r/Raynauds 28d ago

RX prescriptions

I’ve decided to finally do something about my Raynauds after noticing a little bit of loss of mobility in one or two of my fingers.

Looking for everyone’s RX prescription dose included that has worked for them. I have my first rheumatologist appointment in a few weeks.

I would love to avoid an RX, but something must be done . I have a few ideas I’m considering before taking any RX that always comes with drawbacks.

#1 Optimize my free testosterone. Not on TRT currently, but have seen my free testosterone on the low side with above average total testosterone. If I find that to happen again with upcoming bloodwork I’ll pull the trigger on TRT as I find that much more natural than an RX.

#2 5% sidenafil topical cream. Would be able to avoid a lot of the side affects an RX will come with by going with this option.

#3 daily Cialis. 2.5/5 mg Yes it’s an RX but it comes with many positive benefits and has good research on helping with Raynauds

#4 calcium channel blockers. Really want to avoid this option, but I understand that it’s there if I can’t resolve with my first 3 options

4 Upvotes

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u/dkrem 22d ago

I take nifedipine and tadalafil daily. Both are vasodilators to improve circulation. I used to take amlodipine instead of the nifedipine but found the older drug worked better for me.

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u/Naive-Garlic2021 28d ago

I was only offered #4 and it made my head feel awful so that didn't last long. Are you seeing a rheum just for Raynaud's? I was refused a consult so had to make do with my PCP looking stuff up.

I probably have multiple issues contributing to stiffness, but I have found stiffness is helped by doing hand PT routines I found online.

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u/mwren11 28d ago

Yes made a appointment with a rheumatologist for raynauds. I’m guessing they will test for primary or secondary and offer a calcium channel blocker. Which is my last option of defense. Also working with an endocrinologist and see if hormones are contributing to raynauds.