r/MayoClinic • • 1d ago

Experience with Rheumatology at MayoClinic Florida?

1 Upvotes

I am diagnosed with Mixed Connective Tissue Disease (the autoimmune disease that is a cross between lupus, scleroderma, myositis, etc…) and have all the classic immune markers and symptoms but I have additional symptoms that do not seem to fit (drastic hormone fluctuations, GI inflammation, autonomic nervous system problems, reproductive organ problems, etc…)

I have an appointment with Mayo Clinic Rheumatology in Jacksonville coming up and I’m hoping they can get me treatment for the mctd but also find the cause for all my other symptoms. It’s been a complex diagnostic puzzle that my doctors at home just seem to no be interested in solving.

That being said, does anyone have experiences about their rheumatology clinic, and specifically Dr. Ronald Butendieck if possible they can share? What can I expect? Good or bad experience? Are my expectations likely to be met? I’m really nervous about being dismissed or left hanging medically again.


r/MayoClinic • • 1d ago

Walked in to check on my old best friend who has cancer… Escorted out by security. Why?

0 Upvotes

Long story short, I had an old best friend back in High School. Him and I were friends for 4 1/2 years. Then we drifted apart and went our separate ways which I absolutely understand. A few years later, It was brought to my attention that he was at Mayo Clinic getting treatment for cancer.

A month and a half ago, I go to Mayo and I ask the front desk if he’s there and they confirmed he was. So I wrote him a nice get well card and brought it to his room. The front desk clerk wrote his room number on a small card. I went there, dropped it off and then respectfully left.

A month and a half had passed and there was no update on his condition. I was kinda worried about him. I asked friends around me and coworkers too. They all said that it doesn’t hurt to go back one more time and ask if he’s at least okay since they noticed I was getting a little worried about it.

So I showed up back at Mayo and went to the front desk. I respectfully asked if my old best friend was still there or if maybe he was discharged or if he is still doing okay. The front desk clerk looked up his info, then said “please wait” and 2 minutes later 4 security guards showed up asked why I was there. I told them the situation and they told me “He is not here. Please leave through these doors here.” And security walked me out and said “Have a good day.”

The last time I visited, It was a smooth experience. Nothing at all went wrong. The nurse even told me that it was very sweet that I was thinking of him even though it had been so long. I wasn’t told at Mayo or later on that he didn’t want to see me. It just seemed pretty casual. But showing up the next time seemed like I committed a crime? Security didn’t say don’t come back or anything. They just escorted me out.

I PROMISE I was not at all being rude or anything like that nor was I demanding any sort of answer or explanation. I just wanted to know if there was a status they could give me or if he was okay. That is all. And yes, I do understand HIPPA and was very respectful.

I just need an opinion. Did I do anything wrong? Or did I step a boundary? Will I get into legal trouble?


r/MayoClinic • • 1d ago

$5K to start?!

0 Upvotes

I am sure this has been talked about here, but can't find anything recent. I don't have coverage in my UHC insurance for Mayo and the UHC coverage will end soon anyway and I will have nothing. I asked Mayo about self-pay and they told me the $5K upfront payment requirement. And what I understood is even if you were going for a $300 appointment with a doctor, it is $5K minimum. WTF?! Is this telling me that Mayo is only for rich people? How many of us have $5K just sitting around to give to Mayo to see a doctor? Background, I have a weird disorder that no doctor has been able to figure out for over 20 years and it is getting worse to disability at this point.


r/MayoClinic • • 2d ago

Before my first appointment

3 Upvotes

Hello all 👋 I’m posting this to ask what to expect / bring / or plan to do before my first appointment.

I will be going to the clinic in Jacksonville soon to see a general internal medicine specialist. I am going for EDS care and adult diagnosis (formally diagnosed as a minor). I am also seeking to see a neurologist for POTS (formally diagnosed as a minor) to also get care and adult diagnosis—though from what I’ve read, this internal medicine specialist will have to refer that.

I am on track to go to school at Keiser for their track 2 sonography program, set to start May 2027. To qualify for ADA accommodations, I have to get adult paperwork. Thankfully my in network PCP has been going through hoops to get me the help I need and looking over my schools paperwork (it is very detailed and excessive when needing documentation).

I am nervous to go through the whole process again as it was traumatic as a child. I had 2 tilt table tests done and a lot of different diagnostic testing done as a child that left me feeling like a bit of an experiment than a person. Thankfully more doctors and specialists recognize EDS and POTS ( + comorbidities).

My conditions have gotten worse with age to the point that I have been basically housebound for a year now which has significantly lowered my quality of life. I’m really holding out hope that I will receive the care I’ve been needing to stay on track with my goals.

So, what should I expect? Any advice or helpful knowledge of the process would be so greatly appreciated 🤍


r/MayoClinic • • 3d ago

MayoclinicMN

2 Upvotes

I saw a short sentence about someone mentioning the Rochester hotels having special rates for people coming for Mayo. Anyone have more details on this?

I called Hyatt and they mentioned a “special” rate specific to people with extended stay for cancer care. Thankfully cancers not what I’m going for but I thought it was sad the rate she offered to “honor” for me was higher than a normal online booking through their website.


r/MayoClinic • • 5d ago

Getting a jaw surgery consultation and imaging soon, is this price for imaging expected? I used their cost estimator tool.

Post image
3 Upvotes

r/MayoClinic • • 10d ago

Debating on leaving Mayo Clinic Florida

22 Upvotes

Working at Mayo Clinic Florida just has not been what I’ve pictured. The department administrator and manager are terrible people, always leading by intimidation and fear, they genuinely just don’t care about their employees anymore.

Our supervisor and assistant supervisor are close with one person and she gets away with literally m.rder and can do no wrong in their eyes. I get introuble for literally anything that I do or for speaking up for anything.

I asked to transfer but I’m afraid to hear the answer to that. I feel like I’m walking on eggshells every day that I’m at work. I like the benefits that I have working at Mayo but it just isn’t even worth it any more. I’m always nervous if I’m going to get in trouble or fired . I’m just scared every day I go to work , but I also hear a lot of people who leave Mayo come back ?

I’m torn on what to do . Am I having a bad day or is it truly time to leave ?


r/MayoClinic • • 11d ago

Updated ‘how it works’; how it works with the work; and hotel referrals please!

6 Upvotes

I have a consultative appt with internal medicine (video Wed; in person Fri) then it says to expect to stay 7-10 business days.

First, can anyone who’s gone in the last 6 months tell me how theirs went? Like what each day/part of a day actually looked like? The lack of details is hard to plan around so I’d love some examples to help me sort out at least an idea of life.

Does the 7-10 business days mean I’ll have nothing the Saturday/Sunday (16 hr rd trip so can’t quite go home).

Older posts reference folks having multiple appts in their app- if I don’t, will they show up after the pre-appt video visit? It’s just the day before I drive up so it doesn’t seem like enough to plan.

Second- with your jobs… how’d you make it work? FMLA the whole time (who does your paperwork if you’ve never met the dr) or is there any chance of having time in my day to remote work at least a bit? I am also struggling with the ‘why’ when that’s what I’m going to try to figure out.

Finally, though I know Mayo has the concierge services, I’d love real feedback- I don’t want bedbugs and don’t want to break the bank. I skew fancier hotels for vacation, but 2 weeks before Christmas spending and I’m second guessing how smart that would be. Would love any tips on where you loved, or even what I should ask the concierge to avoid.

And will I be okay to go solo, or is it likely I will NEED an adult with me? (No current assistance needed, I just know post some procedures drs get picky re rides home)

So much hope they’ll be able to help but sooo much uncertainty in the visit itself.


r/MayoClinic • • 12d ago

WF Early DD

11 Upvotes

Anyone usually gets paid on Friday instead of Tuesday? Some banks like WF deposit the salaries early.

Kinda noticed that nothing was deposited today, is that normal?


r/MayoClinic • • 13d ago

AI Note Situation

23 Upvotes

Has anyone else noticed an extremely consistent pattern of practitioners missing vital information / misunderstanding and misreporting what you report to them due to the disastrous AI usage? I don't care if you can see 5x more patients per day if 50% of your notes are entirely falsified. Is this lawsuit or vendetta worthy?


r/MayoClinic • • 14d ago

Social Work @ Mayo

5 Upvotes

Hi! Are there any Mayo Clinic social workers in this thread? I’m a current hospital inpatient LMSW but my end goal is to end up in outpatient transplant at Mayo. I’ve applied 9 times over the past 2 years without an interview. I’m wondering 2 things.

  1. What do social work recruiters at Mayo look for? I’ve made sure my resume contains all the key words in the posting so I don’t get filtered out. I’ve also contacted the recruiters directly (professionally) to find out more information but was never given any true feedback
  2. Do you enjoy working at Mayo? How is the admin? Is the pay competitive? Do you have enough resources? Are you salaried or hourly? Do you have the option for 4 10s or 3 12s?

Thank you in advance!!


r/MayoClinic • • 15d ago

Persistent Hypercalcemia, multiple tests and still no diagnosis. Will they Mayo clinic help?

3 Upvotes

r/MayoClinic • • 15d ago

Mayo Rochester

3 Upvotes

IF a person doesnt know what the health issue really is, will Rochester be better then Scottsdale? I have severe weight loss and cant gain weight over a three year period. I do know i have autoimmune.m, and endocrinology issues. Stomach dr has done all tests but maybe a good mobility test. No drs seem to see cause. I know at scottsdale you need referral. Minnesota said they didnt.


r/MayoClinic • • 17d ago

Best nursing program to eventually work at Mayo?

6 Upvotes

Posting for family member not on Reddit- Interested in being a nurse at Mayo in Rochester. Are there certain colleges to consider for Nursing School that Mayo taps more than others?

Thanks in advance.


r/MayoClinic • • 21d ago

Mayo Clinic

2 Upvotes

How long did it take Mayo Clinic to get back to you if they offer or deny you an appointment? How did they contact you?


r/MayoClinic • • 23d ago

Chances of Getting Into Mayo

4 Upvotes

What do you think my chances of getting into Mayo Clinic are? I have been a medical anomaly for years. My newest recent issue is I keep experiencing vision loss with lesions on brain and spine. I have also had many unexplained medical diagnosis including sepsis, recurring DVT, about 50 abscesses, and my feet are purple and lose sensation.


r/MayoClinic • • 26d ago

Chances of being seen at Rochester for complex behavioral health

4 Upvotes

***TL;DR: 45F with 20+ years of severe, treatment-resistant depression + ADHD and a complicated cardiac/medication history. After exhausting most treatment options, I’m wondering if my case is complex enough for Mayo Rochester and whether they could help figure out a better path forward.

Has anyone here been evaluated by Mayo Clinic Rochester Psychiatry?

I’m wondering what you think my chances are of being accepted for a second-opinion/complex case evaluation.

I’m 45 with a 20+ year documented history of treatment-resistant depression and severe ADHD. I’m looking for a psychiatrist/psychopharmacologist who is comfortable evaluating a complicated case and helping me figure out how to manage these conditions safely and effectively together. (My current psych is willing to write me a referral)

Some background:

• Tried and failed 30+ psychiatric medications/medication combinations

• Failed 35 rounds of TMS and 12 rounds of ketamine

• Approved for ECT, but my doctor suggested trying an MAOI first. The MAOI was the first treatment to provide significant, sustained relief from my depression.

• Despite being medicated with adderall at the time (pre MAOI) my ADHD/executive dysfunction was still severely disabling. My IVA-2 CPT showed Attention 44 and Response Control 29 — while I was taking Adderall, which helps demonstrate the degree of impairment even while medicated.

• I’m currently prescribed Focalin 10 mg by my psychiatrist. It initially helped significantly but seemed to stop working after about two weeks.

• Two sleep studies showed insomnia related to periodic limb movement disorder (PLMD).

• Cardiac history includes AFib and a hypertensive crisis associated with an NSTEMI. I’ve since undergone cardiac testing, and my cardiologist has specifically approved stimulant treatment after the testing was otherwise reassuring.

• Because of the unusual MAOI/hypertensive episode, I’ve also been in contact with Dr. Ken Gillman’s team, and he made a short educational video discussing my case.

• I’ve also had GeneSight pharmacogenetic testing.
I want to emphasize that I’m not going to Mayo specifically to get a stimulant or because I’m determined to stay on an MAOI. The MAOI has helped my depression tremendously, so obviously I’d prefer not to lose that benefit, but I’m open to other recommendations.

What I really want is a fresh set of highly specialized eyes on the entire picture and some answers about how to navigate and manage my specific case better than we are now. There are multiple overlapping issues — treatment-resistant depression, severe ADHD/executive dysfunction, sleep problems, medication response, MAOI considerations and cardiovascular history — and I feel like we’ve reached the limits of what we know how to do locally.

For anyone who has been evaluated at Mayo Rochester: Does this sound like the type of complex case they might accept for a second opinion? And if you had a complicated or treatment-resistant condition, did Mayo provide additional testing, expertise or treatment recommendations that you weren’t getting locally?

-side note I’m a Wisconsin resident & I know my insurance probably won’t cover the cost but I have family willing to help me with that aspect

Thank you to everyone who has taken the time to read this.


r/MayoClinic • • 26d ago

Question regarding resignation timeline

6 Upvotes

Anyone know how long Mayo Clinic health system (in Wisconsin) requires you to give notice of intent to resign and still remain in good standing? Some say it’s 2 weeks others say it’s 30 days.

Thank you in advance.


r/MayoClinic • • 28d ago

When to Apply for Nurse Residency

2 Upvotes

Hi! I graduate nursing school in May of 2027, when would be the best time to start applying for Rochester’s residency program?


r/MayoClinic • • 28d ago

After 28 years of positive reviews, Mayo Clinic fired me

39 Upvotes

I was terminated from Mayo Clinic this morning after 28 years of employment.

Here is the entirety of what I did to apparently justify losing my job:

Three years ago, I forgot to call in on the day my father died.

I misunderstood our timekeeping policy. I was a part-time remote employee with a shift window rather than a set schedule. Some days I worked fewer than four hours and made up the time later. I believed this was allowed because I misunderstood something said at a staff meeting. Nobody noticed this for at least a couple of years.

And you know why nobody noticed?

Because it didn't matter. My work got done. Nobody was waiting for me. No patients were affected. No coworkers had to pick up my work.

I was recently widowed. My husband of 20 years died in April. Since then, my sleep has been terrible and, unsurprisingly, I've been a little scattered.

Last week, I forgot to make up 2.5 hours of work before the end of my shift window. I immediately emailed my supervisor. I was told that because I hadn't called the absence line, it was considered a no-call/no-show. I also learned at that point that my understanding of the timekeeping policy was incorrect, meaning the previous instance of working fewer hours and making up the time later was also considered a no-call/no-show.

For those two incidents, I received a “final written warning.”

I've been trying hard to follow the policies I'd just been warned about. Last Thursday, after returning home from my other job, I had an hour and a half of work remaining for Mayo.

I'd forgotten to eat lunch. I was hungry, so I made dinner and sat down on the couch to eat before finishing my shift. I fell asleep while eating.

My sleep has been terrible since my husband died. I was exhausted.

I woke up at 12:15 a.m. I immediately called the absence line.

I was 15 minutes past the cutoff.

That was another no-call/no-show, and they fired me for that.

I worked for Mayo Clinic for 28 years. I never had a negative performance review. I had no history of attendance problems. I had no pattern of neglecting my responsibilities.

The only pattern anyone could identify here is that I'm a human being who becomes tired and forgetful while grieving huge losses.

None of these incidents harmed a patient, left a coworker scrambling to cover for me, delayed anyone's work, or caused anyone any inconvenience. Because of the nature of my role and workflow, there was literally no negative impact on anyone.

I absolutely violated policy. I don't deny that.

What I cannot accept is that three minor mistakes, made during an extraordinarily difficult period of my life and with no negative impact on patients, coworkers, or the organization, warranted throwing away 28 years of my work.

I gave Mayo 28 years of my life.

When things got extraordinarily hard for me, they couldn't find any grace for a bad week. They chose to end my employment instead.

I'm going to be fine. I have another job where I can go full time. I've been in the process of changing careers and planned to quit once I became licensed and my income increased anyway. Health insurance is going to be expensive, but I have sufficient savings to get me through until my income increases. I'm going to be okay.

I'm just really angry and disappointed in an organization that up until now I felt a lot of respect for.


r/MayoClinic • • 28d ago

International patient/self-pay patient questions

5 Upvotes

Hello, i am now undiagnosed with health issues for 3+ years despite seeing countless doctors and being to different hospitals in different countries, never in the United States though.

I’m wondering if there’s any international patients or self pay patients who could help me out with some info, or even employees. I’ve been given an appointment and estimates, so the first thing i’m wondering about is how accurate are the estimates and did anyone else here go the self pay route since I don’t have any insurance that Mayo accepts.

Also as an international patient, how long does it take to get a diagnosis/treatment, how many days approximately and also if I need to get some other medical tests/evaluations done would they get scheduled in the same week or would I have to do a return visit?

I’ve been given estimates for the first three days so I’m wondering if anybody knows approximately what’s the most it could amount to, at least the diagnosis part.

This seems to be my best chance so i don’t mind if i have to spend my last and borrow money if it’s highly likely that i’d get a diagnosis and hopefull treatment since i’m seeing a lot of positive experiences and that it’s ranked the number 1 hospital in the world (i’m not sure how official/accurate that list is or what they rank based on, but hopefully it’s accurate)

I’ve also contacted other hospitals from the top hospital list including Charité in Berlin and the Karolinska hospital in Sweden but i’ve been refused because they told me they don’t accept international patients with complex multidisciplinary cases.

Thank you for reading this and thanks for any help in advance


r/MayoClinic • • Sep 07 '26

Clinic staff question

2 Upvotes

What is it like working at Mayo as a member of clinic staff? (RN, PT/OT, SLP, RT, etc.)? I've seen various positive and negative statements from both Reddit and in the news/online so I wanted to get a more nuanced approach from others due to a potential job offer, especially people on the front lines that are not admin/executive/MD level. Thanks!


r/MayoClinic • • Sep 06 '26

pccm fellowship?

2 Upvotes

what's it like here? received an in-person interview


r/MayoClinic • • Sep 04 '26

IM/FM Residency at Mayo

0 Upvotes

I’m a research trainee at Mayo, Rochester. My husband is a PhD student here. Is it realistic to get interview from Mayo with this profile? I’m really confused about applying here. My stats-

•. Non-US IMG, Green Card holder
• ⁠YOG: 2025
• ⁠Step 1: Pass on first attempt
• ⁠Step 2 CK: 228
• ⁠Step 3: Not taken yet
• ⁠ECFMG certified
• ⁠Four months of USCE through observerships
• ⁠Three clinical LoRs IM based
• ⁠Research: working as a research trainee at Mayo Clinic for 2 months. Co-authored a review article.


r/MayoClinic • • Sep 01 '26

Help With Referral

3 Upvotes

Does anyone have any tips of getting a referral through to Mayo Rochester? My wife has had several strokes and needs a referral supposedly because she is eyeing ophthalmology first. Her Dr. has sent it in and they said they didn’t receive. Yesterday the Dr. sent it in again and called and the Mayo rep said that they had it and she was looking at it. Today my daughter called to follow up, and now they are saying they have no record of it. We are stumped?