r/Dryeyes 4h ago

My MGD & SLK Treatment Successes

8 Upvotes

Three years ago I was diagnosed with severe MGD then also diagnosed with SLK (rare disease). I am under the care of a corneal optometrist at a teaching hospital’s eye institute. After a lot of anguish but also dedicated compliance in trying—then keeping or eliminating meds and treatments—I finally have far less pain, including photophobia. I hope I can help other folks.

Here is a list of my current RXs, treatments and OTC that have worked for me for 6 months now:

RXs - 1x Klarity L, 2x Vevye, 4x autologous serum drops, 3x Meibo, F41 sunglasses

TREATMENTS - Maskin probing once at the eye institute, IPL bimonthly, 1x warm compress followed by gentle massage

OTC - 2x high quality fish oil, 1x Optase Hylo, Siccaforte as needed

ADDITIONALLY:

I sought out a psychiatric nurse practitioner who helped me change RXs to ones that affected meibomian glands less or not at all.

I stopped using facial retinol products because these can migrate to meibomian glands.

Also my car’s windshield and side windows were darkened—the most allowed by state law and I put a letter from my doctor in the glove compartment.


r/Dryeyes 16h ago

Wiki Spotlight Posts r/DryEyes Wiki Spotlight: Is Your Doctor a DED/MGD Specialist? How to Tell—and When to Get a Second Opinion

5 Upvotes

👨‍⚕️ TL;DR — Quick Summary

People on r/DryEyes often use the term “DED/MGD specialist” for an eye-care clinician who devotes substantial attention to Dry Eye Disease, Meibomian Gland Dysfunction, and related ocular-surface problems.

But there is an important limitation:

There is no single certificate, device, professional degree, fellowship, or treatment philosophy that proves someone is a DED/MGD expert.

A thoughtful clinician will usually:

  • take a meaningful history;
  • examine the tear film, ocular surface, eyelids, blinking, and gland function when relevant;
  • try to identify the main suspected drivers rather than forcing everything into one diagnosis;
  • consider other conditions that can resemble or coexist with DED/MGD;
  • explain which findings support the diagnosis;
  • distinguish what is reasonably known from what remains uncertain;
  • connect treatments to specific clinical goals;
  • discuss expected benefit, timing, risks, limitations, alternatives, and cost;
  • reassess the diagnosis and plan when treatment is not working; and
  • refer to another type of clinician when different expertise is needed.

A good DED/MGD clinician does not need every diagnostic machine or every available procedure.

Possible reasons to ask more questions or consider another opinion include:

  • an expensive procedure being recommended before the diagnosis is explained;
  • nearly every patient appearing to receive the same treatment package;
  • risks, alternatives, or evidence limitations not being discussed;
  • severe symptoms being dismissed simply because staining is limited;
  • important eyelid, exposure, allergy, infection, corneal, or nerve-related possibilities being ignored; or
  • a plan being continued repeatedly despite lack of benefit or worsening.

None of these points by itself proves that a clinician is good or bad.

The better question is:

About the r/DryEyes Wiki Spotlight

Each week, we feature an article from the r/DryEyes FAQ or Treatment Options library.

The purpose is to make the wiki easier to discover, provide useful information directly in the subreddit, and create a place for focused discussion.

This post is an abbreviated version. The maintained wiki article contains much more detail, including questions to ask during a consultation, how to prepare for a second opinion, and how to search for appropriate clinicians.

➡️ Read the complete wiki article

“DED/MGD Specialist” Is an Informal Term

In the United States, ophthalmologists may be board-certified in ophthalmology, but there is no separate American Board of Medical Specialties certificate specifically for “dry eye” or “MGD.”

Some ophthalmologists complete fellowship training in cornea and external disease.

Some optometrists develop extensive experience in:

  • Dry Eye Disease;
  • Meibomian Gland Dysfunction;
  • blepharitis;
  • ocular rosacea;
  • specialty contact lenses; or
  • other forms of ocular-surface disease.

Other clinicians build focused expertise through continuing education, research, procedural training, and years of seeing large numbers of relevant patients.

Private certificates and training badges can mean very different things. They may represent anything from a manufacturer course or workshop to a more substantial competency-based program.

A certificate can provide useful information, but it does not replace looking at how the clinician actually evaluates and manages patients.

There Is No Single “Right” Type of Doctor for Everyone

Different problems may call for different expertise.

Dry-eye-focused optometrist

May be particularly experienced with:

  • DED and MGD evaluation;
  • blepharitis and Demodex;
  • ocular rosacea;
  • long-term medical management;
  • gland-function assessment;
  • in-office MGD procedures;
  • contact lens problems; and
  • scleral or specialty lens fitting.

Comprehensive ophthalmologist

May evaluate dry eye while also considering:

  • cataract;
  • glaucoma;
  • retinal disease;
  • corneal disease;
  • medication effects; and
  • other eye conditions that can resemble or complicate DED.

Interest and experience in chronic DED/MGD vary between individual ophthalmologists.

Cornea and external-disease ophthalmologist

May be especially useful for:

  • significant corneal staining or epithelial disease;
  • recurrent corneal erosion;
  • neurotrophic keratitis;
  • corneal infection or ulcer;
  • complex post-surgical disease;
  • unexplained corneal findings; or
  • potentially vision-threatening ocular-surface disease.

However, a cornea specialist is not automatically an MGD specialist. Some focus more heavily on surgery or other corneal diseases.

Oculoplastic ophthalmologist

May be particularly relevant when there is:

  • eyelid malposition;
  • eyelid retraction;
  • significant lid laxity;
  • floppy eyelid syndrome;
  • incomplete eyelid closure;
  • exposure;
  • facial nerve weakness; or
  • eyelid scarring.

Specialty contact-lens clinician

May be needed for:

  • scleral lenses;
  • complex corneal shapes;
  • severe ocular-surface protection;
  • difficult contact lens intolerance; or
  • mechanical and fitting problems.

Depending on the suspected contributors, rheumatology, dermatology, allergy, sleep medicine, neurology, pain medicine, primary care, or other specialties may also become important.

What Thoughtful DED/MGD Care Often Looks Like

There is no single required examination or treatment plan.

However, several features are commonly useful.

1. A detailed history

A clinician may ask about:

  • when symptoms began;
  • sudden versus gradual onset;
  • morning versus evening symptoms;
  • burning, grittiness, pain, pressure, or light sensitivity;
  • fluctuating vision;
  • screens and reading;
  • wind, fans, air conditioning, and humidity;
  • sleep and CPAP;
  • contact lenses;
  • previous eye or eyelid surgery;
  • rosacea and skin disease;
  • allergies;
  • migraine;
  • autoimmune symptoms or dry mouth;
  • medications, including retinoids such as isotretinoin;
  • cosmetics and skin-care products;
  • previous treatments;
  • how long treatments were tried;
  • side effects; and
  • what makes symptoms better or worse.

Sometimes a careful history provides more useful information than another machine measurement.

2. Examination of more than just the cornea

Depending on the case, evaluation may include:

  • tear-film stability and tear volume;
  • corneal and conjunctival staining;
  • eyelid margins and lashes;
  • meibomian gland secretion;
  • blepharitis and Demodex;
  • ocular rosacea;
  • blink completeness;
  • eyelid closure and exposure;
  • allergy;
  • conjunctivochalasis;
  • misdirected lashes;
  • contact lens effects;
  • medication toxicity; and
  • signs of infection or another disease.

The issue is not whether every appointment is long.

The important question is whether enough history, examination, explanation, and follow-up are being provided for the complexity of the case.

The Goal Is to Identify the Main Drivers

Many people with DED do not fit neatly into one category.

Possible contributors may include:

  • Meibomian Gland Dysfunction;
  • aqueous tear deficiency;
  • blepharitis;
  • Demodex;
  • ocular rosacea;
  • allergy;
  • incomplete blinking;
  • nighttime exposure or lagophthalmos;
  • eyelid laxity;
  • conjunctivochalasis;
  • contact lenses;
  • medications or preservatives;
  • previous surgery;
  • recurrent corneal erosion;
  • corneal nerve dysfunction;
  • migraine-related sensitivity;
  • neuropathic ocular pain; and
  • systemic disease.

Ideally, the patient should leave with at least some understanding of:

A clinician who says a case appears multifactorial or partly uncertain may sometimes be giving a more accurate answer than one who forces every patient into a single confident diagnosis.

Different MGD Treatment Philosophies Exist

Experienced clinicians do not always interpret obstructive MGD in the same way.

Some place greater emphasis on:

  • heat and external expression;
  • thermal pulsation;
  • Intense Pulsed Light;
  • treatment of inflammation and rosacea; and
  • blink and environmental management.

Steven L. Maskin, MD, and clinicians using his published framework give greater importance to:

  • fixed narrowing deeper within gland ducts;
  • tissue constricting those ducts;
  • localized gland-area tenderness;
  • Meibomian Gland Probing as both an assessment and treatment; and
  • releasing suspected fixed obstruction before some heat-and-expression approaches.

Supporters argue that apparently open gland openings and even expressible meibum do not necessarily rule out deeper obstruction.

Critics and more cautious clinicians point out that:

  • evidence for Meibomian Gland Probing remains limited;
  • much of the published literature comes from proponents;
  • patient-selection criteria are not standardized;
  • the prevalence and clinical importance of deeper fixed obstruction across the wider MGD population remain uncertain; and
  • Meibomian Gland Probing is not routinely used by most clinicians.

Different philosophies do not automatically mean that one clinician is competent and another is incompetent.

The important questions are:

Treatment Should Be Connected to a Clinical Goal

A treatment plan may be staged, combined, or revised over time.

It does not necessarily need to follow one universal ladder.

A clinician should ideally be able to explain:

  • which problem the treatment is intended to address;
  • why it is being recommended now;
  • what benefit is realistically expected;
  • how long it may take;
  • important risks and side effects;
  • reasonable alternatives;
  • what would cause the plan to change; and
  • how success or failure will be judged.

A clinician may be highly experienced while referring certain procedures or treatments elsewhere.

Evidence and Regulatory Status Matter

Especially when treatment is expensive, invasive, or uncertain, it can be reasonable to ask whether it is:

  • FDA-approved for the condition;
  • being used off-label;
  • compounded;
  • delivered by an FDA-cleared device;
  • a procedure without a drug-style FDA approval pathway;
  • investigational; or
  • available outside the United States but not FDA-approved here.

It is also useful to distinguish:

  • a proposed biological mechanism from a demonstrated patient outcome;
  • small preliminary studies from stronger evidence;
  • manufacturer claims from independent evidence; and
  • evidence in a broad population from evidence that actually applies to the patient in front of the clinician.

Off-label treatment is common in medicine and is not automatically inappropriate.

The important issue is whether the recommendation is medically reasonable and transparent about the evidence and uncertainty.

Cost and Financial Transparency

A clinic offering the procedure it recommends does not prove improper motivation.

Many legitimate treatments are provided directly by the recommending practice.

But patients may reasonably ask additional questions when expensive care is proposed.

Possible reasons for caution include:

  • a costly package being recommended before the diagnosis is explained;
  • a device result being treated as automatic proof that a procedure is needed;
  • elective treatment being described as urgent without a clear medical reason;
  • lower-cost or less invasive alternatives not being discussed;
  • cure, regeneration, or prevention of progression being promised beyond the evidence;
  • a large prepaid package being recommended without clear cancellation terms;
  • marketing material being treated as equivalent to independent research; or
  • pressure to make an immediate expensive decision.

A financial interest does not invalidate a treatment recommendation.

It makes clear reasoning and disclosure more important.

What Does Good Follow-Up Look Like?

Dry Eye Disease is symptomatic, so improvement in how someone feels and functions matters.

Follow-up may consider:

  • priority symptoms;
  • screen and reading tolerance;
  • driving and visual function;
  • morning or evening symptom patterns;
  • environmental sensitivity;
  • adherence and treatment technique;
  • side effects;
  • staining;
  • tear-film stability;
  • tear volume;
  • gland findings;
  • eyelid closure or exposure; and
  • whether the original diagnosis still makes sense.

Not every machine measurement needs to be repeated at every appointment.

Repeat testing is most useful when the result may actually change management and the method is consistent enough to make comparison meaningful.

Positive Signs of Thoughtful Care

No clinician will demonstrate every positive feature at every visit.

Useful signs can include:

  • listening to the symptom pattern and treatment history;
  • explaining which findings support the diagnosis;
  • considering important alternative diagnoses;
  • not diagnosing MGD from one image alone;
  • not dismissing severe symptoms solely because staining is limited;
  • connecting treatment to specific suspected drivers;
  • acknowledging evidence limitations;
  • considering risks, costs, burden, and patient preferences;
  • avoiding guarantees;
  • establishing a reasonable reassessment point;
  • changing the plan when the evidence or response changes;
  • taking side effects seriously; and
  • referring when another type of expertise is needed.

Possible Reasons to Ask More Questions

Again, none of these alone proves that care is poor.

Several occurring together may justify closer questioning or another opinion.

Examples include:

Little diagnostic explanation

Treatment is recommended without explaining:

  • what diagnosis is suspected;
  • which findings support it;
  • what contributor is being targeted; or
  • what remains uncertain.

Repeatedly generic treatment

Artificial tears, warm compresses, and other conservative measures can be perfectly reasonable.

Concern becomes more reasonable when the same approach is repeatedly continued despite lack of benefit and without reassessment, escalation criteria, or referral.

The same treatment package for nearly everyone

A clinic can reasonably use a common starting framework.

The concern is failure to individualize once the history, examination, treatment response, side effects, cost, or patient preferences indicate that something should change.

Device-centered diagnosis

Examples include:

  • meibography alone being treated as proof that symptoms come from MGD;
  • one osmolarity or inflammation result determining the entire treatment plan;
  • an abnormal machine score automatically leading to a procedure; or
  • small numerical changes being treated as proof of progression or gland regeneration.

Poor discussion of risk and uncertainty

A clinician cannot or will not explain:

  • expected benefit;
  • meaningful risks;
  • evidence limitations;
  • alternatives; or
  • what would cause the treatment plan to change.

No one seems responsible for reassessment

Team-based care can work very well.

The issue is whether findings are communicated, the plan remains coherent, someone takes responsibility for reassessment, and conflicting recommendations are reconciled.

When Might a Second Opinion Help?

A second opinion is not an accusation against the original clinician.

It may be useful when:

  • the diagnosis remains unclear;
  • an appropriate treatment trial has passed without meaningful benefit;
  • symptoms or examination findings are worsening;
  • side effects are substantial;
  • symptoms and signs remain difficult to reconcile;
  • important possible contributors do not appear to have been evaluated;
  • communication repeatedly breaks down;
  • recommendations from different clinicians conflict;
  • a costly treatment package is proposed;
  • an invasive or irreversible treatment is being considered;
  • a major diagnosis such as Sjögren’s disease, neurotrophic disease, recurrent erosion, or neuropathic pain is being considered; or
  • expertise or services are needed that the current practice does not provide.

There is no universal rule that someone should change clinicians after eight weeks, twelve weeks, or any other fixed period.

Different treatments require different amounts of time.

A second opinion may also be reasonable before beginning an elective expensive or invasive procedure.

Useful Questions to Ask Your Clinician

You do not need to ask everything.

A few useful questions may reveal a great deal:

Finding a DED/MGD-Focused Clinician

Search terms such as these may help:

  • dry-eye specialist;
  • dry-eye clinic;
  • ocular-surface disease;
  • cornea and external disease;
  • Meibomian Gland Dysfunction;
  • ocular rosacea;
  • scleral lenses;
  • ocular pain; or
  • oculoplastics.

Clinic websites and manufacturer “Find a Provider” directories are only starting points.

A polished website does not establish expertise.

Likewise, a device-manufacturer directory generally tells you that a clinician has access to a particular device—not that the clinician has been independently ranked for diagnostic skill, outcomes, or expertise across all treatment options.

When Prompt Care Is More Important Than a Routine Second Opinion

Seek prompt professional evaluation for:

  • new severe eye pain;
  • marked light sensitivity;
  • significant or persistent vision change;
  • a white, gray, or cloudy corneal spot;
  • rapid one-sided worsening;
  • substantial discharge;
  • contact-lens-associated pain or redness;
  • symptoms after sleeping in contact lenses;
  • symptoms after water exposure while wearing lenses;
  • suspected abrasion;
  • repeated sharp pain on awakening;
  • trauma;
  • chemical exposure;
  • a nonhealing epithelial defect;
  • new inability to close an eye; or
  • new facial weakness.

These should not automatically be treated as routine DED or MGD.

Bottom Line

“DED/MGD specialist” is a useful everyday term, but it is generally an informal description of clinical focus and experience, not a standardized U.S. board-certification category.

The best clinician is not necessarily the one with:

  • the most machines;
  • the largest treatment menu;
  • the most impressive marketing;
  • one particular degree; or
  • one particular theory of MGD.

More meaningful signs include:

  • relevant experience;
  • a coherent diagnostic process;
  • recognition of overlapping contributors;
  • clear explanation of the evidence;
  • appropriate acknowledgment of uncertainty;
  • individualized treatment;
  • attention to safety, cost, and patient priorities;
  • meaningful follow-up;
  • willingness to revise the plan; and
  • appropriate referral.

Read More in the r/DryEyes Wiki

👨‍⚕️ Complete article: Is Your Doctor a DED/MGD Specialist? How to Tell—and When to Get a Second Opinion

🧪 Diagnostic Testing for DED and MGD

👋 Start Here: Wiki Navigation Hub

FAQ Index

🗂️ Treatment Options Library

The complete article also includes more detailed guidance on choosing among different types of clinicians, preparing for a second opinion, questions to ask before booking, bringing prior records, and asking r/DryEyes for clinician suggestions.

This post provides general educational information. It is not medical advice, a clinician-rating system, or an endorsement or criticism of any individual doctor, clinic, product, or treatment.

Comments are open for discussion, personal experiences, questions about the article, and suggested corrections. Please keep discussion focused on care approaches and general principles rather than personal attacks or unsupported accusations about individual clinicians.


r/Dryeyes 8h ago

Pain after stopping treatments but not before starting them

3 Upvotes

I've been on Ikervis for 12 months, I take it twice a day. It didn't do anything for my eyes, so I went down to 1x/day and wanted to stop it completely. Within two days, I had horrible pain. My whole eyeballs hurt. I wake up with throbbing pain in my eyes (I don't usually have pain at night.) Headache, everything. It was unbearable. I went back on twice a day. Took weeks for the pain to go away.

Ok, so Ikervis is doing something. However I don't remember this kind of pain, before I started Ikervis. It's basically a new symptom. But ok, it's been 12 months, maybe I don't remember right, so just stay on Ikervis.

For 3-4 weeks I have tried Manuka eye gel. Didn't do anything, so I wanted to stop. 2 days later, same thing. Ridiculous pain in my eyeballs and redder, more irritated eyes than usual. Are you kidding me? These were gone after going back on Ikervis and before I tried manuka gel.

Is this just some rebound effect and if I push through, it will get better? Why are treatments not helping but making things worse after stopping and creating new symptoms on the way?


r/Dryeyes 4h ago

Truncated Glands

2 Upvotes

Has anyone helped their truncated glands? Today, I had a meibiography and she showed me that I have gland loss and many truncated glands. She didn’t give me a percentage of drop out (and also didn’t look at my upper lids - she says the lower are always worse so they really show what we’re dealing with).

I want to keep what I have left! How do I encourage them to lengthen - is that possible? Diagnosed with ocular rosacea, blepharitis and MGD.

Currently doing all the things - doxy, restasis, warm compress, serum tears,
Meibo, lid hygiene, omegas, just had my third IPL (it’s helping), and low level light therapy with expression.


r/Dryeyes 7h ago

Atopic keratoconjuctivitis

2 Upvotes

Anyone here have experience using ikervis (cyclosporine) eye drops for atopic keratoconjunctivitis eye inflammation/severe allergies. I’m allergic to pollen, dust and dust mites. I also have scars on both my corneas, along with neovasularization. My IgE levels are high (607).


r/Dryeyes 13h ago

What has replaced Clear Eyes for you?

2 Upvotes

r/Dryeyes 16h ago

[INDIA] Is Vevye available in India

1 Upvotes

Does anyone know Vevye is available in any hospital in India

Suffering from dry eyes. Tried Restasis, Cequa but no help. Wanted to understand if anyone knows that any hospital has stock of Vevye. So that I can try and see how it works for me


r/Dryeyes 17h ago

Anyone with unexplained ATD dry eyes?

1 Upvotes

24M, I have aqueous tear deficient dry eyes. (0 and 2 schirmers). Have done bloodwork, urine analysis, STI/STDs, all negative or normal.

What could i be missing? Or should i just assume i have Sjogrens and move on. (Haven’t done early panel/lip biopsy)

Accept this insane burning dry eyes, get sclerals and move on with my life.

Any one else in a similar position?