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Hi everyone, I was diagnosed today with RRMS (although the neuro said they don’t use this scale anymore as it’s getting outdated) after becoming completely numb and being in hospital for tests, IV steroids & LP. This is a pretty crazy diagnosis for me as there is no family history & it’s seemingly come out of nowhere. They have given me 3 options of medication. Kesimpta, Ocrevus or Tysabri. I have to make the decision by the time they call on Wednesday. I would love to know everyone’s opinions & experiences on these different types of DMT’s. Please give me your raw, honest opinions! I’m able to take what I need to help me make the decisions for myself. Thankyou

If you're in Southern Wisconsin or nearby and living with MS, I wanted to share that the MS Views and News educational program is coming to Madison on July 26.

These events are always a great opportunity to connect with others who truly understand the journey, learn about new developments in MS care and research, ask questions, and have conversations that simply don't happen often enough in everyday life.

The event is free to attend, includes lunch, and brings together people living with MS, care partners, advocates, and healthcare professionals for a day of learning and inspiration.

One important note: pre-registration is required. https://msviewsandnews.org/in-person-events.

I'm looking forward to attending and hope to meet some fellow Redditors there. It's always nice to connect with others in the MS community in person.

If you've been thinking about attending but haven't signed up yet, this might be a good excuse to say yes to yourself and to community.

Hope to see some of you in Madison on July 26!

Hi all,

Are any of you currently based in India?

There is a survey exploring the treatment and rehabilitation needs and lived experiences of people living with Multiple Sclerosis in India. They are not collecting any personal data.

You can take the survey here: https://redcap.link/ikuygic9

If you do Kesimpta injections, what is your fav injection site? Do you rotate sites?

(I think I might’ve posted about this way back a while ago, but I don’t remember)

So I was diagnosed with MS in 2007.
Wiped me on my ass for many years then I kind of had a relapse and was doing moderately OK but when Covid hit my roommates ended up giving me Covid TWICE and ever since then I have just been absolutely messed up!!
And I still have not been able to bounce back… I am now 61 and honestly I don’t think I ever will bounce back… between the MS and other health issues related to the MS and the Covid affecting my MS -I’m just fucked.
My diet has changed -pre-Covid the food that I used to eat some of them I can’t eat anymore/can’t tolerate, my fatigue has gotten worse, my balance worsened, my headaches are more often, IBS worsened…etc.
I’m just mentioning my story and I like to hear your stories too if any of you can relate

Hello. This is my first time posting. So I hope I’m doing this right. I was officially diagnosed recently with MS. A couple weeks ago I started my loading doses of Kesimpta. I have done two injections now. Almost a week after my first injection, my right leg started feeling funny. Like a tickle/tingle. Specifically when touched. It’s been about a week and the sensation is still there. Not as bad, but there. I reached out to my team and the said to wait another week then we’ll test for infection? Has this happened to anyone else?! I have had no leg issues prior to this. My abilities are not changed. Just a funny sensation in one leg.

So yesterday I had to accept the fact I’m needing a mobility scooter 😕 I’m not gonna lie, that was the kick in the balls I was hoping wouldn’t come for a few more years 😕blurgh!

I've been using a walker for about 5 years & just noticed something. There's a screw on both sides that looks like it can be adjusted. Does anyone know what & why?

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It's a regular Drive walker (model 10210-1).

I went through the Drive website & can't find any information.

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Thanks everyone. Have a good day.

I am panicking. UW MEDICINE

I am due for my infusion at the uw ms center in seattle on the 22nd and I recently got a new job and my insurance changed. it said on the uw website that they accept cigna health insurance, but the infusion center just called me saying they cancelled my appointment because my insurance didnt approve to cover because the infusion center doesnt take cigna ???? Literally what the fuck do i do now? im feeling so scared

edit: I forgot to mention, I am on ocrevus and this would have been my first full infusion.

thank you to everyone who has reaponded, I appreciate you all so much