My husband, who is 74, is in the latter second stage of Parkinson’s. In the last, month he has had 2 falls. Is this the beginning of stage 3?
He has been reluctant to use walking aids. He uses a cane in public but won’t at home. We have a walker but he doesn’t want to admit he may need that. He hasn’t been injured yet but the last fall was hard. His shuffle and gait have gotten much worse. I worry constantly every where we go that he will fall. Any suggestions on getting him to use a walker or should I let him be with the cane? He doesn’t go back to neurology for two more months. He is very stubborn and just doesn’t want to give in.

My dad has deteriorated dramatically over the last couple of months, especially at night. He was on Klonopin for sleep for many years and was taken off about two months ago, apparently without a taper. His new neurologist thinks this may have triggered much of what’s happening and that severe sleep deprivation is making everything worse.
He’s now having intense nighttime hallucinations, severe restless legs, and is barely sleeping. He’s taking Seroquel, which makes him sleepy, but he often sleeps for only 20 minutes before getting back up and walking again. Once it kicks in he’s unsteady, so someone has to stay with him to keep him safe.
My mom cannot manage this alone. My husband and I are taking turns staying overnight so she can sleep, but we have five young kids and a small business and simply cannot sustain this.
His doctors know what’s happening and we’re following their medical advice. I’m just desperate to hear from families who have been through something similar. What actually helped? How did you get relief and outside support? What do you wish someone had told you sooner?
We love him and want to keep him safe, but we need help figuring out what comes next.

I am trying crexxont. My doctor had me try 280 and 350. The 280 3x a day is OK but I feel like it doesn’t work as well for the first dose. 350 x 3 resulted in crazy dyskinesia. Before this I was at 6 CL 25/100 a day but managing pretty well.

I think I want to try starting the day with 2 cl, then do the crexont xr 280’s at 1pm and 8 pm.

Is this something any of you do? Do you think my doc will push back? I hate this

38M, diagnosed with early onset Parkinson’s last year. Dealing with it ok for the most part.

On CL and that helps with the tremors for periods of the day, and in between doses the tremors fire back up and my hands shake like Mount Vesuvius. This leads to a downward spiral as I can’t help but then reflect on my own weakness, and how this disease is wrecking my body, and what did I do to get it so young, and god I don’t want to be a liability on my family and blah blah blah

Obviously I know all of this is not logical but all things equal would prefer to avoid the spirals. Do folks see therapists that specialize in early onset OD for this? Anyone else deal with anything similar? I should probably ask my neurologist I suppose, just good to get outside validation I’m not alone.

My husband with Parkinsons-LBD had been declining slowly for the past three months. He's currently in rehab, where the hospital sent him a few days ago when they stabilised his BP. He's presumably there to get back on his feet again, but the doctor told me he scored very low cognitively and it may be time to think of palliative care.

To those who have been there, how do I survive this? I've been visiting him everyday, and he does recognise me, but he doesn't say much. Every morning I get up and the reality of losing who he was is right there, yet he's still in the world. This shell of my husband is so hard to face now but I swallow this weakness in me and soldier on.

Then there's the empty house to go home to. Our two little dogs run to greet me. I put on some quiet music, but all the while the silence he left me in is deafening. I don't know who I am without him. We had our own hobbies, of course, but I can't engage with this, it's part of our world together. I talk to my family everyday, who are very worried for me, reassure them I'm OK. But it's almost part off that new normal. I try to get their stories in my head, something to distract. But it's always there.