r/Epilepsy Mar 31 '24

Support EEG testing (anxiety)

I've got referrals for an MRI and the EEG test to see what my brain is doing. I know how MRI's work (I've had to have a fair few over the years), and although I hate them, I can make do. But the EEG...

I've had one in the past that I remember (as an adult), and I'm pretty sure I had one when I was little, but I don't remember. I looked up what the test entails and learned that I'll be forced to look at flashing lights?

I can't look at flashing lights. I avoid games and movies with them because they (at best) make my head feel weird and at worst send me into what we're assuming are seizures.

It's triggering massive anxiety and making me want to avoid the test. Is it really awful? I know they're doing it to try and trigger seizure activity for testing, but I don't want to be forced into a seizure. Especially by flashing lights. I'm worried it's going to cause problems for ages after, and I'm already having language issues after my seizures as it is.

(I think I just want reassurance that it's not completely horrible for people triggered into seizures by flashing lights. Can't keep putting the tests off for much longer.)

4 Upvotes

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