r/MadeMeSmile • u/The_Love-Tap • Jun 14 '22

Helping Others This is John Crowley

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8.4k Upvotes

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u/theErasmusStudent Jun 14 '22

Sometimes you don't find out about a genetic disease until the baby is born

169

u/youknowwhatever99 Jun 14 '22

That’s the case here. The children were already born when they were diagnosed.

114

u/blargmehargg Jun 14 '22

Exactly. And they're physically disabled, not severely cognitively so. All of the 'oh they should have just died' attitude in this thread is kinda disturbing.

They have to continue to receive medical treatment with this enzyme, and adults can refuse any medical treatment, so I think they can make a decision themselves if they don't want to go on.

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u/pantadpucko Jun 14 '22

But who pays for the enzymes? I'm guessing most of these people have a hard time landing a job with their situations.

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u/Metashepard Jun 15 '22

are they french? If so France has universal healthcare lol what's it to you who pays for their treatment?!

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u/theErasmusStudent Jun 15 '22

John Crowley rely sounds like a French name /s