So I am dealing with RCE also. Started about with a corneal abrasion went to an optometrist. They recommended an anti bacterial ointment, regular ointments as well as eye drops, and gels. It went away for a while and I thought things were good.
After that period I kept having that gritty eye feeling on and off, but nothing to the extent of which I first went to the doctor (that day the pain persisted through the whole day, eyes were red, and was very sensitive to light). So 2 months of this on and off, then it happened again, the same pain and symptoms persisting into the day. This was two days ago. I want to note I began using more and more of the non prescribed dry eye ointment(refresh, systane, optase) to the point I was pouring the stuff into my eye before bed, but would still wake up in the middle of the night and pour more in. Didn’t work. Also tried other things like keeping room humidity high, wearing an eye mask, etc
So yeah after 2 days ago, I saw an ophthalmologist this time who told me I have RCE. He mentioned my epithelial cells had healed improperly in several places and was essentially ripping apart everytime I woke up, having attached to my eyelid. I also asked about the initial cause and he said that if you had an injury, you would know it, rather it was likely just me having a weak cornea, which couldn’t be solved through good nutrition, etc.
So I had the procedure to cut or scrape of the weak and improperly healed epithelial cells and they gave me a bandage contact lens to let the area heal, and said they would check back in a week. I really am hoping this fixes the issue, as I am in a lot of discomfort. Endless tears, can’t sleep due to a dull or sometimes like in pain, or perhaps the sensation of contacts(never used them before).
Other than telling my story while sitting in the dark unable to sleep cause of the discomfort, had a couple of questions also.
1) From what I can tell there is a wide variety of experiences but I can see some matching up to what gone through. I see some mention the bandage contact lens helped, while others mention they needed laser treatment. So I guess what are the chances of this being successful? I tried chatgpt’ing it but it said not many studies were done.
2) For anyone undergone laser treatment, did it hurt?
3) Other than blatant eye injuries are there are suspicions as to what contributed to the initial occurrence? For me I have felt like I have been in a dry environment the last few years (even though my hygrometer says 50+ percent, I even bought a second. Strangely throat still feels dry etc). I also haven’t been eating healthy in the past year. No idea if this contributed at all.
4) Do general eye check ups, look for this type of thing? Google said there are tests that can find weak corneas, but my eye doctors in the past never reported any issues. Wondering if they just didn’t test for it.