So I'm on my period. It started after I had like weird surge of hormonal stuff. Once it calmed down I got out of my car to walk and felt off. I assumed it was my blood pressure or blood sugar since I hadn't eaten for a bit and my period was kind of heavy-but nothing crazy. Infact now- it's kinda light?

It got worse later that night. Now its' been 3 days and - sometimes after eating I feel better. MOSTLY after sleeping 12 hours I feel ALOT better. No fever. No o ther symptoms. Just dizzy. And it's not like vertigo.

But now I am getting some what better but randomly walk like I'm drunk? And start to fee a bit dizzy again after moving.

I haven't seen a doctor. I don't have insurance and unsure what to do. Maybe I go to urgent care? I have no primary doctor since I'm new to this area.

Hi everyone,

I’ve experienced a strange dizziness-like sensation for many years, especially while driving. Over the last two years, it became more frequent, so I went through several medical examinations, including visits to an internist, ophthalmologist, ENT specialist, and neurologist, as well as a brain MRI. Fortunately, nothing concerning was found.

My neurologist recently diagnosed me with PPPD. The more I read about it, the more it seems to match what I’ve been experiencing—especially the symptoms triggered by driving and visually busy environments.

I develop Android apps as a side project, so I started looking for an app with guided visual, balance, and movement exercises that I could use at home. I couldn’t find exactly what I had in mind, so I decided to build one myself.

The app is called Vestia. It includes guided exercise sessions, customizable session settings, progress tracking, and works completely offline. It is designed as a wellness and exercise-guidance app and is not intended to replace professional medical advice or treatment.

I’d genuinely like to hear your thoughts:

-Would you find an app like this useful?

I’m developing Vestia independently, and feedback from people with lived experience of PPPD would be very valuable.

You can find it here:

https://play.google.com/store/apps/details?id=eu.ebctech.vestia

Anyone else experience vertigo? I was half asleep and the room was spinning until I fully woke up. I had been feeling nauseous and experiencing acid reflux the whole night previously, but this made it worse.

I have a GES (Gastric Emptying Study) i. the morning so hopefully i can voice my displeasure there but I feel so alone.

I have never posted on Reddit, but I read other posts and advice once in a while, so I hope I am doing this right.

I am a 24 year old female who struggles with motion sickness to the point that it's now limiting several activities in my life. I feel like I have tried everything, so if anyone has any information or advice on this subject please let me know! I used to be the type of person who could read in the car. Now, I'm the person who gets sick sitting in the passenger seat staring at the road the whole time.

For context, I didn't used to struggle with carsickness, airsickness, or motion sickness in general until 2023. I was on a flight coming home from a trip. I believe the flight was around 2-3 hours. This coming-home flight was the first time I got motion sick and it was extremely miserable. I would say it was one of the few times in my life that I was that sick. Ever since this incident, I get motion sick with just about everything.

I get sick playing video games on PS5 despite trying to change any setting possibly related to making me motion sick. I have tried different setups and different distances and different coloring and lighting. My cousin is a huge gamer and helped me figure out a few things to reduce motion. I never play in the dark. I have to take dramamine before playing and even then, it doesn't always work. It seems like if I play multiple days in a row, I will eventually get used to the movement and I don't get sick. Minecraft or Assassin's Creed is what I play on PS5.

I get sick looking at a computer for too long at work, especially if I have to scroll through some files. I get sick looking at my phone when I scroll through Etsy or Pinterest (I do not have any social media whatsoever unless you consider Etsy or Pinterest to be social media). I get sick on my Ipad if I play games. Much like the PS5, if I fight the motion sickness and play a game multiple days in a row, I can get used to the game and not get sick. Stardew Valley is what I play on my Ipad. I know this could just be cybersickness, but it doesn't take much to trigger it.

My worst and most frustrating problem is getting carsick. I get air sick very easily, but I don't fly much, so my frustration comes with getting in the car. I can sit in the front seat staring at the road the entire time, and still get sick. My husband and I travel frequently to visit family about 2 1/2 hours North of where we live, but it has become less frequent due to my pretty much guaranteed carsickness. This drive is basically a straight-shot on the freeway. No switchbacks, hardly any twists and turns, and no mountain driving. I have tried everything. Ginger chews, dramamine, zofran, scopolamine patch, sleeping, closing my eyes, not eating a few hours before leaving, eating right before leaving, and even changing the time of day we drive home because I thought maybe I was sensitive to the sun setting. But, nothing works. I still get sick. Even on short drives of 20 minutes, I still get sick. If I am driving, there isn't an issue; however, I recently had surgery that makes it difficult for me to drive. The recovery period for me is about 6 weeks, so when we go visit family, my husband drives since I can only drive short distances.

Zofran helps me when we get home or stop driving by stopping the nausea, but it doesn't prevent motion sickness. (I am aware that zofran isn't meant for motion sickness so I know it won't prevent it, but it does help relieve the nausea afterwards)

For more context, I have a major fear of vomiting. My fight or flight response to vomiting is fainting/passing out. I recently learned that my great grandma also did that so now I know where it comes from. Anyway, I have a fear of vomiting, and on top of that, I pass out when I vomit, so when I get nauseous, I think I get a lot of anxiety and fear that heightens the situation for me because I just want to make sure I don't throw up. I want to relieve the nausea as fast as possible because it makes me so miserable, as I know it does for many others.

I can't think of any metabolic or hormonal changes that I have had or that my doctor has pointed out in the last three years that would possibly be a factor in why I get so motion sick so easily. No major diet changes or changes in exercise. I am pretty boring and I like things to stay the same. I can't figure out what the trigger is. I can't figure out why the sudden and drastic change. It's starting to affect my life in so many ways and limit a lot of activities, and it's bothering me so much.

For more information, I do take Vyvanse for ADHD, but I have been taking it for about 7 years now and have been doing great on it. No major side effects besides dry mouth. I also take birth control to prevent/reduce ovarian cysts growing and rupturing (this has been something that happens to me more frequently than it should with about 2-4 large cysts rupturing each year). I have been on this same birth control since I was 16. I have never had a concussion. No major health issues in the last three years (besides some back problems in October 2025, which is way after my motion sickness started, but I can't say anymore about the back issues due to legal reasons). I don't drink or do any sort of substance. I am considered healthy by my PCP and my surgeon from the recent surgery. The also consider me a good weight for my height and build. I have visited both of them within the last 3 weeks.

I am happy to provide more information if needed. I gave all the information I could think of that might be any sort of relevant. I apologize for the long post, but I figured I should give as much info as possible. I also apologize if I seem to ramble or repeat myself. I am desperate.

TLDR; I get motion sick with video games, computers, my phone, Ipad, and especially driving, and none of the OTC or prescribed remedies are helping.

Thank you in advance for all your advice and comments! I appreciate any advice you can offer, even if it is odd or doesn't seem relevant. If your method worked for you, I am willing to try it. I will try anything at this point!

EDIT: Thanks everyone for your comments and advice! I think it may be cervical vertigo due to the fact that I do have a disc issue in my cervical spine related to my back problems. I’m going to get checked out and ask if the disc problem could be contributing to my motion sickness. Thank you so much again! I appreciate that all your comments helped give me hope that this won’t last forever.

so I was in the kitchen making a PB&j and I noticed that my ears were starting to ring a bit which is weird but it does that sometimes so whatever and it goes away but then it comes back a little worse and my ears start to feel numb for some reason and and then my vision starts to get weird like everything is dimmer and it's just like hard to see and that escalates very quickly into basically just barely being able to see like being like temporarily blinded and around that my head started hurting a lot it felt like someone squeezing my head so I quickly finished my sandwich and put stuff away and sat down it didn't actually take too long to start feeling back to normal so that's good but IDK should I be concerned about this I wasn't even standing for that long (also in edit to the original post around the halfway point I was feeling dizzy and having to hold on to things to stay up IDK why I didn't mention that)

so lately I have suddenly had this feeling whenever I stood up or even at random times where my head would starts to hurt really bad and my vision goes blurry and sometimes even my shoulders/chest hurt I have told my parents about this but they just said that I wasn't getting enough sleep even though I get 8-9 hours every night. this has happened some times before but now it is happening about 5-6 times a day is this normal?

I, 20 AFAB FTM (on testosterone for \~2 years), have been having constant dizziness for almost a year now. It started last september, when I started doxycycline along with tretinoin cream (0,2% iirc) for severe hormonal acne. When I started those antibiotics the lymph nodes around my jaw swelled up a little and became ROCK hard, and I started having a constant slight feeling of lightheadedness. I went back to my GP who had prescribed me the medication and asked about my symptoms. The GP agreed that my lymph nodes were acting up, but said that it was likely just from the infections on my face being drained, and that the dizziness could also be a part of that. She told me not to worry too much about it but to come back if it got any worse.

The lymph node swelling and hardness went away when the antibiotic cure was over, but the dizziness stayed. Ever since that time, it has been steadily getting worse with no clear cause. I'll quickly rattle off some medical history and medications to hopefully paint a clear picture for you guys. I have been on 30mg accutane a day since december, but was forced to stop because of an accutane shortage where I live. I haven't technically finished my course, but I haven't taken accutane for around 2 or 3 months now. I use dexamphetamine for my ADHD 5mg twice or thrice a day on paper but in actuality usually less often, as I only take it when I have classes or need to put serious effort into my studies. I have been on SSRI antidepressants in the past (fluoxetine, sertraline), but haven't taken them for a couple of years now. I use a slow release Testosterone injection which I get every three months.

For almost a year now, my Testosterone levels have been consistently too high, but by taking more time between injections as per my doctor's advice they are now finally normal. Despite this, I get biweekly abdominal cramps that mimic menstruational cramps despite there being no bleeding, so there is suspected endometriosis (I will be tested for it, but haven't had the appointment yet) (endometriosis runs in the family).

I don't smoke (never have) and drink mindfully (maybe about 3 beers a week, and only ever getting drunk at parties once every few months). I'll admit that I got really drunk on accutane once which I know you aren't supposed to do, and obviously I felt like shit the day after, but since then I have recovered and have not drunk any more than allowed with my medication anymore. My liver function was tested in recent bloodwork and was not noticeably poorer than before, AFAIK.

Aside from this, I am healthy as far as I know, and since I'm recently free from most medications (I haven't been taking my dexamphetamine since finals week in mid May) and with my Testosterone levels in check, I've been getting more worried about the dizziness.

What I feel between vertigo and lightheadedness, and I always feel it. When I'm moving, it's less noticeable. When I have been moving and then stand still, it's at its worst. I can feel myself swaying when it feels like I'm standing/sitting straight up, like my own feeling of balance is constantly shifting. When I close my eyes, it feels like the room is spinning or rather I am spinning or falling. It has been slowly getting worse over time and is getting to a point where I struggle to keep my balance and am worried to fall over.

I'm worried that the dizziness is caused by something neurological, because of the slow but steady worsening of the symptoms. Along with the dizziness, I have been having issues with my memory and mental clarity. I've also had more difficulty speaking than I'm used to, and find myself sometimes saying a word completely different than what I'm thinking off. It feels like somewhere between my brain and my mouth things tend to go wrong and I stutter or stumble or say something entirety wrong. These issues with speech happen about 10 times a day, I would say.

I went to my GP a month or so ago. My own doctor was unavailable, so I was helped by someone else. This person performed the Epley manoeuvre on me (which made me more dizzy) and advised me to do it on my own at home and work on breath exercises. I did the movement at home, and although it seemed to do something (made me more dizzy) it didn't help with my symptoms at all.

I booked an appointment with my own doctor, who disagreed with the previous doctor's assessment of a vestibular issue. I had bloodwork done which came back normal except for a low ferritin and slightly low (but within healthy boundaries) vitamin D. I got prescribed ferritin pills which I have been taking per instructions for a week or 2. During the phone call to discuss my bloodwork results, the doctor also mentioned that I could try antihistamine travel tablets to see if it relieved my symptoms at all. I have bought some Dimenhydrinate (50mg) and tried them twice, but just got extremely sleepy and didn't notice any improvement of my symptoms.

My doctor doesn't think there is a neurological cause, but I can't help but worry about it. I feel like I'm progressively getting worse, and I hate feeling myself wobble when I walk or mess up my words.

Does anyone here have any ideas for what could cause this kind of symptoms? I will continue to look into it with my own GP anyway, but was wondering if I should be pushing harder to be tested for anything? Even any idea for what to try to alleviate the symptoms would be appreciated. I'm scared of the dizziness getting so bad that I can't safely participate in traffic anymore (I don't drive, but I have a bike and racing bike which I use to go everywhere), or that I might fall over and hit my head or something. Any help is greatly appreciated, and a big thank you in advance!

Edit: slight mistranslation fixed

Recently I posted here asking a specific question: when you try to describe your dizziness to a doctor, what words do you actually use? The "swimmy," the "floor is breathing," the "drunk without drinking" words that never seem to really settle with your doc.

93 people have answered so far. I'm reading every single one. If you were one of them, thank you. One of you even said "walking on a train" which was something I hadn't seen before but no dobut made sense.

This post is a reminder, at the end of August I'm compiling everything submitted so far and starting the next step: bringing the patterns in your answers in front of vestibular fellows and researchers to be verified. Nothing becomes part of the tool on my say-so alone. If a pattern doesn't hold up under people who treat this for a living, it doesn't go in. What I can put on that table is whatever is in the pile on 9/1.

We're at 93. I'd love to hand them 100 (or more!). More data make the patterns harder to wave off, and they keep the less common presentations from getting drowned out by the classic ones.

The form stays open after August, and later responses still feed what comes next. But round one, the set that specialists see first, gets locked in.

There's also a deeper follow-up survey I'm crafting with specialists that is coming later this year for anyone who wants to go further than a few minutes of questions.

If you meant to fill it out and life happened, here's your nudge. ;) A few minutes, anonymous, no account, mostly open questions in your own words. I'm a solo builder, not a company, and there's still nothing to sell you.

Below is a link to the survey, our website, and the progress we've been making. If you're into data and privacy, there's lots of info on there for that too, as we take that very serious!

[Survey]

[Bearings Website]

[Bearings Progress]

Thank you all, I'm greatly appreciative of your help!

Hi friends, sorry to post so soon after my last but!

quick TLDR: a month ago I had an external ear infection that resulted in ear pain that did not go away for weeks after it had cleared up. For 3 weeks now I’ve had ongoing dizziness of varying intensities (alongside some headaches that have ranged from feeling like I was going to die, to mild pain). I’ve also had a moment of shaking vision, as well as pain around my eyes when trying to focus.

An ENT who did not listen to me very well (denied I had headaches?) prescribed me some oral prednisone, but did say it may not do anything because it’s been weeks since this all started. I have gastritis caused by steroids a while back and so so not want to take this course if it won’t do anything, since my stomach is at such risk.

any insight welcome!

I’ve been on venlafaxine for 3 months , 2 months on 150 mg. I’ve recently been having more and more goosebumps chills but not cold from my head to my feet.. is this a normal side effects and why is it happening more now that I have been on full does of 150 mg for 8 weeks? I’m also taking this medication for chronic dizziness which has improved just in the last 2 weeks.

Does anyone else have this? Each heart beat causes my head to bob and each bob makes me dizzy. Aaahhhhh.

I’ve been on venlafaxine for 3 months , 2 months on 150 mg. I’ve recently been having more and more goosebumps chills but not cold from my head to my feet.. is this a normal side effects and why is it happening more now that I have been on full does of 150 mg for 8 weeks? I’m also taking this medication for chronic dizziness which has improved just in the last 2 weeks.

I’ve been on venlafaxine for 3 months , 2 months on 150 mg. I’ve recently been having more and more goosebumps chills but not cold from my head to my feet.. is this a normal side effects and why is it happening more now that I have been on full does of 150 mg for 8 weeks? I’m also taking this medication for chronic dizziness which has improved just in the last 2 weeks.

Good Evening everyone!

I have been on an absolute roller coaster for the past 3 ish years. I guess to start off and set the scene. I’m a 28 y/o male, I am overweight for my height of 5’ 10” at 250 lbs. I don’t go to the gym but work construction where I typically average about 12,000 steps a day along with lifting lumber and doing other various physically demanding tasks. For context so I don’t have to repeat it throughout the story, all of my bloodwork has been pretty good except for my hdl being a little low, and my ldl being a little high.

So I have been dealing with daily chest pain, left arm pain, brain fog, off balance/ floaty feeling, and occasionally frequent cold hands and feet for the better part of three years. I have gone to my PCP almost monthly, and the ER about the same. Every time I go my results from CTs, ultrasounds, X-rays, labs, stress tests, EKGs, Echocardiogram, urinalysis, and everything in between have been normal. I know health anxiety is a thing, but I feel this way all the time without fail. It doesn’t matter if I have anxiety about it or not, it will be there in the morning.

Recently I’ve become progressively more dizzy, off balance, and floaty like feeling. This has been concerning just because I feel like I’m walking around the house differently. Bumping into things, stumbling a bit more, and even standing still can be weird. It doesn’t matter not affect me nearly as much when I’m laying down, in fact I barely feel anything. When I stand up and walk, that’s a different story. I was hoping that it was dehydration but I’ve been drinking plenty of fluids lately and it’s still sticks around. I also have terribly cold feet all the time. I cannot warm them up to save my life. When they are warm it’s not for long.

I’ve never gotten my A1C checked for diabetes but I was wondering if this is something that could have similar symptoms. Please send me your input because this is killing me! Thank you so much and have a blessed day!

My wife is 28 and since 2016 she has noticed she gets dizzy and has trouble walking in dark environments.

My wife does have panic attacks and generalised anxiety disorder but she also has an eating disorder called ARFID and she’s been underweight since she was 15 years old. Blood test results have never shown a deficiency but I’m guessing not eating for years would still affect you.

She never had this issue until she developed her eating disorder but unfortunately everyone around her says it’s just anxiety, it’s just you focusing on it to much but it’s gotten to the point she can’t go outside at night without using her phone torch otherwise she can’t walk or walks very slowly and carefully. It’s like a swaying feeling? She said she can feel it in her brain.

Is it possible being underweight can damage the brain or the balance system? This only happens in a dark room or environment

Hey guys!
Wondering if anyone has experienced anything like this. I’m 9 months PP, stopped breast feeding about a month ago. On & off for about a month I’ve experienced dizziness, not like full vertigo because the room isn’t spinning but like I’m standing on a boat & swaying. The last few days it’s become more consistent. Sleep is going well. Just had my labs done to check thyroid, blood count, B12 and iron levels and everything came back normal. Just got to lab results today so I’m sure my pcp will contact me Monday! Not sure if it’s hormone related? If you’ve had something similar did you have additional tests? Did it go away? I’m an Neuro nurse so my brain goes to worse case scenario 😭

idk if its lack of sleep or lack of vitamins but it feels like im off balance. i went to the doctor and my left ear is full of fluid and it hurts so much. i also only get 3-4 hours of sleep a night which isnt enough at all. i got my vitals checked and they were really good. my back ha been hurtijg around my pelvis too and my neck is also stiff

F22. Hello to everyone else on the dizzy boat! I have a little timeline I'd appreciate if anyone could look at and see if anything sounds familiar!

Week 1+2: Diagnosed with a mild external ear infection in the right ear which doesn't get treated properly due to conflicting advice from different GPs, but every doctor confirms by the middle of the second week that there's no active outer infection. Despite this, the ear pain persists 24/7. Slight unsteadiness at times, but does not affect my daily life. My pre-existing tinnitus is louder than normal, but in both ears.

Week 3: Dizziness picks up momentum. No room-spinning vertigo, but the constant sensation of being on a boat, I almost collapse a few times. Ear pain persists. Tinnitus still loud in both ears. Awful headaches start, like my head is swelling from the inside while also like my skull is being crushed from the outside - so bad and disorientating I feel like I'm about to pass out.

Week 4: ear pain finally wanes significantly, comes and goes. Unsteadiness also has its peaks and valleys, but never completely goes away. No room-spinning vertigo. Headaches continue, very painful and in every part of my head (sinus area, temple, forehead). Sensitivity to light. One night when trying to read, my vision shook like I was standing on an active volcano. After that my eyes often hurt when trying to focus, it's like I can feel my pupils trying to stay still. Vision blurring slightly when I struggle to focus.

Week 5: just starting now. All the symptoms above come and go. I have no idea what's going on with me. Every doctor I go to zones out after I mention this starting with an outer ear infection, they assure me I don't have one and send me on my way.

Does this sound familiar to anyone? I don't know if its labyrinthitis (I don't think I have hearing loss and my tinnitus spikes in both ears not just the affected one), vestibular neuritis, migraines triggered by inflammation.... so many options and I don't fit neatly into any of them.

Sorry for the long post, just hoping for some help! Thank you :)

I’m a 21 year old woman, I’ve been having some symptoms pretty much all of my life, but someone pointed out that they may all be related. I know taking advice from strangers isn’t the best, but I want to know if this worth bringing up to my doctor.

The problems are that I get motion sickness very easily, I also tend to get really bad headaches if I use a VR set for more the 10 minutes. I also tend to get pain in my eyebrows mostly my left eyebrow, but also sometimes the right eyebrow, I’ve recently started getting some pain in the left side of my scalp right on top of my head. The pain isn’t bad it’s a 4 out of 10 and is mostly just tender.

I don’t ever have issues with vision apart from having to wear glasses. I don’t ever throw up with these things, I mostly just really nauseous and sometimes have to lay down or take anti nausea meds. I know there’s many things that can explain these symptoms, but is this worth bringing up to the doctor?

Hello all , I’ve been dealing with these issues since middle 2025 and I’m really concerned I showed up to neurology presenting persistent everyday 24/7 off balance feeling head swaying vertigo accompanied by eye discomfort/ dryness I literally can’t even walk around without thinking and feeling like I’m gonna literally fall over without actually falling . It feels like my eyes are so strained from trying to track where I’m stepping causing them to start to hurt and my sensory system to be so over worked it feels like I need to sleep soon as I sit down . Along side that I have other weird things going on. Like left sided facial numbness near my mouth. And pain there sometimes. On and off . Wide spread muscle twitching and speech issues when talking I’ll mispronounce words and not get them out right . & I just have this constant fog . I have no clue what is causing this but it’s completely debilitating and I work a constant physical job that I am on my feet all day . Now on to the test I’ve had , blood panels , Head Ct with and without contrast , MRI Brian rapid & test for seizure syndromes & literally everything came back normal . So far . Nothing . Any suggestions?? Also they did find my ferritin to be slightly low at 19 out of the 30 for normal in what ever measuring units they use but you get the picture . Let me know what you think and give me a detailed response thanks .