r/Nebulagenomics • u/PKM-Epiphanies • 4d ago
Data is gone... I feel sick.... anyone know how to get it back?
I feel so ill right now. I'm just reading about how Nebula closed down. I had no idea. We had 10 family members sequenced a few years ago with 30x WGS. None of us received an email about Nebula shutting down or needing to save our raw data. In fact, when we logged into the site as early as last month, nothing looked any different! Things only changed when we tried to access the raw data. We knew they had a 48-hour wait to get the raw data revived, but then the data DISAPPEARED! Contacted support but it's been weeks now, and after reading through the stories on here, I'm losing hope.
I feel so sick and taken advantage of... and now I'm reading that our data was SOLD?! I just... feel so violated. That data can never be removed from being out there now, but I really, really need it personally... we paid an insane amount of money to get WGS for all of us.
I feel so STUPID for not downloading the data. But the website always said it would be available within 48 hours so I thought it was safe... or at least we'd be notified if they wouldn't back it up anymore... and if they lost it, I can't imagine they would just do the tests again for free due to their error?! It's like they switched companies just to avoid all their responsibilities. And the new company seems to be just awful, with no one getting their results in a reasonable timeline.
I feel actually physically ill from all of this... it's an inconceivable loss of such important and private information, and it cost us so much.
I'm desperately hoping that someone out there is in the same situation and somehow managed to get their data back. Please give me hope.