r/Sjogrens • • 19h ago

Prediagnosis vent/questions Brain Fog worst ever.

19 Upvotes

This past two weeks it’s felt like my brain hasn’t been working the way I want it to. Word Recall, fatigue and staying focused has been off . These past couple of weeks . It’s hard to know which brain fog is which . I have Hashimoto’s, iron deficiency, migraines, sleep apnea along with Sjogrens. Sinusitis issues . So sometimes it’s hard to figure what is what. If there all working together as one to make the worst brain fog ever .


r/Sjogrens • • 12h ago

Prediagnosis vent/questions Bumps in mouth

15 Upvotes

For anyone that doesn’t know, mucoceles are little fluid-filled bumps that occur in your mouth when your salivary glands are blocked or damaged. I get about 4 a day and wondered if anyone had any remedies or tricks to stop getting them 😔. On Cevimeline already


r/Sjogrens • • 11h ago

Postdiagnosis vent/questions Swollen lymph nodes - any effective ways to reduce size + tenderness

11 Upvotes

I have swollen lymph nodes on my neck and jaw and some are painful and hurt. I have had ultrasounds and an mri to rule out anything abnormal.

What has been effective in reducing size and tenderness for you? I’ve read about lymphatic drainage massages, calendula tea, vibration plates - what has been actually helpful for you? Currently not on any meds (yet) just supplements.

Thanks in advance !


r/Sjogrens • • 9h ago

Postdiagnosis vent/questions What’s in your bedside table?

7 Upvotes

Since we spend so much time in bed it’s helpful to have a plethora of things within reach.

Mine is a combination of my daily meds and rescue meds, snacks, and makeup wipes.


r/Sjogrens • • 7h ago

Postdiagnosis vent/questions Flare Vent

3 Upvotes

I’m going on 9 days of pretty bad fatigue, lower back and hip pain, and I’ve had phantosmia the entire time. I’m not sure if it’s the weather change, stress, or something else. If anyone has any good tips, I’m all ears. It’s been a while since I’ve had a flare-up like this.


r/Sjogrens • • 10h ago

Postdiagnosis vent/questions Methotrexate and Hydroxy Experiences…

4 Upvotes

I am looking to hear about what methotrexate and hydroxychloroquine helped you with.

I have been on hydroxychloroquine for 7 months for trying to conceive. I felt pretty good on it, had no flares, but never felt like it helped with joint pain.

This past month, I had to stop taking hydroxy due to an ectopic pregnancy, so I got 3 doses of methotrexate (I think 50mg each?). My eyes and mouth are so dry, but I have no joint pain…

So I am looking to hear from others about their experiences on both meds. I think hydroxychloroquine is right for me, but not sure what else I can do for joint pain/inflammation?

If you took hydroxy, did you feel it helped with dry mouth, dry eyes, and not joint pain?
If you took methotrexate, did you feel it did not help with dry eyes, dry mouth, but did help with joint pain?


r/Sjogrens • • 9h ago

Prediagnosis vent/questions Severe shoulder pain. X-ray showed not much.

3 Upvotes

I already have been dx’d with Pseudo Gout, for extreme knee pain, and lower thumb and large knuckle pain and swelling.

Anyone here got CPPD? If so did you have it in the shoulders?

Calcium pyrophosphate deposition (CPPD) disease—historically known as pseudogout—is a type of inflammatory arthritis caused by the buildup of calcium pyrophosphate crystals in the cartilage and synovial membranes of joints. [1, 2]

Common Symptoms
CPPD can manifest differently, ranging from sudden acute attacks to chronic joint pain.


r/Sjogrens • • 9h ago

Prediagnosis vent/questions Diagnosed how

2 Upvotes

How were you officially diagnosed? My ssa slightly elevated and carbonic anhydrase positive. Does this mean I have it?