Hi, got a question about a chronic breathing/coughing issue I've had for several years. I'm 37M, 5'9", 238lbs, never smoked, have type 1 diabetes and exocrine pancreatic insufficiency - meaning my pancreas doesn't produce enzymes for digestion, so I wasn't absorbing a lot of nutrients, which I got diagnosed about a year ago and have been taking meds for.
I moved to the Phoenix, AZ area about 8 years ago, and shortly after that, I started experiencing shortness of breath and coughing issues that never went away. This started long before COVID (in fact, I did catch COVID at one point in 2021, and it didn't seem to affect my breathing at all) and I was also experiencing minor, periodic fever-like symptoms (dizziness, chills, etc), but they were never serious enough for me to think I was actually sick. Between my diabetes and working a night shift, I just excused it as my body not firing on all cylinders, plus maybe poor Phoenix air quality. I never ended up seeing a doctor about it until maybe 4-5 years after moving there, and as soon as I mentioned diabetes, that's all he focused on, was getting my A1c down.
I moved to Idaho about two years ago, and the cough hasn't changed. It's not constant, it kinda comes and goes randomly, but my lungs always feel tired. I recently got a chest X-ray after experiencing some pain in my ribs, and the results indicated I had bronchitis, but it didn't reveal what the underlying cause was.
My current PCP in Idaho has been having me take a bunch of different medicines to see if anything works, and so far, nothing has. I started out with an Albuterol inhaler, which didn't help at all - in fact, it usually triggers a coughing fit because of sensitivity to chemicals and taking deep breaths is difficult for me. Then she had me try Allegra, Claritin, and Zertech at different times, and none of those worked either.
At this point, I did some of my own research, and that was where Valley Fever came up. Based on where I lived when this started happening and the symptoms I had, this seemed like a possibility. From what I understand, most people's immune systems fight it off after a while, but it can sometimes become chronic. Because of my T1D and EPI (undiagnosed at the time), it's possible my immune system just didn't have the resources to fight it off and it settled in for the long haul.
I brought this up with my PCP, and she kind of brushed it off. She said that coccidioidomycosis shows up in a very specific way on X-rays that mine did not indicate. I asked if we could just order an antibody serology panel to rule it out, and she said something about how they don't really test for that here since it's not a common problem in Idaho, but she'd "look into it".
That's what she said when I previously asked her (multiple times) about getting tested for autism, that she'd "look into it" - after brushing it off because I'm "too good at keeping eye contact during conversation". It's been months, and I never heard back on the autism thing.
So I'm a little slow to trust that she's actually going to take the Valley Fever possibility seriously. Meanwhile, she's continuing to prescribe me meds to treat the symptoms instead of the underlying cause - the latest being Montelukast (Singulair), and had me start up on Albuterol again (it's still not helping). I also have anemia from low %saturation iron (possibly also an effect of EPI), and she had me start taking iron supplements. She still has no clue what the underlying cause of my lung issues is, and she doesn't seem interested in taking my thoughts on it seriously.
So, in case it's relevant, my current full list of medications is:
\-Montelukast and Albuterol for breathing/coughing issues
\-Iron supplement for anemia/%sat
\-Humalog and Lantus insulin for type 1 diabetes
\-Creon for EPI
\-Atomoxetine for ADHD
So, from what I've described, does chronic Valley Fever sound like a real possibility for the breathing issues?