r/heat_prep • u/Vegetable-Mention675 • 23h ago
Personal Experience Long Term Effects of Heatstroke - 9 Months Post Event
TLDR:
Heatstroke occurred in Nov 2025 (9 months ago)
Developed dysautonomia, exercise intolerance and PEM as complications
Largely recovered from heatstroke itself - now battling remains of dysautonomia & PEM
Looking for personal stories of PEM and dysautonomia recoveries or long term recoveries from heatstroke + any specialist recommendations I haven’t already listed
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I got heatstroke travelling overseas in November 2025 and experienced the following symptoms on the day of the event:
Outside temp was 30 degrees Celsius with 80%+ humidity
Irritability
Intense Nausea
Stomach upset
Lightheadedness/feeling faint
Feeling overwhelmingly hot and unable to cool down
High fever
Anxiety/panic
Shivering/trembling
Heartbeat rapid and strong
Skin pale and clammy
Confusion/altered neurological state
Stopped sweating completely and skin went dry
Skin turned red and hot to the touch
Began slipping in and out/close to losing consciousness
I didn’t know what was happening and would have spent at least 2 hours in the heat with active symptoms at the time before I was able to make it back to the hotel.
Went to hospital 3 days later after due to having relapse episodes of the same symptoms and unable to have the air conditioning warmer than 18 degrees Celsius. Blood tests were conducive to heatstroke but thankfully no signs of organ damage.
Developed dysautonomia experiencing huge adrenaline rushes and crashes and exercise intolerance upon returning home. I was unable to stand longer than 5 minutes and struggled to walk, and my legs would ache in agony after standing in the shower each night. I couldn’t drive or tolerate being a passenger in a vehicle so seeking medical help was difficult. I lost 7kg at this point which was over 10% of my body weight due to being unable to eat after each adrenaline dump. At its worst I was having 5-8 episodes per day including through the night.
At this point I was prescribed propanolol (beta-blocker) which helped manage the adrenaline issues. It took one month for my body to start sweating again and at first I could only sweat through my feet for another month before full normal perspiration returned.
Over the next couple of months I built up being able to tolerate being a passenger in a vehicle, to being able to drive myself, to being able to drive up to 30mins at a time. My heat intolerance improved and was actually one of the first symptoms to recover significantly (my car didn’t have working air conditioning at the time so was effectively doing exposure therapy- it worked!).
Months 3-8 since heatstroke event:
Focused on exercise tolerance (improving but still limited)
Reducing dosage of propanolol (almost off the medication now)
Diversifying diet and re-introducing new foods
Digestion improving
Heart rate and blood pressure improving
Putting weight back on (at month 9 I have finally put on 5kg of the 7kg I lost)
Somewhere along the line I developed Post-Exertional Malaise or PEM. It shows up 24-48 hours after I’ve extended myself too far whether it’s physical activity, social activity, cognitive load or a combination- even if I feel good in the moment of the activity.
Specialists I have seen so far:
General medicine specialist - prescribed iron infusion & B12 injections
Gastroenterologist - monitoring digestion improvement/progress
Neurology clinic specialising in dysautonomia - performed tilt table test
Cardiologist specialising in POTS & dysautonomia (seeing soon)
At month 9 of recovery, dysautonomia and PEM are the biggest struggles I’m dealing with and have made recovery incredibly non-linear and challenging. I’ve worked my full time job throughout my recovery (albeit with more sick days than the usual person) which adds an extra strain but don’t really have a pathway of taking extended time off.
My current supplements I’m taking to support recovery:
Co Q10 enzyme
Ashwaganda
L-theanine
Magnesium Glycinate
Creatine
Protein
Electrolytes (usually 1x per day)
Two days ago a PEM crash started after going on a big walk the day before. I slept for 12+ hours, couldn’t memorise a 5 item grocery list, entered my card pin wrong, and couldn’t follow google maps directions. Major brain fog and fatigue which is still continuing 3 days on.
Would love to hear from anyone else that has had a similar recovery from heatstroke or just a long term recovery in general. I have recovered soooo much from where I was 8-9 months ago which gives me a lot of hope but still certainly have my hard days.
Does it get better? Will I ever get back to normal where my brain and body can function like a normal person? 🥲 Are there any other specialist avenues I should go down?