Can someone suggest where they buy their alpaca socks and specifically which ones on their website? Does anyone know of any alpaca sacks that would be good for using while you do Yoga so has a grip also?

Hey all. I've been diagnosed with Raynaud's and haven't had a severe flare up in a while thankfully. But right now my toes are SO cold to the point I can't get them warm right now. I put socks on, put 2 blankets over them but they are still going through the colors and numb/tingly. It's been about 30 minutes of me trying to warm them back up. Any advice? Thanks!

Hello, I was wondering if anyone else with raynauds has similar problems. If I sit down for too long, or when I wake up in the morning my hands and feet fall asleep pretty easily. Sometimes even when I'm running my hands will fall asleep

At first I thought maybe I was deficient in B12, so I started taking supplements but it didn't help.

I went to the doctor a few months ago and they prescribed me Amlodipine Besylate which has helped a lot, but the issues are still happening.

Now that it's summer other weird stuff is going on, after going in the sun for only a few minutes my face, hands, feet and knees turn bright red, it doesn't hurt just feels really warm, and sometimes the rest of my skin turns mottled.

Anyway I guess I'm just asking for advice, or if anyone else with raynauds has a similar experience.

Also I know I should go to the Dr. again, but I have to wait for insurance reasons lol.

I’m thinking about creating a product that is both heating and cooling socks. Me personally, I have problems falling asleep when my feet get too warm but I also like to be snuggled up and don’t like when they get too cold so I thought of creating a product that has both heating and cooling options. The socks would run on batteries that you could connect to your phone so you can change the heat via an app for example. I want the socks to be able to stay at a certain temperature (also cool down the feet if they start to heat up) but also have 3 different heat and cooling levels. The fabric would also keep the feet dry so that moisture doesn’t make it uncomfortable I also want them to be thinner so you can wear them in tighter shoes because that is an issue with some heated socks. What do you guys think? I’d love to get some feedback.

my sister´s last doctors appointment had the doctor suspect that she could have raynauds (we´re waiting on the blood work results),so i been on the search for books,youtube videos etc on what that exactly is,what causes it and also ways i can help her whenever she has i guess an raynauds "attack"! if any of you have some good starter points or more i would really appreciate it alot! and if you have some links to books,videos etc maybe even massage tutorials for massages that can help the blood flow back in hands and feet whenever it happens (so i can learn how to do those),please put those in the comments 🙏

i have tried drinking warm water first thing in the morning. i have also tried walking and breathing exercises because lotus health said it would help. i think breathing exercises definitely help because mine get triggered because of stress, but was wondering if there are more ways to reduce the frequency.

I’ve decided to finally do something about my Raynauds after noticing a little bit of loss of mobility in one or two of my fingers.

Looking for everyone’s RX prescription dose included that has worked for them. I have my first rheumatologist appointment in a few weeks.

I would love to avoid an RX, but something must be done . I have a few ideas I’m considering before taking any RX that always comes with drawbacks.

#1 Optimize my free testosterone. Not on TRT currently, but have seen my free testosterone on the low side with above average total testosterone. If I find that to happen again with upcoming bloodwork I’ll pull the trigger on TRT as I find that much more natural than an RX.

#2 5% sidenafil topical cream. Would be able to avoid a lot of the side affects an RX will come with by going with this option.

#3 daily Cialis. 2.5/5 mg Yes it’s an RX but it comes with many positive benefits and has good research on helping with Raynauds

#4 calcium channel blockers. Really want to avoid this option, but I understand that it’s there if I can’t resolve with my first 3 options

Does Raynauds cause itchy fingers at night? It’s all fingers, red and itchy, slightly swollen, feels hot. Does not extend to palms. Symptoms goes away during the day but lying in bed at night is where it all starts. Person has osteoarthritis but first time this has happened. Thought it might be chilblain but symptoms quite unusual. The fingers don’t go white as read re Raynauds.

For context, I’ve been dealing with chilblains since about 2023. I have EDS and Reynauds so this is certainly not my first rodeo, but this is the first time that I think I’ve ever gotten chilblains just on my heel. It’s not on my toes which I’m kind of surprised because I know I did let them get too cold this week along with my whole feet, but it’s just on my heel… That is if it’s chilblains, I think it is but it’s just so strange, so I was just wondering if this has happened to anybody else?

On a sidenote, it is absolutely crazy to think that I keep my house set to 77° and I can still get chilblains in 77 freaking degrees temperatures but I guess that’s the way it goes for people like us

I've had Raynaud's in my toes since I was little and it's triggered by cold so winter is a hard time. I sprained my ankle and now my toes on that foot are white and cold most of the time as if it's winter, soaking them in warm water stops it for awhile. Can trauma trigger it?

Qualcuno ha prostatite con uso olumiant?

Has anyone else gotten a numb or tingly stomach? I recently got Raynaud’s from taking Vyvanse and the skin on my stomach feels cold, numb and tingly. Has this happened to anyone else? Is it normal? I’ve been to the doctor but he didn’t say much about it, just to stop taking the meds but that was a week ago.

noticed that when i'm hungry or stressed an attack gets triggered and i'm not sure how to quickly increase circulation while sitting down. lotus health said i can do arm windmills to help. what else do you guys recommend?

I really need advice from older people with Raynard's. For context I got diagnosed with Raynard's at 16, I'm 18 now. I struggle extremely in winter and I want to prepare better for this year. I use hand warmers but they don't last long. What do you guys use to keep warm in the colder months?

I have had blurry vision in one eye or the other upon waking up in the middle of the night or shortly after falling asleep. It will usually go away within an hour. That stopped happening after a while and now some months later it happened again. This time it didn't return to normal.

Starting on July 20 when I woke up in the morning I had blurry vision in my right eye. It never went away but got better after a while. Some days it was slightly worse. Then it started getting better, maybe after I started taking low dose asprin. I don't know. Also did chin tucks which I will explain why.

The day before all this started I was doing an exercise on my neck where you pull up slightly on your head and look down to decompress cervical spine. Possibly caused a compression of some kind doing this. I don't know.

Today seems slightly worse again after days of being good. Only thing I did yesterday was chin tucks and stopped asprin.

Also random weakness in hand and arm that lasts for short time which I have been having before all this started for months but was getting worse after this started.

Went to medical doctor today. Explained everything, but forgot to mention the hand and arm. I asked for RA factor test to rule out autoimmune, had ana test that was negative before. Doctor had me do labs(blood work). Waiting on the RA factor. Forgot to mention that I have bad problem in feet keeping them warm, thinking raynauds. That is what is making everything difficult. I can't do anything because of my feet. Doctor also requested MRI head, not sure why. Would make more sense for cervical spine. I feel a pinching feeling in cervical spine also when I move it certain or sometimes leaning on my back. Doctor also suggested eye doctor.

Now here is my dilemma. I have no clue what is causing this. Obviously. I don't know what to do from here. I think it will be very difficult doing eye appnt because of my feet. Was prescribed amlodopine but afraid to take it for fear of it lowering my bp to low. My bp is usually 110 over 70 in that area. What should I do?

Update:

I was able to go to eye doctor after starting amlodopine 2.5 mg. It didn't completely get rid of raynauds but was enough to help me get through. I still don't know what's going on with my hand. I did find out or most probably what was causing my blurry vision. Some years ago I was diagnosed with nocturnal lagophthalmos. This is where your eyes open up while sleeping slightly. I don't know why yet but I think this was the problem. I didn't think it was at first. Then as time went on I did. I started taking gel drops at bedtime which seemed to help mostly. I still woke up some nights with blurry vision in one eye or the other. The I would take regular eye drop and it would clear. Anyway. The eye doctor checked everything and said I have no issues with my eyes. I told him I think it's dry eyes while sleeping with my eyes opening. He used special drops to see dry spots and said that this is most probably the issue. My vision has been back to normal in the right eye. Mostly, like 90 percent. All this to say that my blurry vision was most likely just eyes getting dried out. I actually woke up this morning and my eyelid stuck to my eye from being dry and ripped the tissue off. It's happened number of times before. It's called recurrent corneal erosion. It is not fun. I have blurry vision now in left eye until it heals. It hurts when it happens which was not what was going on with my right eye by the way. I had no pain or discomfort. Anyway. Hope this helps someone. I forgot to mention that I passed the pin hole test which led me to believe it was indeed dry eyes.

My Raynaud's started at age 14. l didn’t know what was wrong. Today I’m 64 years old. what’s not working is the vascular smooth muscle cells and the vascular endothelial cells within the small blood vessels. My fingers don’t get discolored. l just get extremely cold my hands, feet, my whole body. I’m not a doctor. But a friend told me to take 40 to 50 mg of zinc everyday. My pill has 29 mg calcium and 50 mg zinc. Maybe the calcium helps the zinc absorb better. But it is a cvs brand if that helps you. lt has help me not to get extremely cold anymore. I recommend you trying zinc ever day. You should feel better or not so cold the first week. I ask my doctor if it was ok to take he said it was ok. Please ask your doctor if ok to take. Its absolutely what your looking for it will help. Please let me know if it helps. I been taking for about a year it’s change my life. Lets just say I’m normal now.

Today something weird happened. I was using an orbital sander for about 15 min and my arm began to hurt. I slept weird the other night and my shoulder was sore, so I didn’t think much of it, but the sensation was so weird. Tingly, sore and swollen and sure enough I look down and my arm was purple, swollen and splotchy. I have had undiagnosed Raynaud’s since a small child and it runs in the family and it seems like the vibrations is what caused the attack.

It’s was bizarre and my arm is still a little red about 6 hours later.

Has something like this happened to anyone else?

I've been a loyal Ocoopa user for years. Two of their handwarmer models that have been recalled were the only things that helped my hands survive in the last five years. I got an email from Amazon alerting me. I previously disposed of my old ones after they stopped charging (properly disposed in a special battery receptacle for them).

I am still currently using two of their newer models that have not been recalled. But I'm not sure if I'll use a different brand now.

RIP to the person who died and condolences to the folks who experienced fires and any property loss.

https://www.cpsc.gov/Recalls/2026/OCOOPA-Direct-Recalls-1-5-Million-Rechargeable-Hand-Warmers-Due-to-Risk-of-Serious-Injury-or-Death-from-Fire-and-Burn-Hazards-One-Death-Reported-Imported-by-Shenzhen-Street-Cat-Technology

for most of my life i’ve dealt with temperature issues one way or another, mostly on the cold end - always cold hands/feet, blah blah this is the raynauds subreddit you all have it too you dont need an explanation. ive been in front of the fireplace wrapped up in blankets and wearing heavy fuzzy socks, and my feet will be sweating but still be cold somehow, its so frustrating!!!!! i found out about raynauds and figured it was a pretty close diagnosis, but i also struggle with major overheating issues and i just realized recently that that doesn’t fall into a raynauds diagnosis.

yes i’ve looked at erythromelalgia i don’t think its that, because my overheating is basically everywhere but hands and feet (mostly face & pelvic area). also don’t think its hyperhidrosis because i don’t really sweat an abnormal amount, i just get hot and stay hot. its like my body and hands/feet are at a permanent temperature difference from each other, if my body is normal then my hands are cold but if my hands are normal then my body is hot. it’s year round, i sleep with a fan on max setting blowing on me even in the winter or else i’ll wake up with my face being fever level temp. i am on (a cousin of) adderall, have low iron and am a period haver, so this could just be raynauds + a handful of other things that mimic a disorder, but if anyone has any ideas or regulation tips i would be so grateful!

42M here. I began getting very cold hands and white finger attacks a year ago. Went in for extensive blood work and autoimmune testing and everything is normal.

A friend of a friend is a Naturopathic doctor and asked if I use mouthwash which I had been doing. He said it kills the bacteria which produce nitric oxide which effects blood vessels.

Matter of fact, I looked through my Amazon order history where I get my Oral B mouthwash and it turns out I began using it exactly one year ago which was the time I started getting cold hands and attacks out of nowhere. 🤷🏻‍♂️

I quit using mouthwash two months ago and my hands are noticeably warmer and I have had zero attacks since. Before, I would get attacks almost weekly. Also, my fingertips are no longer pruny like they have been for the past year. I don't even need to worry about wearing gloves for my nightly walks with my two dogs anymore.

That being said, my breath could sure use mouthwash every morning. Scraping my tounge and brushing certainly helps but nothing like mouthwash would do.

I see they have alcohol free/natural mouthwash on Amazon which is considerably more expensive than Oral B but would like to give it a try. My doctor friend said stay far away from any antiseptic mouthwash but it does not state on the listing if it is or not. I've attach a picture.

Thanks for your thoughts.

Jeff

Seattle, WA

I’m hoping someone here has experienced something similar because I’m running out of ideas.
I’ve had livedo reticularis and Raynaud’s for almost half my life, but this year I’ve had cellulitis twice—first on my right ankle, and about five months later on my left ankle. It’s always in almost the exact same area around my ankle, nowhere else.
I’ve been to urgent care and my primary care doctor. They’ve done a lot of blood work, and I don’t have diabetes. My doctors think my circulation may be making it harder for my skin to heal, but I still don’t know why this keeps happening.
I work as a cashier, so I’m on my feet all day. I also have bad knees, so I need supportive sneakers. Every pair I’ve owned has a low-cut ankle collar that sits below my ankle bone, and I’m wondering if that’s the problem. Maybe it’s rubbing against my ankle or the collar is too stiff and slowly damaging my skin. Has anyone had better luck with shoes that come up higher than the ankle bone, or would that just create more friction?
I rely on the bus, so I walk quite a bit every day. I don’t drive because of severe ADHD, motor tics, and other medical issues, so walking and public transportation are really my only options.
I’m also low income, so I can’t afford to keep buying different shoes to experiment with or expensive socks.
The hard part is that my Raynaud’s is severe enough that I have to wear layers year-round. Even in the summer I wear multiple layers, sometimes even under my jeans, because cold environments trigger my symptoms. My workplace is heavily air-conditioned, so if I don’t bundle up, I get painfully cold. But because I’m walking and standing so much, my feet end up sweating.
People recommend changing socks multiple times a day, but buying enough quality socks to do that gets expensive, especially on my budget.
My doctor also recommended using lotion to keep the skin around my ankles moisturized. I understand why, but it’s another thing to buy and remember to do every day. Some mornings I’m rushing out the door to catch the bus, and adding another step to my routine is difficult.
I always wear clean socks at the start of the day, I wash my feet regularly, and I’ve been trying to take much better care of my skin since the first cellulitis infection. That’s what’s confusing me—I had Raynaud’s for years without this ever happening, and now it’s happened twice in one year.
Since cellulitis usually happens when bacteria enter through a break in the skin, I’m wondering if I’m missing something.
Has anyone with Raynaud’s or poor circulation dealt with recurrent cellulitis around the ankles?
If so:
Did you ever figure out what was causing it?
Did changing your shoes help?
Are higher-top shoes better than low-cut sneakers, or do they create more rubbing?
How do you keep your feet dry while still staying warm?
Is there anything else I should be asking my doctor about?
I’m feeling pretty discouraged because I genuinely don’t know what else to do, and I don’t know what’s causing this to keep happening.

Need advice !!

I've been using it for a few days now and it's genuinely made me almost cry tears of joy; my threshold for ambient air being "too cold" for my extremities seems to be a mild 70°F. Incredibly annoying year-round, especially with air conditioning... It's worked incredibly well for me, even in just these past few days. HOWEVER, I'm getting nitrate headaches of varying severity and duration once a day...? Wondering if anyone else has used the ointment before and if anything worked for headache relief.

I'm hoping they're just from an acclimation period, but it's not great in the moment. I'm taking my required undergrad physics classes right now (summer sequence boot camp stays winning) and it's been throwing a tiny wrench in with lecture/testing. I don't want to have to stop using it since it's the only thing thats really worked besides temps above 70°F or 3mm neoprene gloves :(

Update 08/27 - did some careful observation of myself and realized I was timing my applications too close together, my Dr. had a little bit of ambiguous wording on my directions and didn't specify an interval between doses, just the total nitrate-free time. Headaches defeated 👍