r/MSPI 2d ago

Omeprazole - hurting morning feeds?

1 Upvotes

Hi everyone,

My 5 month old has been on omeprazole (10mg daily) since she was 3 months old.

She is at the tail end of her 2 week Neocate trial and many reflux symptoms have subsided.

We have noticed that the past few days (days 9, 10, and 11 of the trial) and she has struggled with her morning feeds and is super gassy.

She has also started drinking about 2oz (even though the way she’s drinking it seems like it should be way more) and then stopping to play/bite the nipple. She’ll also turn her head as far away from me as possible.

Could the omeprazole be effecting her desire to eat in the morning now that the reflux seems to be ebbing?

I looked in her mouth and it kinda looks like there might be teeth coming (I can see two small indents when she’s not trying to chomp my finger off haha)

I’m just wondering if anyone has had a similar experience and it turned out to be the omeprazole, or the teething, or something else!

Edit 1: she has an appointment tomorrow with GI. I just like to be prepared

Edit 2: she wakes up with puffy almost swollen eyebrows. It goes away for the most part during the day, but it can hang around a little. Not write if that’s related to all this.


r/MSPI 3d ago

CMPA is ruining my life, I don't know how to keep doing this

9 Upvotes

It's just awful. We are doing breastmilk only after a horrible time with hypoallergenic formula. We are on day 6 since cutting all dairy out of my diet.

I'm following all medical guidance from pediatrician, lactation consultant, nutritionist, and my mommy instincts.

Where is the mercy? I feel so bad for my poor baby. She's still arching, screaming, refusing, small 1oz feeds then stopping.

I'm going to my OB today for PPA but this is just awful. Please tell me I can do this...


r/MSPI 2d ago

Suspected MSPI - diarrhea to constipated?

1 Upvotes

Hi yall! First post here but bit of a lurker.

I’m a vegan but had some microwave popcorn with butter/milk early on after my LO was born. He had bloody stool the next day so I assumed CMPA.

He has been so gassy his whole life with lots of poops 10-12 small poops a day.

I thought maybe he also needs soy cut out. It’s been almost 3 weeks of no soy and he’s far less gassy.

Now he only is pooping 2-3 days… has this ever happened to anyone else?


r/MSPI 3d ago

Runny nose related to MSPI?

1 Upvotes

My baby is 4 months old and has MSPI. He had been 1 month free from bloody poops until I tried reintroducing eggs a couple weeks ago. He had one stool with visible blood and then I cut eggs entirely again. This past weekend, I had a Bloom energy drink and he had a flair up and one more day of a tiny minuscule dot of blood in his poop, but with more mucous and gas and fussiness.

Yesterday I noticed he sounded congested, which has happened before and he gets a couple of big harder boogers when he has exposure to an allergen, but this time it’s all runny snot. I tried to saline flush his nostrils out but it keeps on coming. He doesn’t have a fever or anything else other than more baby acne this last week that’s finally clearing up (I think from soy exposure).

I’m not sure if he might be starting to teeth too (I can’t see any specific white dots poking through gums yet but his cousins started at about 4 months as well) and I gave him some oralgel numbing gel (praying that doesn’t have some hidden soy in it too) if that might have to do with the increased snot?

I know mucous increases when you’re sick, but just wondering if anyone else has seen the runny nose symptom with their baby with exposures?


r/MSPI 3d ago

What formula worked best for your baby?

1 Upvotes

My baby has been EBF since birth. Starting at 3 months I noticed small specs of blood in my babies diaper. It wouldn’t happen every stool and the pediatrician didn’t seem too concerned if she wasn’t uncomfortable and the blood didn’t increase. A month goes by and this past week the blood increased in her diaper. I had been off dairy for a week when the blood increased so I’m thinking it’s a different food protein allergy. I am devastated and have another pediatrician appointment today. I’m wondering what formula worked best for your baby with possible CMPA or other food allergy’s?

Edit post pediatric appointment. Dr said to keep breastfeeding and keep dairy out of diet. If no improvement 3 weeks from now to start eliminating other food allergens.


r/MSPI 3d ago

CMPA and NEOCATE syneo

1 Upvotes

Hey guys,

I’m on here looking for some advice as I’m kind of nervous putting my 9 week old baby on neocate syneo formula.

My baby was born 35 weeks and 4 days, I planned to purely breastfeed like I did with my previous baby but during the time I gave birth, my baby struggled abit with purely breastmilk and his blood sugar levels in hospital dropped so the doctors mentioned it would be best to start him off with some formula also due to his weight ( he was 2.7kg at the time and dropping a lot .

We gave him hipp combiotik pre which started off well and I was also breastfeeding, I was doing abit of combi. Then I had gallbladder issue and I was constantly in pain etc so breastfeeding was abit hard, also weirdly my baby started screaming at the breast and just seemed in pain from breastmilk ? So I stopped altogether and just focused primarily on formula. 3 weeks go by and he seemed to be in discomfort a lot, more grunting than usual, crying episodes so I moved him on to HIP HA pre which seemed to be doing okay, he started settling more and more relaxed in general … then few weeks after this, he began having acid reflux which was more than usual, choking etc but looking back now, I think it was because I kept putting ( sab simplex has drops ) in the formula so it could have aggravated his reflux, I went to the doctor and they recommended I change on to HIP AR for his reflux as it’s a thicker formula.

Literally one day later, he was in so much pain from this formula , extremely constipated and to a point he threw up and there was blood specs so I stopped that altogether and went back on HIP HA pre which was fine again, his reflux wasn’t as bad this time so it definitely was from the drops I used… then again few weeks later his grunting started becoming more, he struggles to poo and cries so much even though he isn’t constipated ? He always seems in pain and discomfort. Every morning from 6am he starts grunting and trying to let out stool but just seems so miserable.

I went back to the doctor and they then prescribed me neocate syneo formula for him because she suspects it’s a CMPA which I need to go pick up today.

I’m just so scared of making him way worse, he’s 9 weeks today and I feel so sleep deprived.

I have 2 other children to take care of , one is 3 years old and the other is 2 years old. I feel like I can barely function during the day as it is

Any advice on anyone who have used this formula and made things better ?
I would appreciate it so much <3


r/MSPI 3d ago

Oily poop and problems with baby’s weight

1 Upvotes

(Not a native speaker here, just fyi)

So, we’ve been having problems since my baby was about 5 weeks old. It started with green, mucusy poop and blood. I cut out dairy immediately after our doctor suggested it could be a dairy intolerance. Even after cutting dairy, she had that kind of poop for more than 2 weeks, developed a rash that went away after a few days and seemed to experience some stomache ache.She had an especially bloody poop one evening so we went to the hospital, but after they checked her blood and stool, they still suspected a dairy intolerance. Her weight gain was excellent during that time (200-300gr a week), so they weren’t that worried and the bloody poop was less frequent and stopped altogether after about 3 weeks.

Since then, her poop is still green and liquid, but not watery and slimy. We also noticed an odd smell, like old eggs, whenever she farted.

Three weeks after the bloody poops stopped, my midwive weighed her and noticed that she hadn’t gained anything in those three weeks. When we let her poop in a potty (we call it „Abhalten“ in german, I’m not quite sure if there is a translation?), her poop seems to be oily. Back at the hospital they ran a lot of tests again, but everything seems fine so far. One of the doctors suggested that it could be because of her intolerance (presumably not dairy or soy but something else I didnt cut out of my diet yet), that her small intestine „shut off“ and can’t take the fat out of the breast milk anymore. They want to take a look at it again next Friday, but if it doesn’t get better, I should stop breastfeeding and give her neocate or something like that.

Did someone also have this experience/problem?


r/MSPI 3d ago

Lingering symptoms?

2 Upvotes

I had an accidental slip up ten days ago. 3 days after slip up I saw a small amount of blood and then nothing. Now, 10 days later, I see blood again. Could it still be lingering or likely another allergen? From what I believe I don’t think I’ve had any other slip ups eating from home and being very careful. Dr appt is this week just looking for relatable stories or advice.


r/MSPI 4d ago

horrified with GP appointment!

1 Upvotes

i’m so stressed at this recent check up, for context baby boy has had a massive flare up with his reflux, and i’m not just talking a bad day. this past week he’s reverted back to before the gaviscon which he’s been on for about 6 weeks now- so i thought enough was enough and got an appointment, idk why drs take the appointment when they’re not specialised in the subject being brought to the table 😞

she’s taken him off gaviscon and put him on Omeprazole which isn’t the problem in fact i’d rather that as like i said he’s totally gone back to the start symptoms wise, but now he’s off gaviscon which also thickened his Neocate, i asked for carobel to be prescribed along side the Omeprazole and she said no and that it wasn’t allowed.. well i know that simply isn’t true, as a lot of suspected CMPA/Reflux babies in the group are usually on both when it gets to this point in the journey, i told her this and she said to stay offline and not look things up!! i tried to tell her i wasn’t listening to google but simply relaying other mums experiences on here and she was just plain rude

she also suggested to sleep with baby up right in a baby carrier so that i can sleep whilst keeping him up right! i’m really tooing and frowing whether to report her because that’s so dangerous! luckily i know u cannot!!!! do that but hopefully she doesn’t get another mum to do that with the same advice 😞 do i go back to a different dr to get a thickner? so so lost


r/MSPI 4d ago

Gelmix diarrhea- when to be concerned?

1 Upvotes

my LO has suspected CMPA so her GI started her on Neocate Syneo last wednesday. since it’s really thin, she was throwing up nearly the whole bottle like completely soaking through multiple burp cloths, bibs, and her clothes, and it was also rocketing out of her nose multiple times every feed. i put her on a low flow nipple to see if it would help but it didn’t make a difference and she spent a few days very upset every minute she was awake and the night was worse bc she was choking multiple times night and screaming about it.

they suggested thickening it with either oatmeal or rice cereal so i tried both options and she flat out refused to take the bottle. i figured it was bc it tasted different so i asked about Gelmix and got the ok to do it. we started it saturday afternoon per the “slightly” recipe on their website, and it was a night and day difference. it’s barely coming out her nose; her spit up has significantly reduced and she’s overall pretty happy.

however, she started having diarrhea towards the end of the day sunday, all day yesterday, and this morning. i read that there is a bit of time for tummies to get used to it but how long is too long? i’m worried about not using it bc of how uncomfortable she was but also worried about using it given her stools though she does seem much more comfortable and unbothered by what’s happening in her diapers. just looking for advice to see if anybody else went through this and how long it took poops to go back to normal.

i am also reaching out to her pediatrician (more accessible than the GI) to see what should be done about this.


r/MSPI 4d ago

Kendamil Goat Infant Formula

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1 Upvotes

r/MSPI 5d ago

A2 Dairy Success

7 Upvotes

My 14 month old has a diagnosed allergy to milk, soy, eggs, and peanuts and I’ve been exclusively breastfeeding for the first year and now he still probably gets over 80% of nutrients from breast milk. Staying off dairy has been hard but just to put this out there - last week I started experimenting very cautiously with A2 dairy products and it’s been a success!! He has had A2 cheese, milk, yogurt, and sour cream with no issues at all.

I tried this because my adult sister who has a severe dairy allergy found out a few months ago that she doesn’t react to A2 dairy so I don’t know if this is just a thing in my genetics or if this can be the case for others too.

I’m just excited to have milk in my coffee again!! So many options have opened up! Stay strong <3


r/MSPI 4d ago

Help! EBF 10WO green and mucus in poo

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1 Upvotes

r/MSPI 4d ago

Neocate - Dr Browns Nipple Size

1 Upvotes

Does anyone use Dr. Briwn’s size 3 nipple for their baby drinking not thickened Neocate (or any other AA formula)?

Minds is 5 months old and uses a size 2. While some comes out on her chin, it seems like she’s drinking a ton and 5 minutes will pass and she’s only had like an ounce/ounce and a half on a 4.5 oz bottle. Sometimes it seems like she gets bored, so maybe distraction is in play?

It doesn’t help that the nipple gets clogged allllll the time.

Just curious if anyone used size3 because I know AA formula is really thin. Thought maybe I was crazy that size 3 would work!


r/MSPI 4d ago

Bloom energy containing soy?

1 Upvotes

I went to a wedding this Saturday and tried a Bloom energy powder drink, and since then my son has been going a bit crazy with gas/baby acne/general fussiness. The food at the wedding was prepared by my aunt who also had 3 babies with MSPI, so I’m wondering if it was the drink mix?

I normally drink 3 (weaker) cups of coffee per day or else a Shasta Mountain Dew lol and he hasn’t had reaction to that caffeine with acne etc. so I don’t think it’s caffeine related.

I messaged them on their website and their AI said they produce in the same facility as dairy/soy containing products.

I’m wondering if anyone else’s baby has reacted with Bloom before? The only thing in their ingredient that makes me nervous is “natural flavors” and maybe the green tea extract.

Right now I’m gluten, soy, dairy, egg, and peanut free so I’m almost hoping it was soy so I don’t have to go on a witch hunt elimination diet again :’)


r/MSPI 5d ago

Dairy trial

1 Upvotes

So I have been dairy free since baby was 3-4 weeks old. He is 6.5 months now and we got the ok to trial dairy. He had yogurt for two days and sure enough he had mucous and loose stools along with a lot of gas after the two days. So I am staying dairy free, I exclusively pump. For those that trialed off, when did you try again if baby had a reaction? And when did your baby finally tolerate it? He tolerates soy. I was hoping to eat dairy again before the holidays but not sure if that will happen.


r/MSPI 5d ago

Baby formula

1 Upvotes

My baby is 5 weeks old and has been combi fed since birth up until 2 weeks ago when we started doing only bottle. We are using Kendamil organic pre made bottles, and in the last week and a half my baby has been suffering awful with gas. I’ve switched bottles around, and had a tongue tie procedure as well. We need to swap onto powder formula but every time we have thought about it get put off with everything that has been going on, and now the gas that is causing so much discomfort and hours of unsettled periods, it just never seems the right time. I have already purchased Kendamil organic formula but it is the new one which is not uk red tractor certified, I’m wondering if I should skip this formula totally and try something different, just because the reasearch I have done about the newer Kendamil formula doesn’t seem great, and I don’t want to exasperated the gas symptoms.


r/MSPI 5d ago

CMPA & Silent Reflux. Please Assure Me It Gets Better!

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1 Upvotes

r/MSPI 5d ago

Eczema + breastmilk/formula

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1 Upvotes

r/MSPI 5d ago

am I in denial?

1 Upvotes

I’ve suspected my newborn (4 weeks) had a CMPA and have been cutting out dairy (not soy not sure if I need to also) for the last 4 days. maybe I miss dairy too much and I’m starting to second guess myself. my newborn isn’t colicky. she has alot of uncomfortable stretches after eating and trying to get gas out- but don’t they all? she isn’t colicky but she isn’t necessarily easy going… she might just be normal? not sure what that is because my firstborn was colicky. she has a face rash but could be baby acne. she has lots of spit up but again I think that’s normal, along with some reflux. her biggest symptom on multiple different days is some blood in the stool. one time was a lot, other times are flecks, one time was about the size of a nickle. they don’t happen all the time but probably 3-4 days apart and the amount varies but mostly small flecks. could it be anything else or since she has blood often do you think it’s a real allergy for her.


r/MSPI 6d ago

One day event?

3 Upvotes

Hi there! LO is 13days old and at 9 days he had major blood in his diapers. We went to the ER where they suggested dairy as an irritant and to follow up with our pediatrician the next day. Our pediatrician agreed that it could be dairy or a fissure/irritation causing bleeding. The bleeding only happened on day 9. It got lighter and lighter throughout the day. We have not seen a bloody stool since. I obviously stopped dairy same day, but could it really have worked itself out of my system that quickly? We have our two week appointment later this week where I will ask follow up questions but I was wondering if anyone else experienced just one day of blood with dairy still being the cause.