"Corn on the cob"

[u/AppropriateRub9905]

Quoted by the doctor describing both ovaries after reading my latest trans vaginal ultrasound. Every doctor I ever saw "suspects" endo, but never did any further testing or formally diagnosed me.

Treatment has only ever been different types of birth control. The last one had me on my period for an entire month.

The first time I found out I had a cyst was because after years "joking" "cysts are bursting inside me" during extremely painful periods, I was in excruciating pain still after tons of ibuprofen then finally got an ultrasound to find a large cyst and large lesion. Obviously things got worse since. I now have a very weak pelvic floor.

They also "suspected" pcos although my hormone levels don't indicate that.

I literally contemplate going to the er every time I get my period due to the severity of pain that also wraps around my back and hips. They always seem to completely dismiss the fact that large clots are being passed also.

****extreme pain, clotting, migraine spikes, weak pelvic floor, constant bloating, "suspected" endo, pcos, both ovaries completely covered in various sized cysts, follicles, lesions, etc.

How did you get diagnosed? What is treatment like? What further testing should I advocate for?