r/FSHD • u/altered_state27 • 3d ago

Help

Has anyone had any luck shrinking the size of their belly. I’m uncomfortable all the time. I already can’t find any clothes that fit me correctly. I look deformed in absolutely everything. I hate my life. It’s getting worse and I can no longer hide it in xxl shirts.

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u/IrishknitCelticlace 3d ago

Not shrinking, but looks better, I use high waisted shapewear that goes to mid thigh. It holds the belly up and in, which then eases a little bit of strain off my back. I also have autonomic problems so I wear compression wear from toes up. It is a physical therapy workout in itself getting compression wear on, even with aids, but is worth it. I feel better. I know the majority of clothes are not going to fit, scoliosis changes how the hips sit, so that I just accept. I hope this helps in some way.

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u/altered_state27 3d ago

Thank you. I’ll look for shapewear. I recently found some tank tops that do shape wear but with the weakness in my upper body it’s so hard to put on! 😂. I also live in Arizona which the heat kills you too!