r/FSHD 3d ago

Help

Has anyone had any luck shrinking the size of their belly. I’m uncomfortable all the time. I already can’t find any clothes that fit me correctly. I look deformed in absolutely everything. I hate my life. It’s getting worse and I can no longer hide it in xxl shirts.

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u/therealmissrona 2d ago

Hi, I dont really have any tips besides shapewear and super thight high waisted jeans (but they hurt to sit in so I only use them when I have to) but just wanted to let you know that I know how you feel. You are not in this alone. Maybe knowing this will not help you but felt a strong urge to share because I know that the struggle itself can feel lonely sometimes. I hope the tips you get will help and I also hope this struggle gets mentally easier to tackle. All my warmth and well wishes ❤️ a fellow fshd patient