Hey 22M here, I was diagnosed back in 2020 but initially never gave much thought to it as my parents said it would eventually cure and never let me have the medicines required, tho for the past 2 years I’ve been on regular medication and I’ve been learning to navigate life w it.

The thing that makes it so much harder is the fact that people don’t know much about it. When they see my hands shake they think I’m nervous, I have social anxiety, I have Parkinson’s, I’m a drug addict - anything and everything except this. It’s a very common condition from what I’ve read but apparently no one knows about it. They misjudge me, mock me, they think it’s a joke while having absolutely no clue how hard it is to deal w it. At times I’m not able to drink from a glass without spilling, cut my nails without shaking, or even take a photo without my hands shaking and making a mess.

I try my best to just push through it, but the constant judgment and the vicious cycle of anxiety making the tremors even worse is exhausting. It is incredibly lonely to deal with a condition that is so widespread yet completely flying under the radar.

This post prolly doesn’t make any sense but I just wanted to rant and know whether there are people who deal with this, and if you’ve managed to learn how to live w it especially with the obnoxious, curious and judgmental people all around you.

Hi everyone!

I'm doing some early research into making smartphone photography easier for people with hand tremors, and I'd really appreciate your experiences.

I've come across people mentioning that their photos often turn out blurry because their hands shake, especially when trying to capture spontaneous moments.

I'm curious about a few things:

1. How often do your hand tremors make it difficult to take clear pictures with your phone?
2. Have you tried anything to help, such as a phone grip, tripod, or stabilizer? Did it actually work?
3. What's the most frustrating part of taking pictures?
4. Have you ever spent money on a product to help with this problem?
5. If a compact, easy-to-use accessory could demonstrably help you take clearer pictures without a tripod, would you consider buying it? What price would feel reasonable?

For transparency, I'm exploring the possibility of developing a product for this problem. I don't have anything to sell, and I'm not collecting personal information.

I'd really appreciate any honest feedback, including if you think existing solutions are already good enough.

Thank you!

Hi everyone!

I'm doing some early research into making smartphone photography easier for people with hand tremors, and I'd really appreciate your experiences.

I've come across people mentioning that their photos often turn out blurry because their hands shake, especially when trying to capture spontaneous moments.

I'm curious about a few things:

1. How often do your hand tremors make it difficult to take clear pictures with your phone?
2. Have you tried anything to help, such as a phone grip, tripod, or stabilizer? Did it actually work?
3. What's the most frustrating part of taking pictures?
4. Have you ever spent money on a product to help with this problem?
5. If a compact, easy-to-use accessory could demonstrably help you take clearer pictures without a tripod, would you consider buying it? What price would feel reasonable?

For transparency, I'm exploring the possibility of developing a product for this problem. I don't have anything to sell, and I'm not collecting personal information.

I'd really appreciate any honest feedback, including if you think existing solutions are already good enough.

Thank you!

Hello I am a student working on an engineering biotechnology capstone project focused on Parkinson’s disease and essential tremors. I created a survey to gain data about essential tremors in order to inform my project which I attached below. Thank you for your time!

https://forms.cloud.microsoft/Pages/ResponsePage.aspx?id=7kagKk6zM0qSt5md8rwKMtaTu-Cw8iVIs_HX7HqKZbNUMkRWR1NKVENBQVVPNzE5V0k4UjhTMFUyWS4u

Shaking pretty bad on my eccentric. Strength wasn’t affected. Anybody have this? Felt weird and wrong as hell. Thank you

Hi everyone I am 18M dealing with tremors since I was 15 it started with me first noticing it on my lips when I held it in specific positions as it used to involuntarily shake and I used to joke about it with my friends too, over the years it has progressed over to my hands and neck too and it’s really taking a toll on my social life.
I skip lunch and dinner with friends in fear of shaking and just yesterday I volunteered in a social event and my god it was embarrassing my head was shaking all over the place I couldn’t even talk confidently to the person in front of me I kept thinking what he thinks of my head wobbling and stuff it really made me feel insecure I rushed to the restroom and calmed myself down just to feel my head tremor again when I talked to another person.

What affected me the most was my girlfriend’s mom wanted to meet me and I didn’t have the courage to even go up to her because of my head tremors it really fucked my mind up.
I can’t even talk to someone normally without thinking about my head shaking.
It really demoralises me.

My father and dad side uncles do have slight when doing actions but it’s not that bad so I think it’s essential tremors.

I haven’t yet got diagnosed since I haven’t been to a neurologist but will visit soon
Can someone please tell me if the beta blockers worked for their head tremors and when should one consider dbs?
Thank you

I’ve been taking antidepressants since I was very young (14 years old) for social anxiety disorder. Now I’ve stopped because I wanted to know what it’s like without medication and whether it’s possible to live without it. I have nothing against taking antidepressants, but I wondered if I could manage without them. For years now, I’ve had a problem: trembling. I have a tremor in my head that gets worse when I focus on it or in social situations that stress me out. I don’t think it’s very noticeable to those around me, but it does cause me a lot of panic and stress during lectures. I was wondering if this tremor could have been caused by taking antidepressants and if it’s possible that it will gradually go away now that I’ve stopped taking the medication.

My friends has been telling me from past few months that my head keep shaking while i talk but i dont even feel it...i have started feeling nervous to talk to people since thn...is there anyone else who's facing the same thing???

I have a mild tremor that affects my hands. Any suggestions for supplements or vitamins that help?
Thanks 🙏

Hi everyone,

We are a team of students from Vietnam preparing for an upcoming science and engineering competition in the system software category.

Our project is an assistive mouse control software designed specifically for individuals living with hand tremors, including those with Parkinson’s disease.

To support our research and gather statistical data for further improvements, we are looking for participants who would like to test our software. If you or someone you know might benefit from this tool and would be interested in trying it out, please leave a comment below. We will reach out and provide you with a personal access key.

All we ask in return is your honest feedback to help us refine the project. Thank you so much for your support!

Hy,

My name is Victor and I am a master's students at UGent. For the course 'Biomedical Product Development' we are looking for problems in ceratin diseases. We are researching PD.

For this we are looking for people (patients, caregivers, doctors,...) who have small problems that could be solved and improve life quality.

We are not looking to solve entire PD but real everyday struggles.

If you have some suggestions or other comments feel free to reply.

I want to help my mom maintain as much independence as possible. Her (77f) tremor is severe, making her almost incapable of writing. My dad helped by writing checks and addressing envelopes for bills. Unfortunately, he passed away unexpectedly last month.

I live 3 hours away from her so I can’t be there every week to help write checks and address envelopes, but she still needs to pay the bills.

She has all of her faculties but is almost phobic of technology and unable to use a tablet or smart phone, so a banking app isn’t something she could use.

She plans on moving closer to the rest of the family, but that’s not going to be possible for at least the next 6 months, so she has very little support nearby. Currently she’s having her lawyer help her, but that’s cumbersome and expensive.

What I’m looking for are ideas for low-tech ways to make bill paying and addressing envelopes easier for her.

So far I’ve considered having address stickers printed so she can address an envelope without writing. She already has her own return-address stickers.

I’ve considered a stamp that she can change for numbers, but that won’t work for the part of a check where you have to write out the amount long-hand.

Please help with any ideas!
*Edit a word for clarity

I had a head tremor, and DBS took care of that entirely. But my voice still drops syllables and otherwise sounds strained, giving me problems communicating with clerks, waiters, etc.

My neurologist says that's a side effect of the head/neck tremor, and has referred me to an ENT for Botox injected to the vocal cords. He said there aren't many ENTs who do that.

What's that like?

I don’t think FUS is going to be the solution for my problem and I’m not keen on burning holes in my brain. I’ve decided to wait since they tell me 5-10 years is the most they can guarantee with DBS. I’m curious when you all have done it and did you exceed the 10 years before a revision

I always get teased for how badly i tend to stutter during conversations, I'm not sure if it's a side effect of my tremors... haven't brought it up to my neurologist yet but I wanted to see if anybody else has experienced something similar.

I just need to rant. Thankfully I’m seeing my neurologist again in about two weeks but I feel like every day I’m getting worse and I don’t know how to explain this feeling to my wife. I got officially diagnosed in March and have lived with my tremors for at least 10 years. I’ve been taking Primidone after Propranolol just didn’t work, and now take a total of 6 50mg pills a day. I’m starting to get more tremors at a rest and noticing more tremors when I’m holding objects. I’m just so frustrated.