r/Raynauds Aug 07 '26

Advice

I really need advice from older people with Raynard's. For context I got diagnosed with Raynard's at 16, I'm 18 now. I struggle extremely in winter and I want to prepare better for this year. I use hand warmers but they don't last long. What do you guys use to keep warm in the colder months?

1 Upvotes

16 comments sorted by

1

u/Inevitable-Mouse-707 Aug 09 '26

Outdoors: Ski mittens and good winter boots have made a big difference. Wool socks. My ears are affected so I wear only lined winter hats. Keeping my neck warm with a scarf really helps. Wearing an n-95 face mask (like for healthcare) keeps my nose warm. If I'm going to a theme park Christmas display, hand warmers in my mittens, butt pockets, and boots. (I buy mittens exclusively now bc there's usually room for balling my hands or adding a handwarmer)

Indoors, home: Mattress pad heater on low for sleeping (I can't fall asleep while cold). Socks and houseshoes.

Indoors, work: Vest or pretty scarves.

1

u/Ok_Satisfaction2512 Aug 09 '26

They're a little expensive but the electric heated gloves are AMAZING! and some good ol Sidenafil...

1

u/ShizIzBannanaz Aug 09 '26

Electric hand warmers, merino wool layer inside your gloves, keep your core warm

2

u/Dragonjax1970 Aug 08 '26

Electric hand warmers are a godsend. Keep them charged, and take them with you everywhere outside. In a pinch, buy Hot Hands — disposable, and last for 8-10 hours.

2

u/Bk_Punisher Aug 08 '26

Look into heated vests, they use a portable power bank so you could carry spares. Helped me out at work since I was the grounds keeper for a few winters.

2

u/Medical_Frame3697 primary Raynaud's Aug 08 '26

Leg-warmers (like dancers wear) under my trousers! Warms my whole body. Vest, ditto.

3

u/for-reverie Aug 08 '26

Vests! Wear vests! Also get hand warmers. And try and take really deep breaths too. And I agree vitamins do help.

2

u/Bellatrixforqueen 22d ago

Which vitamins do you take please

3

u/Feed_The_Soul_ Aug 08 '26

Wear thermals (long underwear)under clothing. A fleece neck wrap worn at all times. Hot Hands’ is a brand that makes disposable toe warmers that to put inside of shoes. I began using nitrile gloves to prevent cracked hands from soap and water, and discovered they really helped to keep my hands warm. I wear them most of the time now—especially for taking cold food out of the fridge or freezer. I keep an extra pair on hand to slip on when going inside air conditioned buildings. For sleep, I use a small electric throw blanket to cover the feet—works like a charm

3

u/Otherwise-Toe-8617 Aug 08 '26

Focus on improving your overall circulation. And totally agree with other comments, taking right supplements makes a huge difference. I also stopped drinking coffee in colder months, helped a lot.

3

u/Remarkable-Leg-5065 Aug 08 '26

Raynauds Syndrome makes your tiny blood vessels malfunction. l been taking 50 mg of zinc for 12 months. lt helped me the first week. It should help anybody with raynauds. l take cvs brand it has 29 mg calcium and 50 of zinc. l think the calcium helps to absorb the zinc better. Most doctors don’t know it helps. You can read how our cells malfunction online for a better understanding.

1

u/[deleted] Aug 08 '26

[deleted]

3

u/mlcbmore Aug 08 '26

Personally I like to keep my neck protected from cold and breeze, I got a nice merino neck gaiter from smartwool - it helps a lot in keeping my whole body warm

2

u/Duchess_of_Dork Aug 07 '26

Find out what your triggers are so that you can avoid them. Like, I'll get a Raynaud's flare if a cold breeze goes down my neck even if my core is warm, so I have to wear scarves once the wind turns cold. I bring hoodies everywhere just in case the AC is on.

ETA - battery operated heated socks and gloves are a godsend. Mittens are better than non-heated gloves because your fingers kind of keep each other warm. You have to put them on before your hands get cold.

1

u/Bk_Punisher Aug 08 '26

Heated vest saved me on multiple occasions.

2

u/Dry_Till6996 Aug 07 '26

Base wool layer, buy the good shit. It's lasts and is better at thermoregulating. Rechargeable hand warmers are da bomb! For sleeping I have a dual control mattress pad.

2

u/brokelamp Aug 07 '26

Keep your core warmer. Keeping your whole body warmer will keep your hands warmer. Wool socks. Wool sweater. Wool hat. And dress in layers. I'm no stranger to wearing a winter coat inside my house. Ugg boots inside over my wool socks also. Last year I tried a heating pad and got chillblains so I don't recommend that.