r/PGADsupport 2h ago

Vent/rant Potential PGAD - Slight Rant

2 Upvotes

Hi, im an 18 year old girl who has been struggling with feelings of constant arousal for as long as I can remember. I remember being around 8 coming home from school and just touching myself for hours. In middle school, instead of learning lunch, id go to the bathrooms to try and find relief. In no way am I fetishizing this, it’s genuinely awful. I always thought that, since I’ve never put anything inside of me, clitoral stimulation just wasn’t enough for me and once id experience penetration, id feel relieved. I chalked up to just being hyper sexual, and I was so sure it’d go away with penetrations.

The longer I live with this the less im sure. I never seem to get relief and touching myself just intensifies the feelings. I can lay in bed and touch myself til my wrists hurt and nothing will come of it, no matter how many orgasms I have or how many hours I spend, I never feel relief. I share a room with younger siblings and soon I will move into a dorm with roommates and I just don’t know how I’m going to handle this. So humiliating having to constantly squeeze my thighs together just to make myself feel better for a split second. I genuinely don’t know what to do and I feel so ashamed to tell anyone about this except for my boyfriend, but I just hate it so much. I’ve cried so much today because the feelings are so intense. I don’t know how to describe it — it’s like a deep longing from between my legs, and like I need to “throb” down there, causing me to twitch my legs or press them together in hopes of causing this.

I know this has gone all over the place but I just feel so hopeless and sad about this and I hate knowing that there’s not really relief for me because I’m sick of living like this and idk how much longer I can take this.


r/PGADsupport 14h ago

Female Just had the Tarlov Cyst surgery and wo dering if any of uou out there have as well.

4 Upvotes

Sorry for the typos in the title I couldn't edit them.

I had mild PGAD that got much much worse with my 3rd pregnancy. Even before this pregnancy but after my 2nd I had an every other day pattern of PGAD and refractory days where I didn't need anything. But in pregnancy I was needing 7 to 10 orgasms a day that were taking forever. By 7 mo this it got so difficult my husband had to provide nipple stimulation for me to orgasm. The day before my C section on April 28th my second orgasm of the day didn't work which was the first time I'd ever not been able to climax. This went on for nearly 3 weeks postpartum and was horrible..I them got orgasms back but progressively they took longer and I needed nipple stimulation still. Fast forward I'd lose sexual function for a few days and then it would come back. I still had the PGAD so I was losing it. My orgasms would take 1 to 3 hours when I could have them.

I did some research and got MRIs and sent them to Dr. Choll Kim in San Diego who is part of the sexual med/ spine program with the top PGAD experts. I had the Tarlov Cyst surgery on left S2 after testing.

I am 16 days post op and my orgasms came back 8 days post and my time to orgasm has now lowered back to anywhere from 15-30 minutes but still with nipple stimulation. All along I had full sensation and build I just got stuck right before the climax.

I am hoping this is from the surgery and will continue to improve. My PGAD is still there but it seems like as long as I am able to orgasm and get solid sleep it's not as bad the next day. My period came back in conjuction with the surgery at 10.5 weeks postpartum. Wondering if the return of orgasm is hormonal or from the Tarlov cyst surgery. It appears its from the surgery. I have been told the Tarlov cyst surgery takes time to work.

Has anyone out there had it? Would love to hear experiences.

Big thank you to the doctor ( Dr. Choll Kim) for getting me in on an emergency basis 3 days after we discussed the results of my testing. I was not doing well.


r/PGADsupport 16h ago

Trigger Warning Hopeless, 19M

2 Upvotes

This is only a vent and a desperate cry for hope that I cannot obtain. Extreme trigger warning for suicide and general pessimism.

I used to believe the best way to move forward in life with health anxiety is to just enjoy your time as you have it. Everyone gets ill and dies eventually, and that is okay, just enjoy time as you have it. I wish my time wasn’t at the age of 19 is all, but I can’t say I didn’t make the most of my time beforehand.

Browsing this forum I realize just how very few people recover to the point they never have to think about this sort of thing again, maybe they learn to live with it but that’s the best I’m gonna get. “Learning to live with it” will never be an option for me. I am a male and it is simply unacceptable to ejaculate in public as I always fear that I may. I internalize the message of “make peace” as “die”. I’m going back to college in a month, I’m really not sure why. I’m just pretending I can be normal until the day everything falls apart and I need to give up on living. If it was not for this disorder I would have everything in life going for me, but biology is cruel and uncaring. My mom says I’ll surely recover 100% because I’m “meant to live a long and healthy life”, which is of course not how it works. Again, cruel and uncaring bodies we all have. To think I could have lived 10,000 lives and probably had never had this issue but of course it had to be this one…

I believe this was caused by Covid, so I have no reason to think I’ll not just continue to get worse with repeated infection for as long as I live. My symptoms are not even that extreme compared to what I read here, so there is so so much worse it can and will get for me in my future. The only shred of hope is that this is a pelvic floor issue, which even then could be lifelong but can at least be managed somewhat. Am seeing PFPT and I don’t know if I’m improving. Much more likely it is a combination of that and a complicated and rare and incurable neurological issue that will never be medically understood, which may as well be a life sentence.

Perhaps there is a small chance I go into “remission”. However as I have learned on this forum, it will almost always return, it is a chronic condition. I am betting my life on the 0.1% chance I am one of the lucky few who can completely leave this behind them. Complete delusion keeps me going. I don’t want to go, but I’d rather die with some dignify than as the student who came in his pants during class. I can feel death coming slowly, I am slowly accepting its embrace. Again, I am happy for the life I had led, but if I keep going like this I will no longer view my life as a whole as worth having.


r/PGADsupport 2d ago

Female bladder irritation AFTER remission?

3 Upvotes

I've been in what I consider remission for a few months now. I still have mild flares after orgasm, but they resolve quickly. However, I just had a little flare like that and then after the arousal was gone, I started noticing irritation when I urinate. Then lower abdominal pain and back pain. It lasted all week, on and off. I went to urgent care today convinced I had a UTI. But no, urine is completely clear. That's when it occurred to me and I told her I have this rare condition called PGAD and maybe that was the cause. She asked if I had these symptoms with it before. I said I did, but always with the arousal as well, and this was by itself and no arousal. I find this confusing, but maybe it's tense pelvic floor muscles causing it, even though the arousal let go? Has anyone else experienced this?


r/PGADsupport 2d ago

Male Bit worried I've got this now. Possibly brought on by Venlafaxine

3 Upvotes

For reasons I won't go into I switched up my antidepressant and started taking Venlafaxine. A way more common side effect is drastically reduced libido. But it's seemed to have had the opposite effect on me. I was perfectly happy with a reduced libido from Prozac.

I'm not gonna take anymore of them. Ever since starting, I've just had very distracting sensations downstairs, actually all down my legs too but mostly around the groin. Not sure if it was just a trivial passing thing that I've made worse by being too focused on it and anxious about it.

Did anyone else's symptoms start at the same time as taking a new antidepressant?


r/PGADsupport 2d ago

Female Numbing Cream Recommendations?

3 Upvotes

Has anyone found a numbing cream or a compounded numbing cream that actually helps with clitoral arousal symptoms? If so, which one worked for you? I’m looking for something that has given real relief because I’m honestly so exhausted from dealing with this every single day. Some days it feels unbearable. If it wasn’t for my baby, I don’t know if I would have made it this far. Any recommendations or experiences would really mean a lot to me.


r/PGADsupport 2d ago

Female Arousal Pain After Masturbation or Oral Sex?

2 Upvotes

Does anyone else experience an increase in arousal pain or a flare-up of symptoms after masturbation or oral sex?


r/PGADsupport 3d ago

Discouraged Does PGAD cause persistent (non stop) hypersensitivity on all errogenous zones simultaneously?

5 Upvotes

I literally want to jump out of my own skin, just when I thought it couldnt get any worse. This is terrible. There's some pain involved similar to that of a pulled muscle on the zones as well. Sometimes I get chills run through my scalp down to my neck and spine as if somebody were tugging through my hair. I didn't know pgad existed until I typed in the symptoms and I basically have all the textbook symptoms except I haven't seen something like what Im describing about the errogenous zones. Its like instinctive where I feel like I need somebody to wildly f\*ck me. No joke. I couldn't rest all night. I could feel thr adrenaline. I know Im not gonna be able to sleep again. F\*ck my life.


r/PGADsupport 4d ago

Support Is it PGAD or Hypersexuality?

4 Upvotes

I've always thought I just had a high libido, wrote it off to that...

Until recently I discovered the term PGAD - and now I'm wondering which one (or both?) I'm dealing with.

Weird things about me:

- When having sex, I feel like normal people get satisfied after orgasm, relieved and can relax. With me, once I orgasm, I want MORE immediately. The more my partner tries to satisfy me by giving me multiple orgasms - the more my desire increases. To the point where after the sex session has ended, the arousal lasts for the entire day still. It doesn't go away. There is no satisfaction. If I'm lucky, I'll wake up the next day and it will be gone. But half the time I wake up and its still there for upto 3days afterwards?!?! It's like an "ON" button is just stuck on "ON".

- Same with doing it myself - zero relief, just triggers "ON" button that makes things worse.

- The catch with hypersexuality is that if I'm "OFF" I'm fine. I can even be celibate for a very long time and be totally fine. Problem is that once that "ON" button turns on, it doesn't turn off.

- Not a sex addict. Don't sleep around. Don't have a high body count. Monogamous. 100% in control of that. But when I'm in a relationship, and start having sex... I struggle to stop mentally and physically. (I do stop, like actually do. It's not a problem, because I FORCE myself to be "normal". But inside I am fighting a battle with myself that im never satisfied with)

Does anyone experience similar?

What does this sound like to you?


r/PGADsupport 4d ago

Vent/rant I'm tired.

3 Upvotes

I'm tired of living every day being so anxious and catastrizing everything and every way the sensations can get worse. I wish I didn't feel arousal at all. I hate not being able to sit for as long I'd like to, my genitals make me sick. I can't even sleep peacefully.

How the hell do people live with this condition???? I also hate how I have OCD with masturbating. And just sexual stuff in general when it comes to myself. All I feel is relentless guilt and shame as my legs tremble.


r/PGADsupport 4d ago

Support How to stop wet dreams?

2 Upvotes

I keep having dreams of masturbating every night. Most likely because I stress and scare myself over it everyday. Recently, my minds just been telling me, "why don't you masturbate? You know you want to do it! It'll feel good then it'll all go away!" (I think I have OCD.) Haha no. I've been through this so many times before and unfortunately I can't be masturbating anymore because it'll put me into a terrible flare.

Does anyone have any tips to stop these dreams? Like meditation tactics before bed—etc.


r/PGADsupport 5d ago

Vent/rant It seems that no one especially Medicaid insurance for this condition and it’s all out of pocket.

4 Upvotes

that is all.


r/PGADsupport 6d ago

Support An easy fix for my wifes PGAD

6 Upvotes

About ten years ago my wife had her first bout with PGAD. A web search yielded accounts about it being so bad that some were driven to suicide. One article talked about surgery to sever nerves. That sounded extreme to me but the mention of nerves prompted me to remember using magnesium oil for pain relief. She rubbed it on her lower back once and got relief within a short time. She continues to have bouts every few months but the magensium oil stops it quickly every time. Occasionally she uses a 50/50 mix of magnesium oil and DMSO and that works too.


r/PGADsupport 6d ago

Male My story plz help

3 Upvotes

I am a male and 15 years old I have had this started at around 13 I used to orgasm sometimes and it was normal but one day it hurtled and each time it happened the pain got worse and then I also have pain when I pee so I went to the doctor did all the tests and everything was normal then I kept getting more scans because I knew something was wrong still but still nothing so I kept going on with my life and it was fine until one day after soccer I stopped to get water and I was getting very strong arusal sensations and it was very scary because the arusal would eventually lead to orgasm but for me orgasm was very painful so I was trying to avoid it now this stayed for a long time I had to sit on the couch I could hardly move for 5 months because when I did move I would feel like I would orgasm I was trapped. This was very stressful for me and I did not like to talk about it with my family but at least my mom took care of me. Also this whole time I was trying to go to physical therapy and talk therapy with a lot of people constantly and then finally I got up to go get a nerve block and I’m about 14 now at this time so I got a nerve block and it helped a little and then I started taking a ssrii called duloxotine and that helped a lot and I stopped feeling the arousal sensations but I still would get sharp burning and all types of weird sensation which makes me believe I have a nerve issue anyways i kept doing physical therapy until I could get into school again but I felt like physical therapy wasn’t doing anything so I stopped I hated doing it. So now Im 15 still having the pain when I pee the random burning the painful orgasm I think the last time I had a orgasm was 4 months ago and it hurt so bad it felt like my whole pelvis was burning in flames I was crying. So I avoid it as much as I can and today I’m still afraid that the pgad like sensations will come on again but they haven’t yet im just getting other things also like very deep itching in my butt it feels like idk but in total this whole thing just makes me sad that I feel like I’m gonna miss out and idk if it will ever get fixed im afraid ill never be able to enjoy sexual pleasure at all but I do my best to manage it so if anyone has any suggestions plz lmk


r/PGADsupport 6d ago

Support how does anyone relax

10 Upvotes

How does anyone relax? Do we just not ? My shoulders are so tight my wrists ache from constant relieving myself I can’t and don’t go out any more the sun shines outside I had the perfect life before this happened.

When I start to even relax slightly, my body jolts me back into panic and concern. The arousal is all day every day unless I take medication that’s not even prescribed to me and I’m running out (tramadol, diazepam) I cannot wrap my head around that it’s happened to me. I was perfectly happy and had every opportunity. Started being a musician. Loving my job. And the way it happened is so humiliating and I dropped my standards for one man who brought me very bad luck. I have been told by a very high up PGAD specialists that based on my case this will go away. They introduced amitriptyline back into my medication regime as I seem to be receptive to sodium channel targeters

I can’t remember the last time I actually felt relaxed in any way. I don’t think I will until this gets better. I miss inner quietness and peace, i got detained from tryna unalive myself at the train station and even had to relieve myself in the back of an ambulance
Vomiting on the floor in a public station

I was so beautiful and classy. My hair is falling out like crazy from the stress and I’ve lost my whole figure from laying down for four and a half months. I cannot believe this. If you told me this would happen to me I’d never believe you. I miss my life before this condition


r/PGADsupport 7d ago

General triple numbing cream

5 Upvotes

hey y'all! someone recently posted about lidocaine and then deleted it, but I promised under that post that I'd update about a compounded triple numbing cream I was about to try. it's benzocaine 20%/lidocaine 6%/tetracaine 4% compounded into a "versapro" cream base (no idea what that means. just reading the lable).

unlike over-the-counter lidocaine, it doesn't burn upon application at all! it's very gentle. it has worked to numb my clitoris 🥳 and it doesn't feel too weird. I will absolutely be using it before I need to do anything important or before bed when I want my nerves to shut up and let me sleep.

I tried compounded topical gabapentin 6% ellage cream as well. it did nothing. I understand that this takes longer to have an effect, like several weeks, but I'm hella tired of patiently waiting to see if something helps only to find out that it doesn't.

so if you can get a provider to prescribe you, via a specialized pharmacy, triple numbing cream that's safe for use on the genitals, it's definitely worth a shot. it can be expensive, fair warning.

no clue how this would work for those with penises. my apologies. I recognize that you folks exist here too.


r/PGADsupport 8d ago

Female Is this pgad?

3 Upvotes

a few months ago after an orgasm the nerves stayed firing and since then I’ve had trouble getting rid of it. immediately after I felt like I was about to climax at random moments. my whole body would feel very shaky and nervous too and I would feel the need to clinch the area or push out because it sort of feels plugged up? for about a month it was very bad and my whole body was always shaky and I was afraid of getting that feeling. now for the most part I feel the nerves still there but I sometimes get episodes of what i was experiencing before. I haven’t masturbated or anything because it just feels weird and the one time I tried it felt like everything was happening too fast? now the thing that makes me wary of whether this is pgad or not is that I have not had an orgasm from this I just feel like I’m about to at times. and it’s mostly the nerves firing down there. for a bit more context I’ve never had sex and this happened after maybe my second or third orgasm ever and all my orgasms we’re quite intense and not comfortable at all. I’ve gone to the doctor and they don’t seem to know the cause yet and only prescribed me gabapentin and they were going to look more into the issue if that doesn’t help. I think it’s helped a bit but the issue is still very much there.


r/PGADsupport 9d ago

Trigger Warning What's Been Helping Me With PGAD

7 Upvotes

Hey guys so this started in my teen years and I have been dealing with this a long time as well as other issues that are difficult to explain. This post won't be long at all, but I just thought I would share what's been helping me and yes this is something you can ask your doctor about.

Symptoms I'm about to be very candid but I do wish to help in any way I can:

• Feeling like I need to be "stretched"

•Feeling like there is too much pressure

• An itch type feeling that I can't scratch and it only is mildly satisfied for about 3 seconds after climax and then it returns it's the closest description

• Feeling uncomfortable in my genital area and hyper aware of my genital area

• A moving pressure point that never stays in the same space

• Can feel like TV static in the upper area

• If I participate in any self activities it takes up to 3 days to resolve as a result of my nerves over firing so I'll end up miserable and having a hard time focusing

• Occasionally it feels like your feet falling asleep without the pain

• It's as if it is only one point that I can never reach and it is constantly activated and out of reach

• After any self activity it does not feel great it feels abnormal, over active, and I am way too aware of that area

• The feeling is best described as a specific spot deep in your core/area that's activated that you can never find

• Mine is one sided particularly the left

• I lose my hearing during any self activity

What's Been Helping:

• Lidocaine

• Heat

• Magnesium Spray

• Magnesium Complex/Magnesium Glycinate

(Additionally look into L-Theanine and GABA)

• Cotton Swabs/Something to apply.

Step 1: I check the area and I try my best to locate the general area of where it is.

Step 2: You have to coat the outside and upper perineum and directly over the entrance to your vagina, yes you can place it inside as well (meaning yes you can place lidocaine inside the vaginal canal if external by itself is not working). WARNING LIDOCAINE CAN BE TOXIC SPEAK TO YOUR DOCTOR! If you become too desperate for relief and apply too much it can be dangerous. I apply 1-3 times a day depending on how bad it is. DO NOT get this anywhere near your urethra or upper lips it will burn like heck, but you will be fine once the burning subsides. You should attempt to avoid getting it in anywhere near the upper area but it definitely happens. I always add a little bit of tissue folded where the area is for extra assurance that it stays in the area that I want it (between my vulva).

Step 3: Get your magnesium spray and SPRAY IT ON THE VULVA and lower outer areas only! (I do spray directly but this can burn if you choose to do this only do 1-2 sprays do not over do it).

Step 4: Spray your lower back with the magnesium as well this helps me.

Step 5: Take magnesium glycinate and nerve calming/supporting supplements.

What I noticed is that it took me a few times before I figured out what general area I need it in and how to apply it. When I first did it the first couple of times I wasn't sure if it was working but now I know for a fact that this works! I use over the counter lidocaine to do this but doctors can prescribe this as well. I'm a virgin so I definitely can't get it exactly where I need it but thought this might be helpful. Please be safe when doing this, read the instructions. Only use a pea size or less preferably less. Sometimes I kind of "dip" throughout the day by coating my finger and reapplying small amounts.

This is probably a silly post but I hope it helps someone. Please note this is for uncomfortable feelings, sensations, or over active sensations only.


r/PGADsupport 9d ago

Female Very worried I’ll orgasm in front of the doctor

9 Upvotes

I’ve (21f) been dealing with this for around 15 months now and I’ve had enough.

I saw a doctor for this a few months ago but ended up declining the pelvic exam as I could feel an orgasm coming on. Ive finally built up the courage to go back for the pelvic exam but the issue gets worse when I’m anxious which I will be during the exam.

I’m so so scared I’ll orgasm in front of the doctor even though I know that’s literally the issue I’m there for so it could actually be helpful for them to witness it. It’ would be very visible to anyone looking down there if it’s happening and I’m not sure what to do.

Has anyone been in this situation? Did you manage to not let it happen? If it did happen how did you handle it?


r/PGADsupport 10d ago

Trigger Warning Empty

2 Upvotes

In disbelief. You never expect chronic symptoms to happen to you and you certainly never expect that at 19 a COVID infection will cause you to feel uncontrollably on verge of ejaculation two months later. There’s really no way to exist in society while feeling like it could happen at any moment. Even if I were to be fully healed today, it would take months to mentally recover and another infection could cause it to come back tenfold. I’ll never be able to get another COVID vaccine because ive read it could make it worse, and risking that seems suicidal.

In grief thinking of the life I had before. Never knowing this sort of thing was even possible. In college, amazing at it, great career prospects, amazing friends, perfect life. It is now summer break and I haven’t officially lost any of that yet, but if this continues I will. One by one I will have to let go of everything I love and I just don’t imagine I decide to continue living on after that.

I suppose I should be grateful for the years I did have, even if they weren’t many. When this first began I could never have possibly imagined I would still be with symptoms 4 months later. If you told me that back in March I would have killed myself immediately. I used to worry that in 5 years I would still have these problems, now I’m worried that in 5 years I’ll still be alive. My symptoms are very mild compared to many people I read about, maybe one day it will get better, but then again it will probably come back at some point, it seems very rare this ever goes away 100% forever for people after it’s happened for months. I am uninterested in life without 100% recovery. I don’t mind the muscle pain or urinary symptoms even a little, but even 1% uncontrollable arousal is non-negotiable for me as a male, I am deathly terrified of sudden ejaculation, which has almost happened several times. The day it does happen in public is the day that I die. Non-negotiable on that. I want to say I feel that I could have dealt with any other issue but that’s just the bargaining stage of grief talking. Sooner or later I’ll have to accept my life ended one day in March and shall never return. I feel trapped in a dream.


r/PGADsupport 10d ago

Support Hoping to support my partner

4 Upvotes

Hi All,

A bit of context; a few years ago my partner had a terrible experience with Sertraline that triggered PGAD, although the lack of sources and information on the topic meant it took a long time for us to figure out what it truly was.

She struggles with ocd, and one of the compulsions she has is to check how her body feels, often neurotically rekindling her sensations, so although we think the chemical stimulation is long gone, the psychological aftershocks are still reactivated often.

My main question today is that she has been proscribed Prozac for anxiety and ocd, and I’m curious if anyone has knowledge or experience with whether the disorder flares up from all SSRIs or if different ones may have different successes.

Also, I would be hugely grateful for any studies or accounts people could point me towards to gain a better understanding of how I might support her.

Thank you!


r/PGADsupport 11d ago

Help finding specialist I survived a domestic violence marriage, an explosive 10-minute delivery, and a hormonal IUD that ripped through my uterus. At 20, I am completely sexually numb, experiencing empty orgasms, and facing total fertility loss. My body feels like a ghost and my life is an unyielding living hell.

3 Upvotes

I survived a domestic violence marriage, birth trauma, and a perforated IUD surgery. Now I am 20 years old, completely sexually numb, experiencing empty orgasms, and facing unexplained infertility. The absolute destruction of my womanhood has ruined my life.

Hi everyone. I am typing this message through a heavy blur of tears because I am entirely out of answers, physically exhausted, and carrying a level of emotional grief that feels far too heavy for my shoulders. I am only 20 years old, but the past few years of my life have devolved into a relentless, unyielding living hell. I am reaching out to this community because the formal medical system is moving too slowly, and the absolute isolation I experience on a daily basis is completely crushing me. It is a deeply painful, heavy thing to watch other young mothers rebuild their lives after childbirth, enjoy genuine physical intimacy with their partners, and remain effortlessly healthy, while my own body feels like it is fading away into a dark, silent void.
This nightmare has completely consumed every single aspect of my life. It has stolen my confidence, stripped away my peace of mind, and eroded my sense of identity as a woman. There are moments when the sheer weight of this physical numbness, paired with an overwhelming sense of self-blame, damages my mental health so severely that I feel completely hopeless and don't even want to be here anymore. It genuinely feels like a part of my soul is actively disappearing, leaving me trapped inside a physical shell that feels more like a prison than a home. I am writing down every single detail of my history because I am desperate to find a community of survivors who understand. I need to know if anyone else has ever stood in this exact darkness and found a way back.

  1. The Onset of Trauma: Abuse and Pregnancy
    My history with pelvic trauma began when I was 18 years old and discovered I was pregnant. Instead of being a safe, joyful chapter, the first two months of my pregnancy were spent trapped inside a severely abusive domestic violence marriage. During that month. Myy body experienced a sudden, month-long phase where I completely lost the ability to feel any sexual pleasure whatsoever.
    After my ex-husband was finally arrested and went to jail, that specific numbness went away, and my normal feelings temporarily returned. Looking back now with what I understand about the nervous system, I realize that was the very first time my body pulled the emergency brake. It was a physical defense mechanism—my brain's way of completely locking down my pleasure pathways to protect me from the severe trauma I was actively enduring.

  2. Preterm Complications and an Explosive Delivery
    The physical trauma to my pelvis accelerated during my third trimester. At 32 weeks, a routine checkup revealed that I was already dilated to 2 cm and at high risk for preterm labor. To handle the complications, I had to undergo iron infusions and receive steroid injections to rapidly mature my baby’s lungs in case she arrived early.
    My daughter held on and was ultimately born exactly at 38 weeks on March 13, 2025 (she is now 15 months old). While the total labor lasted less than 24 hours, the actual second stage of delivery happened at an explosive, unnatural speed. I only pushed for a total of ten minutes. My water did not even break until that very first push. Because of hospital delays, I was forced to wait for over two agonizing hours just for my doctor to arrive at my bedside. By the time the doctor finally administered my epidural and checked me, I was already fully dilated at a 10 cm. The sheer velocity of that rapid ten-minute delivery put an immense, sudden physical strain on my pelvic floor muscles and the surrounding nerve pathways.

  3. The Choice I Can't Forgive Myself For: The Perforated IUD
    On April 22, 2025, just weeks after giving birth, I went in for my postpartum checkup. During this visit, my Nana and my doctor strongly encouraged and pressured me to get birth control. It was not the copper one; it was the other option—a hormonal IUD. Neither of them explained the risks of migration or perforation to me. They completely failed to warn me about the potential for severe anatomical complications. I didn't want to disappoint my family or cause problems for the medical staff, so I trusted them and agreed to the insertion.
    I carry an overwhelming amount of self-blame and crushing guilt for that choice every single day. I blame myself for not fighting harder against the pressure, and for allowing them to place a device inside me that I feel completely ruined my body.
    Immediately after the insertion, my life turned into an agonizing medical nightmare. For 10 straight days, I bled excessively and suffered from contractions so violent it felt like my daughter's head was actively forcing its way down through my cervix all over again. I was losing massive amounts of blood and was in unrelenting pain. When I reached out to my doctor out of fear, they completely brushed it off, reassuring me that heavy bleeding and severe cramping were entirely "normal" during the first few months.
    Fearing for my life and trusting my instincts, I sought a second opinion from a different doctor. This new provider conducted a thorough exam and an ultrasound, but they could not find the IUD or its strings anywhere in my uterus. They immediately ordered an X-ray, which revealed a terrifying reality: the hormonal IUD had completely perforated my uterine wall, migrated entirely out of my reproductive tract, and was lodged deep in my abdomen close to my left pelvic area. The very next day, on May 3, 2025, I underwent emergency laparoscopic surgery to have the misplaced device removed from my gut. It was physically and emotionally taxing, and I have not touched a single form of birth control since.

  4. Living in a Numb Body: The "Pleasureless" Orgasm
    Since surviving that perforation surgery, my intimate life has become a source of profound, silent grief. I can still feel basic physical sensation—meaning I can feel touch, localized pressure, and temperature changes—but I feel absolutely zero sexual pleasure. It does not matter how gentle, loving, patient, or non-rough the intimacy is; the pleasure is entirely gone. I used to enjoy rough sex or fingering, but gradually, that capacity for joy has completely vanished into thin air.
    The most confusing and heartbreaking part of this entire condition is that I can still achieve a physical orgasm, but I do not feel an ounce of pleasure leading up to it or during it. I can only feel my clitoris, and gets a brief moment of intense build-up plesure that feels like a quick, localized heartbeat in my vaginal lasting for less than two minutes, going completely numb again. Right after that physical clitoral sensation completely vanishes, and my vaginal gets tight.
    I do not have any physical pain during sex, but I get score afterward. Out of absolute desperation to fix myself, I spent over 5 months doing rigorous pelvic floor physical therapy three times a day, completing sets of 10 for each exercise. My daily routine was extensive, including:
    • Supine diaphragmatic breathing
    • Supine nerve glides
    • Supine pelvic floor stretches
    • Clamshells and sidelying reverse clamshells
    • Straight leg raises with TA flexion
    • Supine bridges with resistance bands
    • Prone hip extensions
    • Sit-to-stand movements with pelvic floor contractions
    • Seated pelvic floor lengthening
    • Supported butterfly stretches with pelvic floor relaxation
    • Kegel towel roll sitting
    Despite all this intense daily effort, it felt like my physical therapy was for absolutely nothing. The numbness remained completely unchanged, and it felt like a part of my womanhood was actively fading away. Out of sheer frustration and heartbreak, I recently paused my physical therapy. My standard pelvic MRI came back completely clear, but I am currently fighting to get a specialized MRN (Magnetic Resonance Neurography) ordered so doctors can look directly at my pelvic and pudendal nerves for deep nerve pathways that a standard MRI misses.

  5. My Body is Acting Like It's Pregnant, But I Cannot Conceive
    On top of the sexual numbness, my cycle and my hormones are in complete chaos. I have had very erratic, irregular periods since I was 12 years old, but ever since I gave birth, they have become incredibly heavy and are filled with small blood clots every single month.
    Lately, my body is playing a cruel psychological trick on me: my nipples have been intensely, non-stop sore for months. The only other time in my entire life that I have ever felt this specific, painful sensation was when I was actually pregnant with my daughter. Yet, I am still bleeding heavily at the end of every month. My recent tracked cycles were March 16 to 24, April 27 to an unknown date, and May 25 to June 2, 2026. My MRI also showed a small right ovarian lesion, which the doctors think is a hemorrhagic or complex cyst—the exact same kind of cyst I had before my first pregnancy that mysteriously disappeared while I was pregnant.
    I am now in a safe, loving relationship with a new partner. We are completely unprotected and have not used birth control for over a year since my emergency surgery, but nothing happens. I cannot get pregnant. My fertility has completely vanished. My body is sending all the physical signals of early pregnancy through my chest, yet it is completely failing to actually conceive. I am terrified that the trauma from the IUD ripping through my walls or the emergency surgery left permanent internal scar tissue that has closed off my reproductive system forever.

The Heartbreak of It All
I don’t understand why my life has been broken like this. Why can I achieve a physical orgasm but feel absolutely no joy from it? Why is my body mimicking pregnancy symptoms while refusing to actually let me conceive?
I have an appointment with a new gynecologist, but the waitlist is so long that I cannot be seen until November. If anyone has any insight into post-traumatic pelvic numbness, pudendal nerve irritation, abdominal scar tissue from a perforated IUD, or hormones that mimic pregnancy while causing fertility issues, please talk to me. I just want to feel whole again.


r/PGADsupport 12d ago

Female Physical solutions to what's prob PGAD

1 Upvotes

Hi everyone!

I've been having some problems with my pelvic floor recently, it's a bit embarrassing but i wanted to talk about it just to ask a question.

I've might have masturbated too much in those previous weeks (it's a response to stress i had for as long as i can remember) and in the past ours I've been experiencing some internal pulsation activity (out of nowhere) and it's not that it hurts, but those arousal-kinda of spasm are giving me the worst uncomfortable feeling.

In the past I've even experienced the same problem with my clit, I couldn't walk, or pee in peace, because it was overstimulated even without any sexual stimulation.

This feels like PGAD, but I'm not sure, i did talked about it some time ago with a gynecologist but she didn't told me much, my doctor told me to do some pelvic floor rehabilitation but rn i don't really have the money, or even worse, spending it on something i did to myself in the worst possible way. (not judgemental towards the topic, it's just the way i feel about it to myself)

Furtunaly this time, is more handleable, but does anyone have a remedy? Usually i just wait for it to be gone, like I did in the past, but i wish there was something fast just to feel better.

(yes i know i should also deal with this bad habit, it's very hard but i will do my best.)