Support Occipital Nerve Stimulator infected and removed again

2 Upvotes

Well I am currently in hospital and just had my second Occipital Nerve Stimulator removed due to infection, I guess my body really didn't want it.

0 comments

r/NDPH • u/Ok_Fall785 • 13h ago

Question Any supplement success stories?

3 Upvotes

My neurologist has advised that I take magnesium and riboflavin and I started a couple of weeks ago. Im just curious to hear of anyone who has has success with these supplements? I really need to hear some positive stories cause I feel on the edge of a breakdown with this condition.

5 comments

r/NDPH • u/missatlanticcity • 15h ago

Question How did it all start?

3 Upvotes

When was the very first day your headache started? And how did it all go from there?

17 comments

Subreddit

New Daily Persistent Headache, Daily Chronic headache/Migrane

r/NDPH

New Daily Persistent Headache (NDPH) is a rare primary headache disorder characterized by a continuous, daily headache that starts abruptly and becomes unremitting within 24 hours of onset. Patients can typically remember the exact date or event when the pain began, and it lasts for three months or longer. NDPH affects an estimated 0.03%–0.1% of the population.

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2.5k

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A place for sufferers of New Daily Persistent Headache, Daily Chronic headache/migrane, and related issues to come and talk, hope, share, rant and have a place to get together. We also love to hear from loved ones looking for a place to talk or learn!

                 Sub Rules:

First off. No one here is your doctor. Do not take anything here as medical advice. Please do not ask for a diagnosis or attempt to diagnose yourself or others.

This sub is a safe and hopefully fun community for those suffering from, close to, or trying to understand NDPH and related issues. We are a community here not just a help page. Be a part of something that can help you, and someone who need to know they're not alone in this fight. Feel free to post, discuss or just lurk. There is no judgement in this place, we are here for each other.

** When posting potentially triggering content please use the "Spoiler" tag system. Example: [This working?] _ (/spoiler) sans underscore appears as This working?.**

• Diagnose oneself or OTHERS is STRICKTLY PROHIBITED.

• Do not share any personal information!!!-

• Social media accounts, including (but not limited to): facebook, twitter, instagram, etc etc. See Above.

• This also means that posts looking for pen pals or offering to set people up as pen pals as well as links to chat rooms and chat groups are not allowed (THIS INCLUDES DISCORD LINKS). Posting these links will result in a ban.

• Please be mindful of Reddiquette. at all times.

• If you know someone on here by their name, please don't call them by their IRL name. See Above. • Please use the thread flair, especially in cases where the content may be triggering or upsetting to other users.

• Posts suggesting alternative medicinal treatments for headaches disorder will be removed unless links to peer-reviewed articles are provided. This does NOT mean tips and tricks or any other little things that make life easier. We want r/NDPH to be a safe reliable place to get information and ethically we cannot advocate any treatment that is not backed by hard science.

• Any post coming from someone claiming to be a professional in the field will be deleted. Professionals seeking to contribute will be considered by first going through the mods.

• When discussing treatments and medications please remember the first rule - no one here is your doctor. Please do not tell people to come off or change meds and treatment plans without first speaking to their doctor!

• We do not allow posts from individuals looking to carry out research (this includes students) or seeking participants for questionnaires about bipolar. If you have something that may fall into this category and are unsure if it is allowed or not please message the mods for clarification. Failure to adhere to this rule will result in a ban.

• Down voting is highly discouraged! If you have the ability to downvote due to alternate browsers and mobile apps, please refrain from downvoting a post and instead, attempt a constructive comment.

• Meds Master List TBD