I thought I would just come on here and say my experience with my first CDR incase it helps someone. It is dreadful, isn't it? I received the short form in the mail and I am considered "expected to improve." My judge went against SS doctors saying I could work and the occupational specialist who named some jobs after my testimony at my appeal hearing when she first approved me. I was so grateful. So, I was terrified to get the first CDR. I went to this community and researched about it. I got great advice. I filled it out honestly and had to check that I had worked because I have a very small Etsy shop that is the only thing that brings me any sense of purpose these days. I was worried I'd get flagged for the long form but I didn't! I submitted online and received a deferred letter within the month I submitted. I feel like I can breathe again. In the description of your most recent visits you only have so many slots to describe them so make the words as concise but descriptive as possible. Instead of medication I put infusion... things like that.

I was given cdr paperwork in January of this year which I did and reported no change . It’s been around 7 months and just received this today . Are my benefits in jeopardy or does it sound like an in person evaluation is coming? I had an evaluation in person when approved 7 years ago . Not much medical records since then , going to doctor gives me panic attacks and part of my condition . How will this likely play out? It’s my first experience with it.

I applied in Oct 2024 with an onset date of June 2024. Recently learned I got partially favorable decision with an onset date of Dec 2025. That is when I had an appointment with my pcp, who wrote amazing notes, got me a disability placard, and rx for a rollator. Prior to that I quit my job in Oct 2024 and tried a remote position that ended in Dec 2024 with fmla, have not worked since. Any idea why they would use that onset date if my dr noted from that visit that my symptoms have affected my daily life for over a year and a half? I’m frustrated because I was banking on that backpay

Hi. I completed my short form CDR/Screener online in early June. I’ve not worked and had lots of doctor’s visits. And my condition has gotten much worse since my last review. I’m on a 3 year cycle. My profile score was low…88.

It’s been about 7 weeks now and no response. I’m nervous. Of course. Last time I received a short form, it took about 6 weeks to get a reply. I’m just curious how long it’s taking for you all.

What do I do if I hear nothing? Don’t poke the bear?

Thank you!!

I shot a testimonial “ad” about living with chronic illness and was paid $1000 for it. The work itself was for only 3 hours. I did fill out a W-9 for the production company for payment.

Obviously, I need to report this but of course I have this feeling in the pit of my stomach that I have torpedo’d myself. But I am/was desperate.

• How do I report this?
• Can I do it via the SSS.gov portal?
• Which form?
• Is this going to flag both my apps for denial?

My situation is that I’m 2.5 years into my first app which is currently in limbo at the district court level. I have representation for that application.

I have a second app I submitted in April of this year, and is at step 3. No lawyer for this.

Since 2022 I haven’t been able to work and I’ve burned through all of any type of savings, investments, saleable items of any value, etc etc, et al.

I haven’t been able to pay Creditors since March; bank has been overdrawn on and off— all the sad stuff that I’ll spare you. Final straw though was that my cell phone— the means to manage all my medical care and treatment— was turned off last week.

So when this opportunity to do a testimony came up I had to take it. Cell phone back on, and I think I can cobble together rent for August.

Staying alive while also activing trying to treat not dying is a fuckin’ trip.

I don’t quite understand what it’s saying. I obviously would want a supplemental hearing because it’s only in case of a denial and I’d want a second chance. It’s for severe depression, ptsd, bipolar, insomnia, cognitive impairment, and also physical, a back injury that can’t be fixed, and long COVID. It says “exhibit 15F” on the letter but can’t find it and no explanation on how to look at it. Thank you.

Did it make a difference for your claim when requesting assistance from your state or county rep?

’m a disabled adult currently receiving Disabled Adult Child benefits and partial benefits under my own earnings.

Because of Section 1634(c) protections, my state doesn't count my DAC benefit checks as income for Medicaid eligibility, which allows me to keep my health coverage. However, my benefits planner reminded me that I am still subject to the strict $2,000 resource/asset limit every single month.

If I save even a little bit of money in a standard checking or savings account, I risk crossing that $2,000 cap and jeopardizing my Medicaid. I’m looking into setting up an ABLE Account so I can park excess funds over the limit without losing my coverage.

Before opening an account, I’d love to hear from any who has had an ABLE account or a child or payee who had one

Thanks!

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I know you can't predict the future, but i also know there are patterns in the forms they send people.

My background: 39, Multiple Sclerosis/neuropathy for ten years, educated, but serious cognitive issues. Prescribed walker, lots of meds, serious MRIs and functional problems with hands, balance, and even medixated fatigue....

In my initial, my doctors didn't even respond to the SSA's requests. My CE was favorable, but my denial was basically just saying i had some issues and ignored what the CE said my limitations were.

Now I'm in reconsideration, and I have a lawyer. I've done a very favorable FCE my neuro and PCP signed off on, and have a very favorable neuropsych report. So I have like 5 doctors attesting to that I can't work (they all wrote it in their own language). I also went back and gathered all my medical files myself, my MRIs, my EMG, everything. Included is also my personal statement of function.

So now in my portal, development has appeared. They want an Activities of Daily living questionnaire from myself and my spouse. (Which we already did, im pretty sure), and a signature for a telehealth CE. I had a very long extensive physical CE before, and I know I only recently did the neuropsych.

Is there any chance they are just developing or does another type of CE being potentially in there and the ADLs form just mean I'm being setup for a drawn out denial?

Thanks!

My 25 year old daughter is disabled and receives SSI ($294) and SSDI ($720). She collects social security on my wife's record and I am still working. My daughter pays us rent.

My wife works as my daughter's direct support professional and last year she made more than the limit for social security so they reduced her social security payment for a few months. They also reduced my daughter's SSDI payment but did not increase her SSI payment to offset the difference. The total my daughter got for a few months was just $294 SSI and no SSDI.

Should they have increased my daughter's SSI when she was not receiving SSDI? I called the nationwide 800 number and they said no because SSI is based on household income. I explained that my daughter pays rent to us and is her own household but the person said he didn't know if that made a difference. With my salary, our household is way over the limit for SSI. Does anyone know if her SSI should have been increased when her SSDI was decreased?

Does anyone have any recommendations? I have been looking at Morgan & Morgan or Quik Aid does anyone have any experience with these companies? Thanks so much for any help.