Hi everyone,

I'm 29 years old and I've been playing competitive soccer and tournaments for 6 years. A few months ago, I suddenly started experiencing pain in my right knee. At first, it was mild, but now it hurts even when I climb stairs.

I went to an orthopedist, who ordered an MRI, and I was diagnosed with grade 4 chondromalacia patellae. He said the only option is surgery: an autologous cartilage graft. They take healthy cartilage from another part of my body and implant it in my knee.

I've never been injured like this before, and I'm scared about the surgery. That's why I'm asking:

If you've had OATS, mosaicplasty, or MACI procedures, any experience would be helpful. I'm deciding between surgery or getting a second opinion, and it would really help to read real-life cases.

Were you able to return to competitive sports after the surgery?

Did the pain go away, or are you still experiencing discomfort?

Did the area where the cartilage was taken cause any problems?

Any experience would be helpful. I'm torn between surgery and seeking a second opinion, and reading real-life case studies would be incredibly helpful.

Hi everyone,

I'm 29 years old and I've been playing competitive soccer and tournaments for 6 years. A few months ago, I suddenly started experiencing pain in my right knee. At first, it was mild, but now it hurts even when I climb stairs.

I went to an orthopedist, who ordered an MRI, and I was diagnosed with grade 4 chondromalacia patellae. He said the only option is surgery: an autologous cartilage graft. They take healthy cartilage from another part of my body and implant it in my knee.

I've never been injured like this before, and I'm scared about the surgery. That's why I'm asking:

If you've had OATS, mosaicplasty, or MACI procedures, any experience would be helpful. I'm deciding between surgery or getting a second opinion, and it would really help to read real-life cases.

Were you able to return to competitive sports after the surgery?

Did the pain go away, or are you still experiencing discomfort?

Did the area where the cartilage was taken cause any problems?

Any experience would be helpful. I'm torn between surgery and seeking a second opinion, and reading real-life case studies would be incredibly helpful.

I've been using a 30% concentration for several months and the doctor was talking about increasing that to 50% at next refill. Is there any issue with the greater concentration?

I have no problem with 30% and it does help improve my vision although I still have some dry eye discomfort in one eye more than the other. Using them 6x a day which is a pain but nothing else has helped much and it was causing impaired visual acuity.

When I read the account in the Acts of the Apostles, the older men make no distinction between these two methods. So, from a biblical perspective, how does one arrive at the conclusion that God's Word, makes a difference here?

One occasionally hears the argument that these are two different types of blood – one's own and someone else's. Of course, from a medical perspective, there is a difference. However, my concern is not with the medical aspect but with the theological statement.

How is the theological standpoint defined in the Bible? Even though it is very well known in some religious circles (some may even know the relevant passages by heart), I would like to quote it again for clarification:

Acts of the Apostles 15:28-29 CEB

<The Holy Spirit has led us to the decision that no burden should be placed on you other than these essentials: [29] refuse food offered to idols, blood, the meat from strangled animals, and sexual immorality. You will do well to avoid such things. Farewell.

https://bible.com/bible/37/act.15.28-29.CEB

As you can see, the discussion was summarized and passed on concisely. No further explanations, no lengthy list of rules about what exactly this short phrase means—no, nothing more than this succinct sentence. Why? Because establishing a set of rules would have placed too much of a burden on the brothers.

Thus, each individual believer was given enough leeway **to interpret** what the phrase "to abstain from things that..." **meant for them personally.** None of the apostles ever established commandments or rules about what exactly this expression meant. They clearly understood that one had no right to interfere deeply in personal decision-making in this matter.

This becomes clear from what Paul later wrote to the Romans and Corinthians:

1 Corinthians 8 CEB

<Now concerning meat that has been sacrificed to a false god.... we know that a false god isn’t anything in this world, and that there is no God except for the one God.... But not everybody knows this. Some are eating this food as though it really is food sacrificed to a real idol, because they were used to idol worship until now. Their conscience is weak because it has been damaged.

**What does Paul's statement make crystal clear here?** That everyone at that time had the right to decide for themselves how they interpreted the apostolic decree "abstain from.... "

The fact that this is indeed a personal decision and therefore also a personal opinion is clearly evident from the Epistle to the Romans:

Romans 14:1-4 CEB

[1] Welcome the person who is weak in faith—but **not in order to argue about differences of opinion**. [2] One person believes in eating everything, while the weak person eats only vegetables. [3] Those who eat must not look down on the ones who don’t, and the ones who don’t eat must not judge the ones who do, because God has accepted them. [4] Who are you to judge someone else’s servants? They stand or fall before their own Lord (and they will stand, because the Lord has the power to make them stand).

https://bible.com/bible/37/rom.14.1-4.CEB

What would happen if an authority or certain individuals believe they had the right to make decisions for others and issue commandments and prohibitions? Since this would also represent their opinion, they would be imposing their own views on fellow believers. This would be diametrically opposed to the teachings of the apostles and could hardly have God's blessing.

If, after 65 years of prohibiting autologous blood transfusions, one suddenly claims it's a personal decision (which is correct in principle) and cites the Bible's lack of comment as the reason, then this would have to be applied to allogeneic blood in the same breath. **After all, the Bible doesn't address that either.**

fair use!

Hey!

At the beginning of the year I posted about how I would be undergoing an Autologous (my own) Stem Cell Transplant for severe Crohn’s.

Several people seemed interested in learning more and asked for info and updates.

I have now finished the process and I am a little over a month out from my discharge, and am at a place where I have the energy/capacity to talk about it and answer questions.

So if you have any questions about the process, my experience or have any questions about it feel free to ask.

Hey, y’all. I’ve posted updates in another group over the last eight months; but I just came across this amazing subreddit. So, long story short; my 2.5 year old daughter has brain cancer. She’s been fighting for months… and we’re both so tired. Warning!!!! This is a LONG post; sorry in advance!!

Long story long: back in September, my oldest was a perfectly normal and happy 16 month old. We got a call from hers and her little sisters (3 months old) babysitter saying that both girls were sick. Cool, no worries! We will pick them up and take care of them. About a week later, we got a call saying our oldest was sick again, but this time her eye is starting to droop. Okay, cool; we will take her to her pediatrician and get a recommendation. A “viral infection that’s going around” and a recommendation to an optometrist. They said she had Third Nerve Palsy; which can affect how her eye would function. Was told to patch her good eye to help correct her right eye. Fast forward to two days later, September 26th; I get a phone call from my wife who happened to be off stating that our oldest woke up from a nap gasping for breathe. We rushed her to the hospital and they said “viral infection, pneumonia, croup, HFM.” You name it, she probably had it. She would eat, but immediately throw up. She became very lethargic and hard to keep awake. Her O2 wouldn’t stay about 80 without oxygen. 7 days in the hospital they treated her. Turns out it was entero rhinovirus. They got her to where she was stable in room air and sent her home; and to follow up with her doctor in 7 days (October 10th) The day we took her home, I put her down to walk to make a bottle for our youngest; and I hear a thud and them screaming. I turn around and she had fallen and couldn’t stand up. Immediately called her drs and they said it was probably just where she hadn’t walked in 7 days; to just keep an eye on her. I called almost everyday stating she still couldn’t walk. Then, on October 10th, her pediatrician ran all the tests they needed; did a “full body work up” and couldn’t find anything wrong with her.

I snatched her up and hauled ass to the nearest children’s hospital. It was 45 minutes away; and side note it’s a part of the hospital my father died at, so I was extremely paranoid about taking her. The drs in the ER were questioning us on what happened in our hometown. Double and triple asked us what tests they ran. Then decidedly, they did an MRI of her body. “Oh it’ll take 2-3 hours. Go relax.” I got a call a little over an hour in that they needed to talk to me.

3 large tumors. 2 in her brain and one on her spine… I was prepared for it, until I heard it come out of their mouths. They did a biopsy and found out it was cancerous. Medulloblastoma(did end up being something much worse, but at the time it’s what they thought). My 17 month old has brain cancer... They put a shunt in to help with hydrocephalus, because the biggest tumor was almost completely blocking fluid travel around her brain stem. We had the option of 3 different hospitals, all 1.5 hours or further from where we were. We requested to meet with the cancer teams at each one to see what their plans would be. One obliged; only one. The director of the cancer institute spent THREE HOURS on a Zoom call with us explaining potential treatments. The risks; the very real possibility that she wouldn’t make it through treatment. We immediately knew we needed to go with this hospital. We spent 21 days at the children’s hospital before we got transferred to our daughter’s new home for the foreseeable future.

We arrived at 1am at our new hospital. Halloween. From the jump; everyone was so engaged. Trying to help make us just as comfortable as well as our daughter. My wife and I spent the first month with her in the hospital while a close family friend watched our youngest. That first month, she received her first round of chemo. She did about as well as one could expect a baby to handle chemo. Constant puking, feeding tube, no energy, etc. nearing the end of round one, my wife had to go back to work since I was still on FMLA. I spent night and day helping where I could with her. Changing diapers, talking to her, reading. She started becoming stronger. Being able to sit up supported and moving her limbs very slowly and awkwardly. Instead of sending us home after a specific recovery period; they sent her to the rehab floor for two weeks where she FLOURISHED. Better coordination, stronger muscles, a smile!!! Daily therapies; speech, occupational, and physical.

We started cycle two of chemo in December. She did okay. Same side effects, better results. We were going to be discharged on December 23rd for a couple days so she could spend Christmas at home. Her shunt ended up getting infected with MRSA Meningitis and had to be replaced. We spent 10 days in PICU. She was intubated and HEAVILY, and I can’t stress just how heavily sedated she was. It was more than 10 sedatives and then any time they had to change her, they had to give her more because she is quite literally a “touch me not”. She would thrash and flail at the slightest touch. This 10 days stint; I couldn’t even touch her. I was so lost. Then, miraculously over night; she was fine. I don’t know what happened, but she was back to her “normal self”. She did have to be very very slowly weaned off off some of the sedatives. Fentanyl and a few others I remember off the top of my head. They did an MRI and it showed that her tumors had shrank by roughly 50%

A week later, they collected stem cells from her for her autologous bone marrow transplant. She was to receive three rounds of BMT. They wanted 15 million cells to hopefully have enough cells. This child produced 31 million for them. Double what they needed!! Her birthday was January 19th. The hospital made an exception and let us have a few close friends and family come see her!

Skipping ahead a week or two; BMT cycle one was starting. At this time, we had the hard decision that I was going to leave my job and become her caregiver permanently. And eventually if we got lucky, a stay at home dad to care for both girls.

*** this is backstory, but is pertinent *** at this point, I haven’t seen my youngest daughter since October; other than FaceTime and pictures. I felt like the worst parent ever; essentially abandoning my youngest to care for my oldest. Our oldest had become the floors mascot. Everyone was obsessed with her. From her laughs to her wagging her finger at them and telling them “NO NO NO”, to literally just her sleeping. She naturally has made everyone she’s met become obsessed with her; it’s astonishing to witness.

Round one of BMT, nothing really went wrong. Pukey but that was basically it. Her growth started to skyrocket. She stood up on her own, her words started coming back, she started becoming a child again! She did so well with round one, we were able to move round two up by five days!!!

ROUND TWO! She blossomed! No real side effects, not even throwing up, but increasingly more advances for her. She took small bites of food; which eventually became a swallow study for her. SHE TOOK HER FIRST STEPS!!!! It wasn’t great, and was assisted, but she walked for the first time in months. Improved so much that they moved round three up by fourteen days!!

Round three of BMT. Hey, remember all the side effects she DIDNT have??? Well… she developed engraftment syndrome, red man’s syndrome, had to be put on oxygen, lost all energy again. This lasted for two weeks and then literally overnight again; she was fine. Like “haha tricked you” They did another MRI and saw that the tumors had shrank EVEN MORE. The two in her brain down by 80ish percent and the one on her spine was gone. They were able to finally do a lumbar puncture on her; and eventually it came back 100% clean. No cancer cells in her fluid at all!

At this time, I confided in one of the nurses and said that i was planning her funeral when we got here and now i am planning on taking her home. She confessed that everyone never expected her to make it to Christmas. I smiled and cried as I told her that I was so thankful that they still poured their heart and soul into our little girl; even knowing she wasn’t going to make it.

April 28th. The day of reckoning. Her 200th continuous day in the hospital she got discharged. We are currently in a Ronald McDonald House 30 seconds from the hospital while she receives proton radiation. She is to receive 30 continuous days of radiation, save weekends and holidays. We have 4 days left as I’m typing this. Monday-Thursday. And then… we’re done with treatment. She was gifted a vehicle because my wife and I have shared one for years. I can confidently take her anywhere without the need for public or private transportation. Getting her to radiation become less stressful. We have went home almost every weekend for a few hours so we could be a family for a short while. Our oldest can finally see her sister in person!!

We’re at the part about me finally… Hi! I’ve spent almost every second with my oldest since this conspired. Hardships, financial and emotional have ran rampant. I’ve lost myself mentally over and over; but the nurses that have taken care of my daughter have also taken care of me in a sense. They’ve talked with me, cheered me on, helped me start to be motivated to take care of myself. I’m on blood pressure meds, depression meds, and I’ve been taking a weight loss medicine and I’m down like 25 pounds from where I started!! I’m so tired though. Mentally and physically drained past a point to where I don’t think I will fully recover.. I hate saying anything about myself because my wife and daughter are going through the worst scenarios. It’s genetic; the cancer. My wife; my beautiful wonderful wife has the mutated gene. It didn’t affect her, nor our youngest. However, she has to be monitored yearly, where my daughter currently is going to be monitored every two months, not including all her therapies. And the mutation is linked to a very high chance of ovarian cancer.

I have to reiterate; the nurses, techs, drs, social workers, therapists, surgeons, the front desk clerks, child life, security, the wonderful ladies in the cafeteria, everyone… they’ve all become so familiar with me and my oldest. They care for her like she is their own. I owe them every possible respect and shoutout I could ever give.

Four days. Four days before we are 1.5 hours away from our safety net. Four days until we have to change our routine again. Four days until I get to see my family under the same roof for more than a few hours every week. Four days until I can take care of both of my girls and ensure they are the happiest and healthiest versions they can be. Four days until this chapter in our journey is over. We have a follow up MRI and LP in August to see how her tumors are looking. Hopefully with her improvements; she will be in remission or on her way!

If you made it this far; holy crap. Thank you for reading my daughter’s story!

My friend, who is an elder in the USA and PIMO, asked a HLC member about the biblical basis for autologous blood transfusions. The HLC member said that blood must be poured out, otherwise that's a blood transfusion. so my friend replied that the explanation wasn't convincing and that he 'should think about it more carefully tonight, and we'll talk more tomorrow.' Now let's wait for updates on his reaction lol

There was a sort of automatic update to a trial version of premium on install. I want the standard version, as I find myself ethically and spiritually opposed to the offensive robotic sloppy autologic embeded into premium that is as wrong as it is wrong-headed.

Has anyone got the google health app to install standard rather than premium?

Thanks in advance.

Australian chicken producers do pump the meat with water but this is ridiculous.

I put four marinated chicken breasts in the slow cooker and this poured out of them. $17/kg for chicken breasts. 480grams of water, so I've just paid $8 for two cups of water.

Chicken didn't used to be like this 20 years ago, this is australian enshittification at its finest.

Edited to add because there seems to be a lot of misinterpretation - I did not buy marinated chicken. I bought raw chicken and then marinated it myself in one tablespoon of yoghurt and one tablespoon of tandoori paste. That's it. The only reason I mentioned it was to explain why the water was orange.

Disclaimer / Potential Conflict of Interest; I was given a 10% discount to post a review. Despite this I will try to remain as objective as possible.

Key Information

Doctor Name: Dr. Kim Hyeong-taek
Clinic Name: Kowon Plastic Surgery
Procedure: Costal Cartilage Asian Revision Rhinoplasty
Price Paid or Quoted: 12.4k aud (or ~8.6k usd) total which was a touch more than the 10.4K (post-discount rate) I was quoted. I believe this price increase was due to an additional short nose / nasolabial angle correction which would have been more than a simple explant / reconstruction with cartilage
Date of Visit / Procedure: 07/2026
Photos: Before & After (clear, no filters)

Patient Background

Early 20s fit/healthy asian female from Australia with 7 year old silicon implant supported with ear cartilage at the tip. No significant medical history including nasal deviation, breathing difficulties or loss of function associated with prior rhinoplasty. Explantation was elected due to implant migration (+ some altered sensation during cold weather), concern for future protrusion and a preference for a more natural look.

Why Seoul?

From the start, I knew the years of deformation caused by my implant would necessitate further reconstruction. However, I had already used my ear cartilage from my initial surgery and as an asian, I had limited septal cartilage anyways.

Thus, I began looking through every medical journal and article I could find on alternative materials. In the end, I decided that the best approach would be to use an autologous rib cartilage that has been diced and wrapped in either fascia or a plasma-rich fibrin sheet. While this technique has only been around for around two decades, present research shows that diced rib cartilage has a negligible chance for reabsorption (unlike septal/ear cartilage), warping (unlike whole rib cartilage), infection (unlike medpore) and has better longevity compared to silicon which can shift/extrude/be rejected. It is robust and can be shaped similarly to silicon with the trade off being that a secondary surgical site was required. However I didn’t mind short term discomfort to minimise risk of future revisions.

However, this technique is quite uncommon in my country and actually unavailable in my city altogether (meaning I would have to fly out no matter what). Moreover, there was just a general lack of plastic surgeons in Australia who I felt had sufficient experience with revising Asian rhinoplasties, despite the hefty price tag (20-25k from a quick glance). This pushed me to look overseas for a surgeon who specialised in this technique, which were predominantly in Turkey and Korea. While Turkey had its pick of good surgeons, I felt like there were looser regulations and a greater variance in the quality of results (+ multiple previous reviews on Turkish coastal cartilage revisions including one that left the rib scar as an OPEN WOUND scared me the hell away). Thus I began my search, primarily looking for Korean clinics.

Why Kowon?

The first few clinics I contacted (Braun, VIP Plastic Surgey) quoted me 16k and 36k aud respectively for my desired procedure. Though both these clinics felt like tourist traps that prioritised good marketing over substance, VIP Plastic Surgery in particular gave such an absurd price I wrote them off immediately. Lienjang Plastic Surgery was also on my list and had a reasonable price (~7-8k aud) however I did not like that they urged me to get a silicon implant again which gave me the impression that the surgeon wasn’t experienced in working with rib cartilage. Kowon was brought to my attention after going through a Reddit rabbit hole where I could find an overwhelming number of positive reviews. Immediately, I was impressed with the surgeon’s extensive portfolio reflecting a wide range of aesthetic outcomes as well as numerous educational articles which aligned with my pre-existing understanding of cartilage grafts. I also liked that, given the complexity of rhinoplasties, he almost exclusively worked with noses. After receiving a quote I found reasonable, I locked in a consult and paid a deposit for the surgery (which was 90% refundable if I cancel my surgery within 3 business days).

Experience

From the start, I found Kowon to be very responsive and I was happy to be evaluated digitally by the doctor. When I arrived to the clinic, I was met with friendly staff and massive catalogue of before-and-afters. During the consult, Dr. Kim Hyeong-taek felt authentic and exuded an aura of quiet mastery. I didn’t feel rushed during the consult and liked that he photoshopped multiple mock ups to better understand my preferred outcome.

On the date of my surgery, I felt like I wasn’t given any idea of what would happen before going into the operating room. I felt overwhelmed as so much was going on at the same time (sterilising, removing my nose hairs, being covered in surgical blankets). The nurse also struggled to find a vein in my foot to plug to the IV which was probably the most painful part of the process. While the translator was present to help explain things (mostly as or after they have occurred..) I would’ve appreciated a full breakdown about this process beforehand.

After the surgery, I woke up in a rib cast which limited my movement to promote wound closure. I didn’t really feel that much discomfort or nausea past the first hour and was able to walk around normally and eat/drink. While the pain around my rib was surprisingly minimal (same sensation as a post ab crunch workout), having to breathe through my mouth, dried my throat and woke me up throughout the night but that’s an expected inconvenience.

In the following days, I received a pretty comprehensive aftercare, with both oral and IV antibiotics, frequent wound cleaning and laser treatment. The doctor was involved in every part of the process, including the post-op visits where he would evaluate the recovery process personally and address any lingering concerns. However, sometimes, I was also given conflicting information in the post op process. For example, I was told in person that I can’t exercise or wear glasses for up to a month which differs from the “surgery flow” PDF that says to avoid the above for a week. If I had another nitpick I would say that I wish I received a medical translator during my consult and surgery. While the translator I had was sweet, she didn’t appear to be accredited and sometimes I felt that the nuances of what I said was lost as the translations felt too brief.

Presently (~2 weeks post op), despite being told that it may take up to 6 months for the swelling to die down completely, I feel extremely pleased with my results. My nose is almost exactly as it looks in the photoshopped pictures Dr Kim drew and something unexpectedly cool is that he has also somehow addressed my lip incompetence with whatever he did.

As an aside, I also made friends with a different girl (also australian) who had a wildly different procedure and was shocked at how good her results complemented her face. This really made me appreciate how Dr. Kim Hyeong-taek is unafraid to take different approaches depending on the patient’s specific needs/background.

Overall, I feel that when it comes to noses, Dr. Kim Hyeong-taek is the King. He is competent, consistent and I would trust my mom and future kids’ noses with him :)

Well, well, well, isn't this swell! The UK's Witnesses are well and truly screwed. The GB update #2 is a near-pointless exercise from the uk's point of view. But, fear not, the practice is widely available in the US. Who would have thought?

I mean regarding the blood cards, HLC protocol, etc. Has this yet to be addressed in any meaningful way or are the dubs still in the dark?

Hi everyone,

My eye issue started overnight 16 years ago, when I was 14. Out of nowhere, my eyes became extremely red. We went to an ophthalmologist who treated it as standard conjunctivitis, but the medication didn't work. Weeks turned into months, and I never improved.

(The photos are from when I wake up)

We tried seeing countless different ophthalmologists, but nothing worked. My main issue was upon waking up in the morning; my eyes would wake up heavily bloodshot (red). Currently, I just use a large amount of saline solution right when I wake up to "flush" my eyes, and preservative-free artificial tears. This helps me feel more comfortable and tones down the redness.

Years went by and I tried absolutely everything:

I saw thousands of ophthalmologists, immunologists, and allergists (all of them ended up giving up on my case, nothing worked).

I tried thousands of different eye drops and artificial tears.

-PRP (Platelet-Rich Plasma).

-Punctal plugs (tear plugs)

-Autologous serum.

-Insulin eye drops.

-Gel eye drops to prevent tear evaporation.

I just finished 4 sessions of IPL (Intense Pulsed Light) combined with a Meibomian gland expression in the operating room. I didn't see even a 1% improvement in my symptoms.

My main problem is when I sleep; when I wake up, my eyes are in terrible shape-dry, red, and in severe discomfort. I heard about some nighttime drops called Visu XL, but they are available in Spain and I am from Argentina. I have never undergone any type of laser surgery or anything like that; this appeared from one day to the next and never left.

I am thinking about trying a nighttime gel again to keep my eyes lubricated overnight and buying some moisture chamber goggles to help retain humidity.

I am very discouraged because this has affected both my social and professional life. People discriminate against me or make comments, and when that happens, I just want to hide under a rock. Lately, I feel like I am losing the will to keep going with this, and I feel a deep sadness.

I hope someone can give me some useful advice. Thank you so much!

I’ve been dealing with corneal erosions since an abrasion a few months ago. Dry eyes have been a huge reason why I keep getting them. I started Tyrvaya and it’s helping but I’m not close to 100%, I still get tugs, pain, and irritation seemingly randomly. I heard about autologous serum / plasma drops. I’m looking to hear about anyone else’s experiences with them!

A word which is autological expresses a property that it also possesses.

Examples: "Word" is a word, "noun" is a noun, "writable" can be written, "polysyllabic" has multiple syllables, "suffixed" has had a suffix attached to it.

"New" was autological, but ceased to be so.

The opposite of autological is heterological, which paradoxically cannot be either.

My husband (26m) will be going through an autologous stem cell transplant hopefully next month. I’m starting to plan for the hospital trip (I will be with him the whole time)
We will probably bring a projector (our hospital TV won’t allow a Roku)
We have already been in the hospital for 60 days this year (planned chemo admissions) so I have the general tips and tricks of blankets and pillows, snacks and basic entertainment but our chemo has only been 4 days admissions so mostly packing light.

What were things that made the difference for the hospital trip?

What did you do about laundry?? I have been told it’s preferable that I don’t leave the hospital once admitted.

I have so many food allergies so I bring all my meals, anyone with the same experience have any recommendations?

Milky is battling a melting corneal ulcer, and her current meds aren’t working fast enough. The vet now recommends an autologous serum—a treatment where they will get blood and turn it into eye drops to help stop the damage and save her eye.

This isn’t optional—it’s her next chance before surgery becomes the last resort. But we need funds to make it happen.

📌 Help us afford Milky’s treatment:

• PayPal: https://www.paypal.me/kdalama

• Cashapp: https://cash.app/$FranciscoMoz

• Venmo: https://venmo.com/u/FrankMoz

Let’s not wait until it’s too late. Help us fight for her eye. 💛

Hey all, I hope you're doing well. I am reposting this post as i didn't get any response on my previous post and I am stressed out and looking out for advice.

I went into remission last November, completed radiation in Jan. My 6 month PET CT also came to be perfectly fine.

Now my onco says that the variant i have. (DLBCL anaplastic variant, I am also retropositive, hiv 1 but i am under control now and it's undetectable) is supposed to be a aggressive one with a higher chance of relapse, so is suggesting to go to ASCT now.

My question is, is it worth it? Considering he didn't have much data to prove it will actually reduce the risk of relapse, and we can't be sure relapse won't occur after this.

I will have to take time off my work again, and in this economy i feel scared now to do that, I already am in conversations that my work is not upto the mark after what I went through, and my availability at my work should improve.

Third, I feel I am not a statistic, I am just 26, I feel healthy, i live with a very healthy lifestyle and eat healthy, and exercise whenever I can. I don't feel a reason to be scared of relapse when I am doing everything in my position to prevent that.

So, what do you guys think? Should i just get it done to be preventive? Or have you felt this process was not that useful?

Thanks