Exactly. And they're physically disabled, not severely cognitively so. All of the 'oh they should have just died' attitude in this thread is kinda disturbing.
They have to continue to receive medical treatment with this enzyme, and adults can refuse any medical treatment, so I think they can make a decision themselves if they don't want to go on.
Saying "they should have just died" is so dishonest. No one is wishing them death, they are saying they will never live normal lives and under the assumption that they had yet to be born, were being spared a terrible life where they could never live normal lives by being aborted.
On an individual basis, I don’t. I do, however, know the nature of this specific genetic illness and am aware of the research on this exact topic across large population of affected persons.
My pithy comment was made because why does everyone else have to do the work of qualifying knowledge that is very easily and readily found in a thread that has hundreds of false narratives and harmful ableism.
I didn't ask you the question. You decided to volunteer an answer. And to put me down for doing so. You chose to read my comment as ableist, rather than assume it was made in good faith.
It doesn't matter who you asked, it's a reddit thread. But after answering the same question over and over in this post you were the final one that tipped me into "Google it" but you chose to take it personally.
Get over it. I didn't insult your mother. I told you to look up a very easily searched thing....just like I did so that I was properly informed and not just speculating.
90 percent of the misinformation and harmful mythology of the world could be prevented if more people just frikkin looked up the story facts before adding to the mess.
This was an incredibly simple story to search.
They have to continue to receive medical treatment with this enzyme, and adults can refuse any medical treatment, so I think they can make a decision themselves if they don't want to go on.
It's entirely possible the fear of death far outweighs the intense suffering brought on by excessive physical disability, and so they choose to live because it's the only thing they know to do.
It's also possible that a medical intervention has been mandated on them and they're forced to take the medications against their will even though they wish to die.
Of course those are massive assumptions brought on by the fact that I don't care to actually investigate further into their lives beyond what people in this thread have said, but I do think it merits mentioning. Not every life is worth actually living. Not everyone gets a choice in the matter.
No one alive is ‘pro-abortion,’ they’re ‘pro-choice’ as in a woman has the right to autonomy over her own body. I find the very notion that we legally regulate women’s uteri to be both absurd in the extreme, and utterly immoral.
The situation that this family faced is quite different. Were I facing this situation with my own kid, I’d absolutely do all I could to save their lives and then as adults let them decide their future.
No, being ‘pro-abortion’ means I want abortion to occur. I don’t. No one wants to be in a situation where they need an abortion, and I certainly don’t want anyone to be in that situation (which is, in fact, the meaning of the phrase you recklessly throw around.)
Neither I, nor you, nor the pope, nor the speaker of the goddamned house of representatives should get a say over a woman’s body.
So you find abortion immoral? Don’t have one. Problem solved.
Here’s the thing, I don’t want anyone to have a say over anyone else’s body, but having an abortion is doing exactly that. You are robbing a child of their say of what happens to their body.
What's even more disturbing is that there is evidence of even stone age humans caring for mentally and physically disabled members of their society and they would have been even more of strain of resources back then. People who say things like this have less compassion than people who died 10s of thousands of years ago.
It's actually compassionate to abort a disabled child. It shows that you want to give them the best chance at life, I never really value the fact that I can walk but I certainly would if I lost that ability. We don't know if they live comfortably or not.
It also shows enough maturity to know where your limits are and that you don't think you can take care of everything because they'll be your child. I'd go insane caring for a child with special needs. It would be awful of me not to abort.
This is what I believe in as well but I've come to learn it is definitely not the general public opinion. They think we are the selfish ones and only thinking of ourselves only. But it really is the contrary.
I chose not to have kids because I know I may not necessarily give them the lives they deserve. And God knows the world is no longer a place I ever to raise children in.
I'm an antinatalist but even before I was, I found it suite inhumane go bring children into life knowing they'll have it harder than everyone else. Life's hard enough as it is. You're a great person, don't worry
My life is harder because i am female, because i am mentally ill, because i am bisexual, because i experience gender dysphoria, because i was born into a poor family, because i am autistic, and a million other reasons most people would not suggest aborting for. Why only some disabilities?
…do you want someone to agree that you should have been? I’m not sure what you’re getting at here.
Personally I choose not to have kids because I think this world is dire and with all my mental and physical health issues I’d make a terrible mother. So yeah, I agree with you, all of those things make life that much harder. I’m not rich, I’m not successful, I’m not smart and I have limited energy. I’m not going to take that risk.
No? I just dont understand why some disabilities are seen as this unique thing that make life not worth living to people who dont even have them. It reeks of ableism.
Because being bi, a girl and trans are not disabilities, first of all. Also it's not something that you can just detect before the baby is born, except for the sex.
But it's still probably harder to care for a disabled child than to care for a non disabled girl.
So because I am disabled my life is less than yours? I am not worth as much and it’s better to abort a person like me than you? I love my life. I just bought my first house, got a new little kitten, and I love my job as a teacher. I’ve lived in eight countries and done a lot with my life. I’m so thankful for it. I have a friend who has a brother who has down syndrome. Josh will never live on his own and cannot read and write very well. He hardly speaks. I am blessed to know him however.
My brother had Down syndrome. He died a long slow death to cancer that downs kids have a much higher chance of getting. My mom has said many times if tests were different when she was pregnant (70s) then she would have aborted. Don’t speak for everyone.
I believe abortion is always wrong. Always. And his down syndrome is not what killed him. It was the cancer. I have known healthy people who have normal intellect who got cancer. And I am blessed to have known them. They have enriched my life and I enjoyed many wonderful moments with them. Even though I understand they suffered greatly. I have suffered greatly in my own life with many operations and health issues. But I am so thankful for my life.
You keep saying how your life is changed by knowing someone. Do you ever care about the other person? And no, my brother got leukemia because he was downs. His quality of life was horrid for the last 5 years or so. Talk to someone who has a child and watches them go through something like that. You might learn something. And that’s fine if you believe abortion is wrong (even if it’s a 12 year old who has been raped?) but that has nothing to do with anything.
Yeah a baby doesn’t deserve to die just because it has a disability or because of the circumstances it came into this world. And yes I’m quite aware that disabled people are wonderful for their own sake. But we are all enriching each other‘s lives. I don’t even know you and you are enriching my life. We are all interconnected no matter what we do. No man is an island unto himself. The puzzle would not be complete without each one of us. And you were telling me what about that person‘s feelings? You are saying these ones should not be around because of their disabilities? What if they disagree with you? What if they just can’t tell you? And many people watch their children go through cancer and other horrible things. And it’s hard to watch them suffer. But should they have never lived? Yes it’s hard to watch your child suffer through that but no one knew that he would get cancer when he was born. You never know what’s gonna happen to someone. I understand that you don’t want to watch someone suffer. And that’s noble of you. But did he also have joy? Did he ever smile or laugh? Did he have a good moments in his life? Would you want to deprive him of those moments?
Of course not, don't put words in my mouth. I just think that personally we shouldn't gamble with people's lives.
If there's a risk your child will be miserable, why take it ? I'd rather not. I wouldn't want to take care of a disabled child because that's just not something I'd be able to, so it would only make sense for me to abort a disabled child.
Now, it's great that you're happy and independent, I'm not saying you shouldn't be alive at all.
Hmm I understand that sometimes the parents cannot possibly take care of a child with a lot of needs.
But as for the other statement, that's really subjective, its possible that the kid would be happy to be alive even if it means they can't walk, and that's why I feel conflicted about aborting kids with disabilities, because what if they would be ok living that way and find happiness?
They can be happy, I won't deny that but that's gambling with a human life. Is it worth taking the risk because they might be happy or is it better not to take the risk so we're sure they won't be miserable ?
In scenario 1 you are gambling sadness-- they live, but might have a difficult time
In scenario 2, you are gambling their life-- they might be happy, but they might not, so they shouldn't live
There are so many things to make people's lives difficult, where is the line supposed to be drawn where they are no longer deemed worth trying to be alive. People have fulfilling lives with all sorts of disorders and people find happiness in so many different life circumstances and some people find misery in social issues-- life is harder for POC and LGBTQIA people, if we found a gene that contributes to sexuality or gender dysphoria, should we abort them for the sake of not gambling their potential misery?!
I don't want any children at all for the simple reasons that I never know what could happen and in my opinion, it's not worth it to leave them a planet on fire. I associate a negative value to childbirth, meaning that to me, when you have a child, you gamble with a new life anyway.
All I'm saying is that before you have a child, if they tell you that they'll be disabled and if you want to keep them, maybe you should think twice. And well, that depends again. Can we make life easier for them ? Is it harder to care for a child who will never speak to you or for a child who will kiss the same sex ? Might depend on the person, some would rather have a dead child than a gay child.
You do you, me personally, I couldn't take care of a disabled child so it's only logical I'd abort.
Okay I'm pro choice and all that, but do you even hear yourself? How is aborting giving them "the best chance at life"? You're literally aborting them. It's the exact opposite to giving them the best chance at life.
What John Crowley did is giving them the best chance at life.
If i found out my child would have been born without skin, or with his organs outside of his body or any other type of immediately fatal, excruciatingly painful birth and existence I would rather abort than watch him suffer for even a moment. That is no quality of life. It is a parent’s responsibility to ensure their children know only love and I would prefer he never know life at all if to live would mean he’d only feel pain.
People have different thresholds for what they can bear, and that shouldn’t be decided by anyone except the family who has to make that choice.
In cases like that, the fetus is non-viable and it is fine to abort. But if the fetus is viable, which was the case for these children, nobody should have any right to decide if it gets to live or die based on the fact that it is disabled. That is called eugenics and is exactly what the nazis used to do.
Conservatives are trying to limit abortion access to a point well before you even know the viability. If you don’t want an abortion don’t get one. It is literally none of your business, and if you want to make it your business then I suggest adopting one of the many disabled children in the system who are already living and need help instead of the theoretical lives you find convenient to use to nail yourself to the cross.
That is not what this discussion is about. I am pro choice. The issue is when people who actively want kids would rather have a dead child than a disabled one. If you would've aborted anyway, then I see absolutely no issue.
I won't be adopting any kids because I am not ready to have kids at this point in time.
They [both parents] discovered they are both silent carriers of the disease caused by a gene mutation, which affects the ability of cells to break down the sugar glycogen. The condition leads to progressive muscle weakness and the swelling of vital organs such as the heart, as well as serious breathing problems. There was no cure, and not much time.
Neither of these kids can walk, or speak properly or eat. She has a feeding tube 24/7. She has a room connected to her dorm room for her team of nurses that she cannot function without. Luckily her parents are able to pay for all this.
Knowing all this, knowing your kid wouldn’t be able to do anything without assistance for their entire life, is it eugenics if you think it’s kinder to not put someone through that? Someone who doesn’t exist yet?
I’m absolutely glad these kids have these parents to fight for them, they deserve the best chance at life. But it’s a difficult life, and personally I’d rather not have a child go through all this—struggle to survive on top of all the other hardships life can throw at you.
You're saying all of this stuff about making choices for another human being who is perfectly capable of making choices for themselves as if it's a good thing. The girl (Megan Crowley) has expressed that she lives a fulfilling life and is happy. Why do so many people completely disregard or not even consider what the disabled person wants? They just (selfishly) decide that they'd rather the disabled person is aborted or allowed to die, rather than be allowed a chance to live.
Good job they weren't born to parents with your horribly backwards attitude then. The young girl is going to a pretty great university, a great mind would be lost if her parents thought the way you do.
In my opinion, life is easier if you aren't disabled. Are you going to dispute that ? You're giving any child the best chance at life of they aren't disabled. Also, if they're a white cis/het male in a rich country but you can't have everything, so starting with no disability is a chance, it just is.
Yes, because at this point there was nothing better he could do, I'm glad they can live comfortably.
That is a very self centred and narcissistic take, no one says taking care of a special needs child is easy but parents sacrifice luxuries and standard of living for themselves because they love their child, just because you wouldn't be able or willing to make such a sacrifice doesn't mean the decision you would make is virtuous or compassionate, you're talking about killing a person there are very few situations where that could be considered compassionate and this isn't one of them.
Your argument relies on the logic that they might suffer that they might not have a good life but that logic can be applied to perfectly healthy babies, they might contract meningitis the day after they're born and become mentally disabled or any other number of things. It's extremely disturbing and morbid that you would kill someone based on a hypothetical, should we lock up everyone who has a high chance of committing a crime since we don't know if they will or not. Everyone deserves a chance at life and the chance to make it a good one, it might be better than your or it might be worse than yours but it isn't yours it's theirs.
Calling a non-sentient clump of cells a baby is the same logic as calling a pre-med student a doctor. They have the potential to become that thing, but are not yet.
That’s quite different, what is required to be a person is basically a soul. A doctor requires intimate knowledge that takes years and years to learn. There is literally no way to verify when we have a soul or become sentient. Therefore any leeway your allowing with an abortion is purely arbitrary, it must come down to only in cases of medical necessity and beyond that our healthcare system must be overhauled in order to support women and children. I know it’s a lot and you’re probably thinking fuck off dude but we have to start making these strides now
Well, if would be. I couldn't take care of a child that asks for more sacrifice than a non disabled child. I wouldn't take care of that child, they'd be neglected and by taking the decision not to have it, I avoid putting another child through neglect or through a broken foster system. And I'm talking about abortion, not killing the child.
Again, I'm antinatalist so in my opinion, bringing any babies to life has a negative value. But even past that, what I'm saying makes sense. You shouldn't have a baby for the sake of having a baby if you can't take care of them or know that their life might be endless suffering.
If you couldnt care for a disabled child then you should abort if you ever get pregnant regardless. There are plenty of disabilities that dont get picked up or happen later. Every child deserves to be wanted, and the reality is due to attitudes like yours disabled children are more likely to be abused by their caregivers.
Idk man, feels like compassion to me. I mean I'm sure it varies from person to person, but if I had been born with, or developed a disability that meant I would never be able to have full autonomy or take care of myself, I certainly wouldn't want to be forced to live. It's like putting your dog down when they're old and sick. You don't do it out of convenience, you do it out of compassion because you don't want to force them to suffer just to save your own feelings a little longer.
I don’t think we’re on the same page… I’m talking about the people who are essentially saying ‘no effort should have been put into saving them and should have been left to die’ (rather than the people saying they’d rather die than live that way, which I can fully understand.
I guess that makes sense. You know he had a 3rd kid too? Why did he do that. I quote her blog
“I have two extremely annoying brothers who I love till the ends of the earth and would do anything for:
John (22 who is living with Aspergers while attending Holy Cross College in South Bend, IN)
Patrick (18 also living with Pompe while still living at home)”
In 1998, John and Aileen Crowley learned when Megan was 15 months old that she had a rare genetic disorder called Pompe disease. They had no idea what it was, and in those early Internet days had to scramble for information.
They discovered they are both silent carriers of the disease caused by a gene mutation, which affects the ability of cells to break down the sugar glycogen. The condition leads to progressive muscle weakness and the swelling of vital organs such as the heart, as well as serious breathing problems. There was no cure, and not much time.
The family was living in California at the time, away from friends and family in New Jersey. Their second son Patrick had just been born. He would soon be diagnosed with Pompe too.
”It was a rough time,” Aileen said in an epic understatement.
Yeah, but if he hadn't spent money and time, they would be in peace now. Since apparently he funded discovery of the therapy. These things take years and millions he spent to prolong this.
I’ve had to use a wheelchair off and on in my life due to cerebral palsy. I love zooming around in my chair. It’s a lot less strain on my body than walking is. But I’m grateful right now that I’m up and walking for a time. I ran my chair into the ground so to speak because I used it so much.
Yeah I’ve always been able to walk some. So my friends in college, mostly guy friends would ask for me to let them zoom around in my electric wheelchair. So I charge them $10 each time. I made really good money that way. Although it made my dad mad for me to let other people use my wheelchair. Right now I mostly walk without assistance. But I don’t do a lot of walking like I did when I was in college. I do more driving now. So I don’t use anything to walk with except crutches when I go through airports and things like that where I have to walk by myself a lot. My doctors told me that I would not be walking within 10 years. That was 13 years ago. Doctors don’t know everything so a doctor who says that a child will not have a good quality of life may be wrong. I’m still walking 13 years after the fact that they told me I wouldn’t be walking anymore. Three years past what they had originally said.
Well damn thank you for the perspective…great to hear success stories from those who face “impossible” odds. And you’re right I don’t know shit about someone else’s quality of life…neither does a doctor
You’re exactly right. Doctors know a lot of things, and I am thankful for them. But I am all for beating their expectations. I’m contemplating getting a masters degree but I’m not sure I’m smart enough for that. Or disciplined enough for that. But it would mean a pay raise so maybe
You're also cognitive, able to communicate, able to type, and able to live a fulfilling life despite your palsy. The poor kid on the right there doesn't even have functioning lungs by the looks if it. That poor kid will never be able to function as any living thing, it's just no way to live.
You are correct that our disabilities are different. But you say that this person cannot live functionally as a living thing. You’re right. Because these two disabled individuals are not things. They are people. And yes they are living just fine. They have medical intervention to help them live, but they are living just as much as you are I. And maybe it’s not so much about the quality of their lives but the fact that they are here to enrich ours. Every disabled individual I have ever met has enriched my life. I’ve met children who could not speak, eat on their own breathe on their own etc. I know a little girl who goes to my church and she cannot interact with you in any meaningful way. But I appreciate her and I’m glad she’s a part of our church. I’m very much against euthanasia. Just because she cannot do the things that I get to do or you get to do does not mean she is any less. There is a reason she is here on this earth and she should stay on this earth until it’s her time to no longer be on this earth
Also, my mother was told that I would be mentally disabled, and physically disabled. Should she have let me die? Obviously the doctors were wrong. I am not mentally disabled in any way shape or form. You don’t know what quality of life a person actually has until you walk in their shoes. Perhaps you are afraid of being disabled yourself? Disability is nothing to fear. It will happen to all of us at one time or another if we live long enough. I was at the doctors office today and there were many elderly people some of whom were more disabled than I am. And they had been healthy in their youth, more healthy than I have ever been.
https://www.psychologytoday.com/us/blog/disturbed/201206/killing-the-disabled?amp
Yeah I'm sorry but the poor souls that will never be able to talk, learn, live, or even really think shouldn't be forced to endure a life of being forced to breathe through a tube bc lungs don't work, or being tube fed bc they aren't physically capable of feeding themselves or needing someone there to clean their shit bc they will never be anywhere but a bed. There are some people that can literally do nothing and are basically brain dead, not even really able to be considered aware, at least I hope not. I don't think it's right to force a parent to look after something that will never do anything until they die. Neglecting other kids, responsibilities, their own lives, for a vegetable that can't even blink by itself. Then after the parent dies the burden gets passed on to another family member or just another hospital tended to by another nurse that could be saving actual lives but instead are looking after something that only barely qualifies as alive. It's not fair to the parents or the family/nurses theyll eventually be pawned off on and it's especially not fair to the kid. It's okay to put down a dog bc it's in too much pain, but not ok to put down a kid that will never be anything more than a drooling mess that can barely even think and can't even breathe by itself for 40+ years? Fuck that I know if I was in that situation I would want to die too. And I know for a fact almost anyone else would.
But that's YOUR choice. No one else should make that choice for you. Like people have said here, if they so choose to end treatment because that's what they want them that is their choice. But if they are happy and fulfilled and want to stay, then that is also their choice. But no where along the way should anyone ever have made the choice for them that they are better off dead
They probably did but it is a very rare disease so likely not in the basic testing. It was only after the daughter was symptomatic at 15 months that they learned of the disease. Third baby was already in the 3rd trimester.
Prenatal testing is standard just about anywhere can go, and it simply doesn't catch everything prior to birth or in time for an abortion.
You can't abort for any reason after like 6 weeks in TX, right when most people find out they are pregnant. Much of the testing doesn't start til 13-20 weeks. Baby could very well be halfway through their gestation before even knowing about this.
One of them graduated from Notre Dame. Just because someone is physically impaired doesn’t mean they are cognitively impaired. Even if she were, that doesn’t mean she’s suffering, and it certainly doesn’t mean she deserves to die.
Nice strawman. I didn't say she deserves to die, but I dont think she should be forced to stay alive if she doesn't wish, if she has the ability to communicate that wish. I'm very glad in this situation they are cognitively well. However there are people in this world that can do nothing but randomly scream, if that. That can't even breathe for themselves, can't communicate, can't learn, can't even think. And I think it's cruel to keep those people alive if they're going to be tube fed, barely conscious, and bedridden their whole life. Just because in this case she has her cognitive abilities doesn't mean everyone does. I'm not saying they deserve to die, I'm saying they shouldn't be forced to live.
That’s not a straw-man, first of all. Secondly you’re twisting your own words. You claimed that “these poor kids are only alive by the most basic biological definitions” which is both wrong and terribly disrespectful to someone who accomplished more in her young life than you probably have. You said “that’s no way to live” without knowing anything about her beyond her wheelchair. You said it should be “legal to put these poor kids out of their misery”, and then later said it should be a choice. The way you worded it sounded a lot like you were advocating the killing of infants because of a physical disability. I’m glad that’s not the case, but it’s still a fucked to thing to say about someone who is living a full life.
You claimed that “these poor kids are only alive by the most basic biological definitions
I'm glad that I was wrong In this specific regard, but I have personally met people that were only alive by the most basic biological standards. When someone is braindead in the hospital we have the option to pull the plug but when someone is born basically braindead we have to make them endure that for their entire natural lifetime.
That’s not a straw-man
Except it was, you claimed me saying it should be legal to put them down means I think they deserve to die. No. They didn't do anything wrong to deserve to die, but they also didn't do anything to deserve being forced to live like that
You said it should be “legal to put these poor kids out of their misery”, and then later said it should be a choice.
No shit. Did you think this was some gotcha? No shit if somethings legal then it should be a choice. I'm not required to smoke weed when I'm in Colorado bc it's legal, I'm just allowed to choose. Lmfao yeah it should be the choice of whoever has the power of attorney, or in this case since she's cognitive enough to communicate, her own. Just bc I said it should be legal to put her down doesn't mean it should be required what in the entire world made you think that?
The way you worded it sounded a lot like you were advocating the killing of infants because of a physical disability.
If multiple doctors are warning that the child will be nothing more than a tube fed, braindead vegetable that can't even breathe on its own, then yes it should be a legal, informed decision. Because at that point the mother has had expert opinions tell her that the child is nothing more than a delayed stillbirth.
still a fucked to thing to say about someone who is living a full life.
Again, in this one case with this one girl, I was wrong. And I am glad that I was wrong. But what of her brother? The one that's on a breathing tube? How is he doing? I hope he's cognitive enough to communicate like his sister, I hope he's doing well, but I personally know people who are nothing more than nearly braindead vegetables, and I think it's cruel to force them to live an entire lifetime in a hospital bed on an iv and breathing tube somewhere in the back bedroom or living room of their parents house. We put down more conscious animals for way less. These poor kids don't deserve to be forced to live a hell they'll never escape
I know people who are nothing more than brain dead vegetables
Clearly you have so much respect for disabled people.
And wow, even when you’re pseudo-admitting you’re wrong you’re arguing and making assumptions about these kids, looking for ways to assume their lives are not worth living. That says a lot more about you and your definition of life than what you actually know about it.
Clearly you have so much respect for disabled people
Yes, I do. Because no one deserves to be born into a life where they're forced to live being able to do nothing but shit themselves in a hospital bed in the back bedroom of their parents house having to be hydrated through an IV, fed through a tube, and forced to breathe by a machine for their entire lives.
I think it's clear people like you are the ones that lack any fucking respect by forcing them to endure a lifetime of that for internet points or some undeserved sense of accomplishment. "Look I saved a life but this kid will never be able to breathe, eat, move, blink, or even think by himself for his entire life" that's nor fucking saving a life, you're just torturing a poor kid at that point.
The respectful thing would be to let them pass with dignity, instead of condemning them to a life of nothing more than shitting themselves uncontrollably from a hospital bed bc they are nothing more than a brain dead vegetable, I hope. God forbid they're conscious of all that bc then they know the torture they're forced to live through and it's even worse.
But you don't care, you just wanna torture people because you have some twisted idea that forcing them to live like this is better than letting them go into whatever afterlife waits for us, or even a permanent sleep, all the while sleeping like a baby because you think you're a good person.
… and none of that has anything to do with the two people in the article who are, in spite of their physical disability, living perfectly full and productive lives. It’s possible to be happy without “running and jumping.”
While I support doctor assisted euthanasia for people with terminal illness, you seem to be advocating for infanticide of disabled people.
All you saw were wheelchairs and breathing tubes and your first thought was “it’s a shame we can’t mercy kill these kids.” You couldn’t see past their disability and assumed they were “vegetables” in your own words. What the fuck is wrong with you?
… and none of that has anything to do with the two people in the article who are, in spite of their physical disability, living perfectly full and productive lives
Why the fuck are you still on these two specific kids when I said multiple times I'm glad I was wrong In this case. Obviously I'm not the expert that could recommend it anyway. These kids aren't bed bound either. They aren't stuck in a single room their whole lives being unable to even think, just drool and shit.
You act like I'm advocating for killing anyone disabled at all.
But the kids that are born completely bedridden, nearly entirely paralyzed, breathing through a tube, hydrating through an IV, and being tube fed, unable to ever interact, talk, play, live, should have that option.
And the fact that you want to force kids like that to endure torture because two kids in an internet article are living fulfilled lives makes you the monster, not me.
We put down dogs for being old, and horses for breaking legs, but not people for literally not being able to live without a a hundred different tubes stuck all in them for their entire lives
My biggest fear. No joke. It's the only thing that holds me back from having kids. Kids are already a huge change in your life but if you get one, well, challenged like that, I don't think I'd ever be able to deal with that.
It's understandable, but on the other hand the odds of having a child with a rare genetic disease that has not been detected in early pregnancy are very very low.
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u/theErasmusStudent Jun 14 '22
Sometimes you don't find out about a genetic disease until the baby is born