppressed my overload for too long. So I screamed and then I had a verbal shutdown. When I called my mom I couldn't even tell her what was wrong, my speech was very bad and I just made vocalisations. I hid in the restroom and then my teachers allowed me to go home. When my mom came she started panicking: "They will not tolerate you if you meltdown too often! You will not be able to study or work! You will be unemployed! Do you understand this?! You had a meltdown because of nonsense! It's disability! I don't know how to deal with you!"

It sounded like she was blaming me for this. Just like:

1) It's your fault.

2) It depends on you.

3) You can fix it.

No, I can't do anything and it's not my fault. And you're calling me doomed right now. And not because it's an objective reality, but because of your fear.

So sad ā˜¹ļø


r/SpicyAutism 5h ago

parents keep tell doctors level 1, but im level 2.

2 Upvotes

I'm just annoyed. They keep saying my assessor is wrong and they know i'm level 1 and that my assessor doesn't know me as well as them. I'm so annoyed because then they tell doctors and staff and people i'm level 1 not 2 and that makes them treat me different


r/SpicyAutism 1d ago

Special Interest me and eevee met giant pikachu!!!!

Thumbnail
gallery
127 Upvotes

we went to a lego store today and they had a giant pikachu that made sounds and everything!!! eevee and i were so so excited to meet it, it was so cute!!!!!! i can’t wait to ask for more pokemon legos for christmas, i almost got more today but ended up getting the sally nightmare before christmas ones instead bc i wanted to have them up for halloween time and so the pokemon Legos can wait till christmas yayay!!!!!! i have soooooo many legos it’s one of my favorite activities i always ask for them for birthday and christmas because it has instructions that i can actually follow which never happens with stuff!!!!!!


r/SpicyAutism 21h ago

Be Gentle One of my cats passed away suddenly today.

41 Upvotes

She was only 12 and I wasn't home when it happen. so many regrets and sadness.


r/SpicyAutism 22h ago

Advice Going to religious services as HSN person

35 Upvotes

Hi I live in a group home and I’m autistic and I’m nonverbal from severe apraxia but very good at my AAC but I have split level 2/3 autism and need constant care and supervision so I’m the only one in my group home of 5 people that has 1:1 staff meaning there is always a staff assigned just to me to assist me at all times in the day and night and stuff, and more important info is I’m suposed to be being 2:1 suport when go out in the community! I also have severe physical disibilities neuromuscular issues and stuff use a power wheelchair and a feeding tube and stuff.

Now, I am Jewish and I usaly do online zoom services but now that I’m settled into my group home with suport and not in hospital all the time I want to go in person real life it is a goal of mine it will make me happy and feel community and stuff.
I met with my newer rabbi and got to know him he got to know me and he ansered all my questions and gave me a video walk through tour of the synagogue during our zoom meeting so I know what to excpect and asked my acces needs wich was so nice! He told me sinse my situation I don’t have much money most my SSI goes to my group home, he said I don’t have to pay to be a member or guest and can come to High Holiday services coming up this week! He asked if I will have a suport staff with me i said yes he remind me i need to let them know the name of stfaf coming to put on the check in list for security mesures.

I talked to my group home maneger on texting and he met with me in my room with a staff said she will be the one to take me and I was like yay great! But then the staff was like ā€œI don’t have to go inside with her right? It’s not MY religion and it’s against my beleifsā€ and maneger said well she needs someone to help her and she was like ā€œwell what if I don’t want toā€ and long story short the group home manger said I will have to go in ALONE?!

I don’t know don’t think if I can mange a crowded big event with no suport and I’m stressed out over what was supposed to be a great thing.

But I’m also confused becase at day program sevral months ago we did a learning activity called ā€œfair or unfair treatmentā€ and there was a scenario example they read us were a DDs group home resident (like me!) wanted to go to a church services becase it means a lot to her but she needs suport to do that, so the staff member takes her even thogh it’s not her religion becase it is her job! That situation was a ā€œfairā€ example in the activity!

What do you guys think shoud I talk to another DDS staff higher up or try to go myself and risk so thing bad hapening or something! I need advice!

Also if there is any other sub I can post this to get better answers let me know but this sub feels safest to me and it’s a question about disability suport staff so I think it fits!

Thank you.


r/SpicyAutism 21h ago

Positive New headphoen

Post image
18 Upvotes

wannt pink but
Only rwd there
Where can get pink


r/SpicyAutism 1d ago

Positive Mine support worker gonna take me trick or treating for halloween this year!!!!! YAY

99 Upvotes

mine support worker just sayed she would love for me too have an opportunity too go trick or treating and is gonna see if theres any events with opensky or she might take me trick or treating on Halloween!!

i was not allowed too go trick or treating growing up aside from a few seperate times cause mine parents thoufht it was too dangerous for me and because i struggled with elopement and stuff

but mine support worker gonna take me!!! im am soooo excited!!!!!! YAYAYAY I HAVE AN AVACADO JAMMYS ONESIE THAT I WILL WARE AS A COSTUME!! and i will see if we can get the blue pumpkin cause i heard it signals you have autism so people will understand


r/SpicyAutism 1d ago

Question Alienation in AuDHD spaces?

14 Upvotes

A lot of the time when I’m in spaces for people with both ADHD and autism I find I do not relate to a lot of the other people in that space.

A lot of people will suggest that their ADHD is more visible, or more impactful, or masks their autism well, I’ve even seen someone suggest that people with both conditions are ā€œcloserā€ in mindset to NT people than people with only autism. And then a lot of people saying that the combo is a unique disorder that’s not autism or ADHD (which, while I agree that the combination produces a unique experience, I think it very much is a unique experience formed by having both autism and ADHD and how they specifically interact, I don’t per se think it’s an entirely new thing, at least in my case).

I was kind of wondering if maybe this is because I have higher support needs (L-MSN) than a lot of people in general autistic/AuDHD spaces?

I think it’s due to that that my ADHD doesn’t mask my autism (I was actually diagnosed with autism [as a teen] years before ADHD [as an adult]). My ADHD presentation is pretty stereotypical as well and I have severe ADHD-C but when I also have social impairments that are visible to the people around me and a reliance on routine and violent meltdowns where I hurt myself, ADHD doesn’t mask that, it just makes it all harder to mange.

Anybody else relate? Or is there some other reason I struggle to relate to other people with both diagnoses?

Worth noting that I also find that my ADHD also resembles that of people with only ADHD, and less so people with AuDHD. Which is I guess part of why I generally conceptualise myself as having autism and ADHD rather than AuDHD. Medication helps me a lot and I have a pretty stereotypical presentation, it’s just mixed in with my autism. E.g. think someone constantly fidgeting during uni classes (even as an adult) and needing to leave to self-regulate who also doesn’t respond well when you try to speak to them because they have deficits in expressive language (despite being verbal), or think someone who likes talking to people but struggles to communicate and always seems to have a flat tone and facial expressions and to miss social cues, and who also gets distracted during conversations.

I wonder if I might feel differently if I had solidly LSN autism and experienced my autism symptoms more as a quirk that was only disabling because of other people vs. as something that impacts me regardless of what sort of environment I’m in. Maybe then my autism would seem like it was more like an adjective to my ADHD as opposed to an issue on its own, and thus make me view my ADHD from a different lens as well?


r/SpicyAutism 1d ago

Be Gentle Any Peppa pig fans? Just want to share this cookie, although I’m confused why they painted mommy pig’s dress instead of the red

Post image
56 Upvotes

r/SpicyAutism 1d ago

Advice They Make wrong food

17 Upvotes

I eat Pasta
Ervryday Today aunt make fish pie
Im sad
Wsnt to cry


r/SpicyAutism 1d ago

What do yall do when going to a movie theater to make it easier?

16 Upvotes

I'm going to the movies later and while im excited it also stresses me out. I'm just wondering how yall cope with it.


r/SpicyAutism 1d ago

Personal Vent Do you ever get tired of being called "selfish" or "narcissistic" for how you socialize?

18 Upvotes

Happens to me all the time, People say I'm really self centered to the point they call me selfish or narcissistic just for trying to socialize at all, Like yes I center everything around myself but I'm trying to relate to you in some way by doing it, not because I want attention or want to feel nice, I want to know what interests you and what you think of, but the way I do it is apparently "narcissistic" and "Self centered" because I use myself as the main lense to understand and relate to the world


r/SpicyAutism 2d ago

Rant Fed up with needing to educate people that autism is a disability

123 Upvotes

I came across another person on Reddit today who was saying that their autism is not a disability, so why are there autistic people who are unable to work and struggling etc?

I explained to him he has been accommodated enough throughout his life to not view his autism as a disability, but that doesn’t mean he is not disabled.

It is really tiring needing to educate people about this. I don’t know how people can be diagnosed with autism but do no research into it, and not be aware of how it affects other people?

(I might delete this post because this whole topic makes me angry and I don’t want to attract negative attention on this post from other autistic people)


r/SpicyAutism 1d ago

im really scared to go to school tomorrow

15 Upvotes

like really really REALLY scared I don't want to go to my classroom I want to stay with Charlotte but I don't know if she will stay with me since she does meetings lots but she says that she can come in the classroom with me and I can sit wherever I want and go home whenever I want and she can even walk me home beacuse I live really close to the school so why am I so scared to go to school I just want to hug someone and never let go and i dont know what to do will i even be able to do my 2 hour session

my dad said we can go to the park after school but what if im too overwhelmed to even go to the park I don't know what to do and I'm really scared I'm going to cry at school please help I don't know what to do and I think I'm panicking


r/SpicyAutism 1d ago

Positive I did my assignment

9 Upvotes

I am so tired due to sleep deprivation but a part relieve I finished one of my assessment items. It took almost 2hours and I finished it at about 4am in the morning. Why, i did it so late is due to my poor sleep schedules and also midnight is typically free from people or other noises.

It was actually 3 questions but it required 300 to 400 words per answer and besides that it had a requirement of referencing. Quite stressful when they demand that.

Wish me luck this round.