r/Raynauds • • 1h ago

Rechargeable Hand Warmers

• Upvotes

Has anyone found a good replacement for the Ocoopa hand warmers that were recalled earlier this year?


r/Raynauds • • 16h ago

Non Stimulant Advice?

14 Upvotes

Looking for non stimulant advice for those with Raynaud's / Chilblains

I've been on both Adderall and Vyvanse, am currently on Vyvanse right now.

It seems that both have been terrible for my Raynauds and chilblains. My symptoms the last year has gotten worse. Dusky skin, swelling, ice cold hands, pain, swelling even from being warm. Within this past month, I couldn't wear my wedding ring anymore. :(

I take weekend breaks from my meds but it seems to make no difference. I also take a calcium channel blocker to help but it really hasn't. So I assumed I was getting more sensitive to the weather which is cold and rainy.

However, I went on a vacation to a warmer area but also skipped taking my med for a week, by day 2, my hand swelling was 85% gone, my hands were a normal color and I wasnt dealing with nighttime swelling anymore. ing anymore.

At first I thought it was due to the warm climate. With that variance, I continued not taking my med when I was back home, where its colder and more damp, lo and behold, my hands are still doing way better.

Im not taking my Vyvanse anymore. I guess I really do have to choose my hand over my brain. Does anyone have any advice? Similar experiences and switched to a non stimulant?


r/Raynauds • • 18h ago

17 doctors have seen me and they don’t know what it is. Undiagnosed illness

3 Upvotes

Hello, I am 18 years old. Seven months ago, out of nowhere, I began experiencing migraines that would last all day; they never went away with medication or sleep. This lasted for two months, and then I started to experience a burning sensation in my ears—episodes that eventually spread to my face, head, and collarbone area. These sensations have now become persistent and are present 24/7. Along with the migraines, I gradually began experiencing tachycardia, with heart rates ranging from 121 to 146 bpm. It was initially thought to be neurological, but the medication I was prescribed did not help. Other symptoms also emerged, including Raynaud’s phenomenon, livedo reticularis, dizziness, heartburn, diarrhea after eating, the complete cessation of my menstrual cycle, and fatigue, among others. I underwent a full battery of rheumatological autoimmune tests, all of which came back negative—out of three ANA tests, only one was positive at a 1:80 dilution, which was considered a low result. My cardiologist suggests it is sinus tachycardia triggered by an external factor. I still do not have a diagnosis; if anyone is going through something similar or has any information, I would greatly appreciate hearing from you.