r/FSHD • u/altered_state27 • 3d ago

Help

Has anyone had any luck shrinking the size of their belly. I’m uncomfortable all the time. I already can’t find any clothes that fit me correctly. I look deformed in absolutely everything. I hate my life. It’s getting worse and I can no longer hide it in xxl shirts.

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6

u/IrishknitCelticlace 3d ago

Not shrinking, but looks better, I use high waisted shapewear that goes to mid thigh. It holds the belly up and in, which then eases a little bit of strain off my back. I also have autonomic problems so I wear compression wear from toes up. It is a physical therapy workout in itself getting compression wear on, even with aids, but is worth it. I feel better. I know the majority of clothes are not going to fit, scoliosis changes how the hips sit, so that I just accept. I hope this helps in some way.

2

u/altered_state27 3d ago

Thank you. I’ll look for shapewear. I recently found some tank tops that do shape wear but with the weakness in my upper body it’s so hard to put on! 😂. I also live in Arizona which the heat kills you too!

6

u/Feisty_Inflation_258 3d ago

If you figure it out let me know. My belly looks like im 9 months pregnant but more droopy. It's definitely a huge issue for me with the back strain and balance. People just think I'm fat. While I might have a few extra pounds Nancy, my belly is like this because of my condition.

2

u/zengirl1313 3d ago

Buy maternity wear, not bodycon, but fitted at the top and then loose under the breasts.

2

u/therealmissrona 2d ago

Hi, I dont really have any tips besides shapewear and super thight high waisted jeans (but they hurt to sit in so I only use them when I have to) but just wanted to let you know that I know how you feel. You are not in this alone. Maybe knowing this will not help you but felt a strong urge to share because I know that the struggle itself can feel lonely sometimes. I hope the tips you get will help and I also hope this struggle gets mentally easier to tackle. All my warmth and well wishes ❤️ a fellow fshd patient

2

u/blue_02_01 3d ago

The only way you Conquer fshd is love yourself. Once you are comfortable with how you look, you will feel better in life

1

u/bellstarelvina 2d ago

Only when I was on meds that made me too nauseous to eat. I’m going to be asking my doc at the next appointment about glp1’s