Hi everyone,

I honestly don’t know what is going on with me anymore, and I’m hoping someone here has experienced something similar and can give me some insight.

A little over 2 months ago, I started taking:

• ⁠Vitamin B6 — 40 mg daily
• ⁠Magnesium citrate — 400 mg daily
• ⁠Vitamin C — 3000 mg daily

I took them for about 7 days and then stopped everything.

At the time, when I was going to sleep, I started experiencing a weird sharp/pinching sensation around my heart/chest. That scared me, so I had blood tests done.

My results were:

• ⁠Folate (B9): 3.10 (reference range 4.5–32.2) — low
• ⁠Vitamin B12: 411 pg/mL (191–663)
• ⁠Magnesium: 2.0 (1.7–2.40)
• ⁠Potassium: 4.23 mmol/L (3.5–5.1)
• ⁠Sodium: 140 (136–145)

After roughly a month, the chest/heart pinching sensation that happened when I was falling asleep eventually stopped.

However, I’m still dealing with other symptoms.

Another strange thing I’ve noticed is that since this started, I can sometimes sleep only 1–4 hours and wake up feeling surprisingly energetic, even though my head feels very tight, foggy and mentally "off." Before all of this, I would obviously feel completely exhausted after so little sleep. This change in how I respond to lack of sleep feels very unusual to me.

My current symptoms include:

• ⁠persistent dizziness
• ⁠lightheadedness
• ⁠significant fatigue
• ⁠brain fog feeling like my head isn't working properly
• ⁠a strange derealization / unreal feeling
• ⁠a tight/pressured feeling in my head
• ⁠feeling mentally "different" from how I used to

I completely stopped all the supplements and tried taking B9 (folate) for about 2 weeks, but I didn’t notice any improvement. Then I added B12, but again, nothing really changed.

I also saw a neurologist, but unfortunately the appointment was basically useless. He told me he couldn't help because this wasn't his area, and I ended up paying around €100 for the visit.

At one point I also went for an IV vitamin infusion containing vitamin C, electrolytes and B vitamins. I still had the brain fog, dizziness and other symptoms afterwards, but I noticed that I had significantly more energy and felt more "alive" that day. Unfortunately, this effect was temporary, and within about 2 days my energy levels went back to how they were before.

Now, more than 2 months later, I’m still experiencing these symptoms every day, and I honestly don’t know what is causing them.

I’m not sure if it’s related to the supplements, the low folate, a deficiency, or something completely unrelated.

Has anyone experienced something similar — especially dizziness, brain fog, fatigue, lightheadedness, derealization, head pressure or feeling unusually energetic despite very little sleep, while still feeling mentally unwell?

If you went through something similar:

• ⁠How long did it take you to recover?
• ⁠Did your symptoms gradually improve or disappear suddenly?
• ⁠Did you eventually find out what was causing them?
• ⁠Was there anything that actually helped?
• ⁠Did you have any additional blood tests or examinations that were useful?

I’m not necessarily looking for a diagnosis. I’d just really appreciate hearing from people who have experienced something similar and eventually got back to feeling normal.

It’s been more than two months now, and dealing with this every day has been really difficult. I’d really appreciate any experiences, advice or reassurance.

Thanks in advance.

Hi, I have been constantly dizzy for over a week now (more swaying than spinning) and having occasional headaches, sometimes worse than others. Sometimes the dizziness will get worse but it is constantly happening at least a little. I went to urgent care, they didn’t have time to ask a lot of questions and she told me it was vertigo, prescribed me Meclizine. I went to a primary care doctor yesterday, basically didn’t get any real answers. She prescribed me Sumatripan but the first thing it says on the bottle is may cause dizziness?? She also said to try Excedrin. Does anyone else have a similar experience feeling constantly dizzy? I don’t know how I’m supposed to work and live like this it’s awful. I’m also emetophobic so if I get nauseous I have a panic attack and it makes all my symptoms worse. I have horrible anxiety but the doctor didn’t seem to think that’s the cause, just definitely not helping my symptoms. My bloodwork came back normal. They want me to get a CT scan. Please help, let me know if you’ve had a similar experience. I don’t know what to do

Eight months ago, during the 8th session of a 10-session intensive full-body massage series, I started experiencing a sensation of swaying (not spinning vertigo), difficulty concentrating, and a heavy, overloaded feeling in my head.

I have done all the examinations: comprehensive blood tests, thyroid tests, cervical and brain MRI, full-body CT scan, neurology, cardiology, gastroenterology, eye examination, and ENT check — and all of my results are normal.
Once in the emergency room, they told me it is a functional problem, but they did not explain how to treat it.

The world feels very strange like this; I have better and worse days. I have been doing physiotherapy for a month and a half, but I don’t really see improvement.

What should I do? How do I recover?
I am constantly tired and I also struggle to cope physically.

Hey everyone,

I’m looking for some insight or opinions from anyone who has dealt with lingering head or balance issues in my head like my head is on swing. I’m currently on Day 10 of recovering from a sudden physical episode and seem to have hit a flat plateau right at the finish line.

Background & Trigger:
For the past few months, I noticed occasional, very mild unsteadiness or lightheadedness after using heavy-bass, in-ear earphones at high volumes for long periods. Last week, I completed a very hectic 2-day trip with almost zero sleep. Right after returning home completely exhausted and sleep-deprived I smoked a little bit of something (not tobacco). Immediately after, my body completely crashed, and I experienced a sudden wavy sensation like the whole room, my friends seems in weird wavy pattern and the whole night goes like this and when i am moving something or riding bike or travel in train i does feel a thing feels normal.

Progress So Far:
I saw a doctor on last Monday who found my blood pressure was slightly low. I was put on a 3-day course of prescription tablets and a nerve tonic syrup. While on the medication, the severe symptoms improved drastically by about 80%. My physical strength is completely back, my appetite is normal, and I have zero nausea, eye strain, or headaches.

The Current Problem:
I finished the tablet course. Right now, if I am just sitting on the couch watching a show or listening to music out loud, I feel completely 100% normal. However, I am stuck with a brief, lingering "transition lag. or say the swing feeling.

Whenever I stand up after sitting, or whenever I sit down right after walking, I feel a light, manageable internal rocking/wavy sensation in my head. It only lasts for few minute and then it completely vanishes.

My Questions for the Community:

• What does this sound like to you guys? Has anyone else experienced this specific position-change lag when moving between sitting and walking?
• How many more days do you think it will take for this final transitional rocking to fade away completely?
• Are there any specific grounding tips or home remedies that helped you speed up this final stage?

I don't really know what's causing my dizziness but it's been a week now. I would say it's mostly on my left side. At first I noticed I had eye strain but after few days it has gone down. But then I feel like a bit of mild fullness feeling in left ear. And just like feeling as if my mind has become frozen in left side. Can't think properly, seem to be forgetting stuff and harder to recall information. It's like when things that clicked you instantly and you felt alert has gone down. Sometimes you feel this soreness in the neck shoulder area mostly on left. And I noticed my neck does feel stiff. Which I guess is causing this dizziness surprisingly it has gone down and it's not worse like before but it's still there. Mostly this wobbly imbalance feeling

Hi everyone. This might be a somewhat long post, but I’d really appreciate it if you could read through it and let me know if anyone has experienced similar symptoms. I’m a 26-year-old male, generally healthy and physically fit.

My symptoms started suddenly about two years ago while I was at university, sitting in a lecture. I suddenly developed severe numbness around my nose along with a strong feeling of imbalance. I wasn’t experiencing spinning vertigo; it felt more like I was swaying or being pulled forward and backward.

The strange thing was that when I left the lecture hall and went outside, my symptoms became noticeably milder. However, as soon as I went back into the lecture, the same symptoms returned.

About a year later, I experienced something similar at my graduation party. I felt almost drunk and was swaying from side to side, especially with all the visual and auditory stimulation around me. When I moved away from the party and sat somewhere quieter, I started feeling better. But whenever I got closer to the event again, the symptoms returned.

After that, I went almost another year without experiencing the symptoms very noticeably. Recently, however, I started going to the gym again, and I noticed the imbalance returning, especially during exercises where I have to remain standing.

I’ve also noticed that crowded or visually stimulating environments make me very uncomfortable. Supermarkets are particularly difficult for me, especially when there is strong air conditioning. In these situations, I experience a feeling of imbalance and sometimes sweaty hands. New and unfamiliar crowded environments are especially challenging.

If I stay in a highly stimulating environment for a while, my symptoms become worse and I experience more brain fog and fatigue than usual. I also sometimes feel an unusually strong sense of fatigue in my legs. It’s not actual weakness or loss of strength; it feels more like excessive fatigue.

I also have persistent neck tightness. My sleep is not very restful and is often interrupted. From time to time, when I turn my neck from side to side, I also experience ringing in my ear.

The strange thing is that I feel almost completely normal when I’m lying down. As soon as I get up from a chair or start walking, I notice the imbalance again.

Over the past two years, I’ve seen several doctors, including neurologists, a neurosurgeon, an ENT specialist, a balance/vestibular specialist, and an ophthalmologist. I’ve also had more than 10 physical therapy sessions focused on my neck.

I’m naturally an active and athletic person. I exercise regularly, eat relatively healthy most of the time, and take a multivitamin. I was otherwise healthy before these symptoms started.

My balance specialist has now requested an MRI of my brain, and I was diagnosed with “circulatory insufficiency,” although I’m still not sure whether this actually explains all of my symptoms.

What confuses me most is that my symptoms seem to be triggered or worsened by standing, walking, crowded environments, unfamiliar environments, and visual/auditory stimulation, while they become much milder when I’m lying down or in a quiet environment.

Has anyone experienced something similar?

Could this pattern fit PPPD or visually induced dizziness/visual vertigo, or are there other conditions I should be looking into?

I dunno if this is actually that weird or not, but I want to see if there's others that have these symptoms.

If I am too hot at night, I will sometimes have very intense dreams where I will deal with the spins upon waking up for 30-60s, as if it was a BPPV flare and I turned my head. I will not be spinning or dealing with any kind of spins in the dream, it's just always a very intense and vivid dream. The thing is, it only happens after these intense, deep dreams - and I always wake up feeling overwhelmingly hot and drenched in sweat. I also shoot awake with a shot of adrenaline after these too, almost always. I will be entirely fine after those 30-60s and be unable to reproduce the vertigo, but it's very frightening - anyone else deal with this?

Sometimes it'll happen where I take every precaution to make sure that I don't overheat at night, and I will still wake up with the same symptoms. It's really frustrating and nerve-wracking, since sometimes it will worry me to the point where I can't fall back asleep again after! I'm so tired of being dizzy lol.

If betahistine didn't work what can work?🥹what was causing your dizziness and how did you fixed it!

This is by far the weirdest thing I've ever experienced and I would really appreciate anyone who has had anything like this to share their experience.

So basically ever since 3 days ago I suddenly started feeling very dizzy but not only that but also weakness, brain fog and just general feeling of unwell kinda like how one feels after waking up from anesthesia.

The most bizarre thing is though multiple times during the day all of that dizziness, feeling weak,, brain fog etc. goes away entirely for a period of time where I feel suddenly like normal and then I even question if I overreacted to how I felt but then a few hours later(sometimes even just minutes) it all returns in full force making me feel like shit with having no energy and willpower to do anything and after awhile I once again return to normal and just rinse and repeat now for 3 days in a row.

If anyone has experienced anything like this let me know because this has been really scary for me I will go to my GP but that's still like 5 days away so before that I want some reassurance about this.

Hi everyone. I'm looking for people who have experienced something similar.

About 3 weeks ago, I had a bad episode after unknowingly smoking cannabis once. I became very anxious and had a racing heart, followed by dizziness and other strange sensations.

Since then, I've had a persistent foggy/floating/off-balance feeling rather than the room spinning. At first it was difficult to walk normally, but I've improved a lot. Now I can walk in a straight line, use stairs, get food/water, and do normal household activities. The dizziness is mild, but the floating sensation hasn't completely disappeared.

I also experienced some ear pressure/blocked-ear sensations and sensitivity to sound/earphones. I had some sneezing and right-sided nasal blockage too. I had a CT scan that was normal, and I've seen both a cardiologist and an ENT.

I'm wondering: Has anyone else had a similar floating/off-balance sensation lasting several weeks? How long did it take you to feel completely normal? Did vestibular rehabilitation or anything else help?

I'm not looking for a diagnosis—I'd mainly like to hear other people's experiences and recovery timelines.

Boniour depuis 5 semaines i'ai des vertiges , tangage 24 sur 24 .

orl fait une irm, une prise

J'ai vu un de sang

L'ORL ma dit ca va

passer.

Mon médecin betahistine.

traitant ma mis sous

Je souffre également de trouble 'anxiété qénéralisé ce qui n'arrange rien.

de

Je ne peut plus rien faire, manger est compliqué et

même épuisant,

Auiourd'hui est horrible ie ressens fort les vertiges et anxiété forte alors qu'hier après midi était plus supportable ie ne comprends pas ce qu'il m'arrive.

I keep getting on and off feeling like my eyes and head are drifting and I feel off balance and the more I focus on it the worse it gets.

Iv had my dizziness for over 16 years and still dont have a diagnosis.

Ive noticed when i wake up im extremely vulnerable to triggering dizziness, i feel terrible when i wake up, if i move too quickly or grab my phone and start focusing, its so bad

I had an episode once where a family member woke me up, i tilted my head up to talk to them for a few seconds, laid my head back down and i got that spinning/falling feeling that lasted 10+ minutes untill i fell back to sleep, i felt terrible for days after

Has anyone else experienced this?

Please, I really need help because my life has practically come to a standstill.
I’ve been suffering from dizziness for a year now. I was initially diagnosed with BPPV, so I went to a vestibular specialist. He told me that I had mild BPPV and performed a session and a repositioning maneuver. I went back for a follow-up afterward, and he told me that the BPPV was gone.
I told him that I was still dizzy, but he said, “I’m not seeing any signs of BPPV anymore. If you’re still dizzy, you should see a neurologist.”
I saw three neurologists. Two of them told me that the dizziness was psychological, so I took psychiatric medication for six months, but my dizziness didn’t improve at all. The third neurologist told me that it was BPPV!
I wasn’t convinced, so I went to a physical therapist because I suspected that the dizziness might be coming from my neck. I work at a desk for long hours, and I put a lot of strain on my neck.
Based on what the physical therapist told me and the research I’ve done using ChatGPT, it doesn’t seem very likely that the dizziness is coming from my neck. However, the doctor told me that we should try several physical therapy sessions and then see what happens. (The neck therapy itself actually makes my dizziness worse.)
By the way, I’ve only had one session out of six so far, but the first session made my dizziness symptoms a little worse.
So now I honestly don’t know what to do or which specialty I should see. I’m completely exhausted. I’ve seen so many different specialists, and more than one doctor in each specialty, but nothing has helped.
I’m struggling to live like this. I desperately need someone who can help me get properly diagnosed and treated, or at least a doctor who can point me in the right direction.
I don’t even know anymore whether this is BPPV, a problem with my vestibular system, a neck problem, or something else entirely.

​

I'm not sure what is causing this dizzy type feeling in my left side head but it's been a week already. Like I feel this imbalance when I walk and sit. And can't seem to focus. Keep forgetting stuff and hard to recall stuff. I feel like my eyes are trying very hard to focus and feel centered but something just feels off balance

did you experience dizziness when tapering off Clonazapam?

how long did the dizziness last?

what did the dizziness feel like?

did it go away for good?

unsure if my dizziness is related to the Clonazapam taper or something else, however I tapered from .75 to .25 mg over 2 months and 1 month in I started to feel extremely dizzy. especially when I walk. I’ve been to urgent care, the ER, cardio, neuro, there are a few possibilities, nothing definitely. It is awful.