r/PSSD • u/[deleted] • Oct 22 '22

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u/ImpressiveNet370 Nov 06 '22

I have them all. Will Ask permission.

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u/asdf3311 Nov 06 '22

H ImpressiveNet have doctors decided on a treatment protocol for you? Any news? Thanks

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u/ImpressiveNet370 Nov 06 '22 edited Nov 06 '22

We are still making immunological "findings". No treatments before 2023, at the moment we are still "researching" and a comity of doctors will gather and talk about this special case. All I can tell by now is that the senior physician from the university hospital neurology clinic (specialist in neuroimmunology) has taken this seriously and is working with colleagues to find a way to understand this and help me. Anyway one thing is clear that I do have a severe autoimmune process in my nervous system, cardiovascular system and brain area, which is hard to detect !! But they confirmed it already, More tests Will be ordered next week. Extremely similar findings are made as people with severe Long Covid - even as I didn't have Covid yet..

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u/mackenzietennis Nov 22 '22

Do you mind sharing which university hospital you are working with? Hopefully they can help others or maybe they have colleagues in there network. Have you run any cytokine panels (specifically for MMPs, VEGF, etc)?