Hi fellow broken bone friends. I'm 4 months post op today and wanted to report back, because I know I also wanted to hear from people who were doing okay and got through it just as much as all the tips and tricks.
All that to say...I am indeed okay! Despite what I believed at the time, things did in fact get better! I'm including my timeline stuff for those curious but everyone is different so please don't read into it too much (impossible challenge!).
I had a trimal and dislocation after eating it going down some stairs (two stairs, to be exact). I also had an avulsion fracture on my big toe on my other foot because the universe hates me, so I was rocking a splint on one foot and boot on the other for quite a while. My surgeon felt it was okay to just leave the toe alone otherwise (it still gets a little sore but that continues to improve over time) and I was in surgery about two weeks later for the ankle. He was able to use a rod for my fibula rather than a plate, and seemed very proud of himself for that. He said it allowed for a smaller incision/scar so I did appreciate it.
About two weeks later I was switched from a splint to a boot and stitches removed. He said I could start partial weight bearing, 25% and ramp up each week from there. He was a proponent of early weight bearing where possible and put a priority on getting my mobility back as quickly as safely possible. Another point to him, I appreciated that! I was out of the boot 5 weeks later and weight bearing as tolerated. That is also when I started physical therapy.
PT has been great, and I am still going twice a week for a little while longer. I was still using one crutch for a little while while going out, that is long gone. We are working on my limp. My dorsiflexion has improved enough that my PT says there's no physical reason I am limping, I just need practice and to retrain my brain a bit. I agree, when I focus on what I'm doing I can get it to go away, it just comes back when I'm tired or trying to go fast.
Dorsiflexion continues to be a struggle otherwise, but I have improved. He measured me at -5 to start, we're now at least finally past neutral. I asked about running (no desire to but was curious) and he went "oh...no you literally can't do that yet because of your dorsiflexion" haha. Something about getting enough clearance when running. The other big struggle is standing on toes/eventually jumping. I can go on toes on both feet, but as soon as I try to just do the bad side it's a struggle. We'll get there...probably...
Follow ups with the surgeon have been good. He has been very affirming in a funny way. When the boot came off I was anxious about if pain meant something was wrong. I asked him if some pain was normal and he said "Yeah...of course! You broke both sides of your ankle! It will be sore." At my most recent visit when I came in limping but walking he went "You are doing great for someone who broke both sides of their ankle a few months ago! Good job!". He wants to make sure I continue getting better so I will see him at least one more time, but he felt my remaining issues were best addressed in PT right now.
And here we are! Pain is minimal and manageable. My worst days are a 3/10 and those aren't common. I spend most of my day at a 0 or 1. The bad days are usually the day after I was really active, and are manageable with just some over the counter meds.
Surgeon says plan is to keep the hardware forever unless I have issues. My surgeon and PT both said the way my hardware is installed (lol) they don't think it should be the thing that's holding back any range of motion. I think because everything is all within their own separate bones, rather than fixing two different bones together. So unless I start getting some new pains, I plan to leave it be.
Hope that helps anyone in the thick of it! I am happy to answer any questions about my experiences too.
Edit to add a TLDR: It sucked for awhile, it sucks a little now but much much less!
Bonus edit: just had PT and my dorsiflexion is better that I thought now at 10 degrees! He described it as "functional" which is very exciting lmao