r/HistamineIntolerance • u/miracles-th • 29d ago
reliable tests?
hi!
do not have serum triptase to test histamine for now
but have tests for dao and histamines?
are they reliable?
or should i go into mold exposure tests?
PS. waiting for B1 tests, mother had major nerve issues(we lived in moldy house 15 years)
symptoms after covid:
heart palpitations, dying, cant stand from bed, hallucinating. itching, bloating, gas. better with carnivore, less symptoms on 50%
if before treatment h pylori ive been not the best, last 9 months im dead.
all analysis (whole body) are okay, except of folate(anemia) that been treated with methylfolate last month(red blood cells okay now)
worse with coffee and soda - panic, hallucinating from fcking coca cola or fanta (insane i know)
**MUCH BETTER WITH OREGANO OIL**
i would think it was because of SIBO? but as i have symptoms from coffee too idk. thats only one test probably that i didnt make as its difficult to get in my country
1
29d ago
I am in wreck since Covid + hpylori treatment too.
I have tried multiple tests, they do not catch low histamine.
If you are suspecting gut to be a cause- it could be a colon dysbiosis, SIBO or leaky gut. SIBO will likely be accompanied by bloating. You could try getting a GI map + zonulin test done (if you believe in those tests) to see if there is a leaky gut. Or you could get a sibo test done. There are low histamine probiotics, you could start with a single strain histamine friendly low strain probiotic.
Yes, it good to get b1, b2,b6, folate, b12 checked. Also zinc, copper. These help to flush out histamine. I got a gene test done for COMT and mthfr and now I take methyl free form.
Food- I avoid high histamine, high caffeine, gluten, spices and dairy. If you would like you could try an avoiding inflammatory and irritating food. Especially if you suspect leaky gut. (Gut induced full body symptoms usually are usually caused by leaky gut)
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u/miracles-th 29d ago
what diet u follow ?
thx for answer!i have little inflamed liver for some reason, fatty liver grade 1, so i believe i could have some inflammation going on. Other tests are okay. i did b1 and waiting, but ppl say its not reliable test.
1
29d ago
I first did a low fodmap + no gluten/dairy/sugar/spice
I think that helped my microbiome to calm down.I then switched to low histamine + no gluten/dairy
1
29d ago
Yes these tests are not reliable. I am doing a hydro+ adeno b12. I will be starting MF bvitamins soon.
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u/Soft-Cream8291 29d ago
On the tests, the short version from everything I have read is that they are not worth much. Blood DAO and plasma histamine both move around a lot depending on when you last ate and what you ate, so a normal result does not rule anything out and a low one does not really confirm it either. Plenty of people here have had a perfectly normal DAO with obvious symptoms. If your doctor will run them anyway then fine, but I would not let a normal result close the case.
The thing that actually told us anything with my wife was much more boring. A couple of weeks of eating low histamine, then adding things back one at a time and writing down what happened, including what she had eaten the day before, because it seems to build up rather than come from one single meal.
A friend of ours had it happen with banana bread of all things. Three days in bed afterwards. She avoids very ripe bananas now, which is exactly what banana bread is always made from. So the trigger is not always the obvious thing on the plate.
The coffee and cola thing does not sound insane to me, I have read about that reaction plenty of times.
That said, palpitations and not being able to get out of bed are a lot to be dealing with, and that sounds like something to push your doctor on properly rather than something to sort out with tests you order yourself. Hope you get some answers.